Re: Update; Apraxia, secondary to medication side effects...

[Guest guest]

Hi,

, thanks for your words of encouragement. I'm optimistic that Chase

will eventually overcome his speech difficulties. But I do believe that we

still have a long road ahead.

Like I mentioned before, Chase's speech has more than doubled since we

discontinued Reglan. He was able to put words together such as aah-da (all

done) and ware-shishy-dow (where did sissy go) for several months now, but

this week he has been speaking in short sentences. His ST at school was very

excited to tell me how Chase said " Mama at home and dada at home. " I'm so

excited!!

He is also much more willing to imitate and try to say words now. He still

needs work on articulation, but it's a good sign when others can understand

as well.

Kris

[ ] Re: Apraxia, secondary to medication side

effects...

> Hi Kris,

>

> New to the group, but just though I would jump in here. BTW, It's

> great that you son's speech has jumped started like it has since you

> stopped giving him reglan. My daughter was reglan as an infant for

> severe reflux, but no long takes medication for reflux. The only side

> affects we noticed was she would have gazing, non-responsive episodes

> and it made her very sleepy.

> We have not been given an official diagnosis of apraxia as of yet,

> but she, at age 2 is not talking yet. She does not have any other

> issue that many others seem to have with apraxia. Atleast, I have not

> noticed any (knock on wood)as of yet. Hope your son makes a full

> recovery!

>

>

[Guest guest]

Kris,

Reglan may take a while to deplete entirely from his body. I do believe he will

improve consistently now that he's off of that medication.

Glad he's improving......hoping it continues!

~Karyn

Re: [ ] Update; Apraxia, secondary to medication

side effects...

Hi,

, thanks for your words of encouragement. I'm optimistic that Chase

will eventually overcome his speech difficulties. But I do believe that we

still have a long road ahead.

Like I mentioned before, Chase's speech has more than doubled since we

discontinued Reglan. He was able to put words together such as aah-da (all

done) and ware-shishy-dow (where did sissy go) for several months now, but

this week he has been speaking in short sentences. His ST at school was very

excited to tell me how Chase said " Mama at home and dada at home. " I'm so

excited!!

He is also much more willing to imitate and try to say words now. He still

needs work on articulation, but it's a good sign when others can understand

as well.

Kris

[Guest guest]

Thanks for the encouraging words.

Now I'm going to restart Chase on ProEFA once again. When we first started

EFA supplements we did notice surges in speech; However, at the times of the

surges, Chase was not taking Reglan for one reason or another. Of course

once he was back on Reglan, the EFA's did not seem to be effective. So we

increased his dose to 2 capsules a day, and still no difference. So we took

a break from taking his " fish pills " for awhile. Today, I asked Chase if he

wanted a " fish pill " and replied " ah-huh. "

Kris

Re: [ ] Update; Apraxia, secondary to medication

side effects...

> Kris,

> Reglan may take a while to deplete entirely from his body. I do believe

he will improve consistently now that he's off of that medication.

>

> Glad he's improving......hoping it continues!

> ~Karyn