Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie, I was either 45 or 50 I say that because my voice went in 1991 and the other problems popped up in 1995 during the time I starting menopause and falling and breaking my wrist........I firming believe that trama can set this PLS off .......................Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 I was about 48 when my speech started becoming slow and slurred, in 93 or 94 and I was dx'd. in 97 but still was quite active (tennis) at that time. It was late 98 that I gave up tennis. So, guess I'm almost in this arena for 10 years now. Gentner Fremont, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 --Bonnie, I was 45, but had symptoms 15 years before that. Carolyn- In PLS-FRIENDS , " bonniemcisaac " <googlesbc@a...> wrote: > Good morning to my PLS friends, > Just curious, how old were you when you were diagnosed with PLS? I > was 27. I know PLS usually affects people after 50, and I was just > wondering. Hope this message finds everyone i good spirits. > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie: I was 68 and can trace the first symptoms to just 4 years prior to diagnosis. Dorothy > Good morning to my PLS friends, > Just curious, how old were you when you were diagnosed with PLS? I > was 27. I know PLS usually affects people after 50, and I was just > wondering. Hope this message finds everyone i good spirits. > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Hi Bonnie, I was almost 52 when diagnosed, and had exhibited symptoms for about 1 1/2 years or so. For quite a few years prior to diagnosis, I would have people ask me if I'd hurt my foot or my ankle. They would mention that I was limping. I didn't notice it, but others did. When I started wearing out the toes of my shoes, and tripping a lot (on nothing) I thought it was time to check it out. I thought an old back injury was pinching a nerve or something, so I went to the Spine Center at Mayo Clinic in Minnesota. The physiatrist was not concerned about my back at all, but about the neurological symptoms that I had. I was much more fortunate than most to get a diagnosis within 3 months. I am also very fortunate to be mildly affected, and progressing very slowly. For this, I thank God every day, and try to do as much as possible......just slower. Hugs, Laurel Age when diagnosed? Good morning to my PLS friends, Just curious, how old were you when you were diagnosed with PLS? I was 27. I know PLS usually affects people after 50, and I was just wondering. Hope this message finds everyone i good spirits. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie, Hi I started having symptoms back in 1984 at the age of twenty-five and I had weakness and spasticity in my legs only. The symptoms plateaued in 1990 and did not return until 2000 gradually. It wasn't until 2002 did symptoms show in arms,hands,throat,neck with cramps and muscle twitches. I am 44 now also going through menopause. Re: Age when diagnosed? Hi Bonnie, I was almost 52 when diagnosed, and had exhibited symptoms for about 1 1/2 years or so. For quite a few years prior to diagnosis, I would have people ask me if I'd hurt my foot or my ankle. They would mention that I was limping. I didn't notice it, but others did. When I started wearing out the toes of my shoes, and tripping a lot (on nothing) I thought it was time to check it out. I thought an old back injury was pinching a nerve or something, so I went to the Spine Center at Mayo Clinic in Minnesota. The physiatrist was not concerned about my back at all, but about the neurological symptoms that I had. I was much more fortunate than most to get a diagnosis within 3 months. I am also very fortunate to be mildly affected, and progressing very slowly. For this, I thank God every day, and try to do as much as possible......just slower. Hugs, Laurel Age when diagnosed? Good morning to my PLS friends, Just curious, how old were you when you were diagnosed with PLS? I was 27. I know PLS usually affects people after 50, and I was just wondering. Hope this message finds everyone i good spirits. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie: I was noticing the age disparity as well! I was diagnosed with HSP in 1989, age 19.... and recently re-Dx-ed last fall with PLS at age 33. bonniemcisaac wrote: > Good morning to my PLS friends, > Just curious, how old were you when you were diagnosed with PLS? I > was 27. I know PLS usually affects people after 50, and I was just > wondering. Hope this message finds everyone i good spirits. > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie, I was 40 when I was first diagnosed. I was having trouble maintaining my balance while walking. I had hyper reflexes at my knees, foot drop, and calf cramps. At that point, I was not even using a cane. I had extremely subtle symptoms as far back as my childhood. My reflexes at my knees have always been hyper. One family doctor almost got kicked between his legs as a result. Mark > Good morning to my PLS friends, > Just curious, how old were you when you were diagnosed with PLS? I > was 27. I know PLS usually affects people after 50, and I was just > wondering. Hope this message finds everyone i good spirits. > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 My wife was re-diagnosis at age 51 with PLS....but her original symptoms and initial apparently wrong dx of MS was at started at age 22. mark sawyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie I was 44 when I started having symptoms.Diagnosed at 47. Bobbi Ky. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Bonnie, Getting a little personal, aren't we? This age thing is something I find rather interesting. Many of us have been diagnosed in our late 40's. You were only 27? I was diagnosed at the age of 48, but had been having problems for at least 2 years. Was hospitalized when I couldn't walk any longer; this was 2/95. Have been using a walker of some sort ever since. In 1996, after my diagnosis and a medication change, I thought I had it made. Went back to work and proceeded to throw coffee all over my office and had to start using a covered mug. Same at home. I was still having paroxysmal spasms for about one year after being weaned off Valium (diazepam), a wicked drug. I thought those were going to kill me and almost did. I came out of one, vomited and aspirated. I knew I was going to vomit when I came out of the spasm because I could feel it in my throat. (I am fully conscious during these siezure-like spasms but cannot move or breathe.) I ended up in ER about 3 hours after I aspirated and was hospitalized immediately and started on antibiotics IV. Was transferred to Methodist Hospital in Indianapolis because my neurologist wanted me near him. I was seen by a very good Critical care respiratory specialist there. I did not know how close I was to dying until I was able to breathe without the oxygen. My body started responding to the massive doses of antibiotics I was being given just about the time the two Drs. had decided to put me on a respirator. They both told me independently that I was very close to being a memory for all who knew me. God was with me then and every time I have fallen and gotten bloody enough to go to ER. I still look human. So, I guess, now that I am 55 and still working and walking with a walker that I have stabilized and am doing well. I haven't fallen since my last trip to the hospital in 2/03, but I know it will happen again. It always has. I'm just not going to worry about it. Perhaps that means I am in good spirits. Certainly feel like it. Hope you are, too. Mike Gray bonniemcisaac wrote: >Good morning to my PLS friends, >Just curious, how old were you when you were diagnosed with PLS? I >was 27. I know PLS usually affects people after 50, and I was just >wondering. Hope this message finds everyone i good spirits. >Bonnie > > > > > > Quote Link to comment Share on other sites More sharing options...
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