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RE: TAMI- daughter went to hosptal for pelvic pain

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The problem isn't so much that the issue of teen girls having

pain is uncommon, it is that many drs are taught that women

under 30 (and yes this includes the teens) that say they are in

pain of any sort are just looking for attention. And of course

the other thing (and I still get this even now at 34 even though

I have a number of health issues) is being told, " oh she's too

young to have that " so it's another reason to dismiss them.

That's right up there with the comments that both Sherri and you

got about your daughters when it came to the pain.

It was a long time before drs started to realize that women in

their 20s could have endometriosis. It always used to be

thought of as a career woman's disease (some people still

believe this even to this day), meaning that the woman was in

her 30s. It also has been classified as a disease of white

women. Problem is that this disease affects women of all races.

And unfortunately I think it will be a while before we can get

drs as a whole to understand that teenagers just b/c they are

young (and pre-teens, yes those at 8-10 years old) that they are

exempt from having big problems.

Tami, make sure that the gyn that your daughter sees is one who

also deals with adolescent gynecologic issues. It really does

make a difference when it comes to being listened to.

Kristy :)

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Kristi, I am no proponent of a doc who dosen't do his job, but my uncle in

the biz is pretty clear that they are taught to r/o all the possible causes

INCLUDING possible psych issues, such as looking for attention - which would

be the thorough, all inclusive approach. Just as in any other profession

in any other walk of life, some follow what they are taught to do in order

to cover all possibilities and others, unforutnately,are less inclined to

r/o all possible factors. The unfortunate truth is that there are some

people who go to docs endlessly for disorders which just are not present, so

docs are not unfounded in teaching to beware of them.

My sister was diagnosed with endo when she was 20, after her first child -

and that was 31 yrs ago,at which time the info we read on it did describe it

as " most commonly " a career womans disease. That doesn't preclude other

groups of women. The reason for the career woman's tag was that these women

waited longer to start families and when they finally did want children and

couldn't conceive, docs began exploring these women and began finding endo.

So, career woman's disease in those days meant " infertility " . It was

believed that if a woman started child bearing when 'nature intended it' -

late teens, early 20's, endo had little chance of developing. If one was a

career woman, children were put on the back burner, therefore giving endo

the chance to destroy most probabilities of children. As for it being a

white woman's disease, you must remember that in the time period you are

quoting from (I'm 58, I read these things because of my sister) - very few

black woman had the resources for or access to medical care, and even fewer

had access to a career which was lucrative enough to postpone marriage and

children. Sadly, this hasn't changed a whole lot and so docs see more white

women for disorders of ALL kinds. Numbers will continued to be skewed until

all studies include the proper percentages of races and socio economic

backgrounds. Medicine is re evaluating and redefining itself just like all

other fields. It is the nature of things..... good grief I was around when

computers were introduced to the workplace and they were the size of a

double wide refrigerator. As in all things, we learn and refashion as we

go.

Anyway my purpose for this little tirade (LOL) is that we have to learn to

make doc's listen to us. I believe that the most effective way to do this is

to try and forget what 'used' to be and focus on what we read about more

timely treatments and protocols. If we keep ourselves up to date we are

able to intelligently discuss our condition with our docs and more apt to

ask for and get the testing etc we need to resolve our issues.

Dusty

RE: TAMI- daughter went to hosptal for pelvic pain

The problem isn't so much that the issue of teen girls having pain is

uncommon, it is that many drs are taught that women under 30 (and yes this

includes the teens) that say they are in pain of any sort are just looking

for attention. And of course the other thing (and I still get this even now

at 34 even though I have a number of health issues) is being told, " oh she's

too young to have that " so it's another reason to dismiss them.

That's right up there with the comments that both Sherri and you got about

your daughters when it came to the pain.

It was a long time before drs started to realize that women in their 20s

could have endometriosis. It always used to be thought of as a career

woman's disease (some people still believe this even to this day), meaning

that the woman was in her 30s. It also has been classified as a disease of

white women. Problem is that this disease affects women of all races. And

unfortunately I think it will be a while before we can get drs as a whole to

understand that teenagers just b/c they are young (and pre-teens, yes those

at 8-10 years old) that they are exempt from having big problems.

Tami, make sure that the gyn that your daughter sees is one who also deals

with adolescent gynecologic issues. It really does make a difference when

it comes to being listened to.

Kristy :)

__________________________________________________

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RE: TAMI- daughter went to hosptal for pelvic pain

The problem isn't so much that the issue of teen girls having pain is

uncommon, it is that many drs are taught that women under 30 (and yes this

includes the teens) that say they are in pain of any sort are just looking

for attention. And of course the other thing (and I still get this even now

at 34 even though I have a number of health issues) is being told, " oh she's

too young to have that " so it's another reason to dismiss them.

That's right up there with the comments that both Sherri and you got about

your daughters when it came to the pain.

It was a long time before drs started to realize that women in their 20s

could have endometriosis. It always used to be thought of as a career

woman's disease (some people still believe this even to this day), meaning

that the woman was in her 30s. It also has been classified as a disease of

white women. Problem is that this disease affects women of all races. And

unfortunately I think it will be a while before we can get drs as a whole to

understand that teenagers just b/c they are young (and pre-teens, yes those

at 8-10 years old) that they are exempt from having big problems.

Tami, make sure that the gyn that your daughter sees is one who also deals

with adolescent gynecologic issues. It really does make a difference when

it comes to being listened to.

Kristy :)

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Hello,

This pisses me off. Sorry Dusty, When my

Daughter has Vaginal Exam Im There holding her hand.

The whites of her eye turn red when they stick in the

speculim and she has tears right away. I know this

look. I believe her when she says shes having pain. I

just had to pick her up from school tues. b/c she

started her period and was doubeled over. On the ride

home she crawled to the back seat rolled up into a

ball and was moaning. This is not a child who is

looking for attention. this is real freaken pain! I

had to take her to the family care dr. to get a

referal to the gynocologist. Of course he shhhed me

and didnt care that im a pelvic pain sufferer and said

it had NOTHING to do with . When I told him that

I wondered if it could be endo. b/c I had it he said

no shes too young. He didnt want to hear anything I

said. then he said " well she had a ultra sound " I said

you cant rule out endo with a unltrsound. He must have

thought I was a idiot and knew nothing. Im already

sick with this whole mess. I can hardly fight for my

treatment let alone hers. I will fight for her abd be

her advicate. There not gonna let her suffer!

Kind Regards, Tami

--- Dusty wrote:

>

>

> RE: TAMI- daughter went to hosptal

> for pelvic pain

>

>

> The problem isn't so much that the issue of teen

> girls having pain is

> uncommon, it is that many drs are taught that women

> under 30 (and yes this

> includes the teens) that say they are in pain of any

> sort are just looking

> for attention. And of course the other thing (and I

> still get this even now

> at 34 even though I have a number of health issues)

> is being told, " oh she's

> too young to have that " so it's another reason to

> dismiss them.

> That's right up there with the comments that both

> Sherri and you got about

> your daughters when it came to the pain.

>

> It was a long time before drs started to realize

> that women in their 20s

> could have endometriosis. It always used to be

> thought of as a career

> woman's disease (some people still believe this even

> to this day), meaning

> that the woman was in her 30s. It also has been

> classified as a disease of

> white women. Problem is that this disease affects

> women of all races. And

> unfortunately I think it will be a while before we

> can get drs as a whole to

> understand that teenagers just b/c they are young

> (and pre-teens, yes those

> at 8-10 years old) that they are exempt from having

> big problems.

>

> Tami, make sure that the gyn that your daughter sees

> is one who also deals

> with adolescent gynecologic issues. It really does

> make a difference when

> it comes to being listened to.

>

> Kristy :)

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Sherri,

Thanks Sherri, Iv already started a pelvic

pain folder for her and I have a pelvic pain file for

her on the puter. Im not gonna let them do this. I

know her and I know this isnt for attention or its not

a psycolgical problem. This is pain. Although some of

the tests come back from the hospital and she does

have e.coli in the urine track. He said they were

small amounts and not enough to cause pain. I wonder,

they did vaginal culters if she had e.coli in the

vagina im wondering would that show? It seems to hurt

most when shes on her period which goes with endo.

hmmm I dont know sweety. Im putting your email in

amandas folder. That way when I go to the dr. I have

every bodies ideas on paper and I can say NO this

person had this at this age and on and on. Thank You

everyone for your suggestions and stories they will

come in handy when I build her case.

Hugs, Tami

--- Shopper56@... wrote:

> Hi Tami:

>

> I am so sorry to hear that your daughter is having

> problems. My 16 year old has vestibulitis. I took

> her to the specialist that I go to. The next day

> she was diagnosed with Crohn's disease.

>

> Don't let them tell you she is not in pain. When I

> first took my daughter, the doctor asked me if I

> thought that she was trying to be like me by having

> vaginal pain. Like it wasn't a real thing. I think

> that it must be uncommon for girls that age to have

> pain. Keeping a pain journel is a great idea.

> There is a pattern to my daughter, but her situation

> is different than your daughter.

>

> Is there a specialist that you can take her too?

> When I first got this I went from doctor to doctor

> for awhile (like most of us) with no answers. By

> the time my daughter started I had a great doctor.

>

> Please let us know what happens.

>

> Sherri

>

> -------------- >

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Yikes, Tami, I think you may have misunderstood. I in no way was implying

that your daughter isn't in pain, or doesn't have a medical problem. I

sincerely believe that she is, as my Uncle has treated girls as young as 14

with female tumors. I wasn't addressing you or your daughter's pain in

my comment.... and I can see why you'd be pissed if you thought I was.

Honestly, I wasn't.

After our last thread about psych help with chronic pain (when you were

being forced to speak to the psych before you could have back surgery), I

spoke to my Uncle (he's a doc) and he explained that they are indeed taught

to follow up on ALL causes of pain which includes the possibility of psych

issues. You have to read Kristi's post and THEN read mine to clearly see

my intention. It was addressed to Kristi- who commented that many docs

aren't taught that women under 30 can be in pain. I spoke to my Uncle

about this, as I mention above, and he said basically - hogwash. They're

taught - but some, like in all other businesses we do with - don't do their

jobs and do the complete evaluation of the patient. That was my point -

simply a counterpoint to Kristi's comments about docs - NOT a comment

about you or your daughter.

I copied Kristi's comment here. Perhaps my comments to Kristi will make

better sense when read in context with hers.

I have no doubt your daughter has female problems. Never did. I hate

that you would even think so.

Regards

Dusty

BTW Are you contemplating the new back opiate you posted about?

Is the psych person recommending y ou for rizotomy/surgery and when will you

know? and

What did your doc mean when he/she said it " didn't matter " when you asked to

have the status of your endo checked? It didn't matter as in he/she won't

follow up or check for problems?

RE: TAMI- daughter went to hosptal

> for pelvic pain

>

>

> The problem isn't so much that the issue of teen

> girls having pain is

> uncommon, it is that many drs are taught that women

> under 30 (and yes this

> includes the teens) that say they are in pain of any

> sort are just looking

> for attention. And of course the other thing (and I

> still get this even now

> at 34 even though I have a number of health issues)

> is being told, " oh she's

> too young to have that " so it's another reason to

> dismiss them.

> That's right up there with the comments that both

> Sherri and you got about

> your daughters when it came to the pain.

>

> It was a long time before drs started to realize

> that women in their 20s

> could have endometriosis. It always used to be

> thought of as a career

> woman's disease (some people still believe this even

> to this day), meaning

> that the woman was in her 30s. It also has been

> classified as a disease of

> white women. Problem is that this disease affects

> women of all races. And

> unfortunately I think it will be a while before we

> can get drs as a whole to

> understand that teenagers just b/c they are young

> (and pre-teens, yes those

> at 8-10 years old) that they are exempt from having

> big problems.

>

> Tami, make sure that the gyn that your daughter sees

> is one who also deals

> with adolescent gynecologic issues. It really does

> make a difference when

> it comes to being listened to.

>

> Kristy :)

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

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Tami

I just wanted to tell you that when I started my period around the

age of 16 my cramps became very painful. I tried birth control pills,

but that was not helpful. My regular doctor would try to do a vaginal

exam and they could not fit a speculum in. I finally went to obg

doctor when I was 18 and he did a laparoscopy and sure enough it was

endomitriosis. So it can be diagnosed early on, and obviously early

treatment is going to be better for her. keep talking to the doctors

and make them listen. Obviously if she is in pain, then you are too.

which is draining I am sure.

Keep us in touch with her/your progress.

Best Wishes

Annie

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Why does your doctor want her to take Diflucan? Are you sure that is what he

said. It is a good idea to write down the doctor's instructions and get them to

initial them so there will not be a question in your mind.

I can understand why diflucan could be useful if she is taking an antibiotic but

otherwise I would really wonder why the doctor said such a thing. Diflucan is

used for yeast infections which sometimes occur with antibiotics.

Ora

>Hi Tami:

>

>The only time my daughter has burning is when she has her period. The doctor

told me to give her 200mg of Diflucan when she starts burning, which is the

frist day of her period. We haven't tried it yet.

>

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Hi Ora:

The doctor said in case there is underlying yeast. And give her 200mg of Diflucan. It is something to try with no evidence that she has yeast. When she was on long term Flagyl for her Crohn's disease, she had one yeast infection, but that was it.

When she doesn't take her Crohn's meds or use her Atropine/Estradiol cream like she is supposed to, I notice that she complains of burning when she starts her period. Or, she just wants to stay home from school that day!!!

Sherri

-------------- Original message -------------- From: taurusrc@... Why does your doctor want her to take Diflucan? Are you sure that is what hesaid.

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Dusty,

Sorry, im pretty overwhelmed lately. I know im

gonna have a up hill fight in regards to drs.

dismissing her b/c she's " daughter of a chronic pelvic

pain suffer, wanting attention, it's not that bad,

she's too young, and last but not least it's

psycological " . She has her first apt. with a

gynocoligist this week. I know im not gonna get

anywhere. I have state medical ins. b/c im on S.S.I

for my pain problems. also has state medical

ins. so the only dr. in her network is a man and he's

forgien. Im gonna go through with the riziotomy. I

have to call tomorrow for an apt. The test block I did

I got relief from my back pain, and low abdomin pain.

I'll still have pelvic pain and leg pain, but hek cut

any of it out and im happy. I do get relief from the

suppositories for the vulva burn, but it's hard to

continue to get them. My ins. only pays for a 10 day

supply which means every 7 days i need to order it and

have it shipped to me. The shipping and co-pays 3x a

month is tuff. I also had s grant money cut.

They said ppl who are on S.S.I and have children the

grant was cut $150 a month. My out of pocket medical

is about $200 a month right now. I have to cut back

on this pain psycologist. She costs $25 a visit(thats

after medicare pays) Im trying to make cuts, but I

dont know where I need everything I get now. I can do

the riziotomy without another dr. telling me I can. I

would love to get the new opiod, but it's not been

oked by the fda. Im also waiting on the artificial

disk replacement surgery to be covered by medical

insurance companies. I did have a M.R.I last week on

my spine to see where im at. Im going tomorrow to get

the results. Im no technician, but I can see the disk

is buldging on both sides b/c it looks like the disk

is collapsing in the middle pushing the sides out. Im

pretty much bone on bone in the middle.

We will see what the report says though. I did ask the

tech in regards to endo and adhesion and if it could

be seen with a M.R.I and the dye they inject. He told

me they could. Im gonna see if I can get a M.R.I of

the low abdomin. Thanks every body for your input and

support. God Bless, Tami

--- Dusty wrote:

> Yikes, Tami, I think you may have misunderstood. I

> in no way was implying

> that your daughter isn't in pain, or doesn't have a

> medical problem. I

> sincerely believe that she is, as my Uncle has

> treated girls as young as 14

> with female tumors. I wasn't addressing you or

> your daughter's pain in

> my comment.... and I can see why you'd be pissed if

> you thought I was.

> Honestly, I wasn't.

>

> After our last thread about psych help with chronic

> pain (when you were

> being forced to speak to the psych before you could

> have back surgery), I

> spoke to my Uncle (he's a doc) and he explained that

> they are indeed taught

> to follow up on ALL causes of pain which includes

> the possibility of psych

> issues. You have to read Kristi's post and THEN

> read mine to clearly see

> my intention. It was addressed to Kristi- who

> commented that many docs

> aren't taught that women under 30 can be in pain.

> I spoke to my Uncle

> about this, as I mention above, and he said

> basically - hogwash. They're

> taught - but some, like in all other businesses we

> do with - don't do their

> jobs and do the complete evaluation of the patient.

> That was my point -

> simply a counterpoint to Kristi's comments about

> docs - NOT a comment

> about you or your daughter.

> I copied Kristi's comment here. Perhaps my comments

> to Kristi will make

> better sense when read in context with hers.

>

> I have no doubt your daughter has female problems.

> Never did. I hate

> that you would even think so.

>

> Regards

> Dusty

>

> BTW Are you contemplating the new back opiate you

> posted about?

> Is the psych person recommending y ou for

> rizotomy/surgery and when will you

> know? and

> What did your doc mean when he/she said it " didn't

> matter " when you asked to

> have the status of your endo checked? It didn't

> matter as in he/she won't

> follow up or check for problems?

>

>

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Tami:

Do you have to tell 's doctor that you are a chronic pain sufferer? If they dismiss her because they think that she is trying to emulate you, don't tell them until after they see her and give an opinion, or don't tell them until later in her treatment.

What is a rixiotomy? Sorry to hear of your back problems. My husband had back surgery last summer.

Sherri

treatments with your physician.***WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated.To post message: VulvarDisorders List owner: Dee~ DTroll@...

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Tami,

Get in touch with the Senator and Congressperson that cover your

district on a State level and explain the situation to them

about and that you want her to see a female gyn.

If you have to get her to UOM but make sure that the gyn she

sees has experience with adolescent gynecology.

It truly does matter in order to make sure your daughter is

believed about her pain.

Kristy :)

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Tami,

May I ask who your senators are please?

I am so sorry you and your daughter have these horrors

to deal with. Pain is so terrible and when the people

who have so much power over you tell you in so many

words and deeds that you either are exaggerating and

looking for attention or suffering some delusion, your

patience must be more than taxed. I think if

physicians are not psychiatrists they should spend

less time trying to psychoanalyze patients. They are

usually wrong. Actually they use these tactics

sometimes just because they don't want to treat the

patient and they hope the patient will go away.

I believe that if physicians tell patients they don't

want to treat them, they can lose their access to

certain insurances so that is why they use all kinds

of nasty tricks to get rid of patients they consider

to be troublesome for whatever reason. So, they never

tell you that and aren't straight forward, they just

use some other tactic.

Anyway, hang in there and I guess you know there are a

lot of people here that hope you and your daughter can

finally find some good help.

Arline

--- Kristy Sokoloski wrote:

> Tami,

>

> Get in touch with the Senator and Congressperson

> that cover your

> district on a State level and explain the situation

> to them

> about and that you want her to see a female

> gyn.

>

> If you have to get her to UOM but make sure that the

> gyn she

> sees has experience with adolescent gynecology.

>

> It truly does matter in order to make sure your

> daughter is

> believed about her pain.

>

> Kristy :)

>

>

>

>

>

>

> __________________________________________________

>

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Tami,

For future reference I believe that every state has an

insurance commissioner that one might need to consult

at some point.

What state do you live in, Tami??

Arline

--- BABB wrote:

> Tami,

>

> May I ask who your senators are please?

>

> I am so sorry you and your daughter have these

> horrors

> to deal with. Pain is so terrible and when the

> people

> who have so much power over you tell you in so many

> words and deeds that you either are exaggerating and

> looking for attention or suffering some delusion,

> your

> patience must be more than taxed. I think if

> physicians are not psychiatrists they should spend

> less time trying to psychoanalyze patients. They are

> usually wrong. Actually they use these tactics

> sometimes just because they don't want to treat the

> patient and they hope the patient will go away.

>

> I believe that if physicians tell patients they

> don't

> want to treat them, they can lose their access to

> certain insurances so that is why they use all kinds

> of nasty tricks to get rid of patients they consider

> to be troublesome for whatever reason. So, they

> never

> tell you that and aren't straight forward, they just

> use some other tactic.

>

> Anyway, hang in there and I guess you know there are

> a

> lot of people here that hope you and your daughter

> can

> finally find some good help.

>

> Arline

>

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Tami,

Arline is right about every State having an insurance

commissioner. I would also call them as well about this

situation. Even though you get Medicare they are still subject

to the Insurance Commissioner in each State.

Check on the Michigan State's official website for how to

contact the IC office but in the mean time get in to contact

with the Senators and Congresspeople that cover your district on

a State level. For National level go to: http://www.house.gov

for the House of Representatives and http://www.senate.gov for

the Senators.

Kristy :)

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Hello,

Debbie Stabenow is my Senator. You know Iv

been procrastinating, but I guess now is the time. One

of the issues I have is for kids who are 16 you have

to pay any where from $255 up to take the classes to

get there drivers license. You can no longer get this

free through school. I know that I cant afford this.

Unfortunatly is now 17 and hasnt been able to

take any classes for her license or get a job b/c I

cant commit to driving her back and forth to work. I

think parents who are on S.S.I should get a voucher

for driving school through the Secratery of State.

Which enables her to get a job and take me to drs.

apts. or get prescriptions for me. It would really

help me out if she had her license not to mention it

would help her.

Im gonna get my letter together and send it.

Kind Regards, Tami

> --- BABB wrote:

>

> > Tami,

> >

> > May I ask who your senators are please?

> >

_________________________________

>

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Hi Tami:

Does your daughter have to take the classes to get her drivers license? Or is it just to get a discount on the insurance? My daughter took the classes (not in her high school, they don't offer it either) and then took I think six driving lessons.we took her out driving the rest of the time.

The insurance company didn't even ask to see the certificate from the driving school when I insured her.

Sherri

-------------- Original message -------------- Oneof the issues I have is for kids who are 16 you haveto pay any where from $255 up to take the classes toget there drivers license. You can no longer get thisfree through school. I know that I cant afford this.Unfortunatly is now 17 and hasnt been able totake any classes for her license or get a job b/c Icant commit to driving her back and forth to work.>

>

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