Re: Update on Felicia and Selling Percussor

[Guest guest]

Kathy,

What exactly is a percusser?

Mandy

Update on Felicia and Selling Percussor

>From: Kathybeela@...

>

>Hi everyone! How are you all? We are doing fine here. Felicia was in the

>ER up in College Station on Thursday. She has an obstruction and we need

to

>get that thing moving!

>

>She is on Go-Lytly...1 liter Sat, Sun and today. 2 liter's tomorrow. She

is

>also on Duphalac....2 tablespoons 4 times a day....as well as the grand ole

>suppositories! She gets one in the morning, mid afternoon and an hour

before

>bed. PHEW! You'd think she would have passed this thing! LOL

>

>Well, other than that, she seems to be doing fine. She isn't complaining

of

>pain anymore, but her tummy is still pretty hard. She sees the doc on

>Wednesday so we'll know more then!

>

>Hugs to all of you that aren't feeling any better these days! We love

you!!!!

>

>GRANDMA BEV.....Do you happen to know if Medicaid pays for Go Lytly? I was

>wondering, cause I was told it didn't, but the doctor says it should. I

>haven't tried calling medicaid, hoped maybe you knew! I think I have

>spent $100 on this stuff!

>

>Well, I am going to head of to bed. I am so tired of getting up with

Felicia

>at night. She has to poop all the time, just never enough!

>

>OH, BTW.....if you or anyone you know may be interested in buying a

>percussor, just let me know. Email me and we'll discuss it. I am not

>putting a price on it, but I did spend $400 on it. It has only been used a

>few times. We can talk about it. I want it to go to a child that really

>needs to help the parent out....but anyone who needs it let me know and

we'll

>talk price later!

>

>Thanks for the support!

>

>MICHELLE...pillow@... LOVE YOU!!!!!!

>

>TINA....PRAYING FOR YOU ALWAYS, MY FRIEND!!!!!!

>

>Love to all,

>Kathy Biela

>

>>This is a secular list.

>

>The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

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>

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link: http://www.onelist.com/subscribe/cfparents

>

>----------------------------------------

>

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>

>

[Guest guest]

,

You are crazy girl! I don't have a washer and I'm afraid the old people

at the laundey mat would call the police on me so I'd better stick with

Kent.And belive me that's not altogether a bad thing.Thanks for the

explaination though.

Mandy

Re: Update on Felicia and Selling Percussor

>

>

>Kathy,

>

>OOPS I think you have my child, or else I have yours (OK I will acccept an

>even trade--mines a teenager) LOL

>

>ONLY KIDDING ANG (in case she reads this) hahahaha

>

>I dunno if you have followed the continuing saga of 's poop problems.

>It has been going on for years really. Once and only once did she ever

>drink the golightly. It really made her sick too but somehow we got enough

>in her to make it work. She was 9 I believe then, and THAT same dickhead

dr

>(from now on I shall refer to him as DR DH) had diagnosed her with a

> " partial intestinal blockage " and he prescribed go-lightly for her to drink

>at home. He lied to Ang and told her it tastes like Gatorade. Well Ang

>didn't really much care for gatorade nor did she realize she would need to

>drink half a gallon of it. NOT only that but it tastes no where near

>anything like gator ade, as 's friend put it, " It tastes like

>sweat smells " What a buncha crap--literally as we did get enough down her

>to do the trick. The next day---our timing perfect as usual---we left for a

>road trip vacation to go to Texas. We are in southern CA. Get the picture?

>here we are with a 9 year old and an 11 year old and the 9 year old has to

>poop every half an hour of so. Not a good idea.

>

>Anyway so after that episode, **even** dr DH promised she would never have

>to drink it again and ever since then if she has needed it she has gotten

in

>via ng tube in the hospital. We did do it at home once with a home care

>company but since then I have decided that is not safe and it is not ever

>going to happen again. WHY? well apparently at least one CF child has

died

>from this, using too much golightly too quickly and this child was even in

>the hospital. That was all I needed to hear. I already told them if she

>needs golightly I must insist she get it inpatient. She needs careful

>monitoring and IV fluids as well---besides it is extra dangerous for her

due

>to her prior problems with electrolyte imbalance and the kidney damage she

>sustained 3 years ago.

>

>We are also in a holding pattern as we wait to see the GI doc who I hope

may

>be able to shed some light on this subject. She is to continue the miralax

>until she poops clear, just like with golightly only slower. We are not to

>stop her enzymes, but not to increase or lower them either.

>

>Whew, I think this is getting too long. Mandy, in case no one replies, a

>percussor is a machine which vibrates and can be used to help with CPT. Or

>it may be called a " personal massager " and used to ummmmmmmmmmmmm well,

you

>know, if there ain't a man around!!! LOL. Actually the ones intended for

>this kind of use are a bit larger than a " personal massager " but it is the

>same idea. LOL one of my adult CF friends says her percussor and the

>washing machine are better than any day!!! ( is her poor

>husband!!!!!!) rofl

>

>

>OK OK now really Kathy, I do hope this does the trick for Felicia and you

>don't need any further testing or anything to determine what is going on

for

>her. Unless you are feeling she needs some further testing to see if you

>can find out why this happened. if it is the first time you probably don't

>need to worry about it.

>

>till later,

>love you all,

>Bren

>

>

>-----Original Message-----

>

>

>>From: Kathybeela@...

>>

>>Hi everyone! How are you all? We are doing fine here. Felicia was in

the

>>ER up in College Station on Thursday. She has an obstruction and we need

>to

>>get that thing moving!

>

>>This is a secular list.

>

>The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

>----------------------------------------

>

>If you know someone who would find cfparents useful, have them follow this

link: http://www.onelist.com/subscribe/cfparents

>

>----------------------------------------

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>----------------------------------------

>

>

>

[Guest guest]

Kathy,

OOPS I think you have my child, or else I have yours (OK I will acccept an

even trade--mines a teenager) LOL

ONLY KIDDING ANG (in case she reads this) hahahaha

I dunno if you have followed the continuing saga of 's poop problems.

It has been going on for years really. Once and only once did she ever

drink the golightly. It really made her sick too but somehow we got enough

in her to make it work. She was 9 I believe then, and THAT same dickhead dr

(from now on I shall refer to him as DR DH) had diagnosed her with a

" partial intestinal blockage " and he prescribed go-lightly for her to drink

at home. He lied to Ang and told her it tastes like Gatorade. Well Ang

didn't really much care for gatorade nor did she realize she would need to

drink half a gallon of it. NOT only that but it tastes no where near

anything like gator ade, as 's friend put it, " It tastes like

sweat smells " What a buncha crap--literally as we did get enough down her

to do the trick. The next day---our timing perfect as usual---we left for a

road trip vacation to go to Texas. We are in southern CA. Get the picture?

here we are with a 9 year old and an 11 year old and the 9 year old has to

poop every half an hour of so. Not a good idea.

Anyway so after that episode, **even** dr DH promised she would never have

to drink it again and ever since then if she has needed it she has gotten in

via ng tube in the hospital. We did do it at home once with a home care

company but since then I have decided that is not safe and it is not ever

going to happen again. WHY? well apparently at least one CF child has died

from this, using too much golightly too quickly and this child was even in

the hospital. That was all I needed to hear. I already told them if she

needs golightly I must insist she get it inpatient. She needs careful

monitoring and IV fluids as well---besides it is extra dangerous for her due

to her prior problems with electrolyte imbalance and the kidney damage she

sustained 3 years ago.

We are also in a holding pattern as we wait to see the GI doc who I hope may

be able to shed some light on this subject. She is to continue the miralax

until she poops clear, just like with golightly only slower. We are not to

stop her enzymes, but not to increase or lower them either.

Whew, I think this is getting too long. Mandy, in case no one replies, a

percussor is a machine which vibrates and can be used to help with CPT. Or

it may be called a " personal massager " and used to ummmmmmmmmmmmm well, you

know, if there ain't a man around!!! LOL. Actually the ones intended for

this kind of use are a bit larger than a " personal massager " but it is the

same idea. LOL one of my adult CF friends says her percussor and the

washing machine are better than any day!!! ( is her poor

husband!!!!!!) rofl

OK OK now really Kathy, I do hope this does the trick for Felicia and you

don't need any further testing or anything to determine what is going on for

her. Unless you are feeling she needs some further testing to see if you

can find out why this happened. if it is the first time you probably don't

need to worry about it.

till later,

love you all,

Bren

-----Original Message-----

>From: Kathybeela@...

>

>Hi everyone! How are you all? We are doing fine here. Felicia was in the

>ER up in College Station on Thursday. She has an obstruction and we need

to

>get that thing moving!

[Guest guest]

In a message dated 10/18/99 10:52:40 PM Central Daylight Time,

kmts@... writes:

<< Kathy,

What exactly is a percusser?

Mandy >>

Hi Mandy! The percussor that I have is a hand held percussor. It takes the

place of the PT/Percussion that we give our children. It is a Health-o-meter

Model 59100 115 Volts AC. From what I understand, they don't make them

anymore. Funny thing, I bought it last year. It simulates clinically

recognized clapping action of manual percussion. It has an intensity and

frequency knobs to help you find what suits your childs needs. It is a

really great thing, but Felicia would never use it. She likes the

interaction that I have with her when it comes to patting her back. It

comes with a U shaped applicator and pad, a 3 " applicator and a 2 "

applicator...this is for when your child grows.

If I can help out, let me know. NO PRESSURE! It is just collecting dust

over here!

Kathy Biela

Felicia's mom

[Guest guest]

Thanks Kathy.I really just wanted to know what it was.Seth probably is still

too little for that.I don't know,but I guess the manual percussers are still

good for us.At least cost wise they are.I'll talk at you later.

Mandy

Re: Update on Felicia and Selling Percussor

>From: Kathybeela@...

>

>In a message dated 10/18/99 10:52:40 PM Central Daylight Time,

>kmts@... writes:

>

><< Kathy,

> What exactly is a percusser?

> Mandy >>

>Hi Mandy! The percussor that I have is a hand held percussor. It takes the

>place of the PT/Percussion that we give our children. It is a

Health-o-meter

>Model 59100 115 Volts AC. From what I understand, they don't make them

>anymore. Funny thing, I bought it last year. It simulates clinically

>recognized clapping action of manual percussion. It has an intensity and

>frequency knobs to help you find what suits your childs needs. It is a

>really great thing, but Felicia would never use it. She likes the

>interaction that I have with her when it comes to patting her back. It

>comes with a U shaped applicator and pad, a 3 " applicator and a 2 "

>applicator...this is for when your child grows.

>

>If I can help out, let me know. NO PRESSURE! It is just collecting dust

>over here!

>

>Kathy Biela

>Felicia's mom

>

>>This is a secular list.

>

>The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

>----------------------------------------

>

>If you know someone who would find cfparents useful, have them follow this

link: http://www.onelist.com/subscribe/cfparents

>

>----------------------------------------

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>----------------------------------------

>

>

>

[Guest guest]

Hi Mandy! Yes, manual is always better!!! No pressure...sorry...wasn't

sure. I am so tired and I have millions of email to answer. Seth is

probably too small and to me....I am keeping Felicia healthy manually just

fine! Take care!

Kathy

[Guest guest]

,

Ha, I have your child! I would rather have a teenager for some reason!

So, that vacation must have been miserable! I traveled from here to San

Francisco this past March....Me, Gerald and the 3 kids and we nearly killed

each other! I can't imagine having to stop all the time! EEEKKKKKKK! Well,

the doc took her off of Go-Lytely and put her on lactulose. I started it

today, so I'll know here pretty soon if it is working! Well, for now I

wait! Thanks for writing!

Kathy B.

Mom to Felicia