Re: neurontin

[Guest guest]

-------Original Message-------

neurontin is one of those drugs that either works great or you just can't take it. at least that is my conclusion.......

Deb L

========================================================================

Deb,

I'm definately agreeing with ya here. From what I have heard from anyone who's taken Neurontin, it has either worked for them great, or, within the first month they have figured out that something is not right if they aren't allergic to it.

But, then again, even if it does work great for someone while they are on it.....if for some odd reason they have to stop taking it, being weaned off of it can be just as, if not more deadly than being allergic to it. It doesn't matter whether the person is taken off of it cold turkey or very slowly......for some reason, the effects can be the exact same.

Tonia

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

wish i could take neurontin, i am allergic to it..

Pinkie

>He put me on Neurontin and am now up to 2700 mg. He always

>has ??me

>increase it slowly and I'm sure he would have me decrease it slowly,

>but I'm

>pretty nervous about that now. I don't know what to do....should I stay

>on it

>

>I have taken Neurontin for most of my RSD " career. " I am up to 3200mg. If

>you are doing okay with it, I wouldn't worry about it--just make sure to go

>off slowly if you ever do for some reason. Sounds like that's what your

>doctor would have you do. I had grogginess as I was going up, but that got

>better after a week or two when I hit where he wanted me.

>

>Love,

>

> N

_________________________________________________________________

Free up your inbox with MSN Hotmail Extra Storage! Multiple plans available.

http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1/go/onm00200362ave/dire\

ct/01/

[Guest guest]

Just one more opinion, just to show how different people are.

I was up to 2700 mg of Neurontin daily, and didn't feel as if I could function.

I could not form a complete sentence. This MAY have been a mixture of the meds

I was on, I cannot be sure. I only know that I never felt a benefit from

Neurontin, either. Let me state, honestly, that most medications have never

done for me what they were supposed to (including birth control - LOL). Even

antibiotics are a challenge for my Drs. I've had 17 shots of Novacaine without

getting numbed.....

And, while I would NEVER advocate it, I stopped Neurontin cold turkey without

any side affects whatsoever. Maybe because the drug wasn't working for me the

way it should have been? I stopped all nine medications I was taking cold

turkey and the only thing that happened was that I could speak (somewhat)

intelligently again.

BUT, I would always advise (INSIST) that you be weaned off any medications,

safely, under the care of a physician.

One more proof that what works for one, won't work for another. We're all

different, and have different reactions. Gotta love this RSD - keeps us all

guessing!

Hugs,

Jo

[Guest guest]

Twila

I was just going through some of the emails I have sent to my account during the week. And I couldn't help read your message. See, I was on Neurontin, too. I was only on it for several months, though. I also could not help but notice that you are also diabetic. Well my Doctor is studying the connection in between Diabetes and RSDS. He is having great success with both RSDS and Diabetes. And the best part no medication or added pain. I have RSDS and have more good (pain-free) days than bad days. I am currently in high school. I have had RSDS for almost three years. Last September, my sister was also diagnosed with RSDS. OMG Talk about a blow to the family. The doctor that diagnosed her did not even no that I had it and came to the conlcusion she developed it from a broken collar bone that did not heal properly. She is now doing pretty well, too. In fact, last December there was an article on us in the Peoria, IL paper. If you would like to see it I will place a link at the end of my message. Please feel free to write back.

http://www.paindefeat.com/Sisters_struggle.htm

Neurontin

I was on Neurontin for over a year and a half, well almost two years.It was a drug I had mixed emotions about. I was not nearly as drowsywith it as I am now with some of my other meds, though I now haveNarcolepsy, so I probably cannot blame much on medications. I reallydisliked the weight it packed on! It was very bad to make me andothers I know gain weight. Between Neurontin, Elavil (Amitryptiline)and quitting smoking, I gained lots of weight. (Those events wereseparated by many years.)Oh, just this last week or two I received a new diagnosis of diabeticneuropathy. I am not too sure I agree with my neurologist on this one.I know my blood sugars have been so good that my Hemoglobin A1C's havebeen 5.4 to 5.7, which is within the "Normal People" range, 6.0 to 6.7is "Normal for a diabetic." I've been a diabetic for 2 years, and theonly time my levels were over 6.0 was right after diagnosis. He alsostated that RSD is not a Neuropathy. I'm not sure that any of us willagree with him. He did tell me I should be walking with a walker,which is probably the truth. I can tell you that I am much less steadyon my feet than I used to be.Well, I've just been told, "time to go to dinner." So I'd better go.My roomie is buying dinner tonight, so I'll catch you all later.Low pain day to all.Twila C.----------------------------------------------------------------------------------------------------------------------May this day be longon blessings, short on pain and have a plenty of hugz in it!!---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.683 / Virus Database: 445 - Release Date: 5/12/04

[Guest guest]

Hi All<

I have been on as high a Neurontin dose as 4800 Mg a day. I didn't have any side affects as long as I took the medication.

The problem I have with Neurontin is that skipping as little as two doses puts me into a semi coma that I have no memory off. What made it even worse is that the Doctors don't recognize what is happening so didn't know what they where treating. The first time it happened was after back surgery and even though I was in the hospital they thought it was a delayed reaction to the anesthesia, the second time they accused me of taking an over dose of Oxycontin giving me Narcon and charcoal even though Greig told them I had gotten sick on antibiotics and I would not have taken an overdose. Somehow they decided I took 40 80 mg Oxycontin, still don't know how they got that number, although that high an overdose would have killed me in the hours it took to get me to the hospital. The third time was again being sick to my stomach from antibiotics so I didn't take Neurontin. Luckily Greig picked up a paper at a new pharmacy we where in and it had as a side affect of Neurontin being a semi coma.

The fourth time was weaning off to go on Topamax and stopping the Neurontin at to high a dose. Greig new the signs of Neurontin withdrawal and this time I went into seizures but Greig kept me home and started me back on the Neurontin so I only lost a weekend before coming around.

Now the doctors are saying the brain was damaged from the up and down of the Neurontin and that I have to stay on an anti-seizure medication.

I was interested to see that his has happened to others as the new pain management doctor I saw was concerned about my reaction to Neurontin and is thinking of ordering a brain scan.

I go to see him on Thursday to find out if he will take me on as a patient. Could anyone who has had seizures, unconsciousness or other nasty reaction to Neurontin withdrawal please drop me a note. I want to be able to bring this to his attention so that he knows it is not just me.

Felice