Re: (unknown)

[Guest guest]

Are you happy being a size 8? It seems that sometimes we are more compact

when doing Atkins so we wear smaller sizes than the scales might suggest.

If you feel good about your current weight, are wearing a clothing size

that you feel good in, and are within the healthy weight range, you may want

to reevaluate whether your original goal weight was set too low.

I know that as they get closer to goal, some people have to keep a closer

eye on the number of calories consumed and amount of fat. It sounds like

you're eating pretty stringently already though.

I think you've done wonderfully!!

Kirstie

[Guest guest]

Have you tried weigh lifting? I have heard that it really help to tune up

and be able to loose or eat more and still not loose. Not to become a

champion but to get you metaboli going again. Just a suggestion.

fd

(unknown)

> I began on the Atkins diet almost a year

> lost 56 lbs. I am still a few pounds away from my goal.

[Guest guest]

---- Original Message ----

To: Breathe-Support

Sent: Thu, 15 Nov 2007 7:00 pm

Subject: (unknown)

Hey all...I've got a question for you all, I'd like to hear others experiences.....has anybody developed a problem with panic/anxiety attacks since the SOB sHey Folks, I've got a tarted?? Back in 2005 when I was first diagnosed I would have episodes of SOB that would leave me on my hands and knees, wondering if I'd ever draw another breath. As you all know, that is very, very scary. It's my understanding (admittedly limited) that with panic attacks it's about the brain doing it's "fight or flight" thing. Once the brain "learns" to panic this exercise gets easier and easier. This is a very poor explanation but it's the best I have right now. I used to tell people that the average adult takes about 6,300,000 breaths in a year and never, ever consciously thinks about a single one. But just one time when you can't get one breath, and you never forget it. My work requires lots of village travel. The only way to do this is by flying in small planes. For the 20 years I've been doing this, flying has been the high point. I love it !!! Now , due to my oxygen needs I cannot do this. However, I do have to fly to Anchorage for treatment. After experiencing a weird sensation several times it finally dawned on me.....I've developed a fear of flying, at 62 years old, after a lifetime of flying. Unbelievable !! I'm also to the point where I won't/can't wear t-shirts that have tight necks, open necked only, makes me claustrophobic...same with the oxygen mask, so I use the cannula. I know we are all different but it sounds to me like many of us have shortness-of-breath in common. So.......tell me that I'm just too weird and you've never heard of such a thing.....

jim IPF 05

alaska

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[Guest guest]

Jim...I have sob but I'll leave you to those who have what you describe. I haven't.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Jim, YES...YES...YES I have had panic

attacks in association with SOB!!!!I am very familiar with panic

attacks...

I had a breakdown 13 years ago after my son was involved in an almost

fatal accident...he's perfect now( the daddy to my Darah!)

I know what panic attacks feel like...I can now settle myself down from

a panic attack..I can self-talk myself out of that situation.

With SOB..I need to settle my breathing down..count inhalations and

exhalations When I was first became ill, I assumed it was stress

due to my Dad's passing and that what I was having was panic

attacks..it actually was SOB due to the NSIP form of PF!

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

james wallman wrote:

Hey all...I've got a question for you all, I'd like to hear

others experiences.....has anybody developed a problem with

panic/anxiety attacks since the SOB sHey Folks, I've got a tarted??

Back in 2005 when I was first diagnosed I would have episodes of SOB

that would leave me on my hands and knees, wondering if I'd ever draw

another breath. As you all know, that is very, very scary. It's my

understanding (admittedly limited) that with panic attacks it's about

the brain doing it's "fight or flight" thing. Once the brain "learns"

to panic this exercise gets easier and easier. This is a very poor

explanation but it's the best I have right now. I used to tell people

that the average adult takes about 6,300,000 breaths in a year and

never, ever consciously thinks about a single one. But just one time

when you can't get one breath, and you never forget it. My work

requires lots of village travel. The only way to do this is by flying

in small planes. For the 20 years I've been doing this, flying has been

the high point. I love it !!! Now , due to my oxygen needs I cannot do

this. However, I do have to fly to Anchorage for treatment. After

experiencing a weird sensation several times it finally dawned on

me.....I've developed a fear of flying, at 62 years old, after a

lifetime of flying. Unbelievable !! I'm also to the point where I

won't/can't wear t-shirts that have tight necks, open necked only,

makes me claustrophobic...same with the oxygen mask, so I use the

cannula. I know we are all different but it sounds to me like many of

us have shortness-of-breath in common. So.......tell me that I'm

just too weird and you've never heard of such a thing.....

jim IPF 05

alaska

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[Guest guest]

Jim, when I'm in similar circumstances, I also suffer from claustrophobia. My wife thinking that she is helping may place a towel on my head or adjust my oxy mask. It drives me crazy and I just want to tear them away. All I want is to be left alone to breath. It's horrible, but it's a fact and takes alot of appology after an attack.As for a fear of flying, I could think of no better way than ending my suffering than looking down on this beautiful planet. It's not flying that kills you, it's when the plane touches down.Bob nov05 58 (unknown)

Hey all...I've got a question for you all, I'd like to hear others experiences. ....has anybody developed a problem with panic/anxiety attacks since the SOB sHey Folks, I've got a tarted?? Back in 2005 when I was first diagnosed I would have episodes of SOB that would leave me on my hands and knees, wondering if I'd ever draw another breath. As you all know, that is very, very scary. It's my understanding (admittedly limited) that with panic attacks it's about the brain doing it's "fight or flight" thing. Once the brain "learns" to panic this exercise gets easier and easier. This is a very poor explanation but it's the best I have right now. I used to tell people that the average adult takes about 6,300,000 breaths in a year and never, ever consciously thinks about a single one. But just one time when you can't get one breath, and you never forget it. My work requires lots of village travel. The only way to do this is by

flying in small planes. For the 20 years

I've been doing this, flying has been the high point. I love it !!! Now , due to my oxygen needs I cannot do this. However, I do have to fly to Anchorage for treatment. After experiencing a weird sensation several times it finally dawned on me.....I've developed a fear of flying, at 62 years old, after a lifetime of flying. Unbelievable !! I'm also to the point where I won't/can't wear t-shirts that have tight necks, open necked only, makes me claustrophobic. ..same with the oxygen mask, so I use the cannula. I know we are all different but it sounds to me like many of us have shortness-of- breath in common. So.......tell me that I'm just too weird and you've never heard of such a thing..... jim IPF 05 alaska Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now.

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[Guest guest]

Jim How well I know what your experiencing. I had a panic attack at the rehab yesterday right I finished 23 minutes of excerise. I had moved from the chair to the wheelchair to leave, when I couldn't get my breath. The rehab person put an oximeter(SP) on me while I tried to breath and my stat was 74 & pluse was 122! It took several minutes to recover. Then I finally could breath normal if that is possible with PF. No one seems to know why these attacks happen, but its very scary to me when I can't breath!! stay well & stay safe!

(unknown)

Hey all...I've got a question for you all, I'd like to hear others experiences. ....has anybody developed a problem with panic/anxiety attacks since the SOB sHey Folks, I've got a tarted?? Back in 2005 when I was first diagnosed I would have episodes of SOB that would leave me on my hands and knees, wondering if I'd ever draw another breath. As you all know, that is very, very scary. It's my understanding (admittedly limited) that with panic attacks it's about the brain doing it's "fight or flight" thing. Once the brain "learns" to panic this exercise gets easier and easier. This is a very poor explanation but it's the best I have right now. I used to tell people that the average adult takes about 6,300,000 breaths in a year and never, ever consciously thinks about a single one. But just one time when you can't get one breath, and you never forget it. My work requires lots of village travel. The only way to do this is by flying in small

planes. For the 20 years I've been doing this, flying has been the high point. I love it !!! Now , due to my oxygen needs I cannot do this. However, I do have to fly to Anchorage for treatment. After experiencing a weird sensation several times it finally dawned on me.....I've developed a fear of flying, at 62 years old, after a lifetime of flying. Unbelievable !! I'm also to the point where I won't/can't wear t-shirts that have tight necks, open necked only, makes me claustrophobic. ..same with the oxygen mask, so I use the cannula. I know we are all different but it sounds to me like many of us have shortness-of- breath in common. So.......tell me that I'm just too weird and you've never heard of such a thing.....

jim IPF 05

alaska

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[Guest guest]

Jim Where in Alaska are you? I used to fly into Elmdorph(SP) air base several times a year. Stayed off base most of the time in Anchorage. Took lots of road trip around the area, always wanted to try gold panning up a Crow Creek Mine.

(unknown)

Hey all...I've got a question for you all, I'd like to hear others experiences. ....has anybody developed a problem with panic/anxiety attacks since the SOB sHey Folks, I've got a tarted?? Back in 2005 when I was first diagnosed I would have episodes of SOB that would leave me on my hands and knees, wondering if I'd ever draw another breath. As you all know, that is very, very scary. It's my understanding (admittedly limited) that with panic attacks it's about the brain doing it's "fight or flight" thing. Once the brain "learns" to panic this exercise gets easier and easier. This is a very poor explanation but it's the best I have right now. I used to tell people that the average adult takes about 6,300,000 breaths in a year and never, ever consciously thinks about a single one. But just one time when you can't get one breath, and you never forget it. My work requires lots of village travel. The only way to do this is by flying in small

planes. For the 20 years I've been doing this, flying has been the high point. I love it !!! Now , due to my oxygen needs I cannot do this. However, I do have to fly to Anchorage for treatment. After experiencing a weird sensation several times it finally dawned on me.....I've developed a fear of flying, at 62 years old, after a lifetime of flying. Unbelievable !! I'm also to the point where I won't/can't wear t-shirts that have tight necks, open necked only, makes me claustrophobic. ..same with the oxygen mask, so I use the cannula. I know we are all different but it sounds to me like many of us have shortness-of- breath in common. So.......tell me that I'm just too weird and you've never heard of such a thing.....

jim IPF 05

alaska

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[Guest guest]

...........Bristol Bay. 350 air miles west of Anc on the Bering Sea. Off the road system. 12F this morning.. jim IPF 05 alaskageorge mathews wrote: Jim Where in Alaska are you? I used to fly into Elmdorph(SP) air base several times a year. Stayed off base most of the time in Anchorage.

Took lots of road trip around the area, always wanted to try gold panning up a Crow Creek Mine. (unknown) Hey all...I've got a question for you all, I'd like to hear others experiences. ....has anybody developed a problem with panic/anxiety attacks since the SOB sHey Folks, I've got a tarted??

Back in 2005 when I was first diagnosed I would have episodes of SOB that would leave me on my hands and knees, wondering if I'd ever draw another breath. As you all know, that is very, very scary. It's my understanding (admittedly limited) that with panic attacks it's about the brain doing it's "fight or flight" thing. Once the brain "learns" to panic this exercise gets easier and easier. This is a very poor explanation but it's the best I have right now. I used to tell people that the average adult takes about 6,300,000 breaths in a year and never, ever consciously thinks about a single one. But just one time when you can't get one breath, and you never forget it. My work requires lots of village travel. The only way to do this is by flying in small planes. For the 20 years I've been doing this, flying has been the high point. I love it !!! Now , due to my oxygen needs I cannot do this. However, I do have to fly to Anchorage for treatment. After experiencing a

weird sensation several times it finally dawned on me.....I've developed a fear of flying, at 62 years old, after a lifetime of flying. Unbelievable !! I'm also to the point where I won't/can't wear t-shirts that have tight necks, open necked only, makes me claustrophobic. ..same with the oxygen mask, so I use the cannula. I know we are all different but it sounds to me like many of us have shortness-of- breath in common. So.......tell me that I'm just too weird and you've never heard of such a thing..... jim IPF 05 alaska Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. For ideas on reducing your carbon footprint visit Yahoo! For Good this month. Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.

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[Guest guest]

Hello everyone, I am new to this and I am not sure I even belong here in this group since My condition allows me much more freedom. I am a follicular bronchiolitis patient with radiation induced fibrosis and a partially paralized right diaphram. My O2 sats at rest are 91%, but any exercise, including walking, just drops it like a rock down into the low 80's. my resting heart rate is 107. But in reading the chat I have a long ways to go to be like everyone. I am still trying to understand what all this really means to me and my health so any insights would be great.

Jeff allred

-----Original Message-----From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of james wallmanSent: Tuesday, December 18, 2007 5:54 PMTo: Breathe-Support Subject: (unknown)

I've been out of circulation for about a week. Nothing like coming home to 800+ emails.....I must confess that I did not read them all. Hence, my question........what is CPAP and BIPAP? I can only imagine how much important stuff I missed. My news......the HRCT showed no advancement of the IPF.PFT numbers are pretty much the same except for the DCLO (DLCO??), you know what I mean. That number is alarming. That is only one of the follow-up questions that I didn't get to ask. Why the problem with the exchange, carbon dioxide for oxygen? We really liked the new pulmonologist. As a "new patient" they'd scheduled an hour appointment. He spent almost 2 hours with us. I had a list of questions, but didn't get all of them answered simply because we did so much yakking. He was genuinely impressed with the list of questions, kept saying so, kept telling Eva "I wish all my patients were like this". The "like this" is a DIRECT result of what I have learned here, folks, thank you very much !!! What a relief.....going to Anchorage to meet a new doc and have him turn out to be great, knowledgeable, honest and open. He stopped the azathiaprine and prednisone......the imuran immediately, the prednisone titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that those drugs are meant for a 6 month trial only, and I've been on them alot longer than that. Didn't address the question - - prednisone for PF vs IPF. I'll be really glad to be off the stuff. I believe it saved my life a couple years ago, but things have changed. Also saw the chemo Oncologist....he proclaimed me to still be clean. All in all.... a pretty good trip. Eva says it is all the prayer, bless her heart, I'm certainly not one to argue with her.

On the subject of smoking........Ohhhhhh, I'm jones'n already. I smoked for 28 years. Had been trying to quit for more than 2 years, using patches and Zyban (wellbutrin) off and on. Then they found this lymph node the size of an egg in the middle of my chest, biopsy showed it to be malignant....dx....lung cancer. Amazing..........haven't had a cigarette since that day in August, 2004. I actually tried to have a cigarette in October 2004, but by that time the radiation had trashed my lungs and I couldn't physically get the smoke down, hurt bad. And that was it. I was talking to a class of hi-school juniors and seniors about a year ago, told them that story. One of the little wise-asses asked...." If you could, would you?" I had to tell the truth......"I don't know, probably". I still crave, I still love the smell, but I am SO thankful that I quit, and I will never start again. The physical addiction part is actually the easiest part to deal with. It's the mental part that, at my age, will never go away. Somebody here suggested to delay having a smoke for an hour. I've heard that the actual craving only lasts a matter of seconds. However, if they come every 3 minutes........... Maybe 20 years ago I was living in a house with a lady and 2 children. I kept passing out, after tests for a week it was found to be carbon monoxide poisoning. The doctor called and said "first, go open all the windows, then I'll tell you what's wrong with you". I asked why the other people in the house weren't effected and he told me that, by virtue of the fact that I was a smoker, I carried 50% of a lethal dose of carbon monoxide in my bloodstream at all times. True or not, I stopped smoking at that very moment........no withdrawal, no craving, no moods, no nothin'. I was off the cigarettes for almost 5 months. Then I went to Australia....... and one night my friends and I enjoyed several Toohey's Olds, followed by several drops of tawny port.....next thing I know I'm working on a pack of Winfields. Did you know that they have cigarettes Down There that have 50 cigs to a pack?? Sorry ........negative advertising, I know. Truth is that I was just looking for an excuse to start smoking again.

I've gone on.....and on and on.....oh well!! I missed you guys !!!

jim IPF 05

alaska

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[Guest guest]

Hello Jeff,

Welcome to our board. We will be all too happy to have you here.

Hugs, Joyce D.>> Hello everyone, I am new to this and I am not sure I even belong here> in this group since My condition allows me much more freedom. I am a> follicular bronchiolitis patient with radiation induced fibrosis and a> partially paralized right diaphram. My O2 sats at rest are 91%, but any> exercise, including walking, just drops it like a rock down into the> low 80's. my resting heart rate is 107. But in reading the chat I have a> long ways to go to be like everyone. I am still trying to understand> what all this really means to me and my health so any insights would be> great.> > Jeff allred> > (unknown)> > > > > > I've been out of circulation for about a week. Nothing like coming home> to 800+ emails.....I must confess that I did not read them all. Hence,> my question........what is CPAP and BIPAP? I can only imagine how much> important stuff I missed. My news......the HRCT showed no advancement of> the IPF.PFT numbers are pretty much the same except for the DCLO> (DLCO??), you know what I mean. That number is alarming. That is only> one of the follow-up questions that I didn't get to ask. Why the problem> with the exchange, carbon dioxide for oxygen? We really liked the new> pulmonologist. As a "new patient" they'd scheduled an hour appointment.> He spent almost 2 hours with us. I had a list of questions, but didn't> get all of them answered simply because we did so much yakking. He was> genuinely impressed with the list of questions, kept saying so, kept> telling Eva "I wish all my patients were like this". The "like this" is> a DIRECT result of what I have learned here, folks, thank you very much> !!! What a relief.....going to Anchorage to meet a new doc and have him> turn out to be great, knowledgeable, honest and open. He stopped the> azathiaprine and prednisone......the imuran immediately, the prednisone> titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that those> drugs are meant for a 6 month trial only, and I've been on them alot> longer than that. Didn't address the question - - prednisone for PF vs> IPF. I'll be really glad to be off the stuff. I believe it saved my life> a couple years ago, but things have changed. Also saw the chemo> Oncologist....he proclaimed me to still be clean. All in all.... a> pretty good trip. Eva says it is all the prayer, bless her heart, I'm> certainly not one to argue with her. > > On the subject of smoking........Ohhhhhh, I'm jones'n already. I smoked> for 28 years. Had been trying to quit for more than 2 years, using> patches and Zyban (wellbutrin) off and on. Then they found this lymph> node the size of an egg in the middle of my chest, biopsy showed it to> be malignant....dx....lung cancer. Amazing..........haven't had a> cigarette since that day in August, 2004. I actually tried to have a> cigarette in October 2004, but by that time the radiation had trashed my> lungs and I couldn't physically get the smoke down, hurt bad. And that> was it. I was talking to a class of hi-school juniors and seniors about> a year ago, told them that story. One of the little wise-asses> asked...." If you could, would you?" I had to tell the truth......"I> don't know, probably". I still crave, I still love the smell, but I am> SO thankful that I quit, and I will never start again. The physical> addiction part is actually the easiest part to deal with. It's the> mental part that, at my age, will never go away. Somebody here suggested> to delay having a smoke for an hour. I've heard that the actual craving> only lasts a matter of seconds. However, if they come every 3> minutes........... Maybe 20 years ago I was living in a house with a> lady and 2 children. I kept passing out, after tests for a week it was> found to be carbon monoxide poisoning. The doctor called and said> "first, go open all the windows, then I'll tell you what's wrong with> you". I asked why the other people in the house weren't effected and he> told me that, by virtue of the fact that I was a smoker, I carried 50%> of a lethal dose of carbon monoxide in my bloodstream at all times. True> or not, I stopped smoking at that very moment........no withdrawal, no> craving, no moods, no nothin'. I was off the cigarettes for almost 5> months. Then I went to Australia....... and one night my friends and I> enjoyed several Toohey's Olds, followed by several drops of tawny> port.....next thing I know I'm working on a pack of Winfields. Did you> know that they have cigarettes Down There that have 50 cigs to a pack??> Sorry ........negative advertising, I know. Truth is that I was just> looking for an excuse to start smoking again. > > I've gone on.....and on and on.....oh well!! I missed you guys !!!> > jim IPF 05> alaska> > > > _____ > > Looking for last minute shopping deals? Find> <http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsear> ch/category.php?category=shopping> them fast with Yahoo! Search.>

[Guest guest]

Jim, WONDERFUL news. I was just thinking of you last night. I was

at my part time job and we have a fellow that comes in for pizza all

the time and he has a cabin in Alaska like a 5 hour drive from

Anchorage and 250 miles from any town, something about his neighbors

have one of those fish baskets and when someone doesnt take the fish

from their shift his neighbor calls him to take it. Apparently he

goes up there for 6 weeks at a time. I thought no wonder why Jim

lives where he does, just amazing!

I am so glad that the pulmo doc is someone you like and that he spent

so much time with you, that is even better. the time they spend with

you to get all your questions answered. Even happier about getting

off that pred and all those other drugs. That should help you too.

Glad you are back!

Oh about the smoking thing, I quit 6 months ago tried a couple other

times through out my 23 years of smoking never made it work thought I

would never quit now I still have the cravings all the time but the

smell does make me sick. If I picked up a smoke I probably would just

keep smoking...

Sandie

>

> Hello everyone, I am new to this and I am not sure I even belong

here

> in this group since My condition allows me much more freedom. I am a

> follicular bronchiolitis patient with radiation induced fibrosis

and a

> partially paralized right diaphram. My O2 sats at rest are 91%, but

any

> exercise, including walking, just drops it like a rock down into

the

> low 80's. my resting heart rate is 107. But in reading the chat I

have a

> long ways to go to be like everyone. I am still trying to understand

> what all this really means to me and my health so any insights

would be

> great.

>

> Jeff allred

>

> (unknown)

>

>

>

>

>

> I've been out of circulation for about a week. Nothing like coming

home

> to 800+ emails.....I must confess that I did not read them all.

Hence,

> my question........what is CPAP and BIPAP? I can only imagine how

much

> important stuff I missed. My news......the HRCT showed no

advancement of

> the IPF.PFT numbers are pretty much the same except for the DCLO

> (DLCO??), you know what I mean. That number is alarming. That is

only

> one of the follow-up questions that I didn't get to ask. Why the

problem

> with the exchange, carbon dioxide for oxygen? We really liked the

new

> pulmonologist. As a " new patient " they'd scheduled an hour

appointment.

> He spent almost 2 hours with us. I had a list of questions, but

didn't

> get all of them answered simply because we did so much yakking. He

was

> genuinely impressed with the list of questions, kept saying so, kept

> telling Eva " I wish all my patients were like this " . The " like

this " is

> a DIRECT result of what I have learned here, folks, thank you very

much

> !!! What a relief.....going to Anchorage to meet a new doc and have

him

> turn out to be great, knowledgeable, honest and open. He stopped the

> azathiaprine and prednisone......the imuran immediately, the

prednisone

> titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that

those

> drugs are meant for a 6 month trial only, and I've been on them alot

> longer than that. Didn't address the question - - prednisone for PF

vs

> IPF. I'll be really glad to be off the stuff. I believe it saved my

life

> a couple years ago, but things have changed. Also saw the chemo

> Oncologist....he proclaimed me to still be clean. All in all.... a

> pretty good trip. Eva says it is all the prayer, bless her heart,

I'm

> certainly not one to argue with her.

>

> On the subject of smoking........Ohhhhhh, I'm jones'n already. I

smoked

> for 28 years. Had been trying to quit for more than 2 years, using

> patches and Zyban (wellbutrin) off and on. Then they found this

lymph

> node the size of an egg in the middle of my chest, biopsy showed it

to

> be malignant....dx....lung cancer. Amazing..........haven't had a

> cigarette since that day in August, 2004. I actually tried to have a

> cigarette in October 2004, but by that time the radiation had

trashed my

> lungs and I couldn't physically get the smoke down, hurt bad. And

that

> was it. I was talking to a class of hi-school juniors and seniors

about

> a year ago, told them that story. One of the little wise-asses

> asked.... " If you could, would you? " I had to tell the truth...... " I

> don't know, probably " . I still crave, I still love the smell, but I

am

> SO thankful that I quit, and I will never start again. The physical

> addiction part is actually the easiest part to deal with. It's the

> mental part that, at my age, will never go away. Somebody here

suggested

> to delay having a smoke for an hour. I've heard that the actual

craving

> only lasts a matter of seconds. However, if they come every 3

> minutes........... Maybe 20 years ago I was living in a house with a

> lady and 2 children. I kept passing out, after tests for a week it

was

> found to be carbon monoxide poisoning. The doctor called and said

> " first, go open all the windows, then I'll tell you what's wrong

with

> you " . I asked why the other people in the house weren't effected

and he

> told me that, by virtue of the fact that I was a smoker, I carried

50%

> of a lethal dose of carbon monoxide in my bloodstream at all times.

True

> or not, I stopped smoking at that very moment........no withdrawal,

no

> craving, no moods, no nothin'. I was off the cigarettes for almost 5

> months. Then I went to Australia....... and one night my friends

and I

> enjoyed several Toohey's Olds, followed by several drops of tawny

> port.....next thing I know I'm working on a pack of Winfields. Did

you

> know that they have cigarettes Down There that have 50 cigs to a

pack??

> Sorry ........negative advertising, I know. Truth is that I was

just

> looking for an excuse to start smoking again.

>

> I've gone on.....and on and on.....oh well!! I missed you guys !!!

>

> jim IPF 05

> alaska

>

>

>

> _____

>

> Looking for last minute shopping deals? Find

>

<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newse

ar

> ch/category.php?category=shopping> them fast with Yahoo! Search.

>

[Guest guest]

Jim, WONDERFUL news. I was just thinking of you last night. I was

at my part time job and we have a fellow that comes in for pizza all

the time and he has a cabin in Alaska like a 5 hour drive from

Anchorage and 250 miles from any town, something about his neighbors

have one of those fish baskets and when someone doesnt take the fish

from their shift his neighbor calls him to take it. Apparently he

goes up there for 6 weeks at a time. I thought no wonder why Jim

lives where he does, just amazing!

I am so glad that the pulmo doc is someone you like and that he spent

so much time with you, that is even better. the time they spend with

you to get all your questions answered. Even happier about getting

off that pred and all those other drugs. That should help you too.

Glad you are back!

Oh about the smoking thing, I quit 6 months ago tried a couple other

times through out my 23 years of smoking never made it work thought I

would never quit now I still have the cravings all the time but the

smell does make me sick. If I picked up a smoke I probably would just

keep smoking...

Sandie

>

> Hello everyone, I am new to this and I am not sure I even belong

here

> in this group since My condition allows me much more freedom. I am a

> follicular bronchiolitis patient with radiation induced fibrosis

and a

> partially paralized right diaphram. My O2 sats at rest are 91%, but

any

> exercise, including walking, just drops it like a rock down into

the

> low 80's. my resting heart rate is 107. But in reading the chat I

have a

> long ways to go to be like everyone. I am still trying to understand

> what all this really means to me and my health so any insights

would be

> great.

>

> Jeff allred

>

> (unknown)

>

>

>

>

>

> I've been out of circulation for about a week. Nothing like coming

home

> to 800+ emails.....I must confess that I did not read them all.

Hence,

> my question........what is CPAP and BIPAP? I can only imagine how

much

> important stuff I missed. My news......the HRCT showed no

advancement of

> the IPF.PFT numbers are pretty much the same except for the DCLO

> (DLCO??), you know what I mean. That number is alarming. That is

only

> one of the follow-up questions that I didn't get to ask. Why the

problem

> with the exchange, carbon dioxide for oxygen? We really liked the

new

> pulmonologist. As a " new patient " they'd scheduled an hour

appointment.

> He spent almost 2 hours with us. I had a list of questions, but

didn't

> get all of them answered simply because we did so much yakking. He

was

> genuinely impressed with the list of questions, kept saying so, kept

> telling Eva " I wish all my patients were like this " . The " like

this " is

> a DIRECT result of what I have learned here, folks, thank you very

much

> !!! What a relief.....going to Anchorage to meet a new doc and have

him

> turn out to be great, knowledgeable, honest and open. He stopped the

> azathiaprine and prednisone......the imuran immediately, the

prednisone

> titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that

those

> drugs are meant for a 6 month trial only, and I've been on them alot

> longer than that. Didn't address the question - - prednisone for PF

vs

> IPF. I'll be really glad to be off the stuff. I believe it saved my

life

> a couple years ago, but things have changed. Also saw the chemo

> Oncologist....he proclaimed me to still be clean. All in all.... a

> pretty good trip. Eva says it is all the prayer, bless her heart,

I'm

> certainly not one to argue with her.

>

> On the subject of smoking........Ohhhhhh, I'm jones'n already. I

smoked

> for 28 years. Had been trying to quit for more than 2 years, using

> patches and Zyban (wellbutrin) off and on. Then they found this

lymph

> node the size of an egg in the middle of my chest, biopsy showed it

to

> be malignant....dx....lung cancer. Amazing..........haven't had a

> cigarette since that day in August, 2004. I actually tried to have a

> cigarette in October 2004, but by that time the radiation had

trashed my

> lungs and I couldn't physically get the smoke down, hurt bad. And

that

> was it. I was talking to a class of hi-school juniors and seniors

about

> a year ago, told them that story. One of the little wise-asses

> asked.... " If you could, would you? " I had to tell the truth...... " I

> don't know, probably " . I still crave, I still love the smell, but I

am

> SO thankful that I quit, and I will never start again. The physical

> addiction part is actually the easiest part to deal with. It's the

> mental part that, at my age, will never go away. Somebody here

suggested

> to delay having a smoke for an hour. I've heard that the actual

craving

> only lasts a matter of seconds. However, if they come every 3

> minutes........... Maybe 20 years ago I was living in a house with a

> lady and 2 children. I kept passing out, after tests for a week it

was

> found to be carbon monoxide poisoning. The doctor called and said

> " first, go open all the windows, then I'll tell you what's wrong

with

> you " . I asked why the other people in the house weren't effected

and he

> told me that, by virtue of the fact that I was a smoker, I carried

50%

> of a lethal dose of carbon monoxide in my bloodstream at all times.

True

> or not, I stopped smoking at that very moment........no withdrawal,

no

> craving, no moods, no nothin'. I was off the cigarettes for almost 5

> months. Then I went to Australia....... and one night my friends

and I

> enjoyed several Toohey's Olds, followed by several drops of tawny

> port.....next thing I know I'm working on a pack of Winfields. Did

you

> know that they have cigarettes Down There that have 50 cigs to a

pack??

> Sorry ........negative advertising, I know. Truth is that I was

just

> looking for an excuse to start smoking again.

>

> I've gone on.....and on and on.....oh well!! I missed you guys !!!

>

> jim IPF 05

> alaska

>

>

>

> _____

>

> Looking for last minute shopping deals? Find

>

<http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newse

ar

> ch/category.php?category=shopping> them fast with Yahoo! Search.

>

[Guest guest]

Jim... apologies to your wife but what a wonderful post to read this morning first thing!

I'm so thrilled your new dr was a pleasant experience for you and Eva. As you wrote, all in all a GOOD trip! I'm sure this good dr will monitor the 'alarming number' closely. How far is it for you to go to Alaska to see him? Is this where all your pfts will now be done?

I was a smoker too but for me, I hated the smell of tobacco and when I undressed I could smell myself. That did it for me. Many years later I started again...with a drink in my hand of course but stopped again in a few weeks. Smoking is a damn hard habit to break>first physically and then mentally.

I agree with Eva, prayer is so powerful. I'm glad we are on a board that prays for one another, regularly!

What good news you are clean, Jim. may you stay clean.

Your post has really brightened my day.

Don't fret about tomorrow, God is already there!

[Guest guest]

Joyce...I'm catching up with 85 emails...did you go to the hospital and back again?

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Sher.....thank you for your response. We live in Dillingham, on Bristol Bay (Bering Sea), about 400 miles west of Anchorage. No roads, accessible only by air. (1 & 1/4 hours and $400.00) All my pulmo related medical services are in Anchorage. Our population is approx 2500. Dillingham is a hub surrounded by 34 villages, meaning everything comes through here...mail, groceries, passengers, etc. before going to a village. If you look at a map of Alaska you will see the various hubs, going from southwest to the far north, Dillingham, Bethel, Kotzebue, Nome, and Barrow. (there's your geo lesson for today) We have a small, quite modern hospital with 8 family practitioner MDs on staff. One of these docs is going to help me evaluate my O2 needs this afternoon. Looks like I may need to go to continuous instead of intermittent. I've been here for 23 years and have felt fortunate to be able to live in what I describe as paradise. However,

"where-I-live" now plays a huge part in the treatment of my disease. I am still working to reconcile that.....I know there is a balance. The thought of having to move to receive treatment is unacceptable at this point in time. Down side.........Plumo rehab is available in Anc....not here.....back in 2004 when I was in chemo and radiation I had to stay in Anc for 11 weeks, camping with friends, etc. There were times when I wondered if it was worth it and there was an "end-time" to that treatment. Gettin' a bit whiney here.....there is a sunrise going on right now that is postcard quality. I'm not necessarily a religous man but here God's handiwork is everywhere, everyday. Someone wrote about the "gifts of this disease". It is visible to me everyday. I am soooooo thankful for this board !! jim IPF

05 alaska Sher Bauman wrote: Jim... apologies to your wife but what a wonderful post to read this morning first thing! I'm so thrilled your new dr was a pleasant experience for you and Eva. As you wrote, all in all a GOOD trip! I'm sure this good dr will monitor the 'alarming number' closely. How far is it for you to go to Alaska to see him? Is this where all your pfts will now be done? I was a smoker too but for me, I hated the smell of tobacco and when I undressed I could smell myself. That did it for me. Many years later I started again...with a drink in my hand of course but stopped again in a few weeks. Smoking is a damn hard habit to break>first physically and then mentally. I agree with Eva, prayer is so powerful. I'm glad we are on a board that prays for one another,

regularly! What good news you are clean, Jim. may you stay clean. Your post has really brightened my day. Don't fret about tomorrow, God is already there!

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sher.....thank you for your response. We live in Dillingham, on Bristol Bay (Bering Sea), about 400 miles west of Anchorage. No roads, accessible only by air. (1 & 1/4 hours and $400.00) All my pulmo related medical services are in Anchorage. Our population is approx 2500. Dillingham is a hub surrounded by 34 villages, meaning everything comes through here...mail, groceries, passengers, etc. before going to a village. If you look at a map of Alaska you will see the various hubs, going from southwest to the far north, Dillingham, Bethel, Kotzebue, Nome, and Barrow. (there's your geo lesson for today) We have a small, quite modern hospital with 8 family practitioner MDs on staff. One of these docs is going to help me evaluate my O2 needs this afternoon. Looks like I may need to go to continuous instead of intermittent. I've been here for 23 years and have felt fortunate to be able to live in what I describe as paradise. However,

"where-I-live" now plays a huge part in the treatment of my disease. I am still working to reconcile that.....I know there is a balance. The thought of having to move to receive treatment is unacceptable at this point in time. Down side.........Plumo rehab is available in Anc....not here.....back in 2004 when I was in chemo and radiation I had to stay in Anc for 11 weeks, camping with friends, etc. There were times when I wondered if it was worth it and there was an "end-time" to that treatment. Gettin' a bit whiney here.....there is a sunrise going on right now that is postcard quality. I'm not necessarily a religous man but here God's handiwork is everywhere, everyday. Someone wrote about the "gifts of this disease". It is visible to me everyday. I am soooooo thankful for this board !! jim IPF

05 alaska Sher Bauman wrote: Jim... apologies to your wife but what a wonderful post to read this morning first thing! I'm so thrilled your new dr was a pleasant experience for you and Eva. As you wrote, all in all a GOOD trip! I'm sure this good dr will monitor the 'alarming number' closely. How far is it for you to go to Alaska to see him? Is this where all your pfts will now be done? I was a smoker too but for me, I hated the smell of tobacco and when I undressed I could smell myself. That did it for me. Many years later I started again...with a drink in my hand of course but stopped again in a few weeks. Smoking is a damn hard habit to break>first physically and then mentally. I agree with Eva, prayer is so powerful. I'm glad we are on a board that prays for one another,

regularly! What good news you are clean, Jim. may you stay clean. Your post has really brightened my day. Don't fret about tomorrow, God is already there!

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sher.....thank you for your response. We live in Dillingham, on Bristol Bay (Bering Sea), about 400 miles west of Anchorage. No roads, accessible only by air. (1 & 1/4 hours and $400.00) All my pulmo related medical services are in Anchorage. Our population is approx 2500. Dillingham is a hub surrounded by 34 villages, meaning everything comes through here...mail, groceries, passengers, etc. before going to a village. If you look at a map of Alaska you will see the various hubs, going from southwest to the far north, Dillingham, Bethel, Kotzebue, Nome, and Barrow. (there's your geo lesson for today) We have a small, quite modern hospital with 8 family practitioner MDs on staff. One of these docs is going to help me evaluate my O2 needs this afternoon. Looks like I may need to go to continuous instead of intermittent. I've been here for 23 years and have felt fortunate to be able to live in what I describe as paradise. However,

"where-I-live" now plays a huge part in the treatment of my disease. I am still working to reconcile that.....I know there is a balance. The thought of having to move to receive treatment is unacceptable at this point in time. Down side.........Plumo rehab is available in Anc....not here.....back in 2004 when I was in chemo and radiation I had to stay in Anc for 11 weeks, camping with friends, etc. There were times when I wondered if it was worth it and there was an "end-time" to that treatment. Gettin' a bit whiney here.....there is a sunrise going on right now that is postcard quality. I'm not necessarily a religous man but here God's handiwork is everywhere, everyday. Someone wrote about the "gifts of this disease". It is visible to me everyday. I am soooooo thankful for this board !! jim IPF

05 alaska Sher Bauman wrote: Jim... apologies to your wife but what a wonderful post to read this morning first thing! I'm so thrilled your new dr was a pleasant experience for you and Eva. As you wrote, all in all a GOOD trip! I'm sure this good dr will monitor the 'alarming number' closely. How far is it for you to go to Alaska to see him? Is this where all your pfts will now be done? I was a smoker too but for me, I hated the smell of tobacco and when I undressed I could smell myself. That did it for me. Many years later I started again...with a drink in my hand of course but stopped again in a few weeks. Smoking is a damn hard habit to break>first physically and then mentally. I agree with Eva, prayer is so powerful. I'm glad we are on a board that prays for one another,

regularly! What good news you are clean, Jim. may you stay clean. Your post has really brightened my day. Don't fret about tomorrow, God is already there!

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sandie.....one more smoking story.......if you know teenagers now-a-days, you know they are very hard, if not impossible, to impress. Downstairs from my office is an "Alternative School" where they take the kids that drop out or get kicked out of conventional hi-school. They stand out on the porch and smoke, right under the "No Smoking" sign. One day I left the building and had to walk right through them. As I did I commented, "Damn, that smells really good". One of the kids says, "Do you want one". Without stopping or even slowing down I said "oh no, I can't, I have lung cancer". When I got in my truck to drive away I glanced over at them......mouths agape, jaws dropped......mentally I did the pumping arm gesture and went "YES"!! One of life's precious little moments jim IPF 05 alaska stokh24761 wrote: Jim, WONDERFUL news. I was just thinking of you last night. I was at my part time job and we have a fellow that comes in for pizza all the time and he has a cabin in Alaska like a 5 hour drive from Anchorage and 250 miles from any town, something about his neighbors have one of those fish baskets and when someone doesnt take the fish from their shift his neighbor calls him to take it. Apparently he goes up there for 6 weeks at a time. I thought

no wonder why Jim lives where he does, just amazing!I am so glad that the pulmo doc is someone you like and that he spent so much time with you, that is even better. the time they spend with you to get all your questions answered. Even happier about getting off that pred and all those other drugs. That should help you too.Glad you are back!Oh about the smoking thing, I quit 6 months ago tried a couple other times through out my 23 years of smoking never made it work thought I would never quit now I still have the cravings all the time but the smell does make me sick. If I picked up a smoke I probably would just keep smoking...Sandie >> Hello everyone, I am new to this and I am not sure I even belong here> in this group

since My condition allows me much more freedom. I am a> follicular bronchiolitis patient with radiation induced fibrosis and a> partially paralized right diaphram. My O2 sats at rest are 91%, but any> exercise, including walking, just drops it like a rock down into the> low 80's. my resting heart rate is 107. But in reading the chat I have a> long ways to go to be like everyone. I am still trying to understand> what all this really means to me and my health so any insights would be> great.> > Jeff allred> > (unknown)> > > > > > I've been out of circulation for about a week. Nothing like coming home> to 800+ emails.....I must confess that I did not read them all. Hence,> my question........what is CPAP and BIPAP? I can only imagine how much> important stuff I missed. My news......the HRCT showed no advancement of> the IPF.PFT numbers are pretty much the same except for the DCLO> (DLCO??), you know what I mean. That number is alarming. That is only> one of the follow-up questions that I didn't get to ask. Why the problem> with the exchange, carbon dioxide for oxygen? We really liked the new> pulmonologist. As a "new patient" they'd scheduled an hour appointment.> He spent almost 2 hours with us. I had a list of

questions, but didn't> get all of them answered simply because we did so much yakking. He was> genuinely impressed with the list of questions, kept saying so, kept> telling Eva "I wish all my patients were like this". The "like this" is> a DIRECT result of what I have learned here, folks, thank you very much> !!! What a relief.....going to Anchorage to meet a new doc and have him> turn out to be great, knowledgeable, honest and open. He stopped the> azathiaprine and prednisone......the imuran immediately, the prednisone> titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that those> drugs are meant for a 6 month trial only, and I've been on them alot> longer than that. Didn't address the question - - prednisone for PF vs> IPF. I'll be really glad to be off the stuff. I believe it saved my life> a couple years ago, but things have changed.

Also saw the chemo> Oncologist....he proclaimed me to still be clean. All in all.... a> pretty good trip. Eva says it is all the prayer, bless her heart, I'm> certainly not one to argue with her. > > On the subject of smoking........Ohhhhhh, I'm jones'n already. I smoked> for 28 years. Had been trying to quit for more than 2 years, using> patches and Zyban (wellbutrin) off and on. Then they found this lymph> node the size of an egg in the middle of my chest, biopsy showed it to> be malignant....dx....lung cancer. Amazing..........haven't had a> cigarette since that day in August, 2004. I actually tried to have a> cigarette in October 2004, but by that time the radiation had trashed my> lungs and I couldn't physically get the smoke down, hurt bad. And that> was it. I was talking to a class of hi-school juniors and seniors

about> a year ago, told them that story. One of the little wise-asses> asked...." If you could, would you?" I had to tell the truth......"I> don't know, probably". I still crave, I still love the smell, but I am> SO thankful that I quit, and I will never start again. The physical> addiction part is actually the easiest part to deal with. It's the> mental part that, at my age, will never go away. Somebody here suggested> to delay having a smoke for an hour. I've heard that the actual craving> only lasts a matter of seconds. However, if they come every 3> minutes........... Maybe 20 years ago I was living in a house with a> lady and 2 children. I kept passing out, after tests for a week it was> found to be carbon monoxide poisoning. The doctor called and said> "first, go open all the windows, then I'll tell you what's wrong with> you". I asked why the

other people in the house weren't effected and he> told me that, by virtue of the fact that I was a smoker, I carried 50%> of a lethal dose of carbon monoxide in my bloodstream at all times. True> or not, I stopped smoking at that very moment........no withdrawal, no> craving, no moods, no nothin'. I was off the cigarettes for almost 5> months. Then I went to Australia....... and one night my friends and I> enjoyed several Toohey's Olds, followed by several drops of tawny> port.....next thing I know I'm working on a pack of Winfields. Did you> know that they have cigarettes Down There that have 50 cigs to a pack??> Sorry ........negative advertising, I know. Truth is that I was just> looking for an excuse to start smoking again. > > I've gone on.....and on and on.....oh well!! I missed you guys !!!> > jim IPF 05>

alaska> > > > _____ > > Looking for last minute shopping deals? Find> <http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsear> ch/category.php?category=shopping> them fast with Yahoo! Search.>

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sandie.....one more smoking story.......if you know teenagers now-a-days, you know they are very hard, if not impossible, to impress. Downstairs from my office is an "Alternative School" where they take the kids that drop out or get kicked out of conventional hi-school. They stand out on the porch and smoke, right under the "No Smoking" sign. One day I left the building and had to walk right through them. As I did I commented, "Damn, that smells really good". One of the kids says, "Do you want one". Without stopping or even slowing down I said "oh no, I can't, I have lung cancer". When I got in my truck to drive away I glanced over at them......mouths agape, jaws dropped......mentally I did the pumping arm gesture and went "YES"!! One of life's precious little moments jim IPF 05 alaska stokh24761 wrote: Jim, WONDERFUL news. I was just thinking of you last night. I was at my part time job and we have a fellow that comes in for pizza all the time and he has a cabin in Alaska like a 5 hour drive from Anchorage and 250 miles from any town, something about his neighbors have one of those fish baskets and when someone doesnt take the fish from their shift his neighbor calls him to take it. Apparently he goes up there for 6 weeks at a time. I thought

no wonder why Jim lives where he does, just amazing!I am so glad that the pulmo doc is someone you like and that he spent so much time with you, that is even better. the time they spend with you to get all your questions answered. Even happier about getting off that pred and all those other drugs. That should help you too.Glad you are back!Oh about the smoking thing, I quit 6 months ago tried a couple other times through out my 23 years of smoking never made it work thought I would never quit now I still have the cravings all the time but the smell does make me sick. If I picked up a smoke I probably would just keep smoking...Sandie >> Hello everyone, I am new to this and I am not sure I even belong here> in this group

since My condition allows me much more freedom. I am a> follicular bronchiolitis patient with radiation induced fibrosis and a> partially paralized right diaphram. My O2 sats at rest are 91%, but any> exercise, including walking, just drops it like a rock down into the> low 80's. my resting heart rate is 107. But in reading the chat I have a> long ways to go to be like everyone. I am still trying to understand> what all this really means to me and my health so any insights would be> great.> > Jeff allred> > (unknown)> > > > > > I've been out of circulation for about a week. Nothing like coming home> to 800+ emails.....I must confess that I did not read them all. Hence,> my question........what is CPAP and BIPAP? I can only imagine how much> important stuff I missed. My news......the HRCT showed no advancement of> the IPF.PFT numbers are pretty much the same except for the DCLO> (DLCO??), you know what I mean. That number is alarming. That is only> one of the follow-up questions that I didn't get to ask. Why the problem> with the exchange, carbon dioxide for oxygen? We really liked the new> pulmonologist. As a "new patient" they'd scheduled an hour appointment.> He spent almost 2 hours with us. I had a list of

questions, but didn't> get all of them answered simply because we did so much yakking. He was> genuinely impressed with the list of questions, kept saying so, kept> telling Eva "I wish all my patients were like this". The "like this" is> a DIRECT result of what I have learned here, folks, thank you very much> !!! What a relief.....going to Anchorage to meet a new doc and have him> turn out to be great, knowledgeable, honest and open. He stopped the> azathiaprine and prednisone......the imuran immediately, the prednisone> titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that those> drugs are meant for a 6 month trial only, and I've been on them alot> longer than that. Didn't address the question - - prednisone for PF vs> IPF. I'll be really glad to be off the stuff. I believe it saved my life> a couple years ago, but things have changed.

Also saw the chemo> Oncologist....he proclaimed me to still be clean. All in all.... a> pretty good trip. Eva says it is all the prayer, bless her heart, I'm> certainly not one to argue with her. > > On the subject of smoking........Ohhhhhh, I'm jones'n already. I smoked> for 28 years. Had been trying to quit for more than 2 years, using> patches and Zyban (wellbutrin) off and on. Then they found this lymph> node the size of an egg in the middle of my chest, biopsy showed it to> be malignant....dx....lung cancer. Amazing..........haven't had a> cigarette since that day in August, 2004. I actually tried to have a> cigarette in October 2004, but by that time the radiation had trashed my> lungs and I couldn't physically get the smoke down, hurt bad. And that> was it. I was talking to a class of hi-school juniors and seniors

about> a year ago, told them that story. One of the little wise-asses> asked...." If you could, would you?" I had to tell the truth......"I> don't know, probably". I still crave, I still love the smell, but I am> SO thankful that I quit, and I will never start again. The physical> addiction part is actually the easiest part to deal with. It's the> mental part that, at my age, will never go away. Somebody here suggested> to delay having a smoke for an hour. I've heard that the actual craving> only lasts a matter of seconds. However, if they come every 3> minutes........... Maybe 20 years ago I was living in a house with a> lady and 2 children. I kept passing out, after tests for a week it was> found to be carbon monoxide poisoning. The doctor called and said> "first, go open all the windows, then I'll tell you what's wrong with> you". I asked why the

other people in the house weren't effected and he> told me that, by virtue of the fact that I was a smoker, I carried 50%> of a lethal dose of carbon monoxide in my bloodstream at all times. True> or not, I stopped smoking at that very moment........no withdrawal, no> craving, no moods, no nothin'. I was off the cigarettes for almost 5> months. Then I went to Australia....... and one night my friends and I> enjoyed several Toohey's Olds, followed by several drops of tawny> port.....next thing I know I'm working on a pack of Winfields. Did you> know that they have cigarettes Down There that have 50 cigs to a pack??> Sorry ........negative advertising, I know. Truth is that I was just> looking for an excuse to start smoking again. > > I've gone on.....and on and on.....oh well!! I missed you guys !!!> > jim IPF 05>

alaska> > > > _____ > > Looking for last minute shopping deals? Find> <http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newsear> ch/category.php?category=shopping> them fast with Yahoo! Search.>

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Jim,

I love it!

I hope even one of those dopey kids got it! One of my sweet grandsons started smoking. It breaks my heart. You would think they would be smarter than our generation.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Hello everyone, I am new to this and I am not sure I even belong > here> > in this group since My condition allows me much more freedom. I am a> > follicular bronchiolitis patient with radiation induced fibrosis > and a> > partially paralized right diaphram. My O2 sats at rest are 91%, but > any> > exercise, including walking, just drops it like a rock down into > the> > low 80's. my resting heart rate is 107. But in reading the chat I > have a> > long ways to go to be like everyone. I am still trying to understand> > what all this really means to me and my health so any insights > would be> > great.> > > > Jeff allred> > > > (unknown)> > > > > > > > > > > > I've been out of circulation for about a week. Nothing like coming > home> > to 800+ emails.....I must confess that I did not read them all. > Hence,> > my question........what is CPAP and BIPAP? I can only imagine how > much> > important stuff I missed. My news......the HRCT showed no > advancement of> > the IPF.PFT numbers are pretty much the same except for the DCLO> > (DLCO??), you know what I mean. That number is alarming. That is > only> > one of the follow-up questions that I didn't get to ask. Why the > problem> > with the exchange, carbon dioxide for oxygen? We really liked the > new> > pulmonologist. As a "new patient" they'd scheduled an hour > appointment.> > He spent almost 2 hours with us. I had a list of questions, but > didn't> > get all of them answered simply because we did so much yakking. He > was> > genuinely impressed with the list of questions, kept saying so, kept> > telling Eva "I wish all my patients were like this". The "like > this" is> > a DIRECT result of what I have learned here, folks, thank you very > much> > !!! What a relief.....going to Anchorage to meet a new doc and have > him> > turn out to be great, knowledgeable, honest and open. He stopped the> > azathiaprine and prednisone......the imuran immediately, the > prednisone> > titrate down 5 mg every 2 weeks. I'm at 15 now. He tells me that > those> > drugs are meant for a 6 month trial only, and I've been on them alot> > longer than that. Didn't address the question - - prednisone for PF > vs> > IPF. I'll be really glad to be off the stuff. I believe it saved my > life> > a couple years ago, but things have changed. Also saw the chemo> > Oncologist....he proclaimed me to still be clean. All in all.... a> > pretty good trip. Eva says it is all the prayer, bless her heart, > I'm> > certainly not one to argue with her. > > > > On the subject of smoking........Ohhhhhh, I'm jones'n already. I > smoked> > for 28 years. Had been trying to quit for more than 2 years, using> > patches and Zyban (wellbutrin) off and on. Then they found this > lymph> > node the size of an egg in the middle of my chest, biopsy showed it > to> > be malignant....dx....lung cancer. Amazing..........haven't had a> > cigarette since that day in August, 2004. I actually tried to have a> > cigarette in October 2004, but by that time the radiation had > trashed my> > lungs and I couldn't physically get the smoke down, hurt bad. And > that> > was it. I was talking to a class of hi-school juniors and seniors > about> > a year ago, told them that story. One of the little wise-asses> > asked...." If you could, would you?" I had to tell the truth......"I> > don't know, probably". I still crave, I still love the smell, but I > am> > SO thankful that I quit, and I will never start again. The physical> > addiction part is actually the easiest part to deal with. It's the> > mental part that, at my age, will never go away. Somebody here > suggested> > to delay having a smoke for an hour. I've heard that the actual > craving> > only lasts a matter of seconds. However, if they come every 3> > minutes........... Maybe 20 years ago I was living in a house with a> > lady and 2 children. I kept passing out, after tests for a week it > was> > found to be carbon monoxide poisoning. The doctor called and said> > "first, go open all the windows, then I'll tell you what's wrong > with> > you". I asked why the other people in the house weren't effected > and he> > told me that, by virtue of the fact that I was a smoker, I carried > 50%> > of a lethal dose of carbon monoxide in my bloodstream at all times. > True> > or not, I stopped smoking at that very moment........no withdrawal, > no> > craving, no moods, no nothin'. I was off the cigarettes for almost 5> > months. Then I went to Australia....... and one night my friends > and I> > enjoyed several Toohey's Olds, followed by several drops of tawny> > port.....next thing I know I'm working on a pack of Winfields. Did > you> > know that they have cigarettes Down There that have 50 cigs to a > pack??> > Sorry ........negative advertising, I know. Truth is that I was > just> > looking for an excuse to start smoking again. > > > > I've gone on.....and on and on.....oh well!! I missed you guys !!!> > > > jim IPF 05> > alaska> > > > > > > > _____ > > > > Looking for last minute shopping deals? Find> > > <http://us.rd.yahoo.com/evt=51734/*http://tools.search.yahoo.com/newse> ar> > ch/category.php?category=shopping> them fast with Yahoo! Search.> >> > > > > > > ---------------------------------> Never miss a thing. Make Yahoo your homepage.>

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Ok Baby Girl. Whats up??? I haven't heard from you for a while. I'm starting to feel like the wicked step mother.I know your sooo busy. Always know I love you and am thinking of you.Merry Christmas and Happy New Year. Kiss the kids and Chuck for me. And (((((((((@))))))))))) Hugs & kisses for you. Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." happy holidays everyonebest wisheslove jaime

[Guest guest]

Happy Holidays to you !

Sandie

>

> happy holidays everyone

>

> best wishes

>

> love jaime

>

[Guest guest]

Hi , Yes it is. The weather is beautiful right now, sunny and bright and the ocean is sparkling and if you are planning to visit I have room! Sarcoid/PF 3/2006 California

(unknown)

Who is it that lives in Carlsbad, CA......was that you ? Never miss a thing. Make Yahoo your homepage.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hi , Yes it is. The weather is beautiful right now, sunny and bright and the ocean is sparkling and if you are planning to visit I have room! Sarcoid/PF 3/2006 California

(unknown)

Who is it that lives in Carlsbad, CA......was that you ? Never miss a thing. Make Yahoo your homepage.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.