Guest guest Posted November 30, 1999 Report Share Posted November 30, 1999 Hello everyone: I've been a lurker on this list for a while, and now, I think it's time to introduce myself... My name is o Ramírez, I live in Madrid, Spain, and I'm the father of Sonsoles, a pretty 9.5 months old girl with CF. She was diagnosed at 5 months, so... as you can see we are very new to this world of CF. Sonsoles is very well these days, she's just passed a viral-cold that has made us feel very worried, but when the culture came-back to be negative, we felt better and just wait for " better days " to come... and these days HAVE arrived, I can say now that Sonsoles (after 15 days of cough, a very snotty nose, bronco-spasms, Ventolin every 4 hours, bad-sleeping-nights, eating-refusal, throwing-ups, and lost of weight) has won this battle against what-its-name-viral-cold. Now, she eats normally and it's only a question of time for her to go back to her usually good-shape. She cultured P.A. two months after the diagnostic... 17 unforgettable days at hospital on TOBRA and CEFTAZIDIMA IVs, and after that, we're on nebulized TOBRA at home. Since the 3rd of September, things have gone pretty well (except the damned-cold she's over now), she's gained a lot of weight, has grown up a lot, has two wonderful teeth, and negative cultures for bacteriological stuff. She's also the more active, cheerful, cooperative-with-treatments, and beautiful baby I've ever known (words of an obviously proud father... ;-)). No need to say that we've been through a very very rough time these past months, everything has happened very fast, one thing after another... a really hard time. We're trying to adjust ourselves to this new situation, and it's not an easy job to do. I think I have to learn a lot about this desease just to be prepared, and I'm trying to do that, I read everything that passes in front of me that is CF-related, and it wasn't easy at the beginning (because the more I read, the more depressed I felt). Thanks to all of you, CF-parents from the list because these days as a lurker, have taught me a lot of things... I hope to be more active on this list in the future. Well, that's all by now. Health and luck. o Ramírez (dad of Sonsoles, 9.5 months old girl with CF) mailto:rrm06@... Quote Link to comment Share on other sites More sharing options...
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