Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Lori, No problem with the response time. As for the IV that runs through your whole body, could be a lidocaine infusion (I've had those, too ) Those can be very beneficial and since all they involve is an IV, they're not very invasive. Good luck with the emails and with whatever you and the doc decide to do next. TriciaAlwayzLoRi@... wrote: Tricia, I'm responding, very late I'm afraid, to your e-mail about the Bier block. One pain doctor had mentioned that but this is different. Since the RSD is all through my body he wants to run an IV so that it goes all through my body. I wish it was still just my knee, but it has spread alot and very rapidly. But thank you for the advice. I have a couple months to wait so I'll keep you posted. I have 700 e-mails to go through so don't expect another response from me for a while...lol. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 Barbara, You are so right about one person not meeting all of your needs, I understand that and I know people provide different support and roles in our lives. I guess I always thought my mom would be my caretaker no matter what, and it just hurts that I was so wrong. But I try to just focus on the fact that as horrible as this disease is, the one positive thing it did was to bring me and my sister closer again. We were very close as kids and then grew a bit distant, but now we speak almost every day and she has opened her home to me at any time, and even will accept the financial responsibility that my moving home would bring her. This really is not what she and her family should be burdened with but knowing she will do this for me warms my heart every day. I don't think I'd make it right now without her support and comfort. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 Lin, Thank you for these beautiful words, this e-mail meant alot to me. I always thought she would be there for me no matter what, and it hurts me so deeply to know she feels this way. I can't say anything about it to her as it was said to my sister and I'm not supposed to know. So much has gone on in the last couple of weeks between my mom and me and my sisters, and even the grandchildren - my mom is like a different person and we (the children) can't figure out what is going on. I did finally have a talk with her though and she has said things will change but I don't believe her. Also there was an incident the other night where my mom has failed her own children yet again. So I don't think there is really any talking to her so I will let it be now, I can't put any more effort into it, it's all I can do to get through my days here anymore. Lori Quote Link to comment Share on other sites More sharing options...
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