RE: EVERY topical irritating

[Guest guest]

Okay... I know I must sound soooo annoying right now. I'm just completely

puzzled about the messages posted on this support group. It seems to me as

though the majority of topics discussed focus on drug treatments. I'm not a

doctor, and I won't claim to know everything there is to know about VVS,

dyspareunia, vaginusmus and other conditions similar to these. However,

suffering from this disease, I have studied it enormously and have consulted

many doctors, read many scientific articles and done many treatments, none

of which were drugs and all of which were effective. I am therefore puzzled

as to why a lot of people seem reluctant to try these options. I have

posted a lot of messages on therapy and physiotherapy, hoping to connect to

someone who has had similar experiences, and hoping to share my successes

and failures.

I believe we live in an over medicalised society, where we take pills for

everything from stress to cancer. Some pills are good, but I do honestly

believe that a lot of pills and medications are overprescribed. I do not

aim to insult anyone on this site, but has it occured to you that the

doctors you have might be prescribing you medications just to shut you up?

If one thing doesn't work, they switch to something else, and something else

again, until you stop going to see them. Now, I am not meaning to say that

all those with bacterial and yeast infections shouldn't be taking drugs

because that is a valid reason for taking them. However, I strongly doubt

the effectiveness of testosterone and estrogen cream for the treatment of

desire. From what I've studied on the topic of desire, research has

inconsistently shown its effectiveness to help increase desire in women.

Although some research studies show its effectiveness, they are flooded with

methodoligical errors and generalisations. It seem that doctors use them

because they do not see any physical harm in prescribing them, and if the

patient seems to feel a difference with them, why not?

While drugs are seen as the cure to all ailments, it seems that shrinks are

stigmatised by society to be used only when you become crazy. It seems to

me that people are extremely reluctant to see a therapist, even when it is

proven that it could help them significantly to get better.

I have to thank you guys for one thing; my doctor has prescribed me a

topical numbing cream, but I am reluctant to use it, so seeing you guys

discuss what effects it has had on you made me decide not to use it.

Anyway, I hope this message doesn't turn you guys against me, I came on this

forum to see if I could relate to people, but it seems that we don't have

much treatment in common.

Véronique

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: EVERY topical irritating

>Date: Wed, 3 May 2006 16:46:37 -0700 (PDT)

>

>Hi ladies,

>

> I just was wondering what to do if every topical makes my skin become

>even more visibly inflammed. My skin is so bad that my urethral lining is

>bulging out of my urethra like a hemmoroid. My doc says I need estrogen.

>Oral estrogen makes my vascular problem worse and topical estrogen,even

>when compounded in a non irritating base, irritates me. I have no odea

>what to do.

>

> I think when topicals fail, they usually go oral. Like for bad cases of

>psoriasis I think they even give an immune blocker like ENbrel or something

>similar. There must be something else that helps the skin there. ANy

>ideas?

>

> I am getting ever so much closer to my Plan B. Going to the fibro

>center to see why I test + for Lyme and why I have leaky gut. I will give

>the IMT a few more treatments first. I was doing a little better but no

>real cure is in sight and at the moment I am in more pain than I have been

>in years.

>

> Sandi

>

>

>

>

>

>

>---------------------------------

>Get amazing travel prices for air and hotel in one click on Yahoo!

>FareChase

[Guest guest]

I use the vivelle.dot also and it really was a good thing for me. It

seemed that in my case, I needed systemic estrogen more than anything - and

it really helped to turn me around.

Sandy, there is a compound out there for everyone I think. If you are

using everyday personal care products and not having problems, you and the

pharmacist should be able to find a compound agent for you. Even if its as

simple as you mixing the estrogen itself into lard when you are ready to

apply!!! Take a list of what doesn't work to the pharmacist with you and

the two of you can work on it.

Dusty

-----Original Message-----

F

[Guest guest]

Hi Veronique, I have tried about $100,000 worth of non traditional treatments from accupuncture to accupressure, naturopathics, homeopathics, PT, reiki, supplements glaore... I flip flop from traditional to alternaitive b/c mothing has helped me yet. Sandi

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[Guest guest]

Hi Dusty, I know this sounds crazy but I really think it is the estrogen itself that I react to. I actually had tests that say I am allergic to it. But when I put it on my skin gets redder and swells. Sometimes I think that my terrible rare, resistant Krusei yeast infection went into the tissues and doesn't culture out and the estrogen just makes it worse. Or maybe it is the Lyme that is in the tissues. I don't know, but just a theory. The odd thing is that I do not have any other skin problems ( except toe nail fungus) and can put any chemical on my skin w/o any skin reaction. I can wear any makeup, moisturizer, lotions. Nothing bothers any other skin except down there. I have noticed though that if I work with lots of chemicals my v are does get worse. Hmmm... I don't know if the patch would work b/c estrogen makes my vascular problem worse which in

turn makes the v pain worse so I really was hoping a topical would help. If there was something else that thickens skin I would love to know what it is. Sandi

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice.

[Guest guest]

I am not talking about non traditional things.... physiotherapy and

psychotherapy are good alternatives that might not give 100% relief, but are

clinically proven to ameliorate the condition of treatment.

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: RE: EVERY topical irritating

>Date: Thu, 4 May 2006 11:04:01 -0700 (PDT)

>

>Hi Veronique,

>

> I have tried about $100,000 worth of non traditional treatments from

>accupuncture to accupressure, naturopathics, homeopathics, PT, reiki,

>supplements glaore... I flip flop from traditional to alternaitive b/c

>mothing has helped me yet.

>

> Sandi

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

[Guest guest]

Hi Veronique, I am seeing one of the best pelvic floor PTs in the US, Pam son, and also see a social worker. Some people are just lucky and get helped by things other than drugs. Unfortunately, I just haven't found the right drug or therapy of any kind. But there just has to be an answer so I flip back and forth from traditional to alternative, doing psych work for most of the past 10 years to get me through this incessant torture. I understand that we all want the magic pill. I would love to find it. I admit that PT and psych and alternatives take more time, money, or both and that some women just keep reaching for the pills or creams. But it seems like most of the women on this list are willing to try everything from goofy diets, to psych, to PT to supplements, to pills and surgery. Most of us who aren't helped just keep going around and around. I think

the list talks a lot about other things like diets, eliminating gluten and such, supplements, and Tom on the list is a PT so we get into that. As for why I want estrogen or a substitute for it is b/c the lining of my urethra is sticking out like a purple hemorhoid and it is very painful and according to my PT and the net the only ways to treat that are estrogen and surgery. Sandi

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Neither physiotherapy nor psychotherapy could cure my cracked, shrunken and

peeling vulva. That's a fact. I'm happy it worked for you, but if we

could all be healed by the same thing - if there were a straitforward

treatment, then we all wouldn't need to be here - we'd be healed and on our

merry way, sort of like getting over a cold. Sadly, that isn't the case so

we share with one another the things that we have been treated with that MAY

work.

As for testosterone not increasing libido - I'm here to tell you that

applying the cream directly to the most sensitive part of the female anatomy

certainly DOES increase libido - by leaps and bounds - if one is consistent

with the applications. I'm living, breathing, sexually satisfied proof of

that!!! Now, will it work for everyone? Of course not. There's nothing

on earth that works for everyone - no treatment, no schedule, no timeline -

nothing!

Many of us read scientific journals, and all available materials on what

affects us. Unfortunately, the study we read today, will be reversed by the

study they do next year - and the study from next will be reversed by the

study they do the following year. So - in the end, we must be able to

think outside the box when reading these reports and take from them what may

be of benefit to us but also be open enough to try the possible paths to

pain reduction.

Regards

Dusty

RE: EVERY topical irritating

>Date: Thu, 4 May 2006 11:04:01 -0700 (PDT)

>

>Hi Veronique,

>

> I have tried about $100,000 worth of non traditional treatments from

>accupuncture to accupressure, naturopathics, homeopathics, PT, reiki,

>supplements glaore... I flip flop from traditional to alternaitive b/c

>mothing has helped me yet.

>

> Sandi

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

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