proefa

July 4, 2002

Search the threads - there's TONS of information. Also go to google

and type in EFA (or essential fatty acids) or Omega 3/Omega 6 and

language or apraxia or autism. You'll get plenty!

Parents here have found that there are versions that work better than

cod liver oil (tho no one really knows why). I use ProEFA from

Nordic Naturals (ordered thru the cherab website). It's a combo of

fish oil and borage oil. Some people use Efalex (which is fish and

evening primrose I believe). I saw changes in both my kids. Not

HUGE but enough...

Good luck -

Marina

> > Many of you have mentioned that you stop giving the ProEFA when

> your child is

> > sick. Is it safe for me to continue giving my son the ProEFA

while

> he is on

> > an antibiotic for 10 days? The antibiotic is to help his excema

> which has

> > flared up.

> > JB

September 10, 2002

Hi Annemarie,

I'm not sure where you live. In case you live in Toronto and for all

of you that do or surrounding areas Ambrosia Natural Foods is

starting to carry ProEFA for us at the pharmacy behind the counter.

Amborsia is located at 55 Doncaster Ave., Thornhill, 905-881-7811.

They are just north of Steeles Avenue off of Yonge. They are

recieving the shipment today and are the only ones that I am aware

of to purchase ProEFA in Ontario. For us ProEFA is a magic pill

that my 2 boys will be on forever but I know there are some other

ones that parents have tried and liked with their children. If you

live in Canada the distributer is EcoTrend and the toll-free number

is 1-800-665-7065 and Joy is the person I dealt with (very

helpful!). She would be able to assist you in getting ProEFA. If

you live somewhere else and are really interested in ProEFA then I

would suggest you call Nordic Naturals 831-724-6200 (I know they

have a 800 number but can't seem to find it) and find out where they

carry it in your area. Best of luck.

, and Noah

> OK...I have been reading a lot of posts that mention this proEFA,

> which is, I assume, an omega 3-6-9 product. I went to the health

> food store here to try and buy some, but they don't carry it.....I

> tried to find something that would be similar but I didn't know

the

> make up of the ProEFA product. They carry an omega 3-6-9 product

at

> the health food store, called OMEGA 3-6-9 made by Innovite that is

> made from 400mg's each of Fish body oil (sardines and anchovies)

> (30% EPA/20% DHA), Borage oil, and Flax Oil with 10 I.U. of

vitamin

> E. No sugar, salt, corn, yeast, wheat, soy, dairy, colouring,

> flavouring, or preservatives.....Is this at all similar to the

other

> product?

> Annemarie

September 10, 2002

We use Udos oil and it is a combo of borage,flax and fish oil. You can get

Pro EFA and GNC or a vitamin type store.

September 10, 2002

,

Thanks so much for the information. I am going to put a call in

tomorrow. In the meantime, could you possibly tell me the list of

ingredients of the ProEFA, and how much you use. Thanks a lot

Annemarie

-----Original Message-----

Hi Annemarie,

I'm not sure where you live. In case you live in Toronto and for all

of you that do or surrounding areas Ambrosia Natural Foods is

starting to carry ProEFA for us at the pharmacy behind the counter.

Amborsia is located at 55 Doncaster Ave., Thornhill, 905-881-7811.

They are just north of Steeles Avenue off of Yonge.

September 10, 2002

AnneMarie,

I just placed my first order today through their website.

https://www.nordicnat.com/scripts/webc.exe/st_main.html

good luck,

Heidi

January 29, 2003

EFAs are Essential Fatty Acids. It's like saying " Vitamin A " .

ProEFA is a special formulation made by a company called Nordic

Naturals (do a google search on the net to read about the company).

NN has since changed the name of the formulation on their website to

Complete Omega, but it is the same product. We have found the

product for less money on the Shop-In-Service at the Apraxia

website. You can find formulations called " ProEFA " from other

companies (GNC I believe) but the formulation isn't the same. This

is not to say that it won't work, but many of us found that the

formulation in the ProEFA worked better/best. Good luck!

Marina

> I would like to know is there a difference between EFA and ProEFA?

>

> Thanks,

> Rivka

January 29, 2003

Hi Rivka,

EFA stands for Essential Fatty Acid

PUFA stands for Poly Unsaturated Acid

ProEFA stands for the (not such a good name for trademark reasons

since you can't trademark a name that is what the product is which

is why there is more than one company with a product

called " ProEFA " ) " professional line of essential fatty acids "

Brand names don't matter -only formula -dosage and quality matter.

Since all isn't transferred/updated yet to the new CHERAB and

Speechville sites from the old CHERAB site -you can find the

following articles (and more) at:

http://www.apraxia.cc

Apraxia + EFA = Speech?

Introduction to EFAs (EFAs What's That?!) from a scientist.

by Katz PhD

The First Apraxia Conference 2001 Info from this past exciting

landmark conference

How did The First Apraxia Conference come about?

Apraxia? What's that?!! from a developmental pediatrician's point

of view. by Marilyn Agin MD

EFA as a therapeutic intervention?

=====

January 29, 2003

Hi Marina,

Just one addition: ProEFA is still sold by Nordic -but it's in

their professional (MD's etc.) " Pro " line of products. They want

parents/stores to purchase instead their " commercial " line called

the " Complete Omega " line.

" There is no difference between the Complete Omega line and the Pro

line " -I've been told by the company....but there is one main huge

obvious difference (and I'm not even a good math person -and

especially since many of us put our entire family on this stuff!)

The big difference is price. The Pro line is way cheaper. We've

done the math in the archives here before if anyone is interested.

Or just check it out yourself. Also -the Complete Omega line is a

bit more confusing in that you have to know which " Complete Omega "

to buy to stand for what formula. For example the " Complete Omega

Ultimate Omega " stands for the same thing as the ProEFA. You would

need to be psychic to know that one if nobody told you and you

didn't understand formula's! Well they make good fish oil -they

could probably use a better marketing person that's all!

(Like the Pro line -the Complete Omega line would probably have the

same trademark problems -so don't go by name -go by formula -know

the formula that works and please don't go by brand name -there is

more than one company out there -and formula's and qualities vary.

One could work -another maybe will -or won't.)

=====

April 22, 2003

I have a daughter who is now 19 and was not diagnosed until the age of

18 with severe global apraxia. For years our was diagnosed

with Moderate Autism as well as Moderate Mental Retardation.

started on one ProEFA at first and we saw some little changes but we

then started her on two ProEFA's a day almost 2 weeks ago. We had to

take the last two weeks off from her private therapy due to a school

related trigger that increased her PTSD level once again. Mel's

anxiety level gets very high during an attack so we stayed home during

this time.

When Mel suffers from a PTSD attack her motor planning and verbal

skills are gone. What I noticed with having Mel on the two ProEFA's a

day with this latest PTSD attack she was able to retain all of her

skills and use them during her PTSD attack. Mel's anxiety level was

still very high but her skills were still there. I was anxious to see

how Mel would do in therapy with having been on the ProEFA's now for

two weeks and during those two weeks had no private therapy. I did not

tell her therapist that Mel was taking two ProEFA's a day as I wanted

to see if they could notice any changes in Mel when we finally were

able to return to our normal therapy schedule.

The following are the results from therapy yesterday.

In Physical therapy was able to walk on the treadmill more

quickly, easily, and without holding onto the sides of the treadmill

for support. She also was able to do the balance beam without

assistance. Mel was able to catch and throw a ball with more accuracy

.. 's movement overall yesterday was easier for her in physical

therapy. The therapist was amazed as Mel has missed two weeks of

therapy sessions. She was so amazed that she gave Mel more physical

therapy homework to do over the next week. We then went to

occupational therapy. We are working on being able to type

with independence. currently uses facilitated communication

with a lot less support. Mel was able to type each letter of her

sentences without any support with 100% accuracy with the help of a

laser pointer. Mel was quick with her movement and completed this

task like she has been typing like this all along. We then went in the

back room to work on folding towels. A task that was never

able to complete due to her poor motor planning. Mel was able to

mirror exactly what her therapist was doing with her side of the towel

yesterday. We were all amazed that Mel was able to complete that task

the way she did. The therapist is now anxious to try the various

equipment in the room to see what changes she will see there as well.

We then went to speech therapy. Mel usually is tired by the time we

get to the speech sessions on Tuesdays from her previous therapies.

Mel yesterday was able to complete all of her normal tasks and plus was

introduced to three new tasks. Mel had 100%accuracy with using her

voice, matching, and her pointing skills in that session. The one

thing that amazed us the most was that Mel felt that her speech

therapist did not understand when she said the word baby. So Mel

decided to say it over very loud and very slow so her therapist would

understand her. Mel then gave her this look to see if she understood

her that time. The speech therapist was amazed that Mel has not lost

any of her voice, matching, or pointing skills during the past two

weeks but actually had gained some skills. Mel usually suffers major

regression with these activities following a PTSD attack.

Mel's three therapist were all so happy with Mel and her day yesterday

they each made a point to call me last evening and let me know how

impressed they were with Mel and how hard they see Mel working towards

the goal of independence with communication and motor planning.

We are seeing the changes as well. Yes our Mel did not break into

sentences yet but we are seeing easier movement, better motor planning,

more sound attempts and more words being used on a daily basis. The

biggest change and we are so grateful for it is that she has not lost

any skills from her latest PTSD attack. We always worry about her

regaining her skills and moving forward once an attack has taken place.

Since we are in a very nasty battle with the school district which

will end up in federal court, the district is always trying to trigger

an attack on Mel. There hopes is that the court will see that Mel has

made no progress this last year of being in a private therapy program

along with a home program and that she does not have apraxia. To this

day they still maintain that she has mental retardation with autism.

They actually just added other health impairment to her label as well.

I asked what they meant by that at our last meeting and they refused to

answer me. They did say they do not agree with the apraxia label and

they refuse to offer Mel any type of therapy or schooling to help with

her apraxia at this time. They are still fighting us to have Mel

placed back into a life skills class with the latest attempt at a due

process hearing they called on us. We won the hearing and we were told

to continue Mel's program that I have in place and not to worry about

Mel attending their life skills class.

Our plans for Mel is to keep her on the two ProEFA's a day, private

therapy program four days a week and then supplement with our own home

program that we have in place for Mel. I believe a combination of the

three is helping Mel battle her severe apraxia each day. We are

grateful for any progress Mel has made in the past and look forward to

the future with excitement to see what progress will be made then.

With Mel it will not happen overnight but in time we believe she will

be able to progress even with how severe her apraxia is. The outlook

our school district along with our IU13 gave us for Mel was always

negative telling us to be prepared for Mel to work in a workshop and

never be able to communicate and live in a group home for the rest of

her life. We have a different future planned for Mel. We plan on

having Mel in private therapy for a very long time and placing no

limits on her future. Only time will tell what limits Mel may have

with having severe global apraxia.

Robin Ketchem

Mother to 19 Severe Global Apraxia

Pennsylvania

On Tuesday, Apr 22, 2003, at 13:14 US/Eastern, cathysnaith@...

wrote:

> Just a report on ProEFA from the severe/profound side of Apraxia, we

> have been giving our 7.2 y/o son Dylan 2 capsules of ProEFA daily for

> approx. 1.5 years. While he didn't 'break into words or sentences' as

> a result, we have seen more vocalization and word attempts + another

> great benefit in the area of asthma. Most of the time, anytime Dylan

> would get a cold, it would progress to asthma-like wheezing and

> require use of a nebulizer. Since he has been taking ProEFA, the

> incidence of this has markedly reduced from say 4-5 times per year to

> hardly any. He seems to get fewer colds and if he does get one, it

> stays just a cold and goes away quicker.

>

> EFAs have long been known to have many benefits, but maybe the miracle

> speech stories apply more to the mild to moderate spectrum of speech &

> language delays. Without true scientific studies, we'll never really

> know how such children would have developed without the supplements.

> Have any groupmates seen a tangible increase in expressive language in

> non-verbal children or children with some sounds and a few word

> approximations. Something you can unmistakingly associate with the

> introduction of the supplement?

>

> Snaith

> Father to Dylan, 7.2, Severe/Profound Apraxia

> Long Island

>

April 23, 2003

Hello Robin

All I can say is WOW MELANIE!!!! I hope the success continues. What a

wonderful & inspiring email to read.

Tammy I. mom to 5 this week apraxic & 3 other children

From: Robin Ketchem <ketchem@...>

Reply-

Subject: Re: [ ] ProEFA

Date: Tue, 22 Apr 2003 23:24:06 -0400

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July 22, 2003

www.kirkmanlabs.com----- Original Message -----

From: /Lynn Hergott

Sent: Tuesday, July 22, 2003 4:26 AM

Subject: [ ] proefa

Hi Everyone, And I want to thank you for all the advice you all have given me.

Here is another question I have for you. I am having a hard time finding the

Pro-Efa on the nordic natuals website and when I did it has different

ingredients then my last bottle. I know this last time I did not get them from

Nordic does anyone know a name of another place to order them. I cannot remember

the other website.

Thanks,

Lynn

July 22, 2003

Hi Lynn

I type in http://www.shopinservice.com & it takes me right there. I believe

they still

have the 3 bottles at $17.00 each special. I need to order some now too.

Tammy I. in FL

From: " /Lynn Hergott " <Hergs@...>

Reply-

< >

Subject: [ ] proefa

Date: Tue, 22 Jul 2003 04:26:09 -0500

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July 22, 2003

I get mine from the LCPsolution.com website

[ ] proefa

Hi Everyone, And I want to thank you for all the advice you all have given

me. Here is another question I have for you. I am having a hard time finding

the Pro-Efa on the nordic natuals website and when I did it has different

ingredients then my last bottle. I know this last time I did not get them

from Nordic does anyone know a name of another place to order them. I cannot

remember the other website.

Thanks,

Lynn

July 23, 2003

You can get ProEfa from kirkman labs. Go to www.kirkmanlabs.com. In the search

box, type ProEFA and it's there.

Good luck

Selena

July 24, 2003

Jane,

Two things I use with my autistic spectrum kid that helps improve her

sleeping..

Calcium supplement at bedtime

Epsom salts cream rub on her back at night. ( I think a combination of the

massage and the magnesium sulfate cause her to relax quickly and nod off)

Lastly, I guess I would add to try and avoid all " nerve stimulants " which for

us are dyes, preservatives (especially msg and bht)

hope this helps somewhat.

regards, n

July 26, 2003

I have a question about ProEFA.......where do you get it?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

October 6, 2003

My son is on his 4th dose of ProEFA and so far no side effects. (Not 6th dose

this time ...ha ha) No changes in sleeping or loudness of voice or with

chewing on things.

I've found that he will take it willingly with a small amount of lemonade. He

says " only a tiny amount of lemonade though Mom " .

January 2, 2004

Only if you pierce the capsule and don't use all of it. Then just

put that one used capsule in a zip lock baggie in the fridge -the

rest of the bottle can stay on the shelf. ProEFA capsules do not

require refrigeration and the shelf life is almost 4 years. If you

purchase the oil (without the capsule) in the bottle -that needs to

be refrigerated and has a shelf life of a few months. Capsules are

in my opinion the way to go for now.

=====

January 13, 2004

, I understand that it is best to do one in the morning andd one in the

evening. This is what I am doing and I did this only after 3 weeks because I

saw a Lull in her after the 2nd week. Now that my dd is on 2xs a day you

should just see her motor planning skills come alive!!! Alot more sounds and

paying better attention too. Good Luck. If you are still in question I know I

would ask

February 8, 2004

I have the ProEFA in front of me.

The package says

1000mg each

Vitamen E 27I.U.

EPA-296mg

DHA-198mg

Borage Oil-360mg

GLA-80mg

hope this helpa

amy

[ ] ProEFA

> ProEFA is not sell in Chile.

> There are some equivalent, but the size of the sofgel is too big for

> my grand son.

> Can anyone tell me the exact size of Nordic Natural ProEFA and

> ProEPA capsule

> Thanks

>

February 10, 2004

ERhanks a lot

raul

> I have the ProEFA in front of me.

> The package says

> 1000mg each

> Vitamen E 27I.U.

> EPA-296mg

> DHA-198mg

> Borage Oil-360mg

> GLA-80mg

>

> hope this helpa

> amy

> [ ] ProEFA

>

> > ProEFA is not sell in Chile.

> > There are some equivalent, but the size of the sofgel is too big

for

> > my grand son.

> > Can anyone tell me the exact size of Nordic Natural ProEFA and

> > ProEPA capsule

> > Thanks

> >

February 24, 2004

Hello 1 more question... I saw it comes in a liquid and capsule is the liquid

better??? (Proefa) The liquid is better becasue you know the child is getting

the correct dose. Plus it has 48 servings and more of the dha ect...

Thank you

Angel

February 24, 2004

Hi Angel and welcome!

You are new so you wouldn't know since most don't. No the capsule

is way better in my opinion for many reasons -including dosage -and

that higher EPA is better than higher DHA. So here is an archive or

two on more:

From: " kiddietalk " <kiddietalk@...>

Date: Tue Nov 11, 2003 2:26 pm

Subject: Re: Man I'm so confused.

Hi Shilo!

As always -Nordic Naturals is a great company with lousy marketing.

There is no trademark on ProEFA -and all the bottles of ProEFA,

ProDHA and ProEPA used to look the same. (well they still do, but

now they each have a different stripe of color on them.) Most of us

found success with either the Nordic ProEFA, the Efalex, or

http://www.equazen.com EyeQ All listed here

http://www.speech-express.com/alternative-therapy/efa-sources.html

or http://www.cherab.org/information/dietaryeffects/efabasics.html

Liquid vs. capsule? Hands down my vote is capsule because it lasts

way longer, easy to control dosage, easy to travel with, not a big

deal if you spill the bottle over. Passed Tanner taste test (liquid

didn't)

And..yes...you can just use a pin and " poof " like magic the capsule

is 'oil' but the oil without a capsule -can't turn it into a capsule.

Here is an archive on this

From: " kiddietalk " <kiddietalk@...>

Date: Tue Jun 10, 2003 8:28 pm

Subject: Re: ProEFA liquid

Hi !

That is great news about the surges you are seeing so far in your

child within the typical one to three week period. Because you are

new to the group, and there are many other new people here too -I

wanted to once again share a view on the 'new' ProEFA liquid you may

not have thought of from a cut from an archived post which cleared

up a confusing thread of posts about accurate supplementation of

EFAs using liquid vs capsules:

" Due to the confusion of what dosage of the oils since the

introduction of the ProEFA oil in the bottle about a month or so ago

(vs. the capsules which are what most of us have used for years up

to the bottle oil) below is a reply about dosage of straight oil

from developmental pediatrician Dr. Marilyn Agin

http://www.cherab.org/information/speechlanguage/advisoryagin.html

....Around just 1/4 a teaspoon of ProEFA oil will be around the same

as 'one' capsule of ProEFA since " 1/2 teaspoon of ProEFA oil is

close to the equivalent of about 2 capsules of ProEFA "

Sadly -it still does appear that unless NN offers a dropper that

clearly has lines that state " one capsule " " two capsules " or

something like that as a guide as I suggested -that with use of the

oils -those of you using the straight oil will no longer be able to

share with all of us accurately -or even know yourself - what dosage

you are giving your child you are finding to be " too high " " too

low " or " perfect! " You will only be able to estimate. The best we

can advise now with the oil is that " 1/2 teaspoon of ProEFA oil is

close to the equivalent of about 2 capsules of ProEFA "

As I always say -brand name does NOT matter -only

Formula

Dosage

Quality

However we can use brand names as an easy to understand guide.

In our group we have found ProEFA -Efalex and EyeQ to be the three

best Omega 3 -6 oils, with ProEFA being the best so far overall due

to " it works best at low dosage " . With ProEFA -here is the dosage

which we as a group have found to be effective over the past number

of years with hundreds and thousands of children, and that has been

posted over and over at the CHERAB list. If any of you can figure

out a great way to translate this to the use of straight oil without

the capsules as a guide -please let us all know. In the meantime -

will one of the pharmaceutical R & D people in this group design an

EFA patch already so we can just slap that on our children instead

of all of this?!!

To start:

DHA -around 100 mg

EPA -around 150 -250 mg

GLA -around 30-50 mg

The only dosage we as a group know to be effective is to start with

one capsule of ProEFA a day -then go to two capsules of ProEFA a day

when you see a plateau in about 6 months to a year -then instead of

going to three capsules of ProEFA a day when you see a plateau again

in a year or more -you stay with the two ProEFA capsules a day and

add one capsule of ProEPA.

Just a reminder that the ProEFA oil needs to be refrigerated once

opened. Also once opened it has a shelf life of 2 months. ProEFA

capsules have a shelf life of almost 4 years -do not have to be

refrigerated once opened -and can be carried in your pocket if you

want. You can do this with the oil but you will smell funny.

I chose the ProEFA capsules over the liquid. As always -they work

the best at the lowest dosage.

" ,

Obviously common sense would prevail here to know that the dose

quoted by someone (who?) at Nordic Naturals was in error. They have

a new liquid ProEFA with EPA 296 mg, DHA 198 mg and GLA from borage

oil 80 mg per 1/2 teaspoon (equivalent to 2.5 ml) as the

recommended dose which is close to the equivalent of 2 ProEFA caps.

Obviously, no one could imagine giving much more to a child. On the

Nordic Naturals website they have recommendations for dosage of

being 5 mg (not ml) per lb. of combined EPA+DHA for a child 1.5 to

15 years. That would mean a 30 lb child should take 150 mg of

combined EPA+DHA which actually is a very conservative dose. That

comes to less than 1 cap of ProEFA or about 1 ml (1/5 of a tsp.) of

the new liquid. Let's not make a federal case out of this--someone

probably mixed up their mgs and mls. It is not funny, but at the

same time the parents who wrote to the group list realized

something was wrong. Since this is fish oil though, even if a child

had a megadose, he/she would probably get diarrhea and nothing much

worse. As a physician, I have seen more horrible mistakes in

medication dosing--tragic ones. Parents should always be on their

toes and question what appears to be off-base. I do hope the owners

of Nordic Naturals make sure that their staff offers accurate

information to the public.

Marilyn Agin, MD "

=====

March 30, 2004

Hello Liz..

This is my first time post on this board. I have been lurking for a few days

now. My 22 month old does not talk much (HI and daddy are really all the

words he say) and I have gotten the process rolling for a EI evaluation. I

am new to all of this. I don't have the answer to your question besides I

know where you can get the liquid ProEFA

https://www.nordicnaturals.com/direct/prodsummary.asp?ID=50

I don't know about the dosage though.

I just noticed your in NH too and that's what prompted my response.

--Penny

www.duffyhome.org

[ ] ProEFA

Hi Everyone,

I know there was just recently a discussion on ProEFA. I have a few

questions I would like to ask.

Where do you purchase the liquid ProEFA and how many times a day do

you give it to your child. Is there a certain amount for a certain

age/weight?

I really want to start my daughter on this.

Thank you all in advance

Liz in N.H.

March 30, 2004

Quick answers - " resources for EFAs? "

http://www.cherab.org/information/dietaryeffects/efabasics.html or

http://www.speech-express.com/alternative-therapy/efa-sources.html

" How many times a day? "

For us just once a day for our apraxic child Tanner -twice for our ADHD son

Dakota

" Age and weight dosage? "

One capsule of ProEFA is about the same as the dosage of EFAs in the EFA

enriched infant formula approved by the FDA. (the real answer however is to

start them on it prenatal -more on this in the recent article below and

http://efaeducation.nih.gov/sig/mother.html )

And the liquid vs. capsule question -may want to read this archive

and then decide if you still want the liquid.

" Liquid vs. capsule? Hands down my vote is capsule because it lasts