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Immunologists and Rheumatologists are the most knowledgeable about systemic sarc or areas affected by sarc other than lungs. Most pulmonologists are knowledgeable about pulmonary sarc. Since you have a Rheumie who has diagnosed you with sarc see if he will administer and monitor your treatment. Ask him if he believes he is capable of handling your full body care so you can get away from these other idiots.

Good luck.

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