Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 That was great!!! Hope she got a good grade! :) Daelynn Maureen's report Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 Meg, The report was just great! I hope she got an A. said whe wished she could do a report like that for her class!!! Wow, considering she is the kid who does not want to talk about it to anyone. Congrats to Maureen. (mother of , 10 wcf, and , 2 nocf) ----- Original Message ----- > From: MMolls@... > > OK nothing has worked so I will type it in let me know what you all think > remember this was an oral presentation to her 4th grade class. > Meg > > How many people here look like their mothers? How many people look like > their fathers? How many people here have their mothers eyes and their > fathers nose? > We all know that DNA and genes make up our characteristics. But where do we > get it from? Our parent. I am very lucky because I know I got one special > gene from my mother and one special gene from my father and together they > give me Cystic Fibrosis. > Cystic Fibrosis is a very big word so we can call it CF for short. CF is a > disease that makes my body produce a lot of mucus.....Yuck CF is not a > disease that I can give to anybody else unless you go into my body and take > out the special gene, and if you want that you can have it. > Because my body makes so much mucus I need to cough and blow my nose a lot. > Some people may see me cough or blow my nose and think EWE she's sick but I'm > not really sick at all. My body makes too much mucus and some of the ways to > get it out is by coughing or blowing my nose. > The mucus loves places in my body that are narrow and tube like. Some of > these places are my lungs, nose and pancreas. The pancreas is an organ that > helps our bodies digest food. In my body my pancreas does not work right > because of CF and all the mucus in my body. To help my pancreas work right I > take medicine to help my body digest food. This medicine is called Enzymes. > Without the medicine I get very BAD Stomach aches. That is why I always go > to the nurses office before snack and lunch. > Like I said before mucus likes my lungs too. Sometimes mucus stays in my > lungs and gives my body an infection. When I get an infection I need to take > antibiotics just like you. To keep my lungs healthy I exercise, use inhalers > (likes most people with asthma), have my parents do chest therapy and use my > flutter. > Chest therapy, I call it clapping is a way to get some of the mucus out of me > (I was there to demonstrate CT) The flutter is (she demonstrated) > By doing these things they help me cough and that helps me clear out mucus. > CF is a big stinker but as you can see I am just like everyone else in this > classroom > > Maureen and I wrote this together she was a big hit today and all of the > kids were able to understand. The questions were mostly does it hurt to have > CT and where can I get a flutter. Hope this helps some of you > > > Meg > > > This is a secular list. > > The opinions and information exchanged on this list should in no way be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ---------------------------------------- > > If you know someone who would find cfparents useful, have them follow this link: http://www.onelist.com/subscribe/cfparents > > ---------------------------------------- > > Come chat at our webpage! http://members.tripod.com/cfparents/ > > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 Meg - I am SOOOOOOOOOOOO proud of Mo. From the sounds of it she did a terrific job! I LOVE how she called her CF genes special! This is awesome. She is really dealing well with it. After my news yesterday this just simplifies things in my head too. From the mouths of babes. Congratulations on a job well done. Now if Mo misses school the kids won't question why she's out as much. They probably will worry about her though. I will write a full " report " about 's annual visit later today. Gotta go to work but I had to respond to you! Love and (((((((((hugs)))))))) Kathy G. (mom of 5 w/CF, 2 no/CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 Please feel free to pick apart the report and use if it helps anyone else that's why I wanted to send it to all of you. It is hard to watch your child struggle with this at school. At first Maureen did not want to talk about it to any of the kids for fear of being looked at as sick and then she got really frustrated and wanted to shout it out to the world this was a happy medium. She felt really good after it and was soooo happy that the kids were so caring and not frightened. She already plans on doing it again next year so that anyone who is new in her class will understand. I feel like we came out of the " CLOSET. " Meg Mom of 2 9yowcf & 4 1/2 yowocf Quote Link to comment Share on other sites More sharing options...
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