(No subject)

[Guest guest]

Thats wonderful Amy have a great weekend

--- Amy wrote:

> Hi everyone! I feel great today!! This is my 4th

> day on induction and have lost 6 lbs... I am not

> going to weigh myself again until June 1 because I

> won't be back to work until then. I am taking off

> tomorrow so that will give me a 4 day weekend. I

> weigh myself on the UPS scale that goes up to 400

> lbs and has to be pretty accurate because of the UPS

> shipping...

>

> I have been drinking my water and the ketones are

> measuring up!

>

> Hope everyone is having a great day!!

>

> Amy - WI

>

>

>

_________________________________________________________

[Guest guest]

Hi everyone, am back from a very hot weekend here in pa......whew, it is over

100 outside..

My atkins products arrived on sat. i have been taking the dieters advantage,

essential oils, and am enjoying the atkins bars......i found they are cheaper

at the GNC store on the first tues of each month.............which is this

coming tues. and also wed. due to the holiday. they are reg. 2.69 and if you

are a member of the solid gold club, you can get 20% off, which makes them

cheaper than juicers price..............i bought the shake mix, the bake mix

also..........i am hungry for the pancakes too...............today i wore my

white shorts that i haven't been able to squeeze into........they are fitting

good..........4 weeks on the atkins diet and 9 lb. weight

loss...................maryanne

[Guest guest]

very sorry to hear about your poodle....I have one too: a giant chocolate

standard who is just the smartest thing ever (well, I also have an old english

who makes wood look smart in comparison)....losing a pet stinks, especially one

you've enjoyed for so long....hang in there.....

Celia (the lurker....)

[Guest guest]

Thank Jennie I am feeling a lot better I went a weight yesterday and I lost 3

more pound I am down 9 in two week so that made me feel good. I all so have a

very good husband who help me all the way thought it Bill and I am on the

diet together and it help a lot think for the word it help to here from

people that noes what I am going thought.

Terri

[Guest guest]

Thanks vladdy! I believe we played you guys in the playoffs one year, didn't

we?

(no subject)

, welcome. I'm in the country, outside Lima, and I'm new here, too (1

week.)

Jennie

[Guest guest]

I hope this is not my last message Sue because I sent you email just like you

said to send it sue@... on 7/16/99.

[Guest guest]

Hi

Well I guess all us girls need to stick together!

Have a great day.

Ree

[Guest guest]

Betty,

What is on your Taco salad? Are you drinking your water? Is the hamburger and

cheese all you are eating for lunch, any sides? Do you take any vitamins? Why

don't you eat breakfast? Maybe you aren't eating enough and your body thinks

you are trying to starve it and therefore holding onto the fat for later use.

Are you eating any snacks during the day? Are you in ketosis, do you test for

that? I don't know why you aren't losing but lets look at what exactly you

have all day long, maybe you could write it down, and then we can try to

figure it out. Keep up the good work!

In a message dated 8/12/99 11:27:34 PM Eastern Daylight Time,

betty_az@... writes:

<<

I have so much convidence in this diet but at this time I am very

discouaged. I have been on this diet at least two weeks and I haven't

lost a pound. Just sickening. I got the book a couple of days ago and I

can't see any thing I have done wrong, but must have by reading some of

these posts. Only thing I can figure out is I don't eat breakfast and

like to day I had a hamberpatty for lunch with pepper cheese on it. For

supper I had a taco salad. Same yesterday.

Well anyway I am not giving up because one thing I'm not hungry and its

guilt free.

Bye

Betty

>>

[Guest guest]

Betty on this diet you have to eat eat eat to lose weight it isn't

like we were conditiond to starve ourselves to lose. I mad the same

mistake abot the 3rd week in started skipping meals and not eat a

whole lot. Even if you have 6 meals a day with protien(a type of meat

or egg) and some cheese and a small salad your bound to lose

--- Betty Crawford wrote:

>

>

>

> I have so much convidence in this diet but at this

> time I am very

> discouaged. I have been on this diet at least two

> weeks and I haven't

> lost a pound. Just sickening. I got the book a

> couple of days ago and I

> can't see any thing I have done wrong, but must have

> by reading some of

> these posts. Only thing I can figure out is I don't

> eat breakfast and

> like to day I had a hamberpatty for lunch with

> pepper cheese on it. For

> supper I had a taco salad. Same yesterday.

> Well anyway I am not giving up because one thing I'm

> not hungry and its

> guilt free.

> Bye

> Betty

> _________________________________________________________

>

[Guest guest]

In a message dated 8/20/99 10:05:36 PM Central Daylight Time,

AngieCATW1@... writes:

<< I can't say for sure with you BUT.............

I know for sure YEP she does

>>

LOL

[Guest guest]

Kathy,

My Kodey has been on Pulmozyme since he was about 8 months old I believe.

It was and still is a huge help I feel. I don't know if we'll ever go off

it.

Take care,

mom of 2 boys Kodey 5yowcf, r 2yowocf

(no subject)

>From: KajeGood@...

>

> & the Gang

>

> - Just a question...Has your pulm ever mentioned DNase / Pulmozyme?

>had the problem of being on a " maintenance " antibiotic all the time.

>started just a month ago and I have seen a tremendous improvement. It is a

>nebulized drug that is supposed to thin the mucus...therefore preventing

the

>further scarring of the lungs. At least I think that's what it does.

>

>>From Cystic-L handbook - " The way in which Pulmozyme works is that it

breaks

>up the strands of DNA that are part of our mucus. This makes the mucus less

>viscous and it comes up more easily. "

>

>If anyone has more experience and would like to share their

information...it

>would be helpful.

>

>Take care, Kathy (Mom of 5 w/CF, 2 no/CF)

>

>

>

>---------------------------

[Guest guest]

Dear Kathy,

's pediatrician sees 7 kids with CF in her practice. She says that

she thinks every single kid everywhere with CF should be on Pulmozyne. It

is the wonder drug for CF patients. She says that it dramatically decreases

all of the colds, lung infections, etc., etc.

As for our experience, 's CF doctor gave her a prescription for

Pulmozyne, but every time we have tried to use it has gone into one

of her abdominal pain episodes. Then he takes her off because he does not

want any extra medicines complicating the picture. So I have a box of the

stuff sitting in my fridge. Oh, as with everything CF, Pulmozyne is ver

expensive. It runs about $1000 per month at the full price. Hopefully you

have insurance that would pick up some/all of the cost.

Hope this helps.

(Mother of , 10 wcf, and , 2 nocf)

(no subject)

> From: KajeGood@...

>

> & the Gang

>

> - Just a question...Has your pulm ever mentioned DNase / Pulmozyme?

> had the problem of being on a " maintenance " antibiotic all the time.

> started just a month ago and I have seen a tremendous improvement. It is

a

> nebulized drug that is supposed to thin the mucus...therefore preventing

the

> further scarring of the lungs. At least I think that's what it does.

>

> >From Cystic-L handbook - " The way in which Pulmozyme works is that it

breaks

> up the strands of DNA that are part of our mucus. This makes the mucus

less

> viscous and it comes up more easily. "

>

> If anyone has more experience and would like to share their

information...it

> would be helpful.

>

> Take care, Kathy (Mom of 5 w/CF, 2 no/CF)

>

>

>

> ---------------------------

[Guest guest]

-Help me somebody!I need to subscribe to the list from my new addy!

Mandy---- (no subject)

>

>

>> From: KajeGood@...

>>

>> & the Gang

>>

>> - Just a question...Has your pulm ever mentioned DNase / Pulmozyme?

>

>> had the problem of being on a " maintenance " antibiotic all the time.

>

>> started just a month ago and I have seen a tremendous improvement. It is

>a

>> nebulized drug that is supposed to thin the mucus...therefore preventing

>the

>> further scarring of the lungs. At least I think that's what it does.

>>

>> >From Cystic-L handbook - " The way in which Pulmozyme works is that it

>breaks

>> up the strands of DNA that are part of our mucus. This makes the mucus

>less

>> viscous and it comes up more easily. "

>>

>> If anyone has more experience and would like to share their

>information...it

>> would be helpful.

>>

>> Take care, Kathy (Mom of 5 w/CF, 2 no/CF)

>>

>>

>>

>> ---------------------------

[Guest guest]

Mandy,

Go to www.onelist.com and make the change there.

Ronda

> Re: (no subject)

>

>

>

>

> -Help me somebody!I need to subscribe to the list from my new addy!

> Mandy--------- Original

> Message ----------------------------------

>

> Reply-to: cfparentsonelist

> Date: Thu, 13 Jan 2000 22:12:51 -0800

>

> >

> >

> >Dear Kathy,

> >'s pediatrician sees 7 kids with CF in her practice. She says that

> >she thinks every single kid everywhere with CF should be on

> Pulmozyne. It

> >is the wonder drug for CF patients. She says that it

> dramatically decreases

> >all of the colds, lung infections, etc., etc.

> >

> >As for our experience, 's CF doctor gave her a prescription for

> >Pulmozyne, but every time we have tried to use it has

> gone into one

> >of her abdominal pain episodes. Then he takes her off because

> he does not

> >want any extra medicines complicating the picture. So I have a

> box of the

> >stuff sitting in my fridge. Oh, as with everything CF, Pulmozyne is ver

> >expensive. It runs about $1000 per month at the full price.

> Hopefully you

> >have insurance that would pick up some/all of the cost.

> >

> >Hope this helps.

> >

> >(Mother of , 10 wcf, and , 2 nocf)

> >

> >

> > (no subject)

> >

> >

> >> From: KajeGood@...

> >>

> >> & the Gang

> >>

> >> - Just a question...Has your pulm ever mentioned DNase / Pulmozyme?

> >

> >> had the problem of being on a " maintenance " antibiotic all the time.

> >

> >> started just a month ago and I have seen a tremendous

> improvement. It is

> >a

> >> nebulized drug that is supposed to thin the mucus...therefore

> preventing

> >the

> >> further scarring of the lungs. At least I think that's what it does.

> >>

> >> >From Cystic-L handbook - " The way in which Pulmozyme works is that it

> >breaks

> >> up the strands of DNA that are part of our mucus. This makes the mucus

> >less

> >> viscous and it comes up more easily. "

> >>

> >> If anyone has more experience and would like to share their

> >information...it

> >> would be helpful.

> >>

> >> Take care, Kathy (Mom of 5 w/CF, 2 no/CF)

> >>

> >>

> >>

> >> ---------------------------

[Guest guest]

I know this is from a while back but here is our experience...

has been on Pulmozyme for about 3 months straight and Tobi (28 on/off)

since May, along with fairly frequent use of Bactrim since Oct. He has been

able to stay relatively healthy so far. Hope this helps,

Daelynn

[Guest guest]

Kathleen,

That's interesting about the arginine, as it relates to growth hormone. By

the way, I have already deleted the 3d picture file and reuploaded. I think

it worked the way I wanted it to this time. Thanks a bunch. Ann

[Guest guest]

Ann,

She's just adorable. You're right, I couldn't view the third--but you can

just delete it and try again if you want. The first two were really sweet!

As far as the labs, I'm sorry I don't know much about amino acids other than

that they are part of DNA and that arginine is one type of amino acid. High

School biology is the extent of my knowledge.

On www.realtime.net/anr/aminoacd.html#arginie I found:

ARGININE (Non-Essential Amino Acid)

Studies have shown that is has improved immune responses to bacteria,

viruses & tumor cells; promotes wound healing and regeneration of the liver;

causes the release of growth hormones; considered crucial for optimal muscle

growth and tissue repair.

Perhaps they are thinking about it as it relates to the release of growth

hormones?

By going to yahoo.com and clicking on health then doing a search for " amino

acids " , I found several sites that sell amino acid supplements so it must

not be all that uncommon. ???

Kathleen (Mom to Abby--15 mos, 12 lbs. 8 oz, 26 1/4 in.

(no subject)

>From: AKnight322@...

>

>Why does this computer stuff have to be so complicated?! If any of you have

>viewed Blair's pictures, I guess you can see I goofed somehow on the 3d

>picture. I edited a photo on a picture CD and saved it to a floppy disk. I

>thought I was just saving the image itself!!!???? I really could use some

>good computer classes!~ Ann (grandma to Blair)

>

>---------------------------

[Guest guest]

Hello Anandhi,

I am interested in Sravan's story. Could you post it again or forward a link.

Thank you.

When are you going to be in Iowa? I'll be there next Friday Feb. 26 to see Dr.

Dietz.

Sara

(No Subject)

Hi ee,

I am glad you went to Iowa and got

accomodated in RDH. THe tendon transfer

surgery is the least invasive surgery. Believe

me, I went thru the major one with my son for

4 hrs. and this got over within an hour. His

foot looks straight now. When I talked to

Dr.P, he said that the full results will be

visible only after six months. I am already

seeing the diff. every day. So don't feel so

bad, if had to go thru this surgery.

Atleast it is done before he starts Kindergarten. That was my major concern with

Sravan. I hate to see him being any diff. from

any other kids. I hope you understand what I

mean.

I think you are going to be around, so I will

meet you either at the hospital or RDH. My appt

with Dr.Dietz is at 10:00 a.m. Another kid

who went thru this is also having his follow-up

tomorrow at 10:30 a.m with Dr.Dietz. His name

is also . If you are up there try to meet

up with her. Her name is Patti and her DH's

name is Mike. They are really lovely couple.

, I still haven't got my pics developed.

So I don't get it by tomorrow, I will have to

mail you the pics.

take care,

Anandhi.

--

Join the most exciting community of women on the web!

iVillage.com's FREE membership gets you private email,

your own home page, special discounts and sweepstakes,

and dozens of problem-solving tools.

http://www.ivillage.com/frame/join_email.html

---------------------------

[Guest guest]

Hi Sara,

I will be seeing Dr.Deitz on Monday. I will

post my story shortly. We will be in Iowa

tomorrow(late night).

take care,

Anandhi.

--

>

>

>Hello Anandhi,

>I am interested in Sravan's story. Could you post it again or forward a link.

Thank you.

>

>When are you going to be in Iowa? I'll be there next Friday Feb. 26 to see Dr.

Dietz.

>Sara

>

> (No Subject)

>

>

>

>Hi ee,

> I am glad you went to Iowa and got

>accomodated in RDH. THe tendon transfer

>surgery is the least invasive surgery. Believe

>me, I went thru the major one with my son for

>4 hrs. and this got over within an hour. His

>foot looks straight now. When I talked to

>Dr.P, he said that the full results will be

>visible only after six months. I am already

>seeing the diff. every day. So don't feel so

>bad, if had to go thru this surgery.

>Atleast it is done before he starts Kindergarten. That was my major concern

with

>Sravan. I hate to see him being any diff. from

>any other kids. I hope you understand what I

>mean.

> I think you are going to be around, so I will

>meet you either at the hospital or RDH. My appt

>with Dr.Dietz is at 10:00 a.m. Another kid

>who went thru this is also having his follow-up

>tomorrow at 10:30 a.m with Dr.Dietz. His name

>is also . If you are up there try to meet

>up with her. Her name is Patti and her DH's

>name is Mike. They are really lovely couple.

>

>, I still haven't got my pics developed.

>So I don't get it by tomorrow, I will have to

>mail you the pics.

>

>take care,

>Anandhi.

>

>

>

>--

>Join the most exciting community of women on the web!

>iVillage.com's FREE membership gets you private email,

>your own home page, special discounts and sweepstakes,

>and dozens of problem-solving tools.

>http://www.ivillage.com/frame/join_email.html

>

>---------------------------

[Guest guest]

This

is a great read, Marla

Subject: (no subject)

Something interesting

for you to read.

His name was Fleming, and he was a poor ish farmer.

One day, while trying to make a living for his family, he

heard a cry for

help coming from a nearby bog. He dropped his tools and ran to the bog.

There, mired to his waist in black muck, was a terrified

boy, screaming

and struggling to free himself.

Farmer Fleming saved the lad from what could have been a

slow and

terrifying death.

The next day, a fancy carriage pulled up to the Scotsman's

sparse

surroundings. An elegantly dressed nobleman stepped out and introduced himself

as the

father of the boy Farmer Fleming had saved. " I want to repay you, "

said the

nobleman. " You saved my son's life.

" No, I can't accept payment for what I did, " the

ish farmer replied,

waving off the offer.

At that moment, the farmer's own son came to the door of the

family

hovel. " Is that your son? "

the nobleman asked.

" Yes, " the farmer replied proudly.

" I'll make you a deal. Let me provide him with the

level of education my

own son will enjoy. If the lad is anything like his father, he'll no doubt

grow to be a man we both will be proud of. "

And that he did.

Farmer Fleming's son attended the very best schools and in

time, he

graduated from St. 's Hospital Medical School in London, and went on to become

known throughout the world as the noted Sir Fleming, the discoverer

of Penicillin.

Years afterward, the same nobleman's son who was saved from

the bog was

stricken with pneumonia. What saved his life this time? Penicillin.

The name of the nobleman? Lord Randolph Churchill.

His son's name? Sir Winston Churchill.

Someone once said:

What goes around comes around.

Work like you don't need the money.

Love like you've never been hurt.

Dance like nobody's watching.

Sing like nobody's listening.

Live like it's Heaven on Earth.

It's National Friendship Week. Send this to everyone you

consider a

FRIEND.

Pass this on, and brighten someone's day.

AN IRISH FRIENDSHIP WISH: You had better send this back!!

Good Luck! I

hope it works...

May there always be work for your hands to do;

May your purse always hold a coin or two;

May the sun always shine on your windowpane;

May a rainbow be certain to follow each rain;

May the hand of a friend always be near you;

May God fill your heart with gladness to cheer you.

OK, this is what you have to do... Send this to all of your

friends!

But - you HAVE to send this within 1 hour from when you open

it!

Now.....Make A wish!! I hope you made your wish!

There's nothing in life that can't be fixed or

forgiven. Anon

[Guest guest]

LOL!!~!!!

RENEE

[Guest guest]

I am on Imuran. I take 1.5 pills a day.

I do not think there is as many side affects with it as there is with the Prednisone.

I am also on Methotrexate.

So far I have not been diagnosed with Neurosarcoidosis but he is treating me like I do have it.

Sharon

(no subject)

I am currently taking 100 mg. of prednisone from just being discharged from the hospital with my 7th bout with neurosarcoidosis. Because I've been on prednisone for the last 2 years they are trying to decrease my mg. Every time I get to the 20mg-15mg threshold it throws me back into the hospital again. The doctors have introduced a new medication called Azathioprine (Imuran) to see if together with taking this medication my prednisone dosage could be decreased. Has anyone been on this medication? Also I have had periodic bouts with the hiccups sometimes for weeks at a time, nonstop, 24/7. The doctors are unable to tell me why this is happening. But since I have neurosarcoidosis and I think hiccups are where the phrenic nerve (located in the back of the brain, I think) aggrevates the diaphram is what causes hiccups. Has anyone else had problems with chronic hiccups. Thanks. I hope all is well with everyone and you all are constantly in my prayers. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I take Imuran 50mg 3x/day, without any side effects that I've noticed. I'm down to 10mg Pred daily. Can't help you with hiccups; I know that it's difficult to cope with. I'll ask my neighbor; a couple of years ago he had hiccups for several weeks, finally went to the E.R. in desperation. They admitted him & did a bunch of cardiac testing & kept him for 2 days until a cardiologist came to see him, on Christmas Day. The doctor said, "What are you doing here?" Mac said, "Beats me," and the doctor discharged him. Still had the hiccups; they didn't do anything about that! He tried bunches of remedies that people suggested & finally found something that stopped them, but I don't remember what it was. If I find out, I'll let you know. Rose in Indiana

(no subject)

I am currently taking 100 mg. of prednisone from just being discharged from the hospital with my 7th bout with neurosarcoidosis. Because I've been on prednisone for the last 2 years they are trying to decrease my mg. Every time I get to the 20mg-15mg threshold it throws me back into the hospital again. The doctors have introduced a new medication called Azathioprine (Imuran) to see if together with taking this medication my prednisone dosage could be decreased. Has anyone been on this medication? Also I have had periodic bouts with the hiccups sometimes for weeks at a time, nonstop, 24/7. The doctors are unable to tell me why this is happening. But since I have neurosarcoidosis and I think hiccups are where the phrenic nerve (located in the back of the brain, I think) aggrevates the diaphram is what causes hiccups. Has anyone else had problems with chronic hiccups. Thanks. I hope all is well with everyone and you all are constantly in my prayers. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hey look, I got fan mail. LOL. I thought I'd share it with you all cos it's so cute!

How is everyone?

Love Aisha.

-- (no subject)

My name is Aisha too . What do you do for a living . I am only 11 years old . I hope your not mad since I'm e-mailing you while you must be so busy . Please reply to me , before december . Sicerly, Aisha Rehman

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Dear Carol,

Welcome to the list!

It is so very daunting when you get told you have an illness that is

unpronounceable! Just know we are here for you anytime you need us. No vent

is too long, no question too silly except the unasked.

Yay to naming your daughter Aishia! Us Aisha's are going to take over the

world!

Again, welcome!

Love isha.