Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Hey Aisha: I found out that you and I are the same age. I will be 29 in November. First of all...WHAT A HORRIBLE STORY!...HE FORGOT!!!...I feel so terrible..and he didnt tell you, he waited for you to go back to him??...ugh!!...these Dr's are truly amazing arent they??...did he say they were testing for anything other than granulomas?...did you ask him to test for anything other than granulomas??....I know how frustrating this whole disease business is, but I have learned that half the time you need to treat these Dr's as if you are the Dr and take charge b/c as you can tell they dont know what they are doing half the time. I am so sorry you have to go through this...again none the less. Well, today I have an MRI of the brain, and tomorrow I meet with the gastro Dr. my blood tests came back positive for crohns disease. Last week I had an upper GI series which showed nothing except acid reflux. Now before I had it done they told me that the only definite way to dx crohns is through a colonoscopy with biopsy (fun, fun, fun)....so the upper gi comes back normal..and the GI guy says he sees no reason for the colonoscopy...."oh ok, its normal that I was rushed to the ER two weeks ago b/c I was bleeding when I was going to the bathroom..yeah ok"................my rheumy insists on a colonoscopy...so tomorrows visit with GI should be a blast!..........even though I need the colonoscopy I dont like going under as you mentioned. I get very nervous that I will not awake. Plus, since I have so much pain in my stomach all the time and had so much bleeding for 2 weeks, I am afraid if the invasion..... Well.....thats all for the venting....thanks for the ear... Stacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Hey chipmunk cheeks, at least you sound in halfway good spirits. Glad you got to see the horseys, more glad that you sound as well as you do. Big hugs. Elodia p.s. THIRTY, THIRTY, you know that means you will now be considered an adult and have to grow up.lol - -- In Neurosarcoidosis , " Aisha " <aisha@e...> wrote: > Dear All, > > Well I'd like to be writing to tell you that the dental saga is over but of > course this is my life we are writing about and nothing is ever that simple > in my life. > > Today was post op appointments with Mr Maxillofacial Surgeon and Mr Hospital > Dentist. > > Now, for those of you I have not informed, which is probably all of you, I > was rather pissed off to find that when the swelling subsided I still had > this gaping hole in my front tooth. This of course was supposed to be filled > Why had I been in surgery for 2 and a half hours only to find that I still > had a filling that was not done? I was furious. We also had no biopsy > results which was odd. > > Yesterday I made an appointment with my own dentist for next week to get the > filling done, and to check over all the dental/oral work just to make sure > it was done right. My dentist is a gem. He will also be furious that it has > taken so long, that I had to go back because Mr Hospital Dentist originally > lost my chart, and that now this filling was not done despite all the > preparations. Remember - my dentist has extremely high standards. He will > also feel responsible, because he is a sweetie, that things didn't go quite > as they should have. I'm just glad I have him as my dentist! > > Todays visits: > > Mr Maxillofacial Surgeon was thrilled. All wisdom teeth sites have healed > perfectly, as has the lip biopsy area. He did not get any biopsy results. He > was not even informed by Mr Hospital Dentist why he was doing a salivary > gland biopsy. Anyhow, sites are healed and I never have to see him again > unless I need a Maxillofacial guy. He was very good! > > Mr Hospital Dentist asked me how I was. I told him that it had been a rough > week but I was picking up but I had a hole in my tooth. He said: " I know, I > forgot to do it and only remembered when you were waking up. " > > Then why did he chart all the work that needed to be done? The precious > chart that he made me go back to bloody Randwick to redo because he lost the > first lot. Did he not recheck this? I did not kill him. He was honest. I was > polite. > > He then said: " We can't do it today but you can come back next week la la la > la la " and that is when I told him that I was seeing my Dentist next week. I > don't think I needed to say more. > > I asked if he had the biopsy information. Oh yes he did. He had had it for a > while. He did not bother to inform my immunologist, nor the Maxillofacial > surgeon of the results. Rather rude I thought. However the report says that > there is no sign of neurosarcoidosis in my salivary gland. Well I guess > there wouldn't be would there? My brain isn't in my salivary glands. UGH! > There were 5 glands taken, and I'm faxing all the details to Mr Immunologist > so he can get them and do all his tests on them. I doubt anything other than > " there is no granuloma here " was done. > > Mr Hospital dentist said he would file down any sharp points of my bite, > since he couldn't do that in hospital when I was unconscious. One side was > fine. The other - tiny polishing needed. He managed to grind my cheek, the > tooth that is connected to my TN trigger, and generally prove that as a > dentist I think he'd make an excellent lawn mower. > > I thanked him for organising it all, for that he did manage to do that. I > was polite - you never know when you'll need someone again, and we left. Oh > yes, we are getting a refund on the filling he never did also. Hopefully I > will never have to go there again. > > Since we pass Randwick race course, I have been horse spotting each time. > Today I finally saw three horses. I was happy! Also three planes and a fairy > in the hospitals gift shop window that had sparkly shoes. I'd have bought it > but I don't have money and they were closed anyhow. > > So the dental saga goes on. Next Thursday I see Mr Dentist - The Man! > Hurrah! Then Sept it's Mr Gyn about hormones who may say redo ablation. > After many tests it's Mr Immuno again. Mr Neuro is not going to be happy > because Mr Neck Dr phoned and put me back a few weeks so that's the middle > or end of Sept? Personally I think I will never get to Mr Neck Dr. He seems > like the Invisible Man. > > Who knows - maybe come October I'll be on Anti-TB meds? I can start them as > a treat when I turn 30. > > Oh what a life. > > Hope your happy, healthy, rich, and blessed. > Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Aisha, what a crock! How could he forget to fill a hole that was staring him right in the face? Sounds like an idiot. You know, I read something recently about a procedure that may replace endometrial ablation for many women. I can't remember what it was called or even how it's done, but it usually works for good, whereas the ablations often need repeated. You might ask your gyn doc. I'll try to find the info. Rose The Saga Continues > Dear All, > > Well I'd like to be writing to tell you that the dental saga is over but of > course this is my life we are writing about and nothing is ever that simple > in my life. > > Today was post op appointments with Mr Maxillofacial Surgeon and Mr Hospital > Dentist. > > Now, for those of you I have not informed, which is probably all of you, I > was rather pissed off to find that when the swelling subsided I still had > this gaping hole in my front tooth. This of course was supposed to be filled > Why had I been in surgery for 2 and a half hours only to find that I still > had a filling that was not done? I was furious. We also had no biopsy > results which was odd. > > Yesterday I made an appointment with my own dentist for next week to get the > filling done, and to check over all the dental/oral work just to make sure > it was done right. My dentist is a gem. He will also be furious that it has > taken so long, that I had to go back because Mr Hospital Dentist originally > lost my chart, and that now this filling was not done despite all the > preparations. Remember - my dentist has extremely high standards. He will > also feel responsible, because he is a sweetie, that things didn't go quite > as they should have. I'm just glad I have him as my dentist! > > Todays visits: > > Mr Maxillofacial Surgeon was thrilled. All wisdom teeth sites have healed > perfectly, as has the lip biopsy area. He did not get any biopsy results. He > was not even informed by Mr Hospital Dentist why he was doing a salivary > gland biopsy. Anyhow, sites are healed and I never have to see him again > unless I need a Maxillofacial guy. He was very good! > > Mr Hospital Dentist asked me how I was. I told him that it had been a rough > week but I was picking up but I had a hole in my tooth. He said: " I know, I > forgot to do it and only remembered when you were waking up. " > > Then why did he chart all the work that needed to be done? The precious > chart that he made me go back to bloody Randwick to redo because he lost the > first lot. Did he not recheck this? I did not kill him. He was honest. I was > polite. > > He then said: " We can't do it today but you can come back next week la la la > la la " and that is when I told him that I was seeing my Dentist next week. I > don't think I needed to say more. > > I asked if he had the biopsy information. Oh yes he did. He had had it for a > while. He did not bother to inform my immunologist, nor the Maxillofacial > surgeon of the results. Rather rude I thought. However the report says that > there is no sign of neurosarcoidosis in my salivary gland. Well I guess > there wouldn't be would there? My brain isn't in my salivary glands. UGH! > There were 5 glands taken, and I'm faxing all the details to Mr Immunologist > so he can get them and do all his tests on them. I doubt anything other than > " there is no granuloma here " was done. > > Mr Hospital dentist said he would file down any sharp points of my bite, > since he couldn't do that in hospital when I was unconscious. One side was > fine. The other - tiny polishing needed. He managed to grind my cheek, the > tooth that is connected to my TN trigger, and generally prove that as a > dentist I think he'd make an excellent lawn mower. > > I thanked him for organising it all, for that he did manage to do that. I > was polite - you never know when you'll need someone again, and we left. Oh > yes, we are getting a refund on the filling he never did also. Hopefully I > will never have to go there again. > > Since we pass Randwick race course, I have been horse spotting each time. > Today I finally saw three horses. I was happy! Also three planes and a fairy > in the hospitals gift shop window that had sparkly shoes. I'd have bought it > but I don't have money and they were closed anyhow. > > So the dental saga goes on. Next Thursday I see Mr Dentist - The Man! > Hurrah! Then Sept it's Mr Gyn about hormones who may say redo ablation. > After many tests it's Mr Immuno again. Mr Neuro is not going to be happy > because Mr Neck Dr phoned and put me back a few weeks so that's the middle > or end of Sept? Personally I think I will never get to Mr Neck Dr. He seems > like the Invisible Man. > > Who knows - maybe come October I'll be on Anti-TB meds? I can start them as > a treat when I turn 30. > > Oh what a life. > > Hope your happy, healthy, rich, and blessed. > Love Aisha. > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives and Digest Attachment Pictures:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Bookmarks:- > Add a website URL you have found useful. > http://groups.yahoo.com/group/Neurosarcoidosis/links > > Personal Complaints or problems:- > Please email the moderators > mailto:Neurosarcoidosis-owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > To modify your subscription settings please visit:- > http://groups.yahoo.com/group/Neurosarcoidosis/join > > To subscribe email neurosarcoidosis-subscribe > To unsubscribe email neurosarcoidosis-unsubscribe > > The moderators will not be doing it for you! > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > Come stand by my side where I am going, > Take my hand if I should stumble and fall, > It's the strength and love that you share, > That gives me what I need most of all. > - Hoyt Axton > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Aisha I hope you did'nt forget to kick Mr hospital dentist where is really hurts .Quint Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Yeah, tell to sit on a little stool at the foot of the chair & check your reflexes! Rose Re: The Saga Continues > Aisha I hope you did'nt forget to kick Mr hospital dentist > where is really hurts .Quint > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives and Digest Attachment Pictures:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Bookmarks:- > Add a website URL you have found useful. > http://groups.yahoo.com/group/Neurosarcoidosis/links > > Personal Complaints or problems:- > Please email the moderators > mailto:Neurosarcoidosis-owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > To modify your subscription settings please visit:- > http://groups.yahoo.com/group/Neurosarcoidosis/join > > To subscribe email neurosarcoidosis-subscribe > To unsubscribe email neurosarcoidosis-unsubscribe > > The moderators will not be doing it for you! > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > Come stand by my side where I am going, > Take my hand if I should stumble and fall, > It's the strength and love that you share, > That gives me what I need most of all. > - Hoyt Axton > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Hey Stacie, I'm older than you! I'm going to be 30 in October *screams* Yeah he forgot. Dumbass. I wasn't impressed. I'm wondering which one of my Dr's has chewed him up yet? LOL. He didn't even do the right damn test. He tested for neurosarcoidosis. Not even sarcoidosis. Idiot. The Maxillofacial guy said he didn't even get informed of what he was doing the biopsy for! When I said sarcoidosis his face went grim and said that some of the glands should have been put in a prep of some kind. He would have done that if he had known. I think it was all a waste of time now. And there is no way they can find " Neurosarcoidosis in a salivary gland. IDIOT. My immunologist will get my tissue and do tests, he's a pathologist, but I'm sure he prolly has thought " this is a bit of a waste. " He was supposed to test for whatever my immunologist said, and my immunologist would not have said neurosarcoidosis. My immuno is very factual in what he wants done. Crohns isn't unlikely sweetie. You can have a raised ace level with Crohns too. The colonoscopy isnt much fun though the preperation is worse . Don't be afraid Stacie. You need it done to be well, and Rose has a million butt jokes she will Crack at your expense. *hugs* Love Aisha -- Re: The Saga Continues Hey Aisha: I found out that you and I are the same age. I will be 29 in November. First of all...WHAT A HORRIBLE STORY!...HE FORGOT!!!...I feel so terrible. and he didnt tell you, he waited for you to go back to him??...ugh!!...these Dr's are truly amazing arent they??...did he say they were testing for anything other than granulomas?...did you ask him to test for anything other than granulomas??....I know how frustrating this whole disease business is, but I have learned that half the time you need to treat these Dr's as if you are the Dr and take charge b/c as you can tell they dont know what they are doing half the time. I am so sorry you have to go through this...again none the less. Well, today I have an MRI of the brain, and tomorrow I meet with the gastro Dr. my blood tests came back positive for crohns disease. Last week I had an upper GI series which showed nothing except acid reflux. Now before I had it done they told me that the only definite way to dx crohns is through a colonoscopy with biopsy (fun, fun, fun)....so the upper gi comes back normal..and the GI guy says he sees no reason for the colonoscopy.... " oh ok, its normal that I was rushed to the ER two weeks ago b/c I was bleeding when I was going to the bathroom..yeah ok " ................my rheumy insists on a colonoscopy...so tomorrows visit with GI should be a blast!......... even though I need the colonoscopy I dont like going under as you mentioned. I get very nervous that I will not awake. Plus, since I have so much pain in my stomach all the time and had so much bleeding for 2 weeks, I am afraid if the invasion..... Well.....thats all for the venting....thanks for the ear... Stacie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Yuppers Rose, he is an Idiot! The same idiot that lost my chart between two rooms. I see Mr Gyn on Sept. 1 and am sure he will tell me all the latest and greatest things. He did say that I may have to have a repeat ablation. He has a microwave zapper thing now, so I just get put in the microwave and go bing. Takes 10 mins. Then I get woken up and rest and recover and come home Plus it's in the hospital that is 1 min up the road. Sounds almost blissful compared to the last month. Now I know you've been stressed off your face so whats going on? Love you! ishburger the first. -- Re: The Saga Continues Aisha, what a crock! How could he forget to fill a hole that was staring him right in the face? Sounds like an idiot. You know, I read something recently about a procedure that may replace endometrial ablation for many women. I can't remember what it was called or even how it's done, but it usually works for good, whereas the ablations often need repeated. You might ask your gyn doc. I'll try to find the info. Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 " She will CRACK " a butt joke!!!!!1 Too Punny!!!!!!! Nee Quote Link to comment Share on other sites More sharing options...
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