Guest guest Posted December 16, 2000 Report Share Posted December 16, 2000 > Do you still have the email you were discussing (I think it was you) > in the chat room a week and a half ago regarding other chromosonal > problems those with CF tend to get? If so, I would really like a > copy. Also, a lurker here has asked me to send it to her too so > perhaps you cut just cut and paste the text here. > > Thanks, > L > I missed that conversation but would be interested in the email also. On that subject might I ask if there are any other babies with clubfeet on this site that were also born with a " dimple " on their spine? I was given some info about it by one doctor but had some other questions. Holly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2000 Report Share Posted December 17, 2000 Holly and Lorna, Here are some links on the dimple, strawberry patches, hair patches, etc: http://www.mindspring.com/~borchert/lipomyel.htm http://pedsurg.surgery.uab.edu/cme/lbh/lbh.htm (this site has pictures, so be prepared) http://www.asbah.demon.co.uk/sbocc.htmlhttp://pedsurg.surgery.uab.edu/cme/lbh/lb\ h.htm I hope these links answer some of your questions! I plan on printing some of the info off to take to Rose's doctor, so I can remember what I want to ask her. Joy http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2000 Report Share Posted December 17, 2000 Ok, that last link is all screwed up. Here's the correct one! http://www.asbah.demon.co.uk/sbocc.html http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2000 Report Share Posted December 18, 2000 Regarding conditions that are sometimes associated with clubfoot, somebody posted something about something called Ehlers-Danlos Syndrome a while back on clubfoot.net and other message boards: http://www.clubfoot.net/messages/read.php3?num=2 & id=35 & loc=0 & thread=35 EDS is characterized by hypermobility, skin extensibility and tissue fragility. Masoner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2000 Report Share Posted December 18, 2000 >Did you have Rose's dimple checked when > she was born? I think I read once that you > had it looked at. I imagine the doctors saw the > bottom of the dimple and passed her exam > with flying colors, that's usually the case I > hear. Same with but my doc at U of M > had us get an ultrasound just in case. Later I > found out that what they were actually > checking for was spina bifida. That really > scared me to learn that. Holly, Each doctor we saw (ortho, family doctor, ped ortho and second-opinion ped ortho) all checked the dimple. None of them seemed to be concerned, and only one doctor (the second-opinion ped ortho) explained why. She did have an ultrasound done of her hips. I think it was to check for hip dysplasia, but now I " m thinking they probably checked for the spina bifida, also. It made me a little concerned, too! I'm going to bring it up to the family doc at Rose's two-year checkup just to make sure we have all our bases covered. >What I was wondering was if there is any > dimple at all weather it checks out fine or not, > is that considered a case of spina bifida or > not? Also, does that put the parents at a > higher risk for future babies with a " REAL " > case of the problem? And does that mean > that or for that matter would > have a higher chance of having a baby with it > when they are older? Just questions that > have been on my mind lately. All these questions have come to my mind, also. Especially the incidence of having a baby with spina bifida (By the way, I don't think the just having the dimple qualifies as spina bifida. I think the dimple could signify spina bifida occulta, which is addressed in one of the articles I sent the link for, but not neccessarily). When we had our ultrasound, I made sure the tech checked the spine really well. Looked great! As to being higher risk, IF i remember correctly, it didn't sound like it from what I read. As to your other question, I'm not sure. I wish I knew more. Well, the reason I probably don't know more and the reason I don't write much anymore, has just woken up from her rather short nap! Joy http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2000 Report Share Posted December 18, 2000 > >Did you have Rose's dimple checked when > > she was born? I think I read once that you > > had it looked at. I imagine the doctors saw the > > bottom of the dimple and passed her exam > > with flying colors, that's usually the case I > > hear. Same with but my doc at U of M > > had us get an ultrasound just in case. Later I > > found out that what they were actually > > checking for was spina bifida. That really > > scared me to learn that. > > Holly, > Each doctor we saw (ortho, family doctor, ped ortho and second-opinion > ped ortho) all checked the dimple. None of them seemed to be > concerned, and only one doctor (the second-opinion ped ortho) explained > why. She did have an ultrasound done of her hips. I think it was to > check for hip dysplasia, but now I " m thinking they probably checked for > the spina bifida, also. It made me a little concerned, too! I'm going > to bring it up to the family doc at Rose's two-year checkup just to make > sure we have all our bases covered. > > >What I was wondering was if there is any > > dimple at all weather it checks out fine or not, > > is that considered a case of spina bifida or > > not? Also, does that put the parents at a > > higher risk for future babies with a " REAL " > > case of the problem? And does that mean > > that or for that matter would > > have a higher chance of having a baby with it > > when they are older? Just questions that > > have been on my mind lately. > > All these questions have come to my mind, also. Especially the > incidence of having a baby with spina bifida (By the way, I don't think > the just having the dimple qualifies as spina bifida. I think the > dimple could signify spina bifida occulta, which is addressed in one of > the articles I sent the link for, but not neccessarily). When we had > our ultrasound, I made sure the tech checked the spine really well. > Looked great! As to being higher risk, IF i remember correctly, it > didn't sound like it from what I read. As to your other question, I'm > not sure. I wish I knew more. Well, the reason I probably don't know > more and the reason I don't write much anymore, has just woken up from > her rather short nap! > > Joy Joy, Surely did'nt mean to concern you about the dimple. Once was born with her fancy feet we had every pediatric doctor in the hospital pay us a visit before we went home. They all checked the dimple (which I never even noticed, my husband did though) and never said anything. Our pediatrician checked it too and Dave finally asked what everyone was looking at. She said if you can see the bottom of the dimple there's not a problem. Dr. Farley (ped ortho) had it checked out because her daughter was born with the same thing and being a doctor in her specialty she knew what it could signify and just wanted us to clear our minds of it. She was right. You have nothing to worry about (I'm sure) Rose is so much older now, if there was something wrong you would have known a long time ago. Say hi to Rose from ! Holly > > > http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 Holly, I'm not too concerned about Rose's dimple. Just figured I'd discuss it with her doc to make sure. I have a parent writing to me, and I believe she must live close to you! She had a 9 hour drive to DR. Ponseti, and she also met Dr. Farley in Iowa! I believe she wll be seeing Dr. Farley for follow-up visits. Though, like you, she's rather uncertain of Dr. F and wants to continue seeing Dr. P possibly. Small world,huh?! JOY http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 > Holly, > I'm not too concerned about Rose's dimple. Just figured I'd discuss it > with her doc to make sure. > > I have a parent writing to me, and I believe she must live close to you! > She had a 9 hour drive to DR. Ponseti, and she also met Dr. Farley in > Iowa! I believe she wll be seeing Dr. Farley for follow-up visits. > Though, like you, she's rather uncertain of Dr. F and wants to continue > seeing Dr. P possibly. Small world,huh?! > > JOY Joy, I would be very interested in talking with her about U of M. If you talk with her again would you give her my email address and if she would like to contact me that would be great! If not, I completely understand. Do you know how old her baby is? Did she fine you through " Rose's Story? " Holly > > > http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE > > > > Quote Link to comment Share on other sites More sharing options...
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