Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 We will keep Katrina in our prayers. Along with you & Madel. Please send us your snail mail address and we can send her some cards. Blessings, ----- Original Message ----- From: C & G son Katrina is off to hospital tomorrow to have the first of two surgeries on her foot. If there is any good soul who would like to send a nice cheery message to my Sweet Kate, don't hold back! Madeleine has a shocking cold and is feeling unloved and neglected, etc., and I am a Bad Mother for not paying enough attention to her. If you would care to cheer up a poor, forlorn 11 year old, please do! Georgia, who needs sleep, a Bex and a nice cup of tea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Georgia, What is a Bex? Sorry about Katrina. I know how it pulls at the heart strings of us Moms. This is not how the dream was written is it? Hugs, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Good luck to Shane on his surgery. I'll be thinking of you. Have a drink for me, too. I'm on a diet and am trying to abstain. :-) Hey Georgia must be a good time for surgery in Oz this week, Shane is going in on Thursday to repair the fluid leak (medical name i have forgotten) from his AN surgery in March, lets hope its a bit easier than the 18hr job last time. Give Katrina a bug hug from us please and i hope everything goes well for her. It doesn't get any easier even when they are 21 yrs old and supposed to be all grown up you still want to take it all away so they don't have to go through it at all. Big Hugs to you all down there i know what you are feeling and have a Bex for me ok I'll settle for something a bit stronger and liquid i think. ..... up here in sunny Queensland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hey Georgia must be a good time for surgery in Oz this week, Shane is going in on Thursday to repair the fluid leak (medical name i have forgotten) from his AN surgery in March, lets hope its a bit easier than the 18hr job last time. Give Katrina a bug hug from us please and i hope everything goes well for her. It doesn't get any easier even when they are 21 yrs old and supposed to be all grown up you still want to take it all away so they don't have to go through it at all. Big Hugs to you all down there i know what you are feeling and have a Bex for me ok I'll settle for something a bit stronger and liquid i think. ..... up here in sunny Queensland ----- Original Message ----- From: C & G son Katrina is off to hospital tomorrow to have the first of two surgeries on her foot. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Madeleine, I bet its frustrating for you to have to live with all these surgeries going on around you. I bet its very hard. I don't know you but I would suggest to you to be as supportive as you can to your mom and family as you can be. I'd bet your mom is so overwhelmed with the "crap" too its hard for her to be in a great mood. Thats not fair but it will change. Try to stay busy, find something you enjoy to do. Hang out with frinds if possible, read a good juicy book, watch videos, try to think up new hobbies that you'd enjoy and can keep you busy. I remember being your age quite well, 11 was hard, even harder if you have things stressing you out. Its ok to admit your frustration. Do you use online instant message? If you ever want to chat or email feel free. Take care kid, C & G son wrote: Katrina is off to hospital tomorrow to have the first of two surgeries on her foot. The official name is Tendon Release. Sounds like something you'd do at the gym. Well I wouldn't, I've never even been to a gym, but I can imagine. So anyway I am feeling a touch frazzled. Don't you wish you could just take all the pain and unpleasantness away from your children? Any parent would say that they would rather have surgery than make their child go through with it, but the rules say we can't. Pity. If there is any good soul who would like to send a nice cheery message to my Sweet Kate, don't hold back! Madeleine has a shocking cold and is feeling unloved and neglected, etc., and I am a Bad Mother for not paying enough attention to her. If you would care to cheer up a poor, forlorn 11 year old, please do!Georgia, who needs sleep, a Bex and a nice cup of tea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Good Luck !!! With your wonderful attitude we know things will be fine! Wouldn't you rather do the Limbo?? LOL! Hugs, Carol Henrion wrote: What a surprise, someone one this list is having surgery! Just FYI, Thursday, lumbar spine, T12, L1 this time. I don't know why but I'm confident I'll be ok with no lingering weakness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2001 Report Share Posted September 26, 2001 Thanks Lowi, I hope your right!!!! Sitting here wishing I had a valium! ;-) Lori Phibbs wrote: > Gook luck to you !! I know it will be a breeze. You have a good > surgery and a WONDERFUL attitude, thats the battle won already~~Lowi > surgery > > > What a surprise, someone one this list is having surgery! Just FYI, > > Thursday, lumbar spine, T12, L1 this time. I don't know why but I'm > > confident I'll be ok with no lingering weakness. > > > > I'll have a very good friend send another very good friend on this list > > how I did Thursday and he can let you know if I lived through it. > > > > I made a promise that if I came out of this surgery with legs intact, I > > would lead a Conga line of crewbies at our Aussie BBQ in june (and yes I > > know getting there might be a prob now but lets assume itss till a go) > > go here to see what a conga line is > > http://www.streetswing.com/histmain/z3conga.htm and yes everyone even > > those of us in ewalkers and wc's can do this, I'll make certain of it. > > > > who is only having surgery just to get a crew card :-) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 In a message dated 10/29/04 10:38:24 PM Eastern Daylight Time, rayconf88@... writes: > >Ironically, now that my blood sugar is under control for the first time in >ages, I'm beginning the process of looking into gastric bypass surgery. I " m >attending a seminar given by a St. Louis bariatric surgeon that's a >prerequisite for getting a consultation. >>>>>>>> I call it barbaric surgery, so I don't think you want to get me started on it... Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 I would have to agree that the recovery time does often tend to be longer than the 3 months that they predict. I took closer to 6 months. But still worth it for the virtually pain free sex I have had the majority of the time. Bunny From: limay@... Reply-To: VulvarDisorders To: VulvarDisorders Subject: surgery Date: Thu, 23 Mar 2006 23:52:14 +0000 Hi... I see some women considering surgery and asking questions. I had a vestibulectomy with Dr. in Rochester and it was great for my contact pain. I am a strange case, I think.... some kind of vv/dv hybrid. The surgery made intercourse comfortable, but I am still working on pelvic muscle issues and taking elavil for unprovoked pain. I have to say my recovery was longer than 3 months and I have heard from 2 docs that they don't really pass judgment on a surgery (it worked or it didn't) for a full year. So... I understand the dilemma with insurance, but it probably is ideal to try a trycliclic first. Elavil scares a lot of women off because of the sedation. It's the one that works best for me, but there are others that may be less sedating... Pamelor, Imipramine... I also think that the kind of vv you have plays into the decision. I tend to think that if you have primary vv and sex has never been tolerable, the drugs probably won't be your whole answer, but I don't know. Good Luck. Ask questions if you need. Lia _________________________________________________________________ On the road to retirement? Check out MSN Life Events for advice on how to get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 , When you say 3 and 6 months recovery time, what do you mean exactly? Are we talking 6 months to try sex, 6 months to exercise, 6 months to sit down comfortably, etc. Just wondering. I want to have it this summer but I still have to work + take at least two classes. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 what level did you get do? > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: surgery >Date: Wed, 29 Mar 2006 01:11:40 -0000 > > >I have had the surgery and I still have issues. I didn't expect it >to cure me. > >I just wanted any small improvement I could get. > > > > > > > > > Hi, > > I think my pain upon penetration has slowly been evolving >into daily itching/burning/rawness that ebbs and flows with my >cycle, too. > > With all these responses on vestibulectomy, I was wondering >how many of those women who've had the surgery still have issues >they're dealing with? It seems to me if the surgery completely >healed you, you wouldn't be on sites like this? Just hoping for a >positive answer to that! > > Thanks, > > Becky > > > > > > --------------------------------- > > New Yahoo! Messenger with Voice. Call regular phones from your PC >and save big. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Given what you describe below, I'm surprised you healed in as short as time as 6 months! My goodness, it took me 7 months to recover from a broken foot with damage to a tendon!!! Dusty Re: Surgery Date: Mon, 27 Mar 2006 00:04:09 EST , When you say 3 and 6 months recovery time, what do you mean exactly? Are we talking 6 months to try sex, 6 months to exercise, 6 months to sit down comfortably, etc. Just wondering. I want to have it this summer but I still have to work + take at least two classes. - _________________________________________________________________ Don't just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** Our HOME page is http://groups.yahoo.com/group/VulvarDisorders to search our archives, files, articles, etc. *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Believe it or not the skin in the vulva is chock full of capilaries and heals fast like the skin on your face. I was amazed at how quickly things began to feel better(considering what all was done). Believe me when I first looked at the area right after I got out of the hospital I cried and couldnt believe it would ever look normal much less heal in a reasonable time. But hear I am not 5 years latter and some doctors cant even tell I had surgery when they look. Bunny Reply-To: VulvarDisorders To: <VulvarDisorders > Subject: RE: Re: Surgery Date: Wed, 29 Mar 2006 01:58:20 -0500 Given what you describe below, I'm surprised you healed in as short as time as 6 months! My goodness, it took me 7 months to recover from a broken foot with damage to a tendon!!! Dusty Re: Surgery Date: Mon, 27 Mar 2006 00:04:09 EST , When you say 3 and 6 months recovery time, what do you mean exactly? Are we talking 6 months to try sex, 6 months to exercise, 6 months to sit down comfortably, etc. Just wondering. I want to have it this summer but I still have to work + take at least two classes. - _________________________________________________________________ Don't just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS** Our HOME page is http://groups.yahoo.com/group/VulvarDisorders to search our archives, files, articles, etc. *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 I know a lady who has suffered with this for 27 years; I think she's about 77 also. She had 9 surgeries to the vulva area but that was back in the day when a doctor in Detroit didn't know what he was doing and botched women. How long has your wife suffered? There must be other options. Maybe seek another opinion from another doctor, even if it means travelling. beachviewgriffinbob wrote: My wife is a 77 year old woman. Her Dr strongly suggested radical surgery.Including removing the clitoris. Any one out there who has experience with this surgery please respond . Biopsy was benign. Thanks A concerned hubby __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 I am sure you are concerned....Why whould they want to do that??? Sounds horribly Painful and not reasonable if you ask me(unless it was cancer) Can you give us more details as to why they came to that conclusion- Is she having pain? > > My wife is a 77 year old woman. Her Dr strongly suggested radical > surgery.Including removing the clitoris. Any one out there who has > experience with this surgery please respond . Biopsy was benign. Thanks > A concerned hubby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 RUN FROM THIS DOCTOR!!! In cases where there is pain on contact only the docs remove a layer of skin and pull down some excess skin from the vagina. They NEVER remove the clitoris for a non cancerous condition. EVER. If this is benign then your dr doesn't know what he is talking about. The clitoris should only be removed to save a woman's life. Sandi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Why does the doctor want to remove the clitoris? Is she having pain or what? That sounds crazy to me. I had severe clitoral pain and found that it was because I was gluten sensitive. Gluten is a protein found in wheat, rye, oats, and barley and it can cause serious nerve problems of which clitoral pain can be included. When I stopped eating those things it all went away. Sometimes this is called Celiac Disease but it is difficult to diagnose and the blood tests your doctor will give are not accurate enough most of the time. If you are interested in having her tested by an excellent and accurate lab email back to me and say so and I will send you the information. Or at the very least have her stop eating all of these things and all processed foods because they may contain gluten. Arline --- beachviewgriffinbob wrote: > My wife is a 77 year old woman. Her Dr strongly > suggested radical > surgery.Including removing the clitoris. Any one out > there who has > experience with this surgery please respond . Biopsy > was benign. Thanks > A concerned hubby > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Why does the doctor want to remove the clitoris? Is she having pain or what? That sounds crazy to me. I had severe clitoral pain and found that it was because I was gluten sensitive. Gluten is a protein found in wheat, rye, oats, and barley and it can cause serious nerve problems of which clitoral pain can be included. When I stopped eating those things it all went away. Sometimes this is called Celiac Disease but it is difficult to diagnose and the blood tests your doctor will give are not accurate enough most of the time. If you are interested in having her tested by an excellent and accurate lab email back to me and say so and I will send you the information. Or at the very least have her stop eating all of these things and all processed foods because they may contain gluten. Arline --- beachviewgriffinbob wrote: > My wife is a 77 year old woman. Her Dr strongly > suggested radical > surgery.Including removing the clitoris. Any one out > there who has > experience with this surgery please respond . Biopsy > was benign. Thanks > A concerned hubby > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 << My wife is a 77 year old woman. Her Dr strongly suggested radical > surgery.Including removing the clitoris. Any one out there who has > experience with this surgery please respond . Biopsy was benign. >> NO NO NO. I do not know what diagnosis your wife has had and indeed, that may change my view, but I have never heard of this helping anyone and in other parts of the world this is also known as Female Genital Mutilation. If your wife has clitorodynia, has she seen a specialist in vulval pain and attended a pain clinic? Just that so often I read posts and folk say they have tried everything and nothing works, and technically they are incorrect. They either tried one or two drugs at not a high enough dose for a long enough time, or did not experiment to try find a drug that worked for them. I am not suggesting a drug WILL work, but that they can, and it's often a case or trial and error. For e.g. here in the UK we often get Amitriptyline or gabapentin and nothing else is offered if they don't work when in fact there are alternatives. Good luck, I personally feel surgery is a last resort, but tthat's my view and I know some have had success with a vestibulectomy. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi.... Removing the clitoris is VERY radical. You must get a second opinion on this. I don't know where you are... The surgeon who did my vestibulectomy is in Rochester, NY. I trust him. Also... any good surgeon will understand that you want a second opinion. encouraged me to get one for my comfort level. If a surgeon was offended by a patient wanting a second opinion, I would worry. Lia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Thank you for your reply. How long did it take you to recover from surgery? Do you consider it successful.limay103 wrote: Hi.... Removing the clitoris is VERY radical. You must get a second opinion on this. I don't know where you are... The surgeon who did my vestibulectomy is in Rochester, NY. I trust him. Also... any good surgeon will understand that you want a second opinion. encouraged me to get one for my comfort level. If a surgeon was offended by a patient wanting a second opinion, I would worry.Lia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi , I just want to emphasize that no one here as far as I know has had surgery to remove the vulva including clitoris for noncancerous conditions. All literature is against it that I have seen. ANd the ladies on this list have researched the condition thoroughly and are up to date on the latest studies and treatments. Lia is talking about a vestibulectomy which is different than a radical vulvectomy. That is when the vestibular skin is removed and replaced. This in itself, is major surgery, done outpatient, but considered a last resort. Before ever agreeing to any surgery, look at the studies. There are many ladies like me on this list who have suffered unbearably but I would never ever let anyone remove that area, the clitoris - much too sensitive. Could lead to MUCH worse pain. Best wishes, Sandi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi there, I have had a successful compleate vulvar vestibulectomy done for vulvar vestibulitis, which is a non cancerous condition. It included removal of all major (Barthonilins Glands) and minor vestibulary glands, the hymen and vaginal advancement. It also included a perinial graft. It did NOT include removal of the Clitoris. I am not sure what vulvar condition your wife has (this site is for various vulvar conditions as you will see by the varied posts), but as far as I know a radical vulvectomy (which is what your wifes considered surgery sounds like from your post) is generaly preformed for vulvar cancer. I would consider a second opinion. I know how difficult it can be to live with vulvar pain and it must be pretty bad if the clitoris is involved as well, but once that is removed there is a potential for nerve damage (due to the large number of nerves in the area) which can cause more pain or at least new pain then what she is currently living with, as well as impair intimacy (which may not be your wifes biggest conciern right now if she is in enough pain to consider such radical surgery) It would also be helpful for you to know for sure the name of the procedure to be done and to research it online. Be sure to look on reputable medical and pre-med sites to have accurate information. Don't be afraid to ask the surgeon questions either. If nothing else a little more literature and education on the procedure can help you both put your mind at ease about your decision. _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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