Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Bruce, This comes up now and again. Grey I think took it for a little while. I don't know of anyone else who has taken it. Wish I did. Wish I knew if it worked. Are you going to try it? I actually had bought some with the intention of trying it, showed it to my pulmonologist and he said "nope". So, I didn't try it. Sent it back. Let me know. LeanneBruce Moreland wrote: Has anyone used or heard of using this supplement for PF? http://www.fibromedica.com/pulmonary-fibrosis Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 I think physicians are certainly going to tend to say " nope " to anything not evaluated by the FDA. Thats the difference in NAC. Although most of us are getting it as a health supplement, it is actually approved as a prescribable medicine in another form. Looking at their own forum is scary enough to me reading between the lines. When I read statements that if you're already on oxygen you need 18 capsules per day, followed by " Removing lung scarring (which it claims to do) may cause wheezing or coughing but eventually will restore lung capacity. " Then below see " The coughing is very common due to the chelation of scar tissue from the lungs. The body rids itself of free floating fibrin through the stool and urine. That is likely what the pungent oder is " and " The increased urination is due to the fact that Neprinol act as a mild diuretic. " Those statements are all from the company in response to questions. Sounds a bit like a snake oil salesman to me. Where is the horsedrawn cart with the banner on the side with Mr. 's Magic Elixer. Actually I think the Magic Elixer may have been better because it was typically at least 50 proof. > Has anyone used or heard of using this supplement for PF? > http://www.fibromedica.com/pulmonary-fibrosis > > > > > > --------------------------------- > Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Also, they have a " success story " section in their forum and no posts on success with pulmonary fibrosis. So if their own web site doesn't show any..... Omg what a collection of products they have. They can cure anything or make you pregnant. You name it, they have a product to do it. > > Has anyone used or heard of using this supplement for > PF? > > http://www.fibromedica.com/pulmonary-fibrosis > > > > > > > > > > > > --------------------------------- > > Be a better pen pal. Text or chat with friends inside Yahoo! Mail. > See how. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Bruce, I tried some about a year back and stopped because of all the meds I'm on for other things. Never took the doseage they advised. I have a box full of stuff that I never took. All I take is NAC. Grey IPF october 05 Re: Neprinol Also, they have a "success story" section in their forum and no posts on success with pulmonary fibrosis. So if their own web site doesn't show any.....Omg what a collection of products they have. They can cure anything or make you pregnant. You name it, they have a product to do it.> > Has anyone used or heard of using this supplement for > PF? > > http://www.fibromedica.com/pulmonary-fibrosis> > > > > > > > > > > > ---------------------------------> > Be a better pen pal. Text or chat with friends inside Yahoo! Mail. > See how.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Bruce, I tried some about a year back and stopped because of all the meds I'm on for other things. Never took the doseage they advised. I have a box full of stuff that I never took. All I take is NAC. Grey IPF october 05 Re: Neprinol Also, they have a "success story" section in their forum and no posts on success with pulmonary fibrosis. So if their own web site doesn't show any.....Omg what a collection of products they have. They can cure anything or make you pregnant. You name it, they have a product to do it.> > Has anyone used or heard of using this supplement for > PF? > > http://www.fibromedica.com/pulmonary-fibrosis> > > > > > > > > > > > ---------------------------------> > Be a better pen pal. Text or chat with friends inside Yahoo! Mail. > See how.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Bruce...no, I have no experience with this Neprinol. I've been told there is nothing for IPF and I hesitate to take OTC stuff. I take enough meds already. I will take a supplement, such as this is, when I know others take it, such as NAC. Are you considering trying this? Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Bruce...no, I have no experience with this Neprinol. I've been told there is nothing for IPF and I hesitate to take OTC stuff. I take enough meds already. I will take a supplement, such as this is, when I know others take it, such as NAC. Are you considering trying this? Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Bruce, I took it for a few months and felt no different so I quit. Also took Ambrolose and the Chinese Lung stuff ( can't remember the exact name). The only thing that has made any difference for me besides the steroids is Omega Nutrition EB oil capsules. They help my eye sight and dry nose, mouth, etc. My eye doctor recommended them and coincidently, so do several of the main cancer sites. Take care- Sarcoid/PF 3/2006 California Neprinol Has anyone used or heard of using this supplement for PF? http://www.fibromed ica.com/pulmonar y-fibrosis Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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