All my doctors think I have OCD and don't take me seriously

[Guest guest]

I am so frustrated and embarased at the same time. My gyn Dr. says I am obsessing over this to much and I need to stop getting info from others. She says I need to go on antidepressant Wellbutrin. She labeled my as (OCD) Obsessive- complsive disorder. She put a huge message in the computer that whenever the doctor look at her notes she mention I have serious OCD. So when I try to see someone different they already think I am going to be a problem. I got tremors off of AMITRIPTLINE and so I asked for something different like nortriptlyine. My specialist said no and said no to estrace. Says it is not proven to work. I went to my gyn. The one that was first talking shit about me like it wasn't that big of a deal. She said "you just can't have sex that all. it should be effecting your walking and give you that much pain. It's not like you have

cancer." Now I have no one to run too, they all get irritated. I cry everyday from this problem and when I ask for help I am considered crazy. I don't know what to do. They won't test me for strep culture they won't check for ph levels and just think I am not listening on talking 3 antidepressents or effexor. I don't want these things. What do I do for help? What do I say? Also one of my doctor says she "thinks" I have a yeast infection. If I take a yeast infection antifungal vaginally since I am allergic to oral tab, does that make the VVS worse? I am afraid to go to my doctor now. What do I do when it comes to my doctors? I live in California by san francisco, any one know who else I can go to for help? Please help, they don't want to help anymore. _thanks daisy

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[Guest guest]

Have you seen Dr. Weiss in san Francisco? Someone recommended him a short time

ago.

Ora

On Tue, 25 Apr 2006 18:16:51 -0700 (PDT), D

wrote:

>I am so frustrated and embarased at the same time. My gyn Dr. says I am

obsessing over this to much and I need to stop getting info from others. She

says I need to go on antidepressant Wellbutrin. She labeled my as (OCD)

Obsessive- complsive disorder. She put a huge message in the computer that

whenever the doctor look at her notes she mention I have serious OCD. So when I

try to see someone different they already think I am going to be a problem.

> I got tremors off of AMITRIPTLINE and so I asked for something different

like nortriptlyine. My specialist said no and said no to estrace. Says it is

not proven to work. I went to my gyn. The one that was first talking shit

about me like it wasn't that big of a deal. She said " you just can't have sex

that all. it should be effecting your walking and give you that much pain.

It's not like you have cancer. " Now I have no one to run too, they all get

irritated. I cry everyday from this problem and when I ask for help I am

considered crazy. I don't know what to do. They won't test me for strep

culture they won't check for ph levels and just think I am not listening on

talking 3 antidepressents or effexor. I don't want these things. What do I do

for help? What do I say? Also one of my doctor says she " thinks " I have a

yeast infection. If I take a yeast infection antifungal vaginally since I am

allergic to oral tab, does that make the VVS worse? I am

> afraid to go to my doctor now. What do I do when it comes to my doctors? I

live in California by san francisco, any one know who else I can go to for help?

>

> Please help, they don't want to help anymore.

>

> _thanks daisy

>

>

>---------------------------------

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countries) for 2¢/min or less.

[Guest guest]

As long as they know you are afraid of them and that they can pretty much ignore you, they will do so. You have got to take up for you. YOU are the one in pain - not them and you need to tell them so and go armed with info from PUBMED or NVA or some other reliable place , on the success for some women on various types of treatments.

Tell that specialist that you want the estrace so that you can rule out whether or not it will help YOU, - you don't care whether its proven or not. You might want to point out that Wellbutrin is not proven to work for everyone either! And THAT is a fact.

Get busy and prepare yourself. Learn everything you can, cut out medical articles - get informed and secure in your knowledge about this subject and what has or has not helped other women.

Try to remember that these people are working for you and if necessary (though it would be unfortunate) be prepared to tell them so when you ask for something and they refuse.

The very best advice I can give you is to get prepared, informed and knowledgable - have a list of your needs in your hand and take a patient advocate with you - a husband, friend, etc. who can speak up if you can't. That person should also be knoweldgeable about what you wish to discuss that day and can come to your defense and push the issue if you become overwrought and can't follow through. It is your pain, your body - youve lived in it all your life. You have to take a stand and demand what you want - otherwise they just see us a one of a boatload of faces they see daily and weekly. We aren't forceful and demanding..... we don't get the attention we need.

HOw many docs do you have for this condition?

Dusty

All my doctors think I have OCD and don't take me seriously

I am so frustrated and embarased at the same time. My gyn Dr. says I am obsessing over this to much and I need to stop getting info from others. She says I need to go on antidepressant Wellbutrin. She labeled my as (OCD) Obsessive- complsive disorder. She put a huge message in the computer that whenever the doctor look at her notes she mention I have serious OCD. So when I try to see someone different they already think I am going to be a problem.

I got tremors off of AMITRIPTLINE and so I asked for something different like nortriptlyine. My specialist said no and said no to estrace. Says it is not proven to work. I went to my gyn. The one that was first talking shit about me like it wasn't that big of a deal. She said "you just can't have sex that all. it should be effecting your walking and give you that much pain. It's not like you have cancer." Now I have no one to run too, they all get irritated. I cry everyday from this problem and when I ask for help I am considered crazy. I don't know what to do. They won't test me for strep culture they won't check for ph levels and just think I am not listening on talking 3 antidepressents or effexor. I don't want these things. What do I do for help? What do I say? Also one of my doctor says she "thinks" I have a yeast infection. If I take a yeast infection antifungal vaginally since I am allergic to oral tab, does that make the VVS worse? I am afraid to go to my doctor now. What do I do when it comes to my doctors? I live in California by san francisco, any one know who else I can go to for help?

Please help, they don't want to help anymore.

_thanks daisy

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[Guest guest]

,

Did I understand you correctly and you said your gyn

dianosed you with OCD? If she did, maybe you should

get a lawyer. A gyn has no business diagnosing you

with this. I am so furious for you!!!!!! Or did I

misunderstand? They can say anything they want whether

it is true or accurate or not and the patient never

knows what crap is in the record. It is a great system

of gossip at the expense of the patient who can't even

speak for himself as she isn't allowed to look at the

data base, etc. The whole system needs to be destroyed

and replaced. You could always think about starting

rumors about them.

Even if you had a proper diagnosis from Psychiatrist

you should get treatment whatever it was. Poor you!;o(

Arline

--- D wrote:

> I am so frustrated and embarased at the same time.

> My gyn Dr. says I am obsessing over this to much

> and I need to stop getting info from others. She

> says I need to go on antidepressant Wellbutrin. She

> labeled my as (OCD) Obsessive- complsive disorder.

> She put a huge message in the computer that whenever

> the doctor look at her notes she mention I have

> serious OCD. So when I try to see someone different

> they already think I am going to be a problem.

> I got tremors off of AMITRIPTLINE and so I asked

> for something different like nortriptlyine. My

> specialist said no and said no to estrace. Says it

> is not proven to work. I went to my gyn. The one

> that was first talking shit about me like it wasn't

> that big of a deal. She said " you just can't have

> sex that all. it should be effecting your walking

> and give you that much pain. It's not like you have

> cancer. " Now I have no one to run too, they all

> get irritated. I cry everyday from this problem and

> when I ask for help I am considered crazy. I don't

> know what to do. They won't test me for strep

> culture they won't check for ph levels and just

> think I am not listening on talking 3

> antidepressents or effexor. I don't want these

> things. What do I do for help? What do I say?

> Also one of my doctor says she " thinks " I have a

> yeast infection. If I take a yeast infection

> antifungal vaginally since I am allergic to oral

> tab, does that make the VVS worse? I am

> afraid to go to my doctor now. What do I do when

> it comes to my doctors? I live in California by san

> francisco, any one know who else I can go to for

> help?

>

> Please help, they don't want to help anymore.

>

> _thanks daisy

>

>

> ---------------------------------

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__________________________________________________

[Guest guest]

Hi, They diafnosed me with OCD b/c I looked at my burning bottom several times a day. It is on fire. If my pain was on my hand and the skin was raw and mysteriously burning and no doc could tell me why, I would look at it multiple times a day too, anyone would. I don't have OCD. Never did. I was on 9 months of heavy duty psych drugs for severe OCD and there was never any improvement in my pain. You need to find someone who knows about vulvar pain and how horrible and prevalent it is. Good luck. It is a hard job to build a team of understanding docs. I now have after 10 years and 98 docs from many different specialties, one very good counsellor who understands my pain is real, an expert gyn who thinks only "inside" the box but understands me and my pain, physical therapists who can't understand why after 6 months

of treatment and feeling 20% better than before the hysterectomy I am not ecstatic, and a surgeon who is hiding behind his mistakes. So I have some successes and some failures even now!!! Sandi

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[Guest guest]

Hey Daisy, we have *all* been there, believe me.

The reason your doctor is treating you this way is because she does

not understand what you are going through. Plus I think that doctors

feel threatened by someone they can't cure. I think they tend to

blame you for their failure.

There are doctors who will do what you ask and who will listen to

you. I actually took papers about VV and interviewed doctors and

made sure they understood what they were dealing with. I asked if I

would be able to try stuff that I found by doing my own research.

Etc etc.

(not cured but still fighting)

>

> irritated. I cry everyday from this problem and when I ask for

help I am considered crazy. I don't know what to do. They won't

test me for strep culture they won't check for ph levels and just

think I am not listening on talking 3 antidepressents or effexor.

>

> Please help, they don't want to help anymore.

[Guest guest]

Doctors......... Mine told me outright my vulva problem was due to the fact my marriage was breaking up. This doctor told me outright and to my face if I would just have sex with my husband I would be ok. Oh Really????? (all you ladies start having sex! we'll be right as rain in no time! LOL!) Another doctor told me I was hysterical. Damn right I was hysterical! I was a super Mom that ran marathons and I wan't able to walk or get out of bed. Basicly doctors are humans. If there an idiot as a human there going to be an idiot as a doctor. Book learning does not change personality. Blessings All, Shirley in Louisiana.

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[Guest guest]

My aunt who died of breast cancer was told that she was imagining discharge

and pain in her breast and should get a haircut and find a boyfriend, five

years later, mastectomy, four years later, dead, Anne in MI

--On Wednesday, April 26, 2006 1:11 PM -0700 noxcuses13

wrote:

>

> Doctors......... Mine told me outright my vulva problem was due to the

> fact my marriage was breaking up. This doctor told me outright and to my

> face if I would just have sex with my husband I would be ok. Oh

> Really????? (all you ladies start having sex! we'll be right as rain in

> no time! LOL!) Another doctor told me I was hysterical. Damn right I was

> hysterical! I was a super Mom that ran marathons and I wan't able to walk

> or get out of bed. Basicly doctors are humans. If there an idiot as a

> human there going to be an idiot as a doctor. Book learning does not

> change personality.

>

> Blessings All,

> Shirley in Louisiana.

>

>

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