Re: Pinkie

[Guest guest]

,

It is a stuggle everyday to have RSD or other chronic pain problems with no meds.. I feel your pain. I have been without meds since OCT of 2003 and because of money couldnt afford 1500 a month or more just guessing.for my meds i cant even afford my blood pressure meds which was 168/98 when i went to the NIH. I was blessed finally after all these months to get a appt with Chapel hill hospital. I almost lost my home which may still lose. Cant make payments this coming payments. Our truck broke down. I have 2 new mouths to feed now and I can not work. I cant write no one will hire you if you cant write. I lost my hair salon due to this horrible thing that happened. Just when I have it in my head that my life will be spent in RSD land. DR's at NIH say I dont have rsd after 3 drs in my town say i do. We lost our medical insurance. And I could go on. But by the help of this group and my family and the grace of god ive made it threw this I go the 25th to finally get the last

word if I have RSD or not. I was denied medicaid and SSI. So if I can overcome all that you can too. Thats not even half of what this year and some months have been. Thats just a brief description. Hang in there hon it will come. I know its not easy. But your hubby is fighting for you. You should too. Dont take the elavil during the day. Lord knows i want to sometimes too but i dont i eat BC powders like mad which isnt good either. Just so yall know my phone may be cut off soon so i wont be able to post. Maybe hubby will find a way im not sure. I hope cause I need yall so bad. Each and everyone of you are so important to me you just have no idea how much. Much Love JB Shoemaker wrote:

I am sorry to hear that you hurt so bad today. Me too, I can't get any doc to give me any meds and I think I am on the verge of going crazy. I also glad to hear that your husband is your hero, mine is my hero every second of every day. He is why I get up in the morning and try and endure this pain. But my resoulve is wavering and I don't know how

much more I can take. I am sleeping better since this new doc put me on 100 mg of elavil and lexapro, so there is some hope, but I am finding myself wanting to take this during the day too so I don't have to be awake. Just a down day.PinkDay007 Time wrote:

oh i hurt bad today...now i remember why i do not sleep...slept more than 2 hrs last night and my migraine....feels like my head is going to explode....i see my migrane dr next week i think.....my migraine dr wants to persribe all my meds cause said the pain dr got my meds wrong....and gosh i have to go to this dr every 2 weeks now instead of 6 weeks or whenever...uggggg my eyes are very swollen and my face////thought few days ago it was allergic reaction......i am very allergic to shellfish thought i had got some sea salt, but now i think it is my migrines and nerves in my face....my husband helped me take my meds and wet washrag for my face...so i can lift my head now....i am very thankful for having him around ...today my husband is my hero.

pinkie

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[Guest guest]

It seems that all of us have had trials and mountains to climb and they all go back to three little letters "RSD", You know it is amazing what those letters really mean to each of us. It means a lifetime of pain, loss of wages, loss of insurance, loss of friends, loss of independence, loss of the dreams of our future. And you know why this is the case? Because there is no doctors out there that will help us. I realize that some of us have doctors that are good and I praise God for those that are getting the care they need and deserve. But more often than not, we have to live with this disease and know that there isn't any help out there. You know what though? The people that I have met on this support group are strong people. They keep working at living, not just existing. We fight each minute of each day to live productive lives instead of just existing. But there are times when I personally loose my

resolve. I was very sad to hear about that woman who committed suicide but I understand completely. There is just so many battles that you get tired.

Well, my hubby is home with dinner so I have to go. Thanks for the encouragement.

J B wrote:

,

It is a stuggle everyday to have RSD or other chronic pain problems with no meds.. I feel your pain. I have been without meds since OCT of 2003 and because of money couldnt afford 1500 a month or more just guessing.for my meds i cant even afford my blood pressure meds which was 168/98 when i went to the NIH. I was blessed finally after all these months to get a appt with Chapel hill hospital. I almost lost my home which may still lose. Cant make payments this coming payments. Our truck broke down. I have 2 new mouths to feed now and I can not work. I cant write no one will hire you if you cant write. I lost my hair salon due to this horrible thing that happened. Just when I have it in my head that my life will be spent in RSD land. DR's at NIH say I dont have rsd after 3 drs in my town say i do. We lost our medical insurance. And I could go on. But by the help of this group and my family and the grace of god ive made it threw this I go the 25th to finally get the last

word if I have RSD or not. I was denied medicaid and SSI. So if I can overcome all that you can too. Thats not even half of what this year and some months have been. Thats just a brief description. Hang in there hon it will come. I know its not easy. But your hubby is fighting for you. You should too. Dont take the elavil during the day. Lord knows i want to sometimes too but i dont i eat BC powders like mad which isnt good either. Just so yall know my phone may be cut off soon so i wont be able to post. Maybe hubby will find a way im not sure. I hope cause I need yall so bad. Each and everyone of you are so important to me you just have no idea how much. Much Love JB Shoemaker wrote:

I am sorry to hear that you hurt so bad today. Me too, I can't get any doc to give me any meds and I think I am on the verge of going crazy. I also glad to hear that your husband is your hero, mine is my hero every second of every day. He is why I get up in the morning and try and endure this pain. But my resoulve is wavering and I don't know how

much more I can take. I am sleeping better since this new doc put me on 100 mg of elavil and lexapro, so there is some hope, but I am finding myself wanting to take this during the day too so I don't have to be awake. Just a down day.PinkDay007 Time wrote:

oh i hurt bad today...now i remember why i do not sleep...slept more than 2 hrs last night and my migraine....feels like my head is going to explode....i see my migrane dr next week i think.....my migraine dr wants to persribe all my meds cause said the pain dr got my meds wrong....and gosh i have to go to this dr every 2 weeks now instead of 6 weeks or whenever...uggggg my eyes are very swollen and my face////thought few days ago it was allergic reaction......i am very allergic to shellfish thought i had got some sea salt, but now i think it is my migrines and nerves in my face....my husband helped me take my meds and wet washrag for my face...so i can lift my head now....i am very thankful for having him around ...today my husband is my hero.

pinkie

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[Guest guest]

get some boost or ensure. this will help keep weight on and also it is

full of vitamins. why are you having trouble with the swallowing.

cathy

[Guest guest]

i am allergic to them they have iodine

Pinkie

>get some boost or ensure. this will help keep weight on and also it is >full of vitamins. why are you having trouble with the swallowing. >cathy > Get 200+ ad-free, high-fidelity stations and LIVE Major League Baseball Gameday Audio!