plasma cell vulvitis (new member--sort of)

[Guest guest]

Hi everyone,

I don't think I've introduced myself here yet, but I know some of you

from the vulvodynia lists. I've had V pain (almost exclusively on

contact or penetration) for years and diagnosed myself with vulvar

vestibulitis last summer. It took me about 10 months to find a doctor

with lots of experience in this. My new doc, who I just started seeing

in April, said right away when she examined me that she thought I had

more than one problem going on--a skin condition and tightness in the

pelvic floor muscles. I had a vulvar biopsy last week and was

diagnosed with plasma cell vulvitis. Do any of you have this or know

anything about it? It's apparently quite rare so I'm having trouble

finding info--about all I know is that it's a chronic inflammatory

skin disease. My doc is putting me on a steroid cream, and after a

month, she might add estrogen cream (I assume to balance out the

possible skin-thinning effect of the steroid). I'm also starting PT at

the end of July.

I'd appreciate any responses, even if it's just to say " yeah, I've

heard of PCV. " With all the research I've done over the past several

months about various possibilities, I'm surprised that I never heard

of this one until I was diagnosed!

Thanks,

[Guest guest]

It sounds like just another classification of a lot of

similar vulvar inflammation conditions and yet another

acronym. I suppose one could be grateful that they at

least identify some of the cells that are inflammed. I

have never heard of this one either.

I googled and got a page with other URLS if you

haven't seen them. Good luck for finding your answers.

http://www.google.com/search?hl=en & q=plasma+cell+vulvitis & btnG=Google+Search

Arline

__________________________________________________

[Guest guest]

Hi ... I hope that the treatments prescribed deliver you from pain

and discomfort and enable you to resume your life as normal again.

I googled your diagnosis in two ways, i.e.

plasma cell skin disorders

plasma cell disorders.

It appears that plasma cell skin disorders have been known about for quite

some time, and among them are disorders such as scleroderma. I am very

vaguely familiar with this - as a relative of mine we used to share all the

holidays with had this conditon so when I saw your post, I first googled

scleroderma.

THere is much to read in those two google results and maybe something in

there will help you to understand better what this diagnosis is. My guess

is that your doc (no doubt a gyn) knows nothing about plasma cell skin

conditions and that can be frustrating as a patient. Ask him/her to put you

in touch with a dermatologist who can explain in detail what this condition

is and help you understand it better. You may even want this dermy to

explain what standard treatments are so that you are sure that the doc you

are seeing now is addressing the problems correctly.

Keep us posted on your treatments and progreess and good luck

Dusty

plasma cell vulvitis (new member--sort of)

Hi everyone,

I don't think I've introduced myself here yet, but I know some of you from

the vulvodynia lists. I've had V pain (almost exclusively on contact or

penetration) for years and diagnosed myself with vulvar vestibulitis last

summer. It took me about 10 months to find a doctor with lots of experience

in this. My new doc, who I just started seeing in April, said right away

when she examined me that she thought I had more than one problem going

on--a skin condition and tightness in the pelvic floor muscles. I had a

vulvar biopsy last week and was diagnosed with plasma cell vulvitis. Do any

of you have this or know anything about it? It's apparently quite rare so

I'm having trouble finding info--about all I know is that it's a chronic

inflammatory skin disease. My doc is putting me on a steroid cream, and

after a month, she might add estrogen cream (I assume to balance out the

possible skin-thinning effect of the steroid). I'm also starting PT at the

end of July.

I'd appreciate any responses, even if it's just to say " yeah, I've heard of

PCV. " With all the research I've done over the past several months about

various possibilities, I'm surprised that I never heard of this one until I

was diagnosed!

Thanks,

**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**

Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

to search our archives, files, articles, etc.

***

[Guest guest]

,

your etiology sounds a lot like mine - the PT and the

derm - but mine is labeled " squamous cell hyperplasia "

- are they the same thing? i thought scheleraderma was

different - and I thought a dr. tested me for that as

an autoimmune disease - blood test, I passed it so no

related diagnosis.

I read a study that found 95 percent of SCH patients

recover on Clobetesol (cortisone cream) but it did not

work for me

--- Dusty wrote:

> Hi ... I hope that the treatments prescribed

> deliver you from pain

> and discomfort and enable you to resume your life as

> normal again.

>

> I googled your diagnosis in two ways, i.e.

> plasma cell skin disorders

> plasma cell disorders.

>

> It appears that plasma cell skin disorders have been

> known about for quite

> some time, and among them are disorders such as

> scleroderma. I am very

> vaguely familiar with this - as a relative of mine

> we used to share all the

> holidays with had this conditon so when I saw your

> post, I first googled

> scleroderma.

>

> THere is much to read in those two google results

> and maybe something in

> there will help you to understand better what this

> diagnosis is. My guess

> is that your doc (no doubt a gyn) knows nothing

> about plasma cell skin

> conditions and that can be frustrating as a patient.

> Ask him/her to put you

> in touch with a dermatologist who can explain in

> detail what this condition

> is and help you understand it better. You may even

> want this dermy to

> explain what standard treatments are so that you are

> sure that the doc you

> are seeing now is addressing the problems correctly.

>

>

> Keep us posted on your treatments and progreess and

> good luck

>

> Dusty

>

> plasma cell vulvitis (new

> member--sort of)

>

>

> Hi everyone,

>

> I don't think I've introduced myself here yet, but I

> know some of you from

> the vulvodynia lists. I've had V pain (almost

> exclusively on contact or

> penetration) for years and diagnosed myself with

> vulvar vestibulitis last

> summer. It took me about 10 months to find a doctor

> with lots of experience

> in this. My new doc, who I just started seeing in

> April, said right away

> when she examined me that she thought I had more

> than one problem going

> on--a skin condition and tightness in the pelvic

> floor muscles. I had a

> vulvar biopsy last week and was diagnosed with

> plasma cell vulvitis. Do any

> of you have this or know anything about it? It's

> apparently quite rare so

> I'm having trouble finding info--about all I know is

> that it's a chronic

> inflammatory skin disease. My doc is putting me on a

> steroid cream, and

> after a month, she might add estrogen cream (I

> assume to balance out the

> possible skin-thinning effect of the steroid). I'm

> also starting PT at the

> end of July.

>

> I'd appreciate any responses, even if it's just to

> say " yeah, I've heard of

> PCV. " With all the research I've done over the past

> several months about

> various possibilities, I'm surprised that I never

> heard of this one until I

> was diagnosed!

>

> Thanks,

>

>

>

>

>

>

>

> **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL

> POST, THANKS**

>

> Our HOME page is

> http://groups.yahoo.com/group/VulvarDisorders

> to search our archives, files, articles, etc.

>

> ***

[Guest guest]

Thank you for the responses, everyone. My gyn actually specializes in

things like this, so I trust her judgment, but I will ask her for a

referral to a dermatologist anyway--it would be good to have a second

opinion. From the little I've been able to find out, plasma cell

vulvitis is not thought to be an autoimmune disorder as scleroderma

is. It's not the same as squamous cell hyperplasia, but I don't know

whether it's in the same family of lichenoid disorders. (I've read

that squamous cell hyperplasia is the same as lichen simplex

chronicus.) Anyway, I will keep researching and talk to my doc some

more. Thank you all!

[Guest guest]

,

Please keep in touch - I have found very few people

with this diagnosis. (okay, just one - you - besides

me)

I would like to know how you progress and how you are

treated. The only cure i've read about is Clobetesol,

which did not work for me.

--- carrie2462003 wrote:

> Thank you for the responses, everyone. My gyn

> actually specializes in

> things like this, so I trust her judgment, but I

> will ask her for a

> referral to a dermatologist anyway--it would be good

> to have a second

> opinion. From the little I've been able to find out,

> plasma cell

> vulvitis is not thought to be an autoimmune disorder

> as scleroderma

> is. It's not the same as squamous cell hyperplasia,

> but I don't know

> whether it's in the same family of lichenoid

> disorders. (I've read

> that squamous cell hyperplasia is the same as lichen

> simplex

> chronicus.) Anyway, I will keep researching and talk

> to my doc some

> more. Thank you all!

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

oh darn - I read this too fast. Your diagnosis is

different than mine, not the same as SCH.

--- McTwirly wrote:

> ,

> Please keep in touch - I have found very few people

> with this diagnosis. (okay, just one - you - besides

> me)

> I would like to know how you progress and how you

> are

> treated. The only cure i've read about is

> Clobetesol,

> which did not work for me.

>

>

>

> --- carrie2462003 wrote:

>

> > Thank you for the responses, everyone. My gyn

> > actually specializes in

> > things like this, so I trust her judgment, but I

> > will ask her for a

> > referral to a dermatologist anyway--it would be

> good

> > to have a second

> > opinion. From the little I've been able to find

> out,

> > plasma cell

> > vulvitis is not thought to be an autoimmune

> disorder

> > as scleroderma

> > is. It's not the same as squamous cell

> hyperplasia,

> > but I don't know

> > whether it's in the same family of lichenoid

> > disorders. (I've read

> > that squamous cell hyperplasia is the same as

> lichen

> > simplex

> > chronicus.) Anyway, I will keep researching and

> talk

> > to my doc some

> > more. Thank you all!

> >

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi ,

I'll still let you know if I come across anything else that might

work. I'm starting on clobetasol ointment for a month and then PT

later this summer. I've read your posts about PT and I'm glad it seems

like it helps you.

By the way, have you tried looking for people diagnosed with lichen

simplex chronicus? I've read that it's the same as SCH, but I'm not

sure...

Best,

>

> > ,

> > Please keep in touch - I have found very few people

> > with this diagnosis. (okay, just one - you - besides

> > me)

> > I would like to know how you progress and how you

> > are

> > treated. The only cure i've read about is

> > Clobetesol,

> > which did not work for me.

[Guest guest]

I'm leaving for a few days but will continue looking

when I get back - thanks for your note. Although I

think PT works for me, I have a flare right now in the

muscles related to the work - a deep ache. I've had

symptoms of fibromyalgia in the past, and have been

successfully treated for that. The muscle from the

pelvic floor connects to a place around the waist on

the back of my hip.

Gotta run - take care, good luck, and thanks for your

note.

--- carrie2462003 wrote:

> Hi ,

>

> I'll still let you know if I come across anything

> else that might

> work. I'm starting on clobetasol ointment for a

> month and then PT

> later this summer. I've read your posts about PT and

> I'm glad it seems

> like it helps you.

>

> By the way, have you tried looking for people

> diagnosed with lichen

> simplex chronicus? I've read that it's the same as

> SCH, but I'm not

> sure...

>

> Best,

>

>

>

> >

> > > ,

> > > Please keep in touch - I have found very few

> people

> > > with this diagnosis. (okay, just one - you -

> besides

> > > me)

> > > I would like to know how you progress and how

> you

> > > are

> > > treated. The only cure i've read about is

> > > Clobetesol,

> > > which did not work for me.

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

I'm leaving for a few days but will continue looking

when I get back - thanks for your note. Although I

think PT works for me, I have a flare right now in the

muscles related to the work - a deep ache. I've had

symptoms of fibromyalgia in the past, and have been

successfully treated for that. The muscle from the

pelvic floor connects to a place around the waist on

the back of my hip.

Gotta run - take care, good luck, and thanks for your

note.

--- carrie2462003 wrote:

> Hi ,

>

> I'll still let you know if I come across anything

> else that might

> work. I'm starting on clobetasol ointment for a

> month and then PT

> later this summer. I've read your posts about PT and

> I'm glad it seems

> like it helps you.

>

> By the way, have you tried looking for people

> diagnosed with lichen

> simplex chronicus? I've read that it's the same as

> SCH, but I'm not

> sure...

>

> Best,

>

>

>

> >

> > > ,

> > > Please keep in touch - I have found very few

> people

> > > with this diagnosis. (okay, just one - you -

> besides

> > > me)

> > > I would like to know how you progress and how

> you

> > > are

> > > treated. The only cure i've read about is

> > > Clobetesol,

> > > which did not work for me.

>

>

>

>

>

>

>

>

__________________________________________________