Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 mm you may want to talk to romie.. she has the same problems. I can't remember what she says help. love Carol. ps.. i have the rash but no where near as bad. i have the antenna going over each eye... and it looks like double wings when he gets fired up and goes down my next. love Carol Re: Mike Brat, my brat, They don't say what the plan is. I don't think they know what to donext. I certainly don't. I just know I can't go on with this pain on my skin, and myclothing catching on it and ripping the hide right off me. Showers are very painful,the lesions sting and burn something fierce, and when I get out, I barely pat myselfdry. When I get up in the mornings, the red mask is very pronounced on my face, andforehead. It looks just like a giant moth, with the antenna going up each side of theforehead. Very weird. The palms of my hands are firey red today, so I know thathumidity is effecting me, and the back pain means rain in the next 48 hours. I'm veryaccurate about weather prediction. Too bad I can't get a job doing that, huh? LOLAnyhow, that's where it's at right now. Very frustrating, and anger making. All Icould do after I listened to that message on my recorder last night was cry. I don'tusually give in, but I was running out of rope and not in the mood for tying knots. Ifyou get my drift, Cliff. More later, Love, MM"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Mike Don't you love how these so called Professionals choose to leave messages on answering machines instead of trying to get a hold of a person to tell them personally test results etc. I wrote to you the other night however it did not go out as I have had a problem with my computer and just got it out of the shop tonight. Hope it works well for a long time to come, because there is not anything else they can do other than for me to get another computer. I now have the most memory that you can have on this system. So I guess it had better last me for awhile. Take care LOLDorothy -- Re: Mike Hey, Brat, Well, guess what? I got the biopsy results finally, and...are you ready?...You sure?....Welp, here goes...the results were INCONCLUSIVE! @0#!!!@!@!# & @! Oh, yeah, you two can be the first on your block to wait a month for test results, whichhave been repeated countless times over thirty years, and get...ZIP.The doc from the university called last night while I was at a PTA meeting. Left amessage that said, "Well, it's not a lupus rash per say. But, we can't rule it outaltogether. It seems to be a reaction to something. (Well, duh.), I will forward copies to your other doctors. Call me if you have any questions." QUESTIONS?OF COURSE I HAVE QUESTIONS! I can't believe this. Put through all this, yet again,for nothing. As would say, PPFFFT!So, that's the latest. On the thyroid tests, the ranges used that say I am "normal"were not the latest being used for the purpose. When you use the latest ranges, I amdefinitely not normal. So, I will be talking with my doc again. Here we go round themulberry bush, the mulberry bush, the mulberry bush, ....Sheesh. Hugs, MM"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
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