RE: Re: SOLUTIONS WHEN YOU CAN'T TOLERATE THYROID MEDS

[Guest guest]

Re: SOLUTIONS WHEN YOU CAN'T TOLERATE

THYROID MEDS

Hi Janie...I know...long time no post, I don't have my own comp so

its difficult...I'm still alive! he he he Long story...I won't go

there right now.

Anywhooooooo.........

I found this interesting...Thyroid medicine. Liquid. Hmmm....

But is there a part of the article that mentions looking for the

underlying reason? Some says its cortisol. Some say its low ferritin.

Some say it due to autoimmune disease, like , which effects the

blood. Lots of ideas about why some of us have a severe reaction to

even the tiniest bit. But which one makes me sound least like a

lunatic and least likely to be put back on Xanax for being an onrey

patient?

I am going to a doc on wednesday for some tests for Antiphospholipid

syndrome and to see if I need a neurologist. OK...I need a

neurologist because I developed autoimmune perifreal neuropathy but

the question is if there is a neuro in the area who knows what to

look for and how to treat it. I'm not bi*ching or anything. In a

bizarre way, while distracting, having MS symptoms when you don't

have MS can be funny and entertaining.

Whoa...where did my toe go??? Oh, its still there! Phew!

I have always had a sick sense of irony and humor....

I found the cure. Laughter is the cure. For real.

OK...no I'm not cured but I haven't laughed enough yet.

Ok...before I continue on this tangent....what's the latest as far as

those of us who cannot tollerate. We know I'm anemic. Thats a given.

I don't absorb squat so its hard to avoid. We know my cortisol is

bottom of normal...probably/maybe/possibly lower...but finding a doc

who will risk giving me steriods based on my lymph node problems is

like asking them to just GIVE me leeches and put THAT in my record.

What I need here is something to bring up to the doc...I would not

take thyroid meds if you held me down and tied me up and treid to

force it down my throat at this point. It ruined my body, advanced my

disease, and now I weigh 82 lbs, covered in brown spots, melasme,

heart murmur...I am the exception...so I am not trying to scare

anyone. T3 is a beautiful, beautiful hormone. I am all about it. My

body just has a different opinion.

I am hoping that Antiphospholipid syndrome might be key in all my

problems. Not that I WANT to have it. Its just that if I TREAT it, it

might clear up a host of holy horrors.

But I am a bonafied hypo for sure...on top of other autoimmune

diseases. So, I have to tell them... " look...I need to be on Armour

again. Make it so I can take it this time. Or I will beat you with a

rusty spoon. " I need options as to what else to make my case with on

this. I have already been down the low cortisol road...and they just

don't buy it. Not a single one...except my rhumetologist...who

believes I may have a cortisol problem but won't touch it with a 50

ft poll. " see an endo. "

HA HA HA HA HA HA I went to the endo quite a while ago. Did you know

that everyone tollerates thyroid meds? That there are no side

effects? That you are just putting back what your body is missing and

therefore if your resting heart rate is at 150bpm, you are shaking

and sweating, running a temp, unable to eat and puking, unable to

walk 5 feet without a rest, unable to sleep or think...that it must

be something else but I don't know what? HA HA HA HA HA....what a

waste of time.

Which is why I am trying to move...a whole other long story. The ex

got a court order to block me from moving and I have to go to

court...another long story.

Janie, you know I think you are pretty smart and just as sweet as you

can be. Gimme some ammo to shoot with this week!!!!! :-) And I'll

diagnose everyone's underlying autoimmune disorders and it will be a

party...ha ha ha ha ha

> (If found certain sections of the Dr. Lanter article so interesting

> that I had to separate and post them. See below. Thanks Louise.

> Janie)

>

[Guest guest]

So sorry about that blank e-mail. Have you had your B12 tested? Low B12 can

cause

peripheral neuropathy! And according to Dr. Teitelbaum (From Fatigued to

Fantastic)

said that a Japanese study showed that our normal range is too low. So even if

you

are in the normal range, you might need supplementation!

in VA.

Hi Janie...I know...long time no post, I don't have my own comp so

its difficult...I'm still alive! he he he Long story...I won't go

there right now.

Anywhooooooo.........

I found this interesting...Thyroid medicine. Liquid. Hmmm....

But is there a part of the article that mentions looking for the

underlying reason? Some says its cortisol. Some say its low ferritin.

Some say it due to autoimmune disease, like , which effects the

blood. Lots of ideas about why some of us have a severe reaction to

even the tiniest bit. But which one makes me sound least like a

lunatic and least likely to be put back on Xanax for being an onrey

patient?

I am going to a doc on wednesday for some tests for Antiphospholipid

syndrome and to see if I need a neurologist. OK...I need a

neurologist because I developed autoimmune perifreal neuropathy but

the question is if there is a neuro in the area who knows what to

look for and how to treat it. I'm not bi*ching or anything. In a

bizarre way, while distracting, having MS symptoms when you don't

have MS can be funny and entertaining.

Whoa...where did my toe go??? Oh, its still there! Phew!

I have always had a sick sense of irony and humor....

I found the cure. Laughter is the cure. For real.

OK...no I'm not cured but I haven't laughed enough yet.

Ok...before I continue on this tangent....what's the latest as far as

those of us who cannot tollerate. We know I'm anemic. Thats a given.

I don't absorb squat so its hard to avoid. We know my cortisol is

bottom of normal...probably/maybe/possibly lower...but finding a doc

who will risk giving me steriods based on my lymph node problems is

like asking them to just GIVE me leeches and put THAT in my record.

What I need here is something to bring up to the doc...I would not

take thyroid meds if you held me down and tied me up and treid to

force it down my throat at this point. It ruined my body, advanced my

disease, and now I weigh 82 lbs, covered in brown spots, melasme,

heart murmur...I am the exception...so I am not trying to scare

anyone. T3 is a beautiful, beautiful hormone. I am all about it. My

body just has a different opinion.

I am hoping that Antiphospholipid syndrome might be key in all my

problems. Not that I WANT to have it. Its just that if I TREAT it, it

might clear up a host of holy horrors.

But I am a bonafied hypo for sure...on top of other autoimmune

diseases. So, I have to tell them... " look...I need to be on Armour

again. Make it so I can take it this time. Or I will beat you with a

rusty spoon. " I need options as to what else to make my case with on

this. I have already been down the low cortisol road...and they just

don't buy it. Not a single one...except my rhumetologist...who

believes I may have a cortisol problem but won't touch it with a 50

ft poll. " see an endo. "

HA HA HA HA HA HA I went to the endo quite a while ago. Did you know

that everyone tollerates thyroid meds? That there are no side

effects? That you are just putting back what your body is missing and

therefore if your resting heart rate is at 150bpm, you are shaking

and sweating, running a temp, unable to eat and puking, unable to

walk 5 feet without a rest, unable to sleep or think...that it must

be something else but I don't know what? HA HA HA HA HA....what a

waste of time.

Which is why I am trying to move...a whole other long story. The ex

got a court order to block me from moving and I have to go to

court...another long story.

Janie, you know I think you are pretty smart and just as sweet as you

can be. Gimme some ammo to shoot with this week!!!!! :-) And I'll

diagnose everyone's underlying autoimmune disorders and it will be a

party...ha ha ha ha ha

[Guest guest]

why don't you? I have4 low transferrin and without that making stuff, my

organs don't get oxygen

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: SOLUTIONS WHEN YOU CAN'T TOLERATE

>THYROID MEDS

>Date: Sun, 01 Aug 2004 20:02:10 -0000

>

[Guest guest]

I wish I had some idea where to point hyou, but this is way out of my scope

of knowledge. I hope you keep us updated on what and how they test, etc. I

find there is someone somewhere that may benefit from what one of us has

gone through

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: SOLUTIONS WHEN YOU CAN'T TOLERATE

>THYROID MEDS

>Date: Sun, 01 Aug 2004 20:13:45 -0000

>

[Guest guest]

> ,

What can they do for it?

in Va.

Jamy,

There's the million dollar question. It could be from vasculitis,

meaning my blood vessels become inflamed and cut off blood flow to

the nerves. However, they could not find evidence of this in the MRA.

Because SS Neuropathy is different than say, MS neuropathy, one day

the vessles could be swollen, the next NOT, very hard to dx unless

you end up with a brain lesion from it.

It could be antiphospholipid syndrome, meaning my blood may carry

antibodies inhibiting it from carrying enough oxygen. They have yet

to test me for it. Both have the same end result in the brain, not

enough oxygen. Causing " starvation " .

[Guest guest]

ne,

I'm sorry about your predicament! What happens when you take thyroid meds or

cortisone?

I'll be praying for you and please do keep us posted. I'm very interested in how

this

doctor helps you! (I have heard of his name before. He is a major doctor in this

area.)

Best to you,

in Va.

> Hi Janie...I know...long time no post, I don't have my own comp so

> its difficult...I'm still alive! he he he Long story...I won't go

> there right now.

>

> Anywhooooooo.........

>

> I found this interesting...Thyroid medicine. Liquid. Hmmm....

> But is there a part of the article that mentions looking for the

> underlying reason? Some says its cortisol. Some say its low

ferritin.

> Some say it due to autoimmune disease, like , which effects

the

> blood. Lots of ideas about why some of us have a severe reaction to

> even the tiniest bit. But which one makes me sound least like a

> lunatic and least likely to be put back on Xanax for being an onrey

> patient?

>

> I am going to a doc on wednesday for some tests for

Antiphospholipid

> syndrome and to see if I need a neurologist. OK...I need a

> neurologist because I developed autoimmune perifreal neuropathy but

> the question is if there is a neuro in the area who knows what to

> look for and how to treat it. I'm not bi*ching or anything. In a

> bizarre way, while distracting, having MS symptoms when you don't

> have MS can be funny and entertaining.

> Whoa...where did my toe go??? Oh, its still there! Phew!

> I have always had a sick sense of irony and humor....

> I found the cure. Laughter is the cure. For real.

> OK...no I'm not cured but I haven't laughed enough yet.

>

> Ok...before I continue on this tangent....what's the latest as far

as

> those of us who cannot tollerate. We know I'm anemic. Thats a

given.

> I don't absorb squat so its hard to avoid. We know my cortisol is

> bottom of normal...probably/maybe/possibly lower...but finding a

doc

> who will risk giving me steriods based on my lymph node problems is

> like asking them to just GIVE me leeches and put THAT in my record.

> What I need here is something to bring up to the doc...I would not

> take thyroid meds if you held me down and tied me up and treid to

> force it down my throat at this point. It ruined my body, advanced

my

> disease, and now I weigh 82 lbs, covered in brown spots, melasme,

> heart murmur...I am the exception...so I am not trying to scare

> anyone. T3 is a beautiful, beautiful hormone. I am all about it. My

> body just has a different opinion.

> I am hoping that Antiphospholipid syndrome might be key in all my

> problems. Not that I WANT to have it. Its just that if I TREAT it,

it

> might clear up a host of holy horrors.

> But I am a bonafied hypo for sure...on top of other autoimmune

> diseases. So, I have to tell them... " look...I need to be on Armour

> again. Make it so I can take it this time. Or I will beat you with

a

> rusty spoon. " I need options as to what else to make my case with

on

> this. I have already been down the low cortisol road...and they

just

> don't buy it. Not a single one...except my rhumetologist...who

> believes I may have a cortisol problem but won't touch it with a 50

> ft poll. " see an endo. "

>

> HA HA HA HA HA HA I went to the endo quite a while ago. Did you

know

> that everyone tollerates thyroid meds? That there are no side

> effects? That you are just putting back what your body is missing

and

> therefore if your resting heart rate is at 150bpm, you are shaking

> and sweating, running a temp, unable to eat and puking, unable to

> walk 5 feet without a rest, unable to sleep or think...that it must

> be something else but I don't know what? HA HA HA HA HA....what a

> waste of time.

>

> Which is why I am trying to move...a whole other long story. The ex

> got a court order to block me from moving and I have to go to

> court...another long story.

>

> Janie, you know I think you are pretty smart and just as sweet as

you

> can be. Gimme some ammo to shoot with this week!!!!! :-) And I'll

> diagnose everyone's underlying autoimmune disorders and it will be

a

> party...ha ha ha ha ha

>

>

>

>

, have you ever tried to see a doc ?

I am dying here . Have no thyroid any more , don't tolerate thyroid ,

and my adrenals are allmost dead and I don't tolerate ANY adrenal

support ! Have tried everything : cortisol , fludrocortisone ,

DHEA , ..... even Adreset , vitamin C , vitamin B complex , ...... I

tolerate NOTHING !

The docs here in my country can just say that I need a shrink . In

desperation I tried to contact Thierry Hertoghe . He is in Belgium

and I'm in France . I can not get there . People come from all over

Europe to see him , but I can't because I'm so sick that I can not be

transported . I accidently found his mail adress somewhere on the

net , and I tried my chance . I begged him , implored him to save my

life ! ----- Next day the answer was there . And he REALLY REALLY

KNOWS WHAT HE IS TALKING ABOUT !!!!!!!! He will be in Paris in

october and I hope and pray that I can see him then !!!

Do you " only " not tolerate thyroid ? Or do you also not tolerate

cortisol ? Or they just don't want to give it to you ? See a

doc !!!!!!!!!

Now I have to try to stay alive until october ..... I don't know if I

will manage ........ not joking . But I will finally finally see

someone who really knows what he is talking about ! That would be the

first time after 50 years of desperate struggle !!!!!!!!!!!!

He has also written a book " the hormone solution "

http://www.geocities.com/thyroide/books.html Don't know if it talks

about intolerance . It talks about how all the hormones work

together . But , boy , is this guy knowledgable ! If all the

docs are like that .... I can only recommend them !!!!

http://www.antibodyassay.com/hertoghe.html

ne in France

http://www.geocities.com/thyroide

[Guest guest]

Not long to live! But I thought one could live without adrenals as long

as you have the proper medications. I wil pray for both your and your

docs wisdom to " get to the bottom of it all " and that you may be

spared.

Blessings,

Debbie K.

Re: SOLUTIONS WHEN YOU CAN'T TOLERATE

THYROID MEDS

Suzanne,

I didn't see this before I missed it. First let me say I have a great

new doc who wants to get to the bottom of it all and so far I am

pleased. I am likely in actual adrenal failure, meaning disease or

lesions on my adrenals, heart, lungs, etc. This is all likely why I

cannot tollerate thyroid. I also likely don't have long to live, so I

take it day by day. This doc is 300 miles away and I have to rely on

other people to take me there.

[Guest guest]

so what can they do to give you more oxygen to the brain and issues?

Re: Re: SOLUTIONS WHEN YOU CAN'T TOLERATE

THYROID MEDS

> ,

What can they do for it?

in Va.

Jamy,

There's the million dollar question. It could be from vasculitis,

meaning my blood vessels become inflamed and cut off blood flow to

the nerves. However, they could not find evidence of this in the MRA.

Because SS Neuropathy is different than say, MS neuropathy, one day

the vessles could be swollen, the next NOT, very hard to dx unless

you end up with a brain lesion from it.

It could be antiphospholipid syndrome, meaning my blood may carry

antibodies inhibiting it from carrying enough oxygen. They have yet

to test me for it. Both have the same end result in the brain, not

enough oxygen. Causing " starvation " .