RE: SpinaCord Stimulator Bull @$#%-Dusty

[Guest guest]

The reason that counseling is often part of the package for

those with chronic pain is so that they can have the chance to

talk about the chronic pain and sometimes get other ideas on how

to cope with the pain.

I think it is a good idea for someone with chronic illnesses,

and especially with chronic pain to see a counselor b/c it is

true that just the stresses of dealing with the chronic illness

can be a challenge.

I've been seeing a counselor for 6 years now. The big reason

though is b/c of stress management in general, and when we do

talk at times during the sessions it will be about my illnesses.

And yes, sometimes I've talked about my vulvodynia and other

times my endo or my fibro and also the other issues going on in

my life so that I can learn how to deal with them by trying to

keep the stress in check so that I don't make myself sicker.

The counseling just opens up another outlet to help with the

coping process.

Kristy

__________________________________________________

[Guest guest]

I have chronic pain as I explained to Tami - I have the same condition in my

back and my neck that she has and I did and do see a counselor. But I

would really have a problem if a medical doc told me that he wouldn't stop

my pain until a psych person said it was okay. The psych specialist has no

way of gauging my level of pain - the medical doc does.

I believe in counseling and myself have been in it for two years now with

the V pain. Was in it prior to this when the stress of my back and trying

to keep working were almost killing me, and also before that for matters

other than physical pain and the stress of it.

I wish one of us were nearby Tami - I guarantee you the docs wouldn't give

her so much run around if you or I or Dee were her advocate.

Dusty

RE: SpinaCord Stimulator Bull @$#%-Dusty

The reason that counseling is often part of the package for those with

chronic pain is so that they can have the chance to talk about the chronic

pain and sometimes get other ideas on how to cope with the pain.

I think it is a good idea for someone with chronic illnesses, and especially

with chronic pain to see a counselor b/c it is true that just the stresses

of dealing with the chronic illness can be a challenge.

I've been seeing a counselor for 6 years now. The big reason though is b/c

of stress management in general, and when we do talk at times during the

sessions it will be about my illnesses. And yes, sometimes I've talked

about my vulvodynia and other times my endo or my fibro and also the other

issues going on in my life so that I can learn how to deal with them by

trying to keep the stress in check so that I don't make myself sicker.

The counseling just opens up another outlet to help with the coping process.

Kristy

__________________________________________________

[Guest guest]

Usually, pain psychologists are part of the treatment package because pain

is psychological in that it happens in the brain. Therefore, pain

psychologists usually study where your pain is, how it happens, the level,

etc, and then is able to make a psychological treatment plan, which might

include the surgery.

Usually, even if you want to get a knee surgery, doctors are supposed to

send you to a pain psychologist before hand. They don't do it to undermine

your pain or anything, only to fully understand it.

[Guest guest]

Actually, a doctor has no concrete way of gauging a person's level of pain,

even on a machine. Each person's pain is subjectively different, and that

is why pain is studied by psychologists. I think people confuse psychology

as a field with counselling, which are far from being the same thing. Pain

psychologists don't only get you to talk about your feelings of pain, they

have treatment plans with doctors.

>

>Reply-To: VulvarDisorders

>To: <VulvarDisorders >

>Subject: RE: SpinaCord Stimulator Bull @$#%-Dusty

>Date: Wed, 26 Apr 2006 18:37:24 -0400

>

>I have chronic pain as I explained to Tami - I have the same condition in

>my

>back and my neck that she has and I did and do see a counselor. But I

>would really have a problem if a medical doc told me that he wouldn't stop

>my pain until a psych person said it was okay. The psych specialist has no

>way of gauging my level of pain - the medical doc does.

[Guest guest]

Hello,

Iv had 5 surgeries and never had to see a

psycologist. That is the stupidest thing Iv ever

heard. They should have to run tests M.R.I or X-rays

or whatever and if there shows nothing to be wrong

than send you to a psycologist. If you need knee

surgery than get it. Why wait to see a psycologist? To

suffer longer? If you need surgery you need surgery

there is nothing a psycologist can do that can change

that. When it comes to the Spinal Cord Stimulator I

really dont know. My friend has it b/c she has R.S.D

and she didnt have to see a psycologist. I think these

Drs. have waited too long and it's at a surgery point

and no longer a SpinaCord Stimulator point.

Kind Regards, Tami

--- " Véronique ... " wrote:

> Usually, pain psychologists are part of the

> treatment package because pain

> is psychological in that it happens in the brain.

> Therefore, pain

> psychologists usually study where your pain is, how

> it happens, the level,

> etc, and then is able to make a psychological

> treatment plan, which might

> include the surgery.

>

> Usually, even if you want to get a knee surgery,

> doctors are supposed to

> send you to a pain psychologist before hand. They

> don't do it to undermine

> your pain or anything, only to fully understand it.

>

>

>

>

>

__________________________________________________

[Guest guest]

Kristy,

I have been in and out of counsling for the

past 6 years. The longest time was 2 years straight. i

would love I mean love to work with her, but I dont

have time. I think im at a surgery point. iv really

went down hill in this last month. When I decide to do

it it was bad, but this. It's deadly, killing kind of

pain. I have experiance with what a buldging disk and

a ruptered disk feels like. this is that pain. In Jan.

I seen a Dr. who does the Artificial Disk Replacement

and he told me I was a canidate for the surgery.

Right now medical Insurance comp. dont cover it. It's

a new procedure. He gave me a surical pass and wanted

me to go in immediatly and have the LumbarSpinal

Fusion. After going on a back pain support group and

talking to others there was not one person better for

having this surgery. Not to mention I dont think my

body would do well in handeling the cage that comes

along with it. So Iv waited and searched for something

else. i think my time is up. Whatever happens I will

not have that surgery.

Big Hugs, Tami

--- Kristy Sokoloski wrote:

> The reason that counseling is often part of the

> package for

> those with chronic pain is so that they can have the

> chance to

> talk about the chronic pain and sometimes get other

> ideas on how

> to cope with the pain.

>

> I think it is a good idea for someone with chronic

> illnesses,

> and especially with chronic pain to see a counselor

> b/c it is

> true that just the stresses of dealing with the

> chronic illness

> can be a challenge.

>

> I've been seeing a counselor for 6 years now. The

> big reason

> though is b/c of stress management in general, and

> when we do

> talk at times during the sessions it will be about

> my illnesses.

> And yes, sometimes I've talked about my vulvodynia

> and other

> times my endo or my fibro and also the other issues

> going on in

> my life so that I can learn how to deal with them by

> trying to

> keep the stress in check so that I don't make myself

> sicker.

>

> The counseling just opens up another outlet to help

> with the

> coping process.

>

> Kristy

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Tami,

I know that you feel that don't have time with this pain but you

do have some time to some extent. Here's what I mean. What

about calling the office where she's at to see if she can do the

sessions on the phone or maybe come to your house? And those

sessions can be daily if need be to meet what your dr is asking

for.

Are there any clinical trials in your area on back pain that

maybe you could take part of that might help you find other ways

to treat the pain besides the stimulator since you don't want to

do the other surgery?

Pls remember that any surgery and yes that includes the

stimulator has some risks. Have you ever tried a TENS machine?

I can't remember if you had said before or not.

I know you are frustrated hun. Do you have any kind of music

you like that might help you to ease some of your stress while

you try to get help?

I care about you as do the other ladies and as I said before we

just want you to get help in a safe manner.

Kristy

__________________________________________________

[Guest guest]

I can accept that we have different opinions regarding the role of

therapists in the treatment of VVS and other similar conditions. Living in

the United States, medical care is obviously extremely expensive, and one

has to carefully consider what options you might want to take without

throwing your money out of the window. I am from Canada, and don't have to

think twice about going to see a hundred gazillion specialists because it

doesn't cost me a penny - either it is covered by the provincial health care

system, or by my private insurance company. I am currently on a waiting

list to be operated upon, so I am not holding up time or money by going to a

therapist, and therefore the therapist is considered as an essential part of

treatment.

[Guest guest]

Kristy,

Thanks hun for your advice, I really

appreciate it. Im gonna go to my family care dr. next

week and ask for the Lyme test and to get tested for

Diabetes. Im also gonna ask for a M.R.I to see where

my back is. I did make an apt. next week to see the

pain psycologist. My mom can pay next weeks visit. Im

gonna ask her when im there if she could do the

sessions over the phone, but from my experiance

probably not. I will ask though it cant hurt. You know

my pain clinic is right below the orthopedic surgen

that I talked with about the Artificial Disk

Replacement. When I went there I told him I had seen

the Dr. upstairs and he wanted to do the lumbarSpainal

Fusion. He told me that they had done a clinical trial

with patients from his office(pain clinic dr. ) for

the A.D.R upstairs. I just missed out *sigh* I'll post

if I get all the tests im asking for. Im puting my

case together now so he should have no reason to say

no. I took some celebrex and I feel a little better

today. Im not in unbearible pain like Iv been.

Hugs, Tami

--- Kristy Sokoloski wrote:

> Tami,

>

> I know that you feel that don't have time with this

> pain but you

> do have some time to some extent. Here's what I

> mean. What

> about calling the office where she's at to see if

> she can do the

> sessions on the phone or maybe come to your house?

> And those

> sessions can be daily if need be to meet what your

> dr is asking

> for.

>

> Are there any clinical trials in your area on back

> pain that

> maybe you could take part of that might help you

> find other ways

> to treat the pain besides the stimulator since you

> don't want to

> do the other surgery?

>

> Pls remember that any surgery and yes that includes

> the

> stimulator has some risks. Have you ever tried a

> TENS machine?

>

> I can't remember if you had said before or not.

>

> I know you are frustrated hun. Do you have any kind

> of music

> you like that might help you to ease some of your

> stress while

> you try to get help?

>

> I care about you as do the other ladies and as I

> said before we

> just want you to get help in a safe manner.

>

> Kristy

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Hi Tami,

First off (((hugs))).

I hope that all goes well with the Family dr and even the pain

psychologist. I had also mentioned her coming to the house as

an option just in case as you say she can't do the sesssions

over the phone.

Also, I was curious to know something. You mentioned that a

friend of yours had RSD (and I know of a few others that have it

too). I think it might be a good idea to have you checked out

to see if you have RSD as well. RSD can be very challenging to

deal with but there are some ways to help relieve it.

But I ask about this b/c I'm wondering if RSD may be a factor

for some of the reason for why you still don't feel well.

Just thinking out loud here hun.

Kristy

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