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Re: Metabolic Testing Results of Verbal Apraxic Child&l...

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Hi there,

I am in the process of having my son tested as he developed posotve signs of

heavy metal toxicity(esp. mercury) post 2 seizures after mmr and varivax last

summer. He had what the doctors called mild encephalitis symptoms, however

since then he has developed further signs. Muscle wasting and strength, minimal

growth down from a 75% since birth till around 2 and now is less than 5% in

over all height and weight, and we are not small parents, just average. Definite

cerebellum involvement, mostly right sided deficits, also goes along with merc

poisioning. Positive Rhomberg and positive star tests but can finger touch

nose alternativley consistently. I am anxiously awaiting our appointment with a

DAN doctor to get to the bottom of this EFA's did help but it is not the total

answer in my son's case. He has food sensitivities especially phenols so I am

figuring some type of yeast. He acts like he is drunk after eating high

phenol foods, pizza apples tomatoe, his ears go on fire, like tomatoes. You are

ahead of me as far as knowing exactly where your son is nutritionally

deficient,

my son now has muscle wasting going on so it is scaring me, but at least i

feel I am on the right track finally seeing a light at the end of the tunnel. If

you would like to exchange any info, i would love to keep in contact,

All the best

Colleen

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Hi Colleen & Pam,

We had Kai tested through ICMT (International Center for Metabolic

Testing) out of Ottawa, ON, CA. It is a private clinic (also known

as " Nutri-Chem " ) known internationally and have done a lot of work

with downs syndrome and autistic children. I did a great deal of

research into the clinic before scheduling. I also spoke with

individuals who had gone through the clinic and are currently off

all medications as a result of supplementation.

We waited approx. 3wks for the results once the blood was taken and

then met with two individuals for feedback on results. The two

staff we met with include a medical doctor (who had once been in

private family practice and became so convinced re: nutrition/supps

on her own speech/language delayed child that she joined Nutri-Chem)

and a Pharmacist/biochemist.

The results are overwhelming for a non-biologist and I keep re-

reading and researching the info to fully understand. Kai too is

hypoglycemic. We are just starting (this week) supplementation

using a custom formula specific to Kai's needs.

Colleen, I'd be happy to keep in contact and share results. Feel

free to e-m privately.

Thanks, Sharon

> Hi there,

>

> I am in the process of having my son tested as he developed

posotve signs of

> heavy metal toxicity(esp. mercury) post 2 seizures after mmr and

varivax last

> summer. He had what the doctors called mild encephalitis symptoms,

however

> since then he has developed further signs. Muscle wasting and

strength, minimal

> growth down from a 75% since birth till around 2 and now is less

than 5% in

> over all height and weight, and we are not small parents, just

average. Definite

> cerebellum involvement, mostly right sided deficits, also goes

along with merc

> poisioning. Positive Rhomberg and positive star tests but can

finger touch

> nose alternativley consistently. I am anxiously awaiting our

appointment with a

> DAN doctor to get to the bottom of this EFA's did help but it is

not the total

> answer in my son's case. He has food sensitivities especially

phenols so I am

> figuring some type of yeast. He acts like he is drunk after eating

high

> phenol foods, pizza apples tomatoe, his ears go on fire, like

tomatoes. You are

> ahead of me as far as knowing exactly where your son is

nutritionally deficient,

> my son now has muscle wasting going on so it is scaring me, but at

least i

> feel I am on the right track finally seeing a light at the end of

the tunnel. If

> you would like to exchange any info, i would love to keep in

contact,

>

> All the best

>

> Colleen

>

>

>

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Hi Sharon

Sorry if I've missed any previous info on this but could you say how

hypoglycemia specifically impacts your child. What is the clinics whys &

wherefores on this?

Many Thanks

Gin & 6.2 (verb & oral Dysprax + motor + residual dsi + APD )

Barnet, UK

[ ] Re: Metabolic Testing Results of Verbal

Apraxic Child & l...

> Hi Colleen & Pam,

> We had Kai tested through ICMT (International Center for Metabolic

> Testing) out of Ottawa, ON, CA. It is a private clinic (also known

> as " Nutri-Chem " ) known internationally and have done a lot of work

> with downs syndrome and autistic children. I did a great deal of

> research into the clinic before scheduling. I also spoke with

> individuals who had gone through the clinic and are currently off

> all medications as a result of supplementation.

> We waited approx. 3wks for the results once the blood was taken and

> then met with two individuals for feedback on results. The two

> staff we met with include a medical doctor (who had once been in

> private family practice and became so convinced re: nutrition/supps

> on her own speech/language delayed child that she joined Nutri-Chem)

> and a Pharmacist/biochemist.

> The results are overwhelming for a non-biologist and I keep re-

> reading and researching the info to fully understand. Kai too is

> hypoglycemic. We are just starting (this week) supplementation

> using a custom formula specific to Kai's needs.

> Colleen, I'd be happy to keep in contact and share results. Feel

> free to e-m privately.

> Thanks, Sharon

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Hi Gin,

Hypoglycemia and type 1 diabetes is prominent in our immediate

family. Simply, Kai's mood, behaviour and focus/attention becomes

irrational due to his hypoglycemia. This can make our 1-on-1 sp.

therapy difficult at times when he hasn't eaten appropriately (e.g,

protein -nuts, eggs, meat, and long-lasting ww carbs vs. juice,

crackers, cookies). He becomes hyper one minute then extremely

fatigued, angry/aggressive - hitting,screaming, shortened attention

span, unfocused. Its a case of the extreme terrible twos yet

literally within minutes of giving a cup of apple/orange juice or in

extreme situations a 'sugar tab' Kai becomes a happy, sociable,

attentive child able to sit and focus on therapy for the remainder

of the session (which now has a built in snack component).

With respect to the clinics interest its a matter of maintaining

balanced blood sugar levels via appropriate foods and

diet/nutritional supplementation.

Hope this helps.

Sharon

> Hi Sharon

>

> Sorry if I've missed any previous info on this but could you say

how

> hypoglycemia specifically impacts your child. What is the clinics

whys &

> wherefores on this?

>

> Many Thanks

>

> Gin & 6.2 (verb & oral Dysprax + motor + residual dsi + APD )

> Barnet, UK

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Thanks for the info, Sharon........

your post was the 1st I'd read about this & it's always good to learn

something new.

Thanks again

Gin

[ ] Re: Metabolic Testing Results of Verbal

Apraxic Child & l...

> Hi Gin,

> Hypoglycemia and type 1 diabetes is prominent in our immediate

> family. Simply, Kai's mood, behaviour and focus/attention becomes

> irrational due to his hypoglycemia. This can make our 1-on-1 sp.

> therapy difficult at times when he hasn't eaten appropriately (e.g,

> protein -nuts, eggs, meat, and long-lasting ww carbs vs. juice,

> crackers, cookies). He becomes hyper one minute then extremely

> fatigued, angry/aggressive - hitting,screaming, shortened attention

> span, unfocused. Its a case of the extreme terrible twos yet

> literally within minutes of giving a cup of apple/orange juice or in

> extreme situations a 'sugar tab' Kai becomes a happy, sociable,

> attentive child able to sit and focus on therapy for the remainder

> of the session (which now has a built in snack component).

> With respect to the clinics interest its a matter of maintaining

> balanced blood sugar levels via appropriate foods and

> diet/nutritional supplementation.

> Hope this helps.

> Sharon

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