RE: Re: Vestibulectomy

[Guest guest]

,

I was a successful vestibulectomy and would not hesitate to go through it

again with the same doctor. I think that the key to success with the

procedure is to honestly have vulvar vestibulitis and to have a specialist

preform the procedure. You will get a lot of negative feedback on this

procedure from some of the other women on this group (no offense intended to

the other women;) but remember that only you can make this decision. If you

go in well informed then you know what to expect and can make a good

decision. Feel free to email me with any questions you may have.

Bunny

Reply-To: VulvarDisorders

To: VulvarDisorders

Subject: Re: vestibulectomy

Date: Wed, 22 Mar 2006 08:45:33 -0800 (PST)

Ok well the official name of the surgery is a partial vestibulectomy with

vaginal flap advancement and my official diagnosis is vulvar vestibulitis (I

think you got the impression that I was flying blind on what was going on

.... but I do actually know what I've got). He also said that if it happens

not to work for me (if I'm one of the 10% of people it doesn't work for)

then we can try the medications again.

My problem is my insurance runs out in May. I can't afford to go years

without getting this under control. I've been on the steriodal cream, and a

mix of amitrp/baclof both for 6 weeks each. They didn't do a thing to help

me. Now I'm starting Amitriptelene for 5 weeks. I know it seems hasty to

just go with a surgery seemingly just because I won't have insurance in 2

months. But it's more than just that. I'm actually considering it because I

will know in 3 months following the surgery if it worked. Why wait years to

see if medication works or physical therapy works (which I'll have to pay

for out of pocket) when I could just get this surgery and hope I'm one of

the 70% of women who are completely cured. The statistics are in my favor.

However, if it doesn't work, we can always go the route of medications

after.... although as I said, I'll be paying for it out of pocket at that

point.

I haven't done extensive research on it yet, because he just told me about

it yesterday. I wanted to get a first hand account of anyone that has had it

on here, because usually they are better than the research you find on the

internet.

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[Guest guest]

Generally the statistics would have to agree that the shorter the time frame

you have been in pain the better the chances of surgery being a success,

however I suffered from vvs for 8 years before finding relief and surgery

was a sucess for me.

Bunny

From: jln03lg@...

Reply-To: VulvarDisorders

To: VulvarDisorders

Subject: Re: Vestibulectomy

Date: Fri, 24 Mar 2006 14:25:28 EST

,

I have done soooooooo much research on the surgery, and here is my

advice: many women are told to have this when their doctors aren't sure

what else

to do with them, and because they are not good candidates for the surgery,

they

regret it.

You are only an ideal candidate for the surgery if you only have

localized pain to the vaginal opening when provoked. If you have burning to

a

generalized area constantly, you are NOT a good candidate. Also, the less

time you

have VVS, the better your chances are of finding relief with the surgery.

Lastly,

I have read that success chances are higher with having a full

vestibulectomy, as opposed to a partial. Of course, this is between you and

your doctor if

you do decide to have the surgery, but imagine needing to go back in for

surgery at a later date and remove more. That would be awful. Anyways, I

just wanted

to share the info. I've picked up.

I want to have the surgery this summer, but I have absolutely no pain

whatsoever unless I try to have intercourse. Then the pain is so terrible at

the

opening that it renders it impossible. Tricyclic anti-depressents did

nothing,

and Lidocaine hardly made a dent in the pain. I do not notice any difference

at certain times of the month, nor with certain foods I eat, and I stopped

birth control months ago. I also use cetaphyl (spelling?) soap, etc. So for

me,

this is the option I've decided on. I hope everything goes well for you, and

will be praying for your healing, one way or another. Love,

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[Guest guest]

Hi ,

I had a complete vulvar vestibulectomy in 2000. I was a success. I have

lichen sclerosis as well so I still have some symptoms from that but they

are under good control with topical estrogen. My pain started before

childbirth and I had the surgery before I had my daughter. I delivered by

cesarean to avoid trauma to the surgical site. If you have any other

questions, please feel free to ask:)

Bunny

Reply-To: VulvarDisorders

To: VulvarDisorders

Subject: Re: Vestibulectomy

Date: Tue, 25 Apr 2006 13:25:25 -0000

it really helps with hearing these stories and i thank everyone for

sharing such personal issues. my ordeal is similar where it is only

pain on intercourse or penetration/contact inside. We do not have

intercourse at all. I luckily do not suffer with daily pain and

would never know there was a problem excpet with tampons and sex.

it has been 5 years and was just diagnosed, finally, 2 weeks ago and

going to have surgery end of june. if any of you care to share your

thoughts, please feel free to email me! I would love to talk to

others going through the same situations! Has your surgeries beena

success or not completely, if you had it done. Anyone have this

start after childbirth?

>

>

> ,

> I have done soooooooo much research on the surgery, and here

is my

> advice: many women are told to have this when their doctors

aren't sure what else

> to do with them, and because they are not good candidates for the

surgery, they

> regret it.

> You are only an ideal candidate for the surgery if you only

have

> localized pain to the vaginal opening when provoked. If you have

burning to a

> generalized area constantly, you are NOT a good candidate. Also,

the less time you

> have VVS, the better your chances are of finding relief with the

surgery. Lastly,

> I have read that success chances are higher with having a full

> vestibulectomy, as opposed to a partial. Of course, this is

between you and your doctor if

> you do decide to have the surgery, but imagine needing to go back

in for

> surgery at a later date and remove more. That would be awful.

Anyways, I just wanted

> to share the info. I've picked up.

> I want to have the surgery this summer, but I have absolutely

no pain

> whatsoever unless I try to have intercourse. Then the pain is so

terrible at the

> opening that it renders it impossible. Tricyclic anti-depressents

did nothing,

> and Lidocaine hardly made a dent in the pain. I do not notice any

difference

> at certain times of the month, nor with certain foods I eat, and I

stopped

> birth control months ago. I also use cetaphyl (spelling?) soap,

etc. So for me,

> this is the option I've decided on. I hope everything goes well

for you, and

> will be praying for your healing, one way or another. Love,

>

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