Re: Newbie

[Guest guest]

Welcome to the list ! You've come to the right place

[Guest guest]

> I tend to bloat after meals which makes me look pregnant.

Do you have food intolerances? I bloat when I eat soy and have found that

one key to me losing is to not eat it!

Kirstie

[Guest guest]

,

Welcome to the list. I hope you'll be able to find enough inspiration here

to help you stay on the straight and narrow.

Now, one motherly piece of advice . . . . six weeks to lose 38 pounds is

probably unrealistic, so don't set yourself up to be disappointed, and then

as a result feel as though you failed.

Every pound, every half pound, every ounce of fat you lose is a success. It

doesn't matter how quickly it happens, in fact, what matters is whether you

are able to maintain that loss, and often those who lose more slowly are

able to maintain the loss better.

So, now is the time to get a grip, make permanent changes in your eating

habits, and lose that weight once and for all. Even if it takes a year, and

it might. It took me 9 months to lose 40 pounds doing Atkins, along with

the weight I lost from gastric bypass surgery. And I'm keeping it off for

over 2 years now. My surgical weight loss has been gone for over 8 years

now.

It can be done, but it requires a change in the way you look at food and

eating. You can do it too.

Terry

[Guest guest]

Welcome ! You will do just fine with this WOE, we are all here

for your support!!! Go , Go ! :-) Keisha

[Guest guest]

That's a tough goal ! I've been doing this woe for 8 weeks or

so and have lost almost 10 pounds...slowly but surely. I tell myself

if I keep up this pace, I will lose 52 pounds a year! How great is

that!

Suzanne

> I have begun Atkins' induction today. I have done pretty well.

> This is the second time for me. Last time I gave in and binged on

all

> the goodies and sweets I could pack into my poor body. Needless to

> say, I gained the 19 pounds back and then some.

> I tend to bloat after meals which makes me look pregnant. And I am

> always on the go so I have little time to prep amazing meals. I

have

> 3 kids at home NOT eating this way so that is tough. I think all I

> need is the willpower to stick with this and when I see the

results...

> I have 38 pounds to lose. I want to obtain this goal by my 30th

> birthday, (mid May). HELP!!

>

[Guest guest]

Hi, Janice, and welcome to the group who will NOT tell you it's all in your

head. We

have all been there...done that. It's very frustrating, we know, and the

best thing you

can do is to take charge of your own case, and insist on referrals to

Rheumatologists,

Endocrinologists, and any other specialists you may need. You also should be

seeing

someone who deals regularly with autoimmune disorders (which you sound like a

typical Lupus patient in the throes of finding a diagnosis), who can

prescribe the

correct treatments, and antidepressants. Depression is NOT insanity,

although it can

lead to what most people would call insane behaviors. Depression is caused

by a

chemical imbalance in the brain which can be treated with various

antidepressants.

It may take a while to find the one that works best for you, but the journey

is well

worth the destination. Do not give up the pursuit because of uncooperative

doctors.

We've all had those, and have searched until we found one who will 1. listen,

2. listen,

3. listen, and 4-10. get busy finding what works for our individual case.

So, don't give up the ship, honey. We are here to listen, share experiences,

information, and commiseration. We welcome questions, concerns, and we even

offer

cheese to go with the occasional whine. LOL

I am the 54 year old adoptive mother of four, grandmother of two, and I live

in No.

Calif. about 50 miles from San Francisco. I was dx'd with SLE, Rheumatoid

Arthritis,

Sjogren's, Lyme Disease, Myofibrositis, and non-insulin dependent diabetes

between

the ages of 30 and 45, but the trouble started when I was about ten years

old. So,

yes, Lupus can take years, even decades to surface and make itself

identifiable, and

it can be some great friends, here, too.

Again, welcome, and keep writing to the group. It helps. For more up to the

minute

information on Lupus and attendant conditions, visit the main Lupies website,

and

click on the informational sites listed there. Hugs, MM aka: Mike, one

of the

moderators

[Guest guest]

Janice, while reading your letter, I started crying..I too have been through all of what your going through. It was rough when I was 16 years old and my knees, hips , elbows and shoulders hurt all the time.. one doctor told my parents.. she weighs 155 lbs.. it is all her weight. if she would loose weight she would feel better.. hey i lost the weight.. did not help.. well you need to loose more., then when that did not work, i just stopped telling anyone that i ached. I had sezuries (sp?) I fell and hit my head.. that what caused them......kidney infections.. to many soft drinks is what the doctor said.

unbeliveable peroids.. would cramp and bleed so much I would have to wear, 3 or 4 pads for days... I thought it was normal. Mom would not send us my sister and I to OBGYN good girls who had not had sex did not need to go. take a asprin.

flu, colds, infections all the time. Headaches... they had to put me on Darvocet in Jr high for. No one mentioned Lupus.. all was just different things. When I first got sick

joint pain so bad that I could not stand up stright or walk very far. my parents told me that I need to get out and walk.. stop laying around in that bed.. this is the reason you are so stiff and sore. My husband he felt so sorry for me.. All he would tell me to do is Carol Go to the doctor.. go to every doctor in the US but something is wrong.. this is not you.

If it were not for Ralph I dont know what I would have done. except.. take asprin..lol

Now I don't sleep even with sleeping pills , I cry all the time. tired.. just bone, tired.. no about of rest will help it., no about of sleep will cure it. I can get up in the morning and feel like i have not slept.

Wow.. I have just relized how much I wrote.. sorry for getting on my soap box.

I just wanted to let you know that I have been there.. We all have been there.. If there is anything we can do.. just yell. Your in my prayers.. hope you get some relief .

and I will pray that your doctors and nurse. will receive wisdom, knowledge, and understanding to deal with you. My primary care doc is a great Christian woman..and she really works with me.. she makes me appologize to her nurses when i go off on them...lol.. Carol

Newbie

Hi - just wanted to drop in and say hi and introduce myself. I'm new on the block and hope to find a good support system here. My name is Janice, I live in Midwest City, Oklahoma, I'm 52, have two grown children - Amy 23 and Kris 22. I have a bird - baby blue and 2 fish left in the fish tank. I enjoy my African violets that I manage to keep alive and blooming. Up until last year I had a wonderful yard, but the sun really irritated my skin last year so things sort of went down hill. I never went to the doctor about it because I didn't realize that it could be symptoms of anything other than just an irritation or allergy. This year has been hell - sorry - just really bad. I've been off work for 3 year due to depression and MPD/DID. The depression this year ahs been horrible - worse than ever. Now I can't even begin to get in the sun. I ache, hurt and stay swollen most of the time. I have asthma and allergies. I've had degenerative joint disease in my right hip for years. I feel like I have the flu all the time. My skin burns to the point it makes my eyes hurt. I had whelps on the backs of my hands and a horrible rash on my face, chest, upper arms and across my shoulders. finally out of desperation I went to the doctor again on Tuesday of this week. I said - check me for Lupus. He said why - I said because I have all the symptoms ( I have a friend with it and she has tried for years to get me to be tested) The doctor says well I know you have the symptoms, but you don't really want that diagnosis do you? I said I want whatever is wrong with me so it can be treated. So after an argument he finally had some blood drawn - tested for TSH, RA Factor, ANA, WBC, and BS. Now he says that the WBC shows something viral is going on, TSH is 2.5, RA Factor is negative, BS is 90, and the ANA is inconclusive. So what is wrong with me???? he gave me Atarax for anxiety and itching skin. I screamed at him - my frickin skin doesn't itch - it burns like a sun burn all the time. He said try this until Monday and if not better give me a call. Well, do I call him or call someone else for an appointment? What does it mean that the ANA is inconclusive?? Makes me wonder if he even really had the tests run. I've been through this all my life. The doctors can never figure out what is worng with me. I suffered with gall bladder for almost 2 years before they finally figured out that is what it was. They wouldn't test it because I as too young(19) - according to them - to have gall bladder trouble. I nearly bled to death hemorrhaging from my periods. They wouldn't believe me how bad they really were. I have had teeth abscess and they would tell me it was an ear infection - yet the MD didn't find that either - only later to have the tooth abscess burst on the side of my gum. My entire life has been a nightmare of being told things were all in my head and I don't really feel what I feel. Now I'm hitting that again and frankly - it just feels like way too much to deal with.

Well, sorry - didn't mean to just go on and on. I think I'm just totally frustrated because I feel so bad and the depression is kicking butt big time right now. Any offers of suggestions and help or websites or anything you can offer would be so muchly appreciated. I look forward to getting to know each of you.

Janice"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Janice, I think I would try another dr. I dont have lupus, just fibro, but I

know alot of people with both on another group. It's just a big group of

people with both heath problems and the things you are describing sounds alot

like the problems that my sister gets with her lupus. Plus there are other

disorders that can appear to be lupus but aren't. I am pretty sure that you

will get much better advice from some of these other people.

a

[Guest guest]

I was diagnosed by having a lung biopsy done. And the dr I went to see

for the second opinion is at OSU., it's a teaching hospital. I have

been on oxygen for 5 yrs. I now have a dry cough, and i can't sleep

laying down anymore, even with a pillow wedge. I most generally sleep

sitting up on the couch.

[Guest guest]

Tammy, I was born and lived in Dayton until I was 16. I have a sister in burg.  Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." I was diagnosed by having a lung biopsy done. And the dr I went to see for the second opinion is at OSU., it's a teaching hospital. I have been on oxygen for 5 yrs. I now have a dry cough, and i can't sleep laying down anymore, even with a pillow wedge. I most generally sleep sitting up on the couch. 

[Guest guest]

So you went undiagnosed for four years. Sounds like you've been through

the processes. The sleeping is a problem for many of us. You also need

to be aware of any possible Gerd/Acid Reflux. It's quite common with

IPF and needs daily meds if you have it. Have you ever had a sleep

study?

>

> I was diagnosed by having a lung biopsy done. And the dr I went to

see

> for the second opinion is at OSU., it's a teaching hospital. I have

> been on oxygen for 5 yrs. I now have a dry cough, and i can't sleep

> laying down anymore, even with a pillow wedge. I most generally sleep

> sitting up on the couch.

>

[Guest guest]

Tammy...now I understand why you are considering transplant. You have a lot of experience with this disease.

What do you do for the cough? Someone was asking just this morning about coughing.

Keep us informed and God bless.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Tammy...have you heard of a Genie Mattress? Google it and know it works well. Many here on the board have one. It's an inflatable wedge that goes between the mattress's and lifts the top mattress to various heights.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Welcome Tammy, you're new to this Board but not new to this difficult disease..I'm sorry that you've been having a tough time of it.

There are great people on this board & I hope between us we can help you & go some way to lifting your spirits!

Regards,

in Australia

IPF: Fibrotic NSIP/UIP???

Reynauds'

May 2007>> I was diagnosed by having a lung biopsy done. And the dr I went to see > for the second opinion is at OSU., it's a teaching hospital. I have > been on oxygen for 5 yrs. I now have a dry cough, and i can't sleep > laying down anymore, even with a pillow wedge. I most generally sleep > sitting up on the couch.>

[Guest guest]

Welcome Lori. I don’t know if you

have come across my website yet in your travels in cyberspace. There are over

1,000 contributions from men who have been down the road ahead of your husband

and you may like to read their stories and contact them for more information. More

than 500 of the stories are from men who chose surgery and more than half of

those are frm men who chose RALP (Robotic Assisted Laparoscopic Prostatectomy) –

Da Vinci. The Index is here http://www.yananow.org/exp_data.php?desc=All

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of sewalaskan

Sent: Monday, 30 May 2011 10:45 AM

To: ProstateCancerSupport

Subject:

Newbie

My

name is Lori & my husband was diagnosed in early April with Prostate

Cancer. As you all know, there is a wealth of info out there. We have spent the

past few weeks reading books & internet searches. I wish I would have

thought of looking for this yahoo group at that time. We have decided to go

with robotic surgery after meeting with a regular urologist/surgeon and the

robotic surgeon. We considered proton at Loma and may have gone for it

except he needs other urinary surgery any way. So would have had to have

surgery then the proton treatment.

The best piece of advice we received was from his sister who said;

" research, make a decision and never look back " .

Dave's gleason was 7 (3+4) on one side and 6 (3+3) on the other. His PSA was

only 5.2. He is 63, only symptom was urinary problems.

We have been amazed at all the information other men have so very willingly

shared. We have spoken to men with each type of treatment. As you all know,

there is no best treatment - unlike many other cancers.

Thank you & we are looking forward to support from here after his surgery.

God Bless, Lori

[Guest guest]

Dear Lori,

Keep us informed of Dave's progress, and don't hesitate to contact this group with any questions or concerns. I can tell you from experience, the people on this site are a wealth of information, and support when you are feeling down. Dave will no doubt have such periods after the surgery. The incontinence may seem to last longer than wanted, but most often it does pass (especially if he works at his Kegels.) ED can also be addressed. In my case Viagra has been very slow to work, though there does seem to be very slow improvement after almost 18 months. If it doesn't work, or is slow, there is always tri-mix. Tri-mix injections seem impossible to consider at first, but with your support, I'm sure Dave can accept and come to welcome them -- I did. And as Dave's sister said, make your decision and don't look back.

Mike

Subject: NewbieTo: ProstateCancerSupport Date: Sunday, May 29, 2011, 8:44 PM

My name is Lori & my husband was diagnosed in early April with Prostate Cancer. As you all know, there is a wealth of info out there. We have spent the past few weeks reading books & internet searches. I wish I would have thought of looking for this yahoo group at that time. We have decided to go with robotic surgery after meeting with a regular urologist/surgeon and the robotic surgeon. We considered proton at Loma and may have gone for it except he needs other urinary surgery any way. So would have had to have surgery then the proton treatment. The best piece of advice we received was from his sister who said; "research, make a decision and never look back". Dave's gleason was 7 (3+4) on one side and 6 (3+3) on the other. His PSA was only 5.2. He is 63, only symptom was urinary problems. We have been amazed at all the information other men have so very willingly shared. We have spoken to men with each type

of treatment. As you all know, there is no best treatment - unlike many other cancers.Thank you & we are looking forward to support from here after his surgery. God Bless, Lori------------------------------------There are just two rules for this group 1 No Spam 2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it