Re: SHAR

[Guest guest]

Shar sharon has lost the sight in her left eye twice, both times she described

the eye going blurry etc at first until the sight went both time they put her on

the pred first time she had a few bags of pred iv then she was put on 80mg of

pred until sight returned. this time she is on 50mg her sight hasn't totally

recovered this time though it is a lot better but she says her eye just keeps

going out of focus with no warning. the quicker you get to the doctors the

better it will be for you. we are countint the days until the hospital resumes

normailty (well as normal as hospitals ever get) I hate holidays for i know if

anything goes wrong in that time you have a fight on your hands to been seen by

the right doctors and like you i dont like sharon seeing just anyone cause they

really dont know what they are talking about. enough doom and gloom have a good

new year enloy to the best of your ability and good things will happen next year

love bev x

> Re: Anyone and Everyone

>

> SHAR THE SHAMAN ALWAYS USED TO TELL ME THAT PUTTING

> WARM TEABAGS ON THE EYES DREW OUT THE BAD MEDICINE

> (IE-INFLAMMATION) YOU HAVE TOLD US THAT COLD

> COMPRESSES HELP. AND, SHAR, IF IT GETS WORSE OR YOUR

> SPEECH STAARTS SLURRING YOU ARE HAVING A STROKE AND

> YOU BETTER GET YOUR ASS TO HOSPITAL!! LOV YA JACS

>

> --- sharranoelle wrote:

> > I seem to have myself in a bit of a bind and the

> > brain fog is overwhelming me right now. The kids

> > dont go back to college until Jan 13 so I'm bringing

> > them into the act. I'm still hanging on trying to

> > fight off pneumonia, but now am having some

> > additional symptoms and my mind is too foggy to even

> > add one and one right now. Christmas Day evening my

> > right eye started going cloudy and blurry. I sent

> > the kids to get some new eyedrops thinking maybe the

> > old ones had gotten contaminated or too old to be

> > effective. I've always had a problem with dry eyes

> > and I just figured I'd add the drops and everything

> > will be hunkey dorey. Well its now New Years eve

> > morning and everything out of my right eye is a

> > complete blur. I have the kids going thru my

> > journals to see what else was done the last time,

> > besides added the tear drops. But it could take them

> > awhile. There is a dull throbbing ache, only in the

> > right eye. My left eye appears to be perfectly fine.

> > My problem is that 1, my doctors are all gone for

> > the holidays and I wont trust my eyes to the guys at

> > the local hospital, and my mind cant seem to hold

> > onto and grasp what the symptoms mean. It just keeps

> > slipping away from me. And then I start coughing and

> > I cough so hard I'm breaking blood vessels in my

> > eyes. I do have Vicodin to take to help control the

> > coughing, but I really dont want to take it any

> > oftener then every 4 hours. This leaves me about an

> > hour from the time the previous dosage wears off

> > until I can take the next dose.

> > I know this wouldnt be so hard if I could just think

> > right. But I can feel the pressure building in my

> > brain when I'm coughing. My face gets very red, I

> > get dizzy, lightheaded, experience vertigo along

> > with the shortness of breath and coughing. I have my

> > glasses on and a big 19 " computer screen and I

> > still can read anything if I close my left eye.

> > Everything is cloudy on the edges and blurring too

> > much.

> > I'm cant take the chance of seeing doctors that dont

> > know my case due to the things they would miss as

> > well as their lack of knowledge of how my drugs

> > interact---then you had the bazillion drugs I'm on

> > and I cant let these docs that dont know me

> > rearrange the meds without my direction, since my

> > docs arent available to do it.

> > Everyone, I know I'm rambling, but its taking me so

> > long to think of each word to write so this makes

> > some sense.

> > I know I need to be concerned about my eye---but I

> > need to be reminded why and what treatment should be

> > started.

> > They started decreasing the Prednisone last week

> > after the Remicade treatment, but the taper is slow.

> > It could be causing it but I dont think so, not with

> > all the other immune suppressants I'm on. Any

> > suggestions for someone who finds herself lost on

> > the wrong side of the Looking Glass.

> > Thanks all. Please know as soon as I beat this again

> > I'll be right here, but I dont seem to have enough

> > energy to do much except check my mail, run to the

> > ladies room and nap.

> > Jacs,

> > So sorry I'm not helping you much now and I know how

> > much you need it, but if I cant trust my mind enough

> > to diagnose and treat myself then I could do you too

> > much harm trying to treat you until I get this

> > fixed.

> >

> >

> > Sorry to let all of you down, but I know as soon as

> > my mind remembers what its doing I'll be fine again.

> > I just think I need some help remembering.

> >

> > Love

> > Shar

> >

> >

>

>

> =====

> From Maine-the way life should be...

> Full of mosquitoes, deerflies, blackflies, deer and moose-

> and no where to be found a sarcoid doctor!

> Keep it Simple and Live in Peace

>

> __________________________________________________

>