Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 please take me off this list thank-you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Aisha, We are all rooting for you! Good luck! Best wishes, Neisa > [Original Message] > > To: Neurosarc list <neurosarcoidosis > > Date: 8/4/2003 4:05:45 AM > Subject: Thinking > > Dear All, > > Tonight I'm sitting here valuing life. > > I wrote a will and funeral plan today. Just precautionary, but considering > that tomorrow I'm under a general anaesthetic for 2+ hours and am on meds > with side effects that can cause seizures etc (eg can kill you) I thought I > should do something to make it easier on those living should I die. I am not > planning to, nor do I think I will, but it was a responsible thing to do. > > It was one of the hardest things I have seriously done. > > It is very easy to have a bad day and say " I hate my life I wish I were dead > but to see everyone at your funeral while you try to write a plan for it is > very hard. You know how they will be. Devistated. Same as you would be if it > were your loved ones funeral. > > Yeah people get on your nerves and yeah you need to vent. Sure I really hate > this illness and there are times that I wish it gone, but I desperately love > the people in my life. If that means I have to be sick to have them here, > then I can accept that. Doesn't mean I am going to like it, or stop fighting > it, but I will accept it and not be ungrateful. At least I have loved ones. > > It was a strong lesson not to throw away moments, because we might not have > another one and I'd really miss you all if that was the case. > > See you after the surgery. > Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Sweet Gentle Hugs, and I'm asking Tracie to share her comfort blanket with you and G.... YES, YOU CAN SHARE MY BLANKET. (PLEASE LET ME STAY IN THERE TOO!) YOU CAN HAVE THE WARM PART, IT'S 100 DEGREES HOT HERE. LOVE AND SNUGGLES, TRACIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 This was beautiful, so very true, and straight from her heart......Aisha is a very smart, level headed woman with a giving heart and a knowledge way beyond what most of us have.......I hope each and every one of us (including me) REALLY read this and stop to smell the roses...what she says is very true.....we get so tired of being sick while others are well and we get so tired of not being able to do things that we want to do, need to do, or used to do......(I am there right now!).....we all need to copy this letter from Aisha and save it where we can see it daily...there is really a lot of good, solid, info there. My dear Aisha, you are in my prayers daily and I will be waiting to hear the good news that you are home and doing well and will be back with us very shortly! Love to all and especially our Aisha! Darlene > Dear All, > > Tonight I'm sitting here valuing life. > > I wrote a will and funeral plan today. Just precautionary, but considering > that tomorrow I'm under a general anaesthetic for 2+ hours and am on meds > with side effects that can cause seizures etc (eg can kill you) I thought > I > should do something to make it easier on those living should I die. I am > not > planning to, nor do I think I will, but it was a responsible thing to do. > > It was one of the hardest things I have seriously done. > > It is very easy to have a bad day and say " I hate my life I wish I were > dead > but to see everyone at your funeral while you try to write a plan for it > is > very hard. You know how they will be. Devistated. Same as you would be if > it > were your loved ones funeral. > > Yeah people get on your nerves and yeah you need to vent. Sure I really > hate > this illness and there are times that I wish it gone, but I desperately > love > the people in my life. If that means I have to be sick to have them here, > then I can accept that. Doesn't mean I am going to like it, or stop > fighting > it, but I will accept it and not be ungrateful. At least I have loved > ones. > > It was a strong lesson not to throw away moments, because we might not > have > another one and I'd really miss you all if that was the case. > > See you after the surgery. > Love Aisha. > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://www.elderwyn.com/neurosarcoidosis/chat.php > > Message Archives and Digest Attachment Pictures:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Bookmarks:- > Add a website URL you have found useful. > http://groups.yahoo.com/group/Neurosarcoidosis/links > > Personal Complaints or problems:- > Please email the moderators > mailto:Neurosarcoidosis-owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your > convenience and receive no email. > To modify your subscription settings please visit:- > http://groups.yahoo.com/group/Neurosarcoidosis/join > > To subscribe email neurosarcoidosis-subscribe > To unsubscribe email neurosarcoidosis-unsubscribe > > The moderators will not be doing it for you! > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > Come stand by my side where I am going, > Take my hand if I should stumble and fall, > It's the strength and love that you share, > That gives me what I need most of all. > - Hoyt Axton > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Ish, I'm glad that you have valued your life.. we all need to do that.... and yes your right about the will and funeral plan... it needs be done... I know your scared anytime you go under anasesthia it is serious business....and should not be taken lightly.... But my friend as many people that are sending their prayers and well wishes to you from all over the world.. you can't help but do fine...We are thinking how much we love and appreciate all you do for the group and how much help you have given us with you insight and information of this ugly disease.... that otherwise most of us would not know..... and would still be more lost than we are.... Your a strong and couragous woman... hear you roar..lol..... Sweet Gentle Hugs, and I'm asking Tracie to share her comfort blanket with you and G.... I'm sure she will, she loves you too.... as Shar has said, in your LJ you really have no clue how many peoples lives you have touched, you my dear are a rare gem...and we are oh so blessed to have found you.... With all the love and support I have, for you and G..... Love you muchly, -- Thinking Dear All, Tonight I'm sitting here valuing life. I wrote a will and funeral plan today. Just precautionary, but considering that tomorrow I'm under a general anaesthetic for 2+ hours and am on meds with side effects that can cause seizures etc (eg can kill you) I thought I should do something to make it easier on those living should I die. I am not planning to, nor do I think I will, but it was a responsible thing to do. It was one of the hardest things I have seriously done. It is very easy to have a bad day and say "I hate my life I wish I were dead but to see everyone at your funeral while you try to write a plan for it is very hard. You know how they will be. Devistated. Same as you would be if it were your loved ones funeral. Yeah people get on your nerves and yeah you need to vent. Sure I really hate this illness and there are times that I wish it gone, but I desperately love the people in my life. If that means I have to be sick to have them here, then I can accept that. Doesn't mean I am going to like it, or stop fighting it, but I will accept it and not be ungrateful. At least I have loved ones. It was a strong lesson not to throw away moments, because we might not have another one and I'd really miss you all if that was the case. See you after the surgery. Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Thanks sweet Tracie, I knew you wouldn't mind, sharing with ish..... Love ya, -- Re: Thinking Sweet Gentle Hugs, and I'm asking Tracie to share her comfort blanket with you and G....YES, YOU CAN SHARE MY BLANKET. (PLEASE LET ME STAY IN THERE TOO!) YOU CAN HAVE THE WARM PART, IT'S 100 DEGREES HOT HERE. LOVE AND SNUGGLES,TRACIE ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Aisha all things with god are possible so I asked God to wrap his loving arm around you and help you though this . I am still praying for you and sending all my love....QUINT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Thinking of you Aisha. I hope that all goes well for you!!! Take care, Ann Thinking Dear All, Tonight I'm sitting here valuing life. I wrote a will and funeral plan today. Just precautionary, but consideringthat tomorrow I'm under a general anaesthetic for 2+ hours and am on medswith side effects that can cause seizures etc (eg can kill you) I thought Ishould do something to make it easier on those living should I die. I am notplanning to, nor do I think I will, but it was a responsible thing to do. It was one of the hardest things I have seriously done. It is very easy to have a bad day and say "I hate my life I wish I were deadbut to see everyone at your funeral while you try to write a plan for it isvery hard. You know how they will be. Devistated. Same as you would be if itwere your loved ones funeral. Yeah people get on your nerves and yeah you need to vent. Sure I really hatethis illness and there are times that I wish it gone, but I desperately lovethe people in my life. If that means I have to be sick to have them here,then I can accept that. Doesn't mean I am going to like it, or stop fightingit, but I will accept it and not be ungrateful. At least I have loved ones. It was a strong lesson not to throw away moments, because we might not haveanother one and I'd really miss you all if that was the case. See you after the surgery. Love Aisha.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Aisha, I can relate to what you are saying, i have been searching for life insurance lateley which i never gave any thought to before cause i never wanted to think about death. I still don't want to think about death but i have already mentioned to Corrina which is the one i would handle my affairs , i asked her the other day if she would if i died, and you are right it was so hard just talking about that. So i haven't gotten to the planning part. But you will be in my prayers and i truely believe will come out of this surgery ok, may be in some pain for a while maybe even a few days.............but you are strong, and i know you can handle this. Just know you are loved and that God and I are right there with you craddling you in our arms with much love, you will be ok, my dear one. Love ya, now you are making me cry too, thats ok tho tears for a friend means tears till the end, in other words friends forever. Jan Faith makes all things possible,Love makes it easy.......................Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Dear, dear Aisha, I'm thinking of you Aisha. I hope that all goes well for you. Take care and of course don't say " I hate my life I wish I were dead " That's too easy. Fight, you must fight. You will come back !!! I wish you all the best after the surgery !!! But you know that !!! I had the 3 operation in 3 months time now and a few weeks ago I still couldn't do anything but I didn't give up and I will be back again. Now I'm om physiotherapy again and start slowly with finding my life back. There were so many times after the second and third surgery that I did not know how to find something to live for. But you and all your friends from this group helped me. And ofcourse my family! So always think about that, you are not alone, the whole group thinks about you and the world and your life is much too beautiful to stop fighting ! > Dear All, > > Tonight I'm sitting here valuing life. > > I wrote a will and funeral plan today. Just precautionary, but considering > that tomorrow I'm under a general anaesthetic for 2+ hours and am on meds > with side effects that can cause seizures etc (eg can kill you) I thought I > should do something to make it easier on those living should I die. I am not > planning to, nor do I think I will, but it was a responsible thing to do. > > It was one of the hardest things I have seriously done. > > It is very easy to have a bad day and say " I hate my life I wish I were dead > but to see everyone at your funeral while you try to write a plan for it is > very hard. You know how they will be. Devistated. Same as you would be if it > were your loved ones funeral. > > Yeah people get on your nerves and yeah you need to vent. Sure I really hate > this illness and there are times that I wish it gone, but I desperately love > the people in my life. If that means I have to be sick to have them here, > then I can accept that. Doesn't mean I am going to like it, or stop fighting > it, but I will accept it and not be ungrateful. At least I have loved ones. > > It was a strong lesson not to throw away moments, because we might not have > another one and I'd really miss you all if that was the case. > > See you after the surgery. > Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Dear Aisha, Sorry I forgot to sign the message above. So here it is: A big big dutch hug, I think of you !!! Good luck at the surgery !!! Quote Link to comment Share on other sites More sharing options...
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