Re: SCS

[Guest guest]

Felice - I can't believe that the doc treated you that way. If I were you, I'd get my proverbial butt back in there. It shouldn't start becoming positional at this point unless there's a prolem with it (given that it sounds like it wasn't positional before). Please keep uss updated. Barbarafelicet867@... wrote:

The scar over the SCS antennae thing in my butt looks like it is failing again.

The skin is really thin and in the center is a bruised round area that feels really funky, like crinkle paper but there is no discharge yet. Greig noticed it yesterday. Before that it was really swollen over this area but no change in skin color.

I am not running a fever but can't get the thermometer to go over 96 degrees.

I usually run low but 97.5 is normal for me.

I saw my pain DR Friday but he was to busy to look at it and ended my appointment by walking out of the room when he was done, leaving me sitting with my mouth hanging op en.

I am thinking I am rejecting it but don't know what too do. It keeps cutting off when I use the SCS and the leads are drooping under my skin so that if you wanted you could pull the leads out.

Has anyone had a problem 8 months after having an SCS put in?Felice

[Guest guest]

I saw my pain DR Friday but he was to busy to look at it and ended my appointment by walking out of the room when he was done, leaving me sitting with my mouth hanging op en.

Felice,

Isn't he the one who put the SCS in for you? How rude he was to walk out on you! Bet they smiled when they handed you the bill though.

Take care!

Hoping for Pain Free Days,Sandi

[Guest guest]

Hi Barbara,

The SCS i s being taken out on Monday. It has been a long haul with this thing. Had it put in twice and ended up in hospital after the first time from the antibiotic he gave me and not taking the Neurontin since I was vomiting from the antibiotic ended up semi comatose with barely brain waves. Poor Greig had to handle this all by himself, being told they didn't know when I would wake up and what I would be like brain wise when I did. The DR never even bothered contacting the hospital while I was there. OK he was on vacation but there was another doctor in the office and the office had records but never returned any of the doctors calls or Greig's so it was a mess. They didn't understand RSD or the meds I was on until I had been in for a week and a neurologist was called in that knew about RSD and talked to the nurses and other docs and I finally was treated humanely instead of as a drug addict! Think that is one reason this whole thing has failed as they had me tied to the bed because when I first came in I was out of it and tossing and flipping in the bed so they wires never got a chance to set right. And had a bit of infection in the wound. That and no one knew anything about the SCS that was treating me. I think how lucky I am to be "all there" now, or as all there as I can be with RSD! LOL

Anyway, now it will be gone and a 18 month ordeal will be over. I will miss it for when it worked it was really good. It was nice being able to sit through a movie again and be able to get up and walk out of the theater instead of stooped over for an hour recuperating for sitting for so long

Felice

Felice

[Guest guest]

Yeah Felice!!!! So glad you slept and did not have sweats and do pray that the yucky stuff is easy to take care of that found inside you. Take it easy and please know you are in my prayers for quick healing.

s Momma

JoAnn

Re: SCS

Hi All,

It's Out!

The SCS was taken out yesterday and there was infection and what the nurse referred to as some yucky fluid in there. The doc sent out several samples for Biopsy and hopefully it will just be a plain old infection

I am pretty sore with 21 staples between the two sites. However I slept for a straight three hours last night and didn't wake up soaked with sweat.

Now if the day time sweats and chills will go away I'll really be thrilled.

Hope everyone else who had surgery on Monday is doing really well.

Felice