hello

[Guest guest]

Hi welcome to the list. Thank you for sharing your success story

because I think your good chol. numbers gives us all more confidance in the

diet. You sound like a very interesting person. I lived in Tacoma when I

was very young and I still remember how beautiful it is in Washington state.

I live in Fla. I get tired of the heat and the sun. Lee

[Guest guest]

Hi Jules, Welcome!!

Jen

[Guest guest]

I started out 40 over weight, I think it's 10 for each kid I had!! LOL

Penny

[Guest guest]

Hey Carol,

You finally made it on the list. I don't think anyone else has had as much

trouble as you did getting on-- must be like Jennie and Mo trying to get

into chat rooms, they seem to crash the whole system ;-) Glad you finally

made it-- it's a way-fun list and you won't regret it. You'll fit right in

with the rest of the nutty parents here!

, Meagan 4 (cf, asthma) & Kailin 7 (asthma)

[Guest guest]

Hi Carol

Welcome to the list. I guess we are not too far away, as I live in the San

Valley. Hope you get lots of info and support.

(mother of , 10 wcf, and , 2 nocf)

Hello

> Hi all!

>

> I should introduce myself! My name is Carol and I have 3 kids -- two with

> CF. is 12 and is a carrier. Patty is 8 and has CF. And is 5

> and has CF. We are a military family (Marines) currently stationed (for

the

> third time) in 29 Palms, CA

[Guest guest]

Welcome to the list Cherity. If you are just jumping right in don't be afraid

to ask if you don't understand something. We seem to have our own CF lingo.

Kathy G. (Mom to 5 w/CF and 2 no/CF)

[Guest guest]

Welcome, Rhonda.

Sara, correct me if I am wrong, but the clicking in the hips is a sign

of hip dysplasia. I know Jakob has had his hips checked at every

pediatrician's appointment.

As for trying to curl the feet in, I think it might be normal. I see

Jakob doing this a bit and he is 2 years old. When he is asleep and

relaxed, he does not curl his feet in at all. Jakob had his feet

checked on the 7th and both Dr. Weinstein (his regular ortho) and Dr.

Ponseti said his feet look great.

Do keep us updated and welcome to you and Tigger.

Rhonda wrote:

>

> Hi!This is Rhonda . some of you already know me from my posts

> on the Clubfoot board at PP. I was introduced to onelist about two

> weeks ago and like it SO much more than posting on the boards. I am

> glad you all are here too. We have an appointment on Monday in

> Baltimore with Dr. Herzenberg as a check-up to make sure Tigger's feet

> are maintaining their position. They look great to me but sometimes he

> does try to curl them inward. Is this normal? I also have a question

> regarding " clicking " . One of my friends who has a 6 month old (same as

> Tigger), was told by her ped. that her wanted her to take her baby to

> an orthopedic spec. because he could hear clicking in her hips and

> felt it might be coming fromt he knee and could cause future problems.

> Tigger's bones " click " in his kness and ankles all the time. Is this

> something I should be concerned about? I never really thought of it as

> a problem until talking to my friend. I plan to ask Dr. H. about it on

> Monday. Will update you all!Rhonda

> -----------------------------------------------------------------------

> [

[Guest guest]

Hey, Rhonda!

How are you? I have been thinking about you and wondering how Tigger's

been doing.

So, he still doesn't care for the brace, huh? Does he just get upset

when you put it on, or is he upset for awhile with it on? Rose threw

fits and twisted around until about a couple of months ago. She turned

a year about 2 weeks ago, and it really is a lot easier to put on than

it was in the 'good ol' days'! I put the brace on while my husband

reads her her favorite, favorite book (pics of all kinds of different

cows!), and she is really good. I think Tigger will adjust eventually

to it getting put on. I thought Rose would never get better about

putting it on, but she did. Now, if he still has problems once you get

it on, I'm not sure what to do because Rose usually adjusted well once

we had it on. She just hated getting it on!!

Well, enough rambling from me! I'm glad you joined the list! It's good

to hear from you again.

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Joy,

Actually, he doesn't object to having the bar put on. It's just after

about an hour he starts to try to get it off. And it's the shoes more so

than the bar. I can not even keep socks on his feet. He hates anything on

his feet. He wants to be barefoot all the time!

Rhonda

Re: Hello

>From: joybelle15@... (Joy Shipley)

>

>Hey, Rhonda!

>

>How are you? I have been thinking about you and wondering how Tigger's

>been doing.

>

>So, he still doesn't care for the brace, huh? Does he just get upset

>when you put it on, or is he upset for awhile with it on? Rose threw

>fits and twisted around until about a couple of months ago. She turned

>a year about 2 weeks ago, and it really is a lot easier to put on than

>it was in the 'good ol' days'! I put the brace on while my husband

>reads her her favorite, favorite book (pics of all kinds of different

>cows!), and she is really good. I think Tigger will adjust eventually

>to it getting put on. I thought Rose would never get better about

>putting it on, but she did. Now, if he still has problems once you get

>it on, I'm not sure what to do because Rose usually adjusted well once

>we had it on. She just hated getting it on!!

>

>Well, enough rambling from me! I'm glad you joined the list! It's good

>to hear from you again.

>

>Joy

>

>

>http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

>---------------------------

[Guest guest]

Rhonda,

That would be rough! How long is he wearing the brace for now? He

likes to watch his cute little toes, huh?

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Some kind of shoes easier to put on.

>

>de: " Windie Lilly "

>fecha: Wed, 03 May 2000 21:12:01 +0000

>para: nosurgery4clubfootegroups

>tema: Hello

>

>Hello, I have been a member for a couple of months, but mostly as an

>observer. I have a 9 month old with one clubfoot. He is a patient

>of Dr. Colburn in California. I am meeting Dr. Ponseti on May 26th. And a

>couple of members too. Dr Colburn is interested in designing new shoes. My

>father owns a company that makes prototypes. He wants to help design a new

>shoe, not only for his business, but for his grandson as well. I need some

>input on everyone's ideas of what they would want in the perfect shoe. I

>think Dr. Colburn would have it more like a sandal, to minimize all the

>blisters we complain about. The shoes that are available now haven't been

>changed ( improved) in 50 years or so. I think it's about time. So, let me

>know what you are thinking and I will pass the suggestions on... Thanks,

>Windie Lilly

>

>------------------------------------------------------------------------

>Sign up for the free zZounds.com newsletter for the latest and

>greatest music gear savings, musician tips and hot contests.

><a

href= " http://click./1/3738/2/_/675489/_/957413629/ " >http://click.egro\

ups.com/1/3738/2/_/675489/_/957413629/</a>

>------------------------------------------------------------------------

>

>

[Guest guest]

Hi Windie Lilly,

My son r has bilateral clubfeet. I would love to see some changes in

the shoes, if it's possible. I understand the need for the strap under the

laces, but it is very cumbersome to say the least (it was made much easier

by Theresa's wonderful suggestions though ie: tying three knots in the

laces). I think the challenge will come in trying to make them easy enough

for moms and dads to get on and off, but hard for the little ones to do it.

Maybe a strap to hold the foot in place, then a velcro overlay (instead of

laces), then another strap to hold the velcro down??? I hope you are all

successful. Best of luck.

Have a Joyous Day!

Kelli

Hello

> Hello, I have been a member for a couple of months, but mostly as an

> observer. I have a 9 month old with one clubfoot. He is a patient

> of Dr. Colburn in California. I am meeting Dr. Ponseti on May 26th. And a

> couple of members too. Dr Colburn is interested in designing new shoes. My

> father owns a company that makes prototypes. He wants to help design a new

> shoe, not only for his business, but for his grandson as well. I need some

> input on everyone's ideas of what they would want in the perfect shoe. I

> think Dr. Colburn would have it more like a sandal, to minimize all the

> blisters we complain about. The shoes that are available now haven't been

> changed ( improved) in 50 years or so. I think it's about time. So, let me

> know what you are thinking and I will pass the suggestions on... Thanks,

> Windie Lilly

>

> ------------------------------------------------------------------------

> Sign up for the free zZounds.com newsletter for the latest and

> greatest music gear savings, musician tips and hot contests.

> http://click./1/3738/2/_/675489/_/957413629/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hi ,

Now the Ivy is adjusted it is hard to think of somethings to make the shoes

better. We haven't had any problems with blisters, or soar areas.

Being Ivy is on the older side of wearing the shoes I would suggest a

easier/faster way of removeal. Not laces and buckles.... or a way to

quickly detach the bar and leave the shoes on. That is so that a bigger

baby could sit in a restruant high chair, or shopping cart, swing,

exersuaser with ease and you wouldn't have to spend ten min. taking off and

(putting back on the shoes) Though I usally keep them off during the

duration of our stay making her time out the shoes more like two to three

hours a day not just one.

On clubfoot someone posted that a lady went on about how cute the shoes

are.... I have had that said to me too... don't know if they were just being

nice and was curious about the brace so commented on the shoe... They really

are not bad " looking " though. The fringes at the toes are kinda cute for

the girls. Another thought would be a color or choice of design.... a

hiking type boot for the boys(or girls if you like that type of style)

Best Wishes

Sara and Ivy8/17/99

www.clubfoot.net

[Guest guest]

I agree with you Sara about the shoes not working well with restaurant high

chairs. Lucky for us, when Jakob first started wearing the brace, he wasn't

sitting up on his own - that started a month or so after he was wearing it less.

Also like Kelli said, tying the knots in the laces (one in the center, the other

2 on the ends) makes it easier for me so that I don't have to worry about not

having enough of the lace to tie them properly. That is a major concern of mine

as Jakob gets older and much more mobile. I had a lot of problems tying the

laces when he was younger - now he only wears the brace at bedtime, so I usually

put it on after he is asleep.

Something more colorful would be nice at times. I guess if we really got

desperate, we could paint them ourselves

I feel so far removed from the days when Jakob had to wear the brace all the

time that I don't have any good suggestions for improvements. I don't know

about velcro instead of laces. That was almost easier for Jakob to undo than

the laces were. A style choice might be nice. I know most doctors do not

recommend the old fashioned white leather high top baby shoe anymore, but our

children still wear the same basic design on the brace.

I don't know what else I can say about it though.

[Guest guest]

I like the idea of the hiking boots. As for the velcro vs. shoe laces,

manages to undo the double knots I tie in his shoes anyway. The

buckle seems to keep his feet in well enough.

In Him,

Kim, wife to

mother to Kaelyn, Chandler, Corey, and

http://albums.photopoint.com/j/AlbumIndex?u=254581 & a=1892774

[Guest guest]

Hi Theresa.

I'll be in Iowa on Mon. can we meet up? Sunday I will be driving late so

that will not work. Anyone else who is in the area is welcome to join us.

ee girl were are you thease days? I know you mentioned being in Iowa

soon.

My email is sara@...

Sara and Ivy 8/17/88

www.clubfoot.net

[Guest guest]

Dr. Ponseti will describe the ideal shoe when you see him. The most important

part of the shoe to prevent blisters and problems has been the more prominent

heel in newborn kids. It is normal to have the large heel pad at this age and

the shoe manufacture often does not take it into account and makes a flat back

shoe. This part of the shoe is called the " counter " and the counter should be

cup shaped to allow more room for the heel pad.

Some baby tennis shoes have a good counter and can be glued to a thin board with

shoe goo or a glue called goop and then placed in the Dennis-Brown splint. See

attached. Thicker padding around the top of the shoe also creates a deeper

counter and more room for the heel pad.

Brown

[Guest guest]

Sent the shoe pictures without adding that the shoes in the picture are too flat

in the back and would be better with a deeper counter but it shows how to attach

an " ideal " soft soled shoe to a DB bar if one can't find hard soled shoes.

Brown

[Guest guest]

Sara,

Let me know what time Ivy's appointment is. I know we have a meeting at

7:00pm, so anything before that should be good.

Sara Masoner wrote:

> Hi Theresa.

> I'll be in Iowa on Mon. can we meet up? Sunday I will be driving late so

> that will not work. Anyone else who is in the area is welcome to join us.

> ee girl were are you thease days? I know you mentioned being in Iowa

> soon.

>

> My email is sara@...

>

> Sara and Ivy 8/17/88

> www.clubfoot.net

>

> ------------------------------------------------------------------------

>

> ------------------------------------------------------------------------

>

[Guest guest]

Her appointment is at 9am Should not be a long one...hopefully we will be

decreaceing the time in the shoes.

sara

Re: Hello

> Sara,

>

> Let me know what time Ivy's appointment is. I know we have a meeting at

> 7:00pm, so anything before that should be good.

>

>

>

> Sara Masoner wrote:

>

> > Hi Theresa.

> > I'll be in Iowa on Mon. can we meet up? Sunday I will be driving late

so

> > that will not work. Anyone else who is in the area is welcome to join

us.

> > ee girl were are you thease days? I know you mentioned being in

Iowa

> > soon.

> >

> > My email is sara@...

> >

> > Sara and Ivy 8/17/88

> > www.clubfoot.net

> >

>

------------------------------------------------------------------------

> >

>

------------------------------------------------------------------------

> >

[Guest guest]

Joy,

It is great to hear from you, Glad that all is well and that you are

feeling good.

Prayers,

Sara

Hello

> I sent this message to parentsplace board, so sorry if you are reading

> this twice (or 3X if you are on both lists, too! )

>

> I want to apologize to the members who have written or asked about me

> recently (and not so recently) that I haven't gotten back to yet.

>

> I have not been around much, but I have been reading. Welcome to all the

> new members.

>

> Rose's toenail fell off if anyone remembers that problem. The doctor

> still doesn't want to say it is fungal, but she says it's a good

> possibility. Rose has a new nail coming in, but it doesn't look any

> better. We are treating it with vinegar right now.

>

> Rose's new trick is trying to jump up into the air, but she hasn't quite

> gotten the hang of it yet.

> She is talking up a storm, and when she gets out of bed with her brace

> on, she walks around (with support, but sometimes without!) and says,

> " Walk, walkie, walkie. " My wood floors are suffering a little, but oh

> well! She has also turned into a climber. She pushes a chair to wherever

> she wants to get to, and she will climb. Not afraid. That is scary!

>

> I'm already in my third trimester!!! Boy, how time flies! I finally feel

> GOOD and have even been motivated to clean my house now and then. The

> main reason I haven't been around is I've been working 5 nights a week.

> Ugh. Can I just vent a little and say, " Please raise those DARN ol' milk

> prices!! " ? Farming is very, very tough right now. I'm working only 3

> nights a week now because it was getting too much working till 1am and

> taking care of a very active toddler all day.

>

> We had an ultrasound the beginning of this month. All looks great, and

> she even got a fantastic shot of the babies feet that she printed. We

> didn't find out the sex because I enjoy waiting for that, " It's a boy! "

> or " It's a girl! " I only have until February!

>

> I enjoy following everyone's progress, and I miss being an active

> participant. Just want to let you all know you are in my thoughts.

> Joy

>

>

> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

>

>

[Guest guest]

Hi, Joy.

I'm fairly new at posting and am glad to " meet " you. Congratulations

on the good progress of your pregnancy!

I'm sorry to hear about the difficulty with Rose's toe. You've

probably heard of and tried many remedies, but I remember reading not

long ago about people having success getting rid of toenail fungus

with Vicks VapoRub. It was in a column called People's Pharmacy by

Joe and Terry Graedon. I think they have a web site of the same name,

if you want to investigate it.

Just thought I'd mention it as something that might be worth a try..

and

[Guest guest]

Thanks A. for the tip on the Vick's Vaporub for toenail fungus

and the website! I hadn't heard that one yet! The vinegar hasn't

seemed to make much difference, and it looks like it is spreading to

other nails. I think I'll continue the vinegar treatments AND do the

Vick's. I've also had suggestions for tea tree oil, flaxseed oil, and

lavendar! I'd try 'em all, but I think that would be overload!

As for the line in 's shoes, Rose had that problem also. Her foot

took a LONG time to match up to the line that had been drawn! I could

tell that her foot was in there correctly, and I did write to Dr Ponseti

about it. I like the suggestion that has been made to do away with the

line!

Joy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

[Guest guest]

Yeah, I hate that line too. But in all reality, how many of us use the

line after the first pair of shoes? I know I don't!!!!!

& Jakob

joybelle15@... wrote:

> As for the line in 's shoes, Rose had that problem also. Her

> foot

> took a LONG time to match up to the line that had been drawn! I could

>

> tell that her foot was in there correctly, and I did write to Dr

> Ponseti

> about it. I like the suggestion that has been made to do away with

> the

> line!

>

> Joy

[Guest guest]

> Yeah, I hate that line too. But in all reality, how many of us use

the

> line after the first pair of shoes? I know I don't!!!!!

But that's when the parent is the most paranoid...with the first pair

of shoes!!!!!!!! =)