Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 You know this is interesting (?); I have both ANs out, and I thought all was done; but lately my vision has really been going down hill; because my Medicare is so messed up, I have ut off going to the doc; but do you think I should be check ed and see if I could have this pappidema(or however you spell that?) I thought there would need to be tumors present for thiat problem? Marie Hello Hello and many thanks to everyone who had the courage to welcome me (you may live to regret it). If I'd known that you would all see my bio I would have tried to write something intelligent! Tomorrow my ophthalmologist is back from service in East Timor and I'm hoping he can tell me why my eyes have gone so bad. I am wondering if anyone else out there has ever suffered from papilloedema???? I had it at 20 (I'm now 28) and it was caused by all my zillions of brain and spinal tumours secreting proteins which clogged up around the optic nerves. I had to have two optic nerve fenestrations to fix it. So I am just curious as to whether this is common in NF2 or if I really am as special as I think I am (hee hee). Best wishes from Emese (it's pronounced "emmasha" just to be difficult) and Marvin the Wonder Dog. P.S. Jimmy you're a riot and I sure do hope you're coming to the Oz Adventure Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 In a message dated 10/2/01 2:05:39 AM Pacific Daylight Time, emese@... writes: << Hello and many thanks to everyone who had the courage to welcome me (you may live to regret it). >> HEHEHEH,Spoken like a true SMART ASS ))We can always use another one of them. Lana ))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Emese Thanks for that, I was wondering and trying to figure out how to pronounce. From ine and Minnie (Maltese) who spends her time trying to outsmart me, but she's learning how persistent I can be. Hello Best wishes from Emese (it's pronounced "emmasha" just to be difficult) and Marvin the Wonder Dog. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hi , I also have Lichen Sclerosis and IC. I am 42 years old. I was diagnosed with IC in 1990, and lichens slerosis in 2004. I have been taking Elmiron and Librax for the IC with good results. However, I also have to take Macrobid and use on oxytrol patch because I am still having chronic bladder infections. For the lichens sclerosis I take elavil and I just started using a new compound ointment of estrogen and lidocaine. I was wondering if you have any problems with recurring Bacterial Vaginitis or Yeast Infections? in MI Hello I just received the results of a vaginal biopsy and have Lichens Sclerosis. Am awaiting two types of cream to use. Would like to hear from other members who have this disorder. I also have interstitial cystitis - a chronic inflamation of the bladder. I heard that this condition may also be an autoimmune condition like Interstitial. vlohrenz@... Quote Link to comment Share on other sites More sharing options...
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