Re: Excited about Ponseti method

[Guest guest]

---

Hi Cast Lady!

I am so excited that someone fomr Shriners is excited about this

method and is helping getting Shriners hospitals on board! This

really does bring me much joy. My husband had all of his

clubfoot work done at Shriners and right now we are on the outs with

his family because we chose to take Sam to Iowa City instead of to

Shriners in the twin cities. This caused a lot of hurt -- especially

since my father-in-law is a Mason. We just wanted a gentler way for

Sam -- not lots of surgeries like went through.

What can we do to help get this method into the Shriners hospitals??

I realize that it isn't pracitcal for some situations, but it has

been a miracle for our family. Please advise. I know I will do my

best to help. I think that all parents with clubfoot babies should

at least have this option.

By the way, if you were at the symposium on Friday, you might

remember us. Our son Sam was casted at about 3 pm. He was the five

month old one that wasn't happy until he could watch the wind up Pooh

TV. But of course, a lot of kids might have been like that too.

Please let us know what we can do to help.

Suzanne and Sam Holton

In nosurgery4clubfootegroups, " Beth Meyers " <jmeyers429@a...>

wrote:

> Hi, I think I figured this out;} I am " The Cast Lady " from the

> Twincities Shriners Hospital Minn.(the children gave me the title)

> Actually I am the Surgical First Ass./Cast Tech and many other

things

> here.

> I am hoping to join your group so we can share expertise and

> experience. I attended the Iowa conference with on of our surgeons

> here and came away very excited, we had allready initiated the

> technique on one of our babies and today will disscus with them the

> Tenotomy for next cast change #6. I like you all am so happy to

> finally find a more gentle treatment for these little ones.

> We have a very significant population of children with clubfeet

> and

> I hope we will change everyons thinking. I have spent most of my

time

> since return preparing a report organizing STUFF and

> educatineveryone. you may contact me at Shriners

> E-Mail EMeyers@s...

> Holly was your old Doc Dr. Loder?

>

>

> Bye now The Cast Lady

[Guest guest]

Beth Meyers wrote:

> I am hoping to join your group so we can share expertise and

> experience. I attended the Iowa conference with on of our surgeons

> here and came away very excited, we had allready initiated the

> technique on one of our babies and today will disscus with them the

> Tenotomy for next cast change #6. I like you all am so happy to

> finally find a more gentle treatment for these little ones.

Hi Beth, and welcome to the " club " :-) My family and I were in Iowa

last Saturday, but I don't believe I met you.

Thanks for the intro. Everybody on the nosurgery4clubfoot list are

all friendly and helpful, so if you have any questions feel free to

ask :-)

Masoner

http://www.clubfoot.net/

[Guest guest]

,

I also wonder if a parent wants treatment at a Shriners could they chose any?

I called them before and they were suppose to send me an application that

never arrived. I wonder if that happens alot too. There is travel involved

in seeking a Shriners hospital; the nearest one is in Checopee Mass.. unless

one seeks a portible set up closer to there home. I do understand it does

take awhile to be approved for treatment in the mean time we chose to go to

New York Bone and Joint Diseases since they offer a trained doctor in the

Ponseti Method and we never heard back from Shriners in Ma.

Take Care, Kathy What Shriners are you reffering too?

[Guest guest]

The Cast Lady,

What Shriners location are you reffering too please up-date me or have I

missed something. I would really like to know if a Shriners near Mass. were

treating with Ponseti Method so as to reffer new parents. My son was treated

prior to recieving the Ponseti method for six months before we located a

trained doctor in the method closer to us in Mass. We do travel to NY city

but it has been worth it my son's foot is beautiful. Best of Luck, Kathy

[Guest guest]

Good question, A family may chose to be seen at any Shriners but the travel

could be a problem and a big expense. Generally the families are seen at

their local facility.

We see children from many states but our " Region " is some of Canada,Minn,

Iowa, some of Wisc. N. & S. Dakota, Nebraska. But as I have said we have kids

from all over who chose to come the long haul for one reason or another quite

often it is due to internet access and info. on one of our Doc's.

[Guest guest]

Hi Suzanne & Sam, Yes I do remember Sam, I was the blonde lady with glasses

talking to the nurse and standing at the opposite end of the bed He was so

good while in front of soooo... many.I was also lucky enough to be able to

apply a cast with Dr. Ponseti on the

little one from Mexico whos Dad is a Physician.

I hope I am doing my part to swing Shriners to the Ponseti method. The

Physicians are very receptive now as we see more and more stiff painfull

feet in children who had surgery years ago and correcting recurrance in a

surgical foot is much harder then a virgin foot.

Dr. Aadalen is the Doc who was with me and is planning on only using this

technique now.

I find the manipulation and cast technique is much easier and gentler then

the " stretching "

casts we did before the big clubfoot release surgeries.One thing here that

is a bit troubling is we rarely get new born nursery referals so we are not

able to begin casting in the ultimate moments, so with your help we could

get the word out on the internet to new parents and let everyone know about

our free services to anyone for orthopaedic needs.

Infact my daughter is being treated here for Scolliosis. We have the best of

the best pediatric specialists coming to Shriners.

The Cast Lady

> Re:excited about Ponseti method

>

> Hi Cast Lady!

>

> I am so excited that someone fomr Shriners is excited about this

> method and is helping getting Shriners hospitals on board! This

> really does bring me much joy. My husband had all of his

> clubfoot work done at Shriners and right now we are on the outs with

> his family because we chose to take Sam to Iowa City instead of to

> Shriners in the twin cities. This caused a lot of hurt -- especially

> since my father-in-law is a Mason. We just wanted a gentler way for

> Sam -- not lots of surgeries like went through.

>

> What can we do to help get this method into the Shriners hospitals??

> I realize that it isn't pracitcal for some situations, but it has

> been a miracle for our family. Please advise. I know I will do my

> best to help. I think that all parents with clubfoot babies should

> at least have this option.

>

> By the way, if you were at the symposium on Friday, you might

> remember us. Our son Sam was casted at about 3 pm. He was the five

> month old one that wasn't happy until he could watch the wind up Pooh

> TV. But of course, a lot of kids might have been like that too.

>

>

> Please let us know what we can do to help.

>

> Suzanne and Sam Holton

>

>

>

[Guest guest]

The Cast Lady,

Personally, I feel that one of the biggest steps in swinging the

Shriners (or any other group of doctors) to the Ponseti Method is doing

just what you are doing. You have been to the seminar this last weekend

and have seen firsthand how successful it is. You are also learning the

manipulation and casting technique that is so critical in the success of

the method.

It is also a concern that you at the Shriners do not see children with

clubfoot from birth in most cases. In looking at some things I have

compiled, it seems to me that most people do not find out about clubfoot

in their children until after the birth. This was our experience along

with the majority of those who answered an informal poll (which is

listed at /surveys/nosurgery4clubfoot?id=59565 )

that was conducted through this mailing list.

I do not know much about the Shriners organization (other than what I

have seen through a couple of general - mostly surgically oriented -

clubfoot sites. It seems to me that those who go to the Shriners

usually end up going to the Shriners Hospital that is closest to their

hometown. Can people request that their service come from any Shriners

Hospital, or are they assigned to the closest one?

[Guest guest]

> The Cast Lady,

> What Shriners location are you reffering too please up-date me or

have I

> missed something. I would really like to know if a Shriners near

Mass. were

> treating with Ponseti Method so as to reffer new parents. My son

was treated

> prior to recieving the Ponseti method for six months before we

located a

> trained doctor in the method closer to us in Mass. We do travel to

NY city

> but it has been worth it my son's foot is beautiful. Best of Luck,

Kathy

Kathy,

I work at the Twincities unit in Minnesota. If you go to their web

site www.shrinershq.org you can cruise the 22 hospitals, some are

burn units. I will be on the Shriner E-mail system tomorrow inquiring

if anyone in our system is providing the PONSETI method and then I

will share it with all of you. I would encourage everyone to contact

their local Shrine Hospitals to inquire also and this may stimulate

interest within their Physician population to investigate.

I am sorry and embarassed that you did not receive the

info/application pack you requested, I have a unique position at my

hospital where if I am aware of a need I can determine it's

urgency/emergency and run someone through the gates quickly.

Children with clubfeet are HIGH PRIORITY as far as I have been

concerned. I could assist anyone who would like a quick contact for

help getting a screening at any of the Shrine Hospitals. Please feel

free to contact me at work E-mail emeyers@...

Phone#1- pager#1- or

my home e-mail jmeyers429@...

The Cast Lady

[Guest guest]

Suzanne,

I believe that there is also a Dr. at the St.Louis Shrinners that is

practicing the Ponseti method. If I remember there is another Ponseti

method at another Shrinners.

I am sorry about your in laws and the hurt feelings.

Best Wishes,

Sara and Ivy 8/17/99

www.clubfoot.net

Re: Excited about Ponseti method

> ---

> Hi Cast Lady!

>

> I am so excited that someone fomr Shriners is excited about this

> method and is helping getting Shriners hospitals on board! This

> really does bring me much joy. My husband had all of his

> clubfoot work done at Shriners and right now we are on the outs with

> his family because we chose to take Sam to Iowa City instead of to

> Shriners in the twin cities. This caused a lot of hurt -- especially

> since my father-in-law is a Mason. We just wanted a gentler way for

> Sam -- not lots of surgeries like went through.

>

> What can we do to help get this method into the Shriners hospitals??

> I realize that it isn't pracitcal for some situations, but it has

> been a miracle for our family. Please advise. I know I will do my

> best to help. I think that all parents with clubfoot babies should

> at least have this option.

>

> By the way, if you were at the symposium on Friday, you might

> remember us. Our son Sam was casted at about 3 pm. He was the five

> month old one that wasn't happy until he could watch the wind up Pooh

> TV. But of course, a lot of kids might have been like that too.

>

>

> Please let us know what we can do to help.

>

> Suzanne and Sam Holton

>

>

>

>

>

> In nosurgery4clubfootegroups, " Beth Meyers " <jmeyers429@a...>

> wrote:

> > Hi, I think I figured this out;} I am " The Cast Lady " from the

> > Twincities Shriners Hospital Minn.(the children gave me the title)

> > Actually I am the Surgical First Ass./Cast Tech and many other

> things

> > here.

> > I am hoping to join your group so we can share expertise and

> > experience. I attended the Iowa conference with on of our surgeons

> > here and came away very excited, we had allready initiated the

> > technique on one of our babies and today will disscus with them the

> > Tenotomy for next cast change #6. I like you all am so happy to

> > finally find a more gentle treatment for these little ones.

> > We have a very significant population of children with clubfeet

> > and

> > I hope we will change everyons thinking. I have spent most of my

> time

> > since return preparing a report organizing STUFF and

> > educatineveryone. you may contact me at Shriners

> > E-Mail EMeyers@s...

> > Holly was your old Doc Dr. Loder?

> >

> >

> > Bye now The Cast Lady

>

>

>

>

[Guest guest]

We applied for the Shriner's in October and our first appointment was in

January when was 3 months old. I don't know how they

determine which hospital you go to. There is one in Tampa and I believe

there is one in ville, and both are the same distance for us. We

went to the one in Tampa. Unfortunately, we have not had a good

experience with the doctors there in regards to clubfoot. The only one

who seemed remotely interested in Dr. Ponseti's method was the orthotist

we saw the last time. But I guess it only takes 1 person to get it

started...

In Him,

Kim, wife to

mother to Kaelyn, Chandler, Corey, and

http://albums.photopoint.com/j/AlbumIndex?u=254581 & a=1892774

[Guest guest]

Cast Lady,

It was so good to see you on the group, I really enjoy reading the mail from

the doctors and nurses that sometimes write in. It gives us hope that the

medical community is really listening. No, my daughters doctor was Dr.

Farley at the University of Michigan. Dr. Ponseti told me he was going to

contact Dr. Hensinger (Chair at Uof M ) directly since he knows him and I

was hoping that it led to someone coming from here to the seminar. Thanks

for asking. Hope to hear some more good results from your end soon.

Holly

Excited about Ponseti method

>Hi, I think I figured this out;} I am " The Cast Lady " from the

>Twincities Shriners Hospital Minn.(the children gave me the title)

>Actually I am the Surgical First Ass./Cast Tech and many other things

>here.

> I am hoping to join your group so we can share expertise and

>experience. I attended the Iowa conference with on of our surgeons

>here and came away very excited, we had allready initiated the

>technique on one of our babies and today will disscus with them the

>Tenotomy for next cast change #6. I like you all am so happy to

>finally find a more gentle treatment for these little ones.

> We have a very significant population of children with clubfeet

>and

>I hope we will change everyons thinking. I have spent most of my time

>since return preparing a report organizing STUFF and

>educatineveryone. you may contact me at Shriners

>E-Mail EMeyers@....

> Holly was your old Doc Dr. Loder?

>

>

>Bye now The Cast Lady

>

>

>

>