Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 After years of messing around with little doses of speech therapy, we finally started to commit to real intense therapies for my daughter ( CAPD and Apraxic). We did Fast Forword ( 12 weeks at 1.5 hours per day ) and then eventually mood Bell 24 weeks at 7 hours per day, 10 month break and then 12 weeks at 7 hours per day. My daughter was much older ( 7 thru 12 yrs old). With early intervention and intense focus I bet you would get more significant and quicker results. If I had to do it over again, I would go as intense as possible for as long as possible until the desired results were acheived. Good Luck, n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi Christy Each diagnosis you mention would require appropriate therapies. When you say " intensive therapy " most typically refer to speech -and then you would need to know which type of speech therapy. The sensory integration is treated with occupational therapy for example. Some of the treatments may overlap -both the sensory integration and the speech can benefit from therapeutic listening for example. The key is to stick with proven traditional multisensory therapies and techniques that have been found successful such as Kaufman, Fast For Word, oral motor, or touch cue and also continuing to look outside the box and exploring new multisensory therapies. I highly recommend The Late Talker book -not just because I'm one of the co- authors -but because what I would have given to have that book when Tanner was two! The book will answer many of your questions! If you are able -I would say run don't walk to get to the upcoming apraxia conference in South Carolina. It will be a landmark event where many of the therapies talked about here will be talked about in a way that has never happened before...how they can be used 'together' by those that created each of them! There is information on both the book and the upcoming conference on the front page of the CHERAB website http://www.cherab.org Hope to see you there! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Thank you all so much for sharing your experience with me. My gut has been telling me that he needed more. He has been in OT for a year as the SI was the first diagnosis we received. We have just started a listening program supervised by his OT. It is too soon to tell anything yet but we are hopeful. I am going to run out today and buy the book and hopefully will get a clearer understanding of what we are dealing with. We are currently not doing any type of ABA therapy for the PDD as we are seeing better results with Connor as his SI issues are dealt with. We do use supplement as he is extremely food allergic and has been since birth so we may try some of the suggestions I am reading about in your old posts. I really look forward to gaining some insight in to how to help my little guy. Thanks everyone! Christy and Connor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi, Christy. I know I'm late (behind on e-mails), but just wanted to comment that to find an appropriate therapist, it's important that the person know about apraxia because treatment is different. So I would ask the therapist about his/her experience with apraxia and also his/her views of how apraxia therapy differs from " regular " speech therapy. If the person says they're basically the same, I'd move on. The person should be aware of things like targeted repetition, tactile and visual cuing, oral-motor work, etc. These are some basic elements of apraxia therapy that differ from traditional speech therapy. Hope this helps. Sandy, Illinois (alpy2@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Thanks Sandy, It does help. We have a meeting next week. I would hate to switch therapists but this has to be taken seriously. So if we have to move him, we will. You gave me some great questions to ask! Thanks Again. Christy and Connor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Bumble Bee videos!!!! I used them for Ian when he was between 2-3 years. I credit them with building his basic receptive language skills for objects. It is fun to gather up some of the same items they are talking about (cookie, cow, dog, truck, etc) and use them as tangible props while you are watching the videos. I wish you luck with the Personal Talkers. I don't have any experience with those. Welcome to the group. Oh, you can buy the videos on Ebay or from their site directly. Pam > Hello my name is I am Mom to 3 year old AJ. AJ was born > with a balanced translocation of chromosomes 13 and 14(inherited from > me) and bilateral ideopathic clubfeet. He has mild PVL, hypotonia > and global delays. He is non-verbal and has little means of > communication. We tried PECS, but he was more interested in eating > the cards than looking at them. We have tried sign, but not had much > success. His cognitive skills are behind, but due to his motor and > communication skills we don't have an accurate assessment. They put > him overall developmentally between 9-18 months. > We have been using ProEFA for several months. We did see some > changes in the beginning but not much since. We currently give him 1 > capsule a day but are wondering if we should increase the dose. We > also tried Carn-Aware. He was on it for about a week and ended up in > the hospital with Seizures, which he had never had before. His > neurologist does not think the Carn-Aware was the cause, they think > it was viral, but since she doesn't know anything about it she said > we should err on the side of caution and discontinue using it. > We had an augmentative eval at DuPont last Monday, they > suggested the use of a device called a " Personal Talker " . It is a > small cheap switch that you record on. I order 6 of them on line > from the Attainment Company (they are $9.00 a piece), but we haven't > gotten them yet. > I have also been looking into the Bumble Bee Vocabulary videos. > I was wondering if anyone has had any personal experience with them > and if they thought they were worthwhile. > I would appreciate any other ideas on ways we can help AJ to > communicate. It is getting very frustrating not being able to tell > what he wants. He had eye muscle surgery on the 15th of April. He > did well with the surgery, but for several days following he was very > cranky and kept screaming, which is unusual for him. We finally took > him to the pediatrician and she said it appeared as if his throat was > very red, probably from the tube they put in his throat during > surgery. It would have really helped if he could have told us where > it hurt? > Thanks for your input. I look forward to getting to know the > folks on this board. > > mom to the 4 Aces. 11, 9, 6 and our special > little guy AJ 3. Quote Link to comment Share on other sites More sharing options...
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