Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Have you ever tried Scandishakes for weight gain. likes the vanilla and the strawberry. I just try to make her eat before I give her a shake or else she fills up on just the shake. We get them from our clinic, ask your doc about them. Ronda mom of 5 wcf > Allie update > > > > > Hi Everyone, > > We jut got back from Clinic and our major issue was her low weight. She > has grown 2 inches in three months, but no corresponding weight gain. > She's stuck at 30lbs and is 38.5 inches tall (or short, depending on your > outlook) Doc doesn't think that Boost or Ensure is the answer so I guess > we'll just keep trying to get her to eat the high cal stuff - > stick with me > Baby, these hips didn't get to these proportions without effort! > > She's in the middle of a two week course of Cephalex for the chest > congestion (which of course disappeared exactly 24 hrs after I made the > decision to start her on it!) Hopefully, the throat swab will not culture > anything - Allie told the Nurse that it shouldn't show any nasty bugs just > healthy stuff like macaroni and lasagna! LOL > > The other major issue was non-compliant parents (yes, the rabid hapid ex > showed up). They do not like it that we've decided to only force > the issue > of CPT when there is respiratory involvement. My position is that in my > previous life in Corrections, I restrained enough dirtbags to last me a > lifetime and do not think my daughter needs to benefit from this > experience. And, as we never see any mucus or cough, I think for the sake > of behaviour modification (hers and mine) I will remain watchful of change > in her lung involvement but not force the issue of unnecessary, > ineffective > CPT. > > As always, I'm open to your thoughts. Hey, Jen, did you ever post that > milkshake recipe (for me not Allie hehehehe). Geez thanks for the > pressure for me to provide the comedy - I think I will pursue that career > as a Stand up Comic (won't the Nuns I had as teachers be surprised, not!) > > In love and laughter, > Mo, Mom of 4yo twins, and andra (wcf) and 2yo Jordan > > > This is a secular list. > > The opinions and information exchanged on this list should in no > way be construed as medical advice. PLEASE CONSULT YOUR > PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ---------------------------------------- > > If you know someone who would find cfparents useful, have them > follow this link: http://www.onelist.com/subscribe/cfparents > > ---------------------------------------- > > Come chat at our webpage! http://members.tripod.com/cfparents/ > > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Ronda, It's funny you should mention the scandishake. Our daughter-6 just drank hers. Her daddy gave it to her...with lunch no less. Guess she won't be eating lunch for another hour, cause it fills her tummy up too. She loves scandishake tho, but her favs are choco. and straw. She has been gaining weight really good lately, cause she has been drinking milk from the bulk tank on the dairy farm my hubby works for...it has lots of cream in it so it's even higher in fat and etc. than whole milk. Maybe some of you could try to get some of this milk from farmers...who knows, maybe it could help. Let me know if anyone has any luck in that:) -mom of 4 ---------- > > To: cfparentsonelist > Subject: RE: Allie update > Date: Tuesday, November 16, 1999 1:05 PM > > > > Have you ever tried Scandishakes for weight gain. likes the vanilla > and the strawberry. I just try to make her eat before I give her a shake or > else she fills up on just the shake. We get them from our clinic, ask your > doc about them. > > Ronda mom of 5 wcf > > > > > Allie update > > > > > > > > > > Hi Everyone, > > > > We jut got back from Clinic and our major issue was her low weight. She > > has grown 2 inches in three months, but no corresponding weight gain. > > She's stuck at 30lbs and is 38.5 inches tall (or short, depending on your > > outlook) Doc doesn't think that Boost or Ensure is the answer so I guess > > we'll just keep trying to get her to eat the high cal stuff - > > stick with me > > Baby, these hips didn't get to these proportions without effort! > > > > She's in the middle of a two week course of Cephalex for the chest > > congestion (which of course disappeared exactly 24 hrs after I made the > > decision to start her on it!) Hopefully, the throat swab will not culture > > anything - Allie told the Nurse that it shouldn't show any nasty bugs just > > healthy stuff like macaroni and lasagna! LOL > > > > The other major issue was non-compliant parents (yes, the rabid hapid ex > > showed up). They do not like it that we've decided to only force > > the issue > > of CPT when there is respiratory involvement. My position is that in my > > previous life in Corrections, I restrained enough dirtbags to last me a > > lifetime and do not think my daughter needs to benefit from this > > experience. And, as we never see any mucus or cough, I think for the sake > > of behaviour modification (hers and mine) I will remain watchful of change > > in her lung involvement but not force the issue of unnecessary, > > ineffective > > CPT. > > > > As always, I'm open to your thoughts. Hey, Jen, did you ever post that > > milkshake recipe (for me not Allie hehehehe). Geez thanks for the > > pressure for me to provide the comedy - I think I will pursue that career > > as a Stand up Comic (won't the Nuns I had as teachers be surprised, not!) > > > > In love and laughter, > > Mo, Mom of 4yo twins, and andra (wcf) and 2yo Jordan > > > > > This is a secular list. > > > > The opinions and information exchanged on this list should in no > > way be construed as medical advice. PLEASE CONSULT YOUR > > PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > ---------------------------------------- > > > > If you know someone who would find cfparents useful, have them > > follow this link: http://www.onelist.com/subscribe/cfparents > > > > ---------------------------------------- > > > > Come chat at our webpage! http://members.tripod.com/cfparents/ > > > > ---------------------------------------- > > > > > > > > > This is a secular list. > > The opinions and information exchanged on this list should in no way be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ---------------------------------------- > > If you know someone who would find cfparents useful, have them follow this link: http://www.onelist.com/subscribe/cfparents > > ---------------------------------------- > > Come chat at our webpage! http://members.tripod.com/cfparents/ > > ---------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Hi Mo, Just keep up some of those " fatty asses " recipes, I'm sure Allie will put on the pounds. I'm glad she had a generally good check-up, and that the chest congestion is gone :-) I love the, " I'll only culture for macaroni and lasagna " comment, too cute. Ah, speaking of which, here's my cute kid story of the day. Kailin (7) has lost 6 teeth already, and Meagan is SOOOOO jealous of the tooth fairy gifts which Kailin finds under her pillow the next morning. So, yesterday Meagan brought me a note she'd found under her pillow. It read, " Meagan, I'm sorry you haven't lost any teeth yet. " Inside a picture of a tooth, it said, " I love you Meagan, " and at the bottom, it was signed, " The tooth fairy. " Since Meagan can't read yet, she didn't notice that the " tooth fairy, " whose handwriting mysteriously resembles Kailin's, had spelled " sorry " " s-o-r-e " . Meagan was delighted, and put the note up on the fridge for us all to see. There are times I REALLY like my 7-year-old :-) bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Dear Mo, Although I did not have your previous corrections experience, I have exactly the same feelings about cpt. We have not done it. does use the flutter, with some prodding. (Does Allie?) It is quick, easy, and our doctor prefers it. He says that there are studies showing that the flutter is more effective than cpt in many cases. Since 's pulmonary involvement has been minimal, I don't feel like having to push one more issue with her. Oh, the doctor has been trying to get a vest. The insurance declined, and we've been in that circle for a while. After she cultured PA (about a year ago) he felt the vest would be good for her. Good luck! Allie update > > > Hi Everyone, > > We jut got back from Clinic and our major issue was her low weight. She > has grown 2 inches in three months, but no corresponding weight gain. > She's stuck at 30lbs and is 38.5 inches tall (or short, depending on your > outlook) Doc doesn't think that Boost or Ensure is the answer so I guess > we'll just keep trying to get her to eat the high cal stuff - stick with me > Baby, these hips didn't get to these proportions without effort! > > She's in the middle of a two week course of Cephalex for the chest > congestion (which of course disappeared exactly 24 hrs after I made the > decision to start her on it!) Hopefully, the throat swab will not culture > anything - Allie told the Nurse that it shouldn't show any nasty bugs just > healthy stuff like macaroni and lasagna! LOL > > The other major issue was non-compliant parents (yes, the rabid hapid ex > showed up). They do not like it that we've decided to only force the issue > of CPT when there is respiratory involvement. My position is that in my > previous life in Corrections, I restrained enough dirtbags to last me a > lifetime and do not think my daughter needs to benefit from this > experience. And, as we never see any mucus or cough, I think for the sake > of behaviour modification (hers and mine) I will remain watchful of change > in her lung involvement but not force the issue of unnecessary, ineffective > CPT. > > As always, I'm open to your thoughts. Hey, Jen, did you ever post that > milkshake recipe (for me not Allie hehehehe). Geez thanks for the > pressure for me to provide the comedy - I think I will pursue that career > as a Stand up Comic (won't the Nuns I had as teachers be surprised, not!) > > In love and laughter, > Mo, Mom of 4yo twins, and andra (wcf) and 2yo Jordan > > > This is a secular list. > > The opinions and information exchanged on this list should in no way be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ---------------------------------------- > > If you know someone who would find cfparents useful, have them follow this link: http://www.onelist.com/subscribe/cfparents > > ---------------------------------------- > > Come chat at our webpage! http://members.tripod.com/cfparents/ > > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Dear , Your tooth fairy story is one of the sweetest I have heard! What a cutie! ----- Original Message ----- > > > Ah, speaking of which, here's my cute kid story of the day. Kailin (7) has > lost 6 teeth already, and Meagan is SOOOOO jealous of the tooth fairy gifts > which Kailin finds under her pillow the next morning. So, yesterday Meagan > brought me a note she'd found under her pillow. It read, " Meagan, I'm sorry > you haven't lost any teeth yet. " Inside a picture of a tooth, it said, " I > love you Meagan, " and at the bottom, it was signed, " The tooth fairy. " > Since Meagan can't read yet, she didn't notice that the " tooth fairy, " whose > handwriting mysteriously resembles Kailin's, had spelled " sorry " " s-o-r-e " . > Meagan was delighted, and put the note up on the fridge for us all to see. > There are times I REALLY like my 7-year-old :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Dear , Your tooth fairy story is one of the sweetest I have heard! What a cutie! ----- Original Message ----- > > > Ah, speaking of which, here's my cute kid story of the day. Kailin (7) has > lost 6 teeth already, and Meagan is SOOOOO jealous of the tooth fairy gifts > which Kailin finds under her pillow the next morning. So, yesterday Meagan > brought me a note she'd found under her pillow. It read, " Meagan, I'm sorry > you haven't lost any teeth yet. " Inside a picture of a tooth, it said, " I > love you Meagan, " and at the bottom, it was signed, " The tooth fairy. " > Since Meagan can't read yet, she didn't notice that the " tooth fairy, " whose > handwriting mysteriously resembles Kailin's, had spelled " sorry " " s-o-r-e " . > Meagan was delighted, and put the note up on the fridge for us all to see. > There are times I REALLY like my 7-year-old :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1999 Report Share Posted November 17, 1999 , And really anyone else who may be interested in the vest. American Biosystems is offering an Open enrollment plan right now. What this means is that as long as you can get a letter of referal sent to them from your cf doc you can get the vest. From my understanding they try to bill your insurance company and if they deny you don't get the vest and it is up to you and your doc to appeal, well right now they are not doing it that way. As long as your doc writes the referal you get the vest and then they bill your insurance. If they deny, American Biosystems works on the appeal. It is really a good deal. Kodey should be getting his at the end of the week. I am so excited. If anyone is interested in this please email me and I will send you the name and 800 number of the gal I spoke with yesterday. Take care, mom of 2 boys Kodey 5yowcf, r 2yowocf Re: Allie update > > >Dear Mo, >Although I did not have your previous corrections experience, I have exactly >the same feelings about cpt. We have not done it. does use the >flutter, with some prodding. (Does Allie?) It is quick, easy, and our >doctor prefers it. He says that there are studies showing that the flutter >is more effective than cpt in many cases. Since 's pulmonary >involvement has been minimal, I don't feel like having to push one more >issue with her. > >Oh, the doctor has been trying to get a vest. The insurance >declined, and we've been in that circle for a while. After she cultured PA >(about a year ago) he felt the vest would be good for her. > >Good luck! > > Allie update > > >> >> >> Hi Everyone, >> >> We jut got back from Clinic and our major issue was her low weight. She >> has grown 2 inches in three months, but no corresponding weight gain. >> She's stuck at 30lbs and is 38.5 inches tall (or short, depending on your >> outlook) Doc doesn't think that Boost or Ensure is the answer so I guess >> we'll just keep trying to get her to eat the high cal stuff - stick with >me >> Baby, these hips didn't get to these proportions without effort! >> >> She's in the middle of a two week course of Cephalex for the chest >> congestion (which of course disappeared exactly 24 hrs after I made the >> decision to start her on it!) Hopefully, the throat swab will not culture >> anything - Allie told the Nurse that it shouldn't show any nasty bugs just >> healthy stuff like macaroni and lasagna! LOL >> >> The other major issue was non-compliant parents (yes, the rabid hapid ex >> showed up). They do not like it that we've decided to only force the >issue >> of CPT when there is respiratory involvement. My position is that in my >> previous life in Corrections, I restrained enough dirtbags to last me a >> lifetime and do not think my daughter needs to benefit from this >> experience. And, as we never see any mucus or cough, I think for the sake >> of behaviour modification (hers and mine) I will remain watchful of change >> in her lung involvement but not force the issue of unnecessary, >ineffective >> CPT. >> >> As always, I'm open to your thoughts. Hey, Jen, did you ever post that >> milkshake recipe (for me not Allie hehehehe). Geez thanks for the >> pressure for me to provide the comedy - I think I will pursue that career >> as a Stand up Comic (won't the Nuns I had as teachers be surprised, not!) >> >> In love and laughter, >> Mo, Mom of 4yo twins, and andra (wcf) and 2yo Jordan >> >> > This is a secular list. >> >> The opinions and information exchanged on this list should in no way be >construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING >ANY MEDICATIONS OR TREATMENTS. >> >> ---------------------------------------- >> >> If you know someone who would find cfparents useful, have them follow this >link: http://www.onelist.com/subscribe/cfparents >> >> ---------------------------------------- >> >> Come chat at our webpage! http://members.tripod.com/cfparents/ >> >> ---------------------------------------- >> >> >> > >>This is a secular list. > >The opinions and information exchanged on this list should in no way be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > >---------------------------------------- > >If you know someone who would find cfparents useful, have them follow this link: http://www.onelist.com/subscribe/cfparents > >---------------------------------------- > >Come chat at our webpage! http://members.tripod.com/cfparents/ > >---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
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