Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi JoAnn, I have had Fibro for about twelve years now and it is very bad, at times the knots are so tight and hard that the only thing that helps is Greig doing a deep fisted massage, hurts quite a lot but sometimes it takes pain to get rid of pain and the Skelaxin helps with it too. I think the worst part of the Fibro is that it tricks your body and it forgets that we sleep at night and are awake during the day. The fatigue makes it hard for me to talk at times, I think I am talking but am barely mumbling. As for Greig and I we are not married, can't be as the government has it set up that I would lose my medically needy benefits if I married. The scripts for this month ran well over three thousand closer to five and I don't know many men who would marry someone with 3 thousand dollars in prescription medicine every month. Greig has been my rock the past couple of years. I went through a couple of families that lived on my property in exchange for helping me out and driving me, stuff like that. Both ended up stealing from me and treating me worse than a dog especially when I was in the hospital. Anyway, Greig put a stop to that and I think was solely responsible for me waking from the semi-coma the first time it happened. My family thanks Greig because they don't have to come down and see me when this happens too. So he is what keeps me running, the desire to get up and in my small ways take care of him as he takes care of me. And he gets such joy from watching me ride and is sad when I go through times like this when I can't. He doesn't mind feeding the horses when I can't make it that far from the house. My greatest hope is that we will be able to have a legitimate wedding before I get to sick to care. We are supposed to have a commitment ceremony next winter which means a lot to both of us as the religious part of the ceremony is the most important part to us. I keep telling myself that but I know deep down I want the legal part too, the name change and the whole ball of wax, as the saying goes. Anyway, Greig is scared of this illness but loves me. When I tell him to run for the hills before it's too late, and I tell him that every time the RSD starts something new, he says it's too late, he isn't going anywhere. Felice Felice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Felice, just am so sorry how bad you suffer. I sure understand the Fibro as with that i have the CFS and arthritis and heart troubles, etc etc and my meds are about $2000 to $2500 and then the doctor bills are horrendous. Have heart doctor and my pace maker has to be checked and that is near a thousand to just check that, and have pain doctor, Rhuematologist, GYN and cancer doctor, surgeons for next hernia surgery to have. Anyway I have thought when Russ retires we might have to divorce due to not having insurance at that point. I hate to think of doing that but cannot watch him loose all he has worked for due to me. So understand where your comming from and know it is very scary and your heart must hurt. Will keep you in p and hope your do better. s Momma JoAnn Re: Digest Number 1915 Hi JoAnn, I have had Fibro for about twelve years now and it is very bad, at times the knots are so tight and hard that the only thing that helps is Greig doing a deep fisted massage, hurts quite a lot but sometimes it takes pain to get rid of pain and the Skelaxin helps with it too. I Quote Link to comment Share on other sites More sharing options...
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