Re: (unknown)

[Guest guest]

Tricia wrote:

>Hi all. My name is Tricia, I'm 34 with lupus and just recently have

>some problems with diabetes.

>

Welcome to the list. Sorry about the lupus. Sorry about the

diabetes too.

>I'm sorry this is so long but I'm

>finally coming to the realization that I've got myself into a huge

>hole that is going to take quite a while to climb out and I'm feeling

>a little overwhelmed and thought some of you might understand.

>

Climbing out of the hole may not be as hard as you expect.

It's mostly a matter of attitude. Once you get your hear straight,

everything else is manageable.

> I

>have lupus and have taken prednisone for 15 years and have developed

>15 years of crazy, bad eating habits. Well, needless to say, I'm on

>a much lower dose of pred. but there sure is a lot more of ME to lug

>around which has caused me to have problems off and on with my blood

>sugar levels.

>

Of course, the weight gain may be a factor in glucose control,

but your biggest problem is the prednisone. Steroids are hell on

glucose control, as you probably already know. In fact, steroids can

cause diabetes. I won't doubt you if you say you have bad eating

habits, but bear in mind that nothing you take gave you diabetes.

>...never taken injections but used

>different types of pill insulin

>

This is just a technical point. There are several different

pills for diabetes these days, however, none of them is actually

insulin. Insulin is destroyed by the digestive system, so it doesn't

come in pill form. There are several different pills that come under

several different brand names which stimulate the pancreas to make more

insulin than it otherwise would. These are called sulfonylureas and

most of them have been around for many years. The sulfs work for a few

hours at a time. Two other drugs, Starlix and Prandin, also stimulate

the pancreas, but do it for a much shorter time, roughly 2 hours, which

makes them good for covering mealtimes. Glucophage inhibits the liver

from releasing as much stored glucose as it normally does. Then there

are Actos and Avandia which makes your insulin more effective. As you

see, these pills work in a variety of different ways. That allows you

and your doctor to pick the right drugs for your particular situation.

> I was very good about watching what I ate, really

>started exercising and everything but, lately, I've become so sloppy

>about everything. Want a coke? Sure! Want a cookie? Sure!

>

We all slip off the wagon from time to time. I was pretty good

for the first 8 years, but this 9th year has seen me get careless and

dispirited. It can be hard sometimes.

>They had already

>called a lab in Oregon where I'm visiting (I live in CA) for the

>Holidays to set up a fasting for tomorrow

>

That's pretty unusual, isn't it? Why's he managing your life

from out-of-state? He couldn't want for you to return to California?

>because my last blood sugar was 277. That's pretty high, isn't it?

>

Yes, it's high, but you know, there are people out there with

300's and 400's all the time. Your 277 isn't so high that you can't

fix it.

>I don't check sugars at home

>because I've never had any major problems keeping things under check

>with oral insulin.

>

You may be mistaken there. Testing is like driving a car. You

have to keep your eyes on the road so you'll know how you're doing.

Bill Cosby has a comedy routine about when he was in college and driving

somewhere to see his girlfriend. He was really sleepy and found himself

thinking, " Well, the road is straight and I've go the car pointed

straight.......maybe I could just shut my eyes for a few minutes..... "

Testing is like that. Unless you know where you are and how you're

doing, then you're not in control.

>But I'm taking an oral insulin now (Avandia)and

>it doesn't seem to be enough anymore since my diet has totally gone

>to pot and now I'm afraid I'll have to go the injection route because

>of the actions that perhaps I should have taken but didn't.

>

Yeah, unfortunately, diet is pretty important. You need to get

some kind of discipline there. And while it's unpopular, exercise is

extremely helpful in lowering our BGs. Exercise also make you feel

better. Then on top of that, you have the additional problem of the

prednisone, which increases your BGs and makes control much more

difficult. You said you're on a small dose. I hope it's really small.

>..but it

>honestly just dawned on me that the actions that I do or don't do

>with my body now can have a serious effect on my body 10 years down

>the road. Very scary.

>

Well, that's the thing. It really *is* scary. If you want a

long litany of the bad things that can happen to you, just say the word,

but, yeah, it's about as scary as it can get. The good thing is that

it's mostly under your own control. Diabetes is a really great disease

to have. I mean, if you have to have anything at all. With most other

diseases, you have to hope your doctor is competent and let him decide

what's best for you. You become completely passive and wait for things

to happen to you. But with diabetes, we do most of the care

ourselves. If we get informed and educated, then we can make our own

choices about what we need to do and then decide what's best for

ourselves. In that regard, diabetes is pretty cool.

>Would seeing a nutritionist and getting a set meal plan be a good

>start as well as start going to the gym again? Have you all seen

>nutritionists? I usually see just one doctor for everything because

>of my lupus but he feels its time to really set a plan of attack and

>get my butt back on track and I need someone specialized to help with

>that.

>

Sure, if you want to do this thing right, then you need to start by

seeing another doctor. For diabetes care, you should be seen by a

diabetes expert. That means an endocrinologist. The typical general

practitioner will tell you that diabetes is easy and any doctor can

handle it, but mailing lists like this see far too many posts from

diabetics who have received incompetent care from those doctors. See

an expert and get started right.

It might also be a good idea to see a professional for diet

counseling. This is just a technical point again, but you need to see

a Registered Dietitian, not a nutritionist. RD's receive specialized

training and receive certification from the State. Anyone, whether or

not they have training, can hang a shingle and call themselves a

" nutritionist. " There is no training and the state does not regulate

nutritionists. See a Dietitian.

You should also be aware that there are basically two schools of

thought on the " diabetic diet. " The American Diabetes Association

(the official organization for diabetes) feels there is no special diet

required for diabetics. This is the approach the dietitian will teach

you. She will talk to you about a balanced diet, food exchanges and

reducing your calories, etc. However, the alternative approach is the

low-carb approach, which many diabetics follow anyway. Carbohydrates

increase our BGs, so by eating fewer carbs, you keep your BGs lower and

reduce your need for medication etc. The dietitian will tell you to

avoid this approach, but many find it extremely valuable.

And yes, got back to the gym. Exercise is extremely important and

helpful in controlling bgs. Exercise will also make you feel better

--- at least in most people. I'm not sure how lupus affects exercise.

Check with your doctor on that one. But if you can, exercise as much as

you can.

And of course, you have the extra problem of prednisone which can

cause dramatic rises in your BGs. Getting control is much harder when

taking steroids. This is a reason you should consider insulin.

Insulin is the quickest and most effective way of handling a high bg.

The modern approach is to take multiple shots per day. You take a long

acting insulin such as Lantus which will cover your basal metabolism all

day. That's just one shot. Then you take a short acting insulin like

Humalog to cover each meal or any high spike. This will require several

tests a day. But you may like what that gives you. You'll have better

control. You won't have to face all those terrible things we all fear

will happen to us. and you'll be able to have those cookies whenever

you want. Insulin gives you much more freedom with your diet. If you

eat chocolate cake, you can just cover the carbs with insulin and your

BGs remain controlled. It's the most powerful and flexible way to

manage your diabetes.

And it's important to know that while many people have needlephobia,

today's needles and injection methods are nearly painless. Despite

what it looks like, injection is more comfortable than testing. Most

of the time it's nearly painless. Most of the insulin users tell us

that jabbing your finger for a test is much more painful than an

injection, and most of them go on to say they wish they'd started years

earlier. And recently research has found that new diabetics who are

started on insulin immediately, tend to preserve their beta cell

function longer than those who don't, so using insulin is healthier.

Never too soon to start.

>It's more disappointment in myself for not

>taking care of myself when I should have and having to deal with the

>consequences of that now.

>

The past is not important. What's important is what you're going

to do today and tomorrow.

Edd

[Guest guest]

I'm

visiting family in Oregon for the holidays and was sure surprised to

get a call at my mom's this morning from my doctor. They had already

called a lab in Oregon where I'm visiting (I live in CA) for the

Holidays to set up a fasting for tomorrow because my last blood sugar

was 277. That's pretty high, isn't it? I don't check sugars at home

because I've never had any major problems keeping things under check

with oral insulin.

Tricia,

I'd say the first thing you should do is get a blood sugar monitor and

start checking your blood sugar at home. You might want to get a

prescription for it, so your insurance will cover it. Mine still didn't

until my doctor wrote a letter to the insurance company.

But I'm taking an oral insulin now (Avandia)and

it doesn't seem to be enough anymore since my diet has totally gone

to pot and now I'm afraid I'll have to go the injection route because

of the actions that perhaps I should have taken but didn't.

Try a low carb diet and exercise at least half an hour a day, and see what

happens. I think you'll be pleasantly surprised. At the very least, you'll

feel much better. When I say low carb, I don't mean just protein... low

carb and lots of low carb veggies. As I believe it was Cheeky said, read

Bernstein's book. You'll feel a lot better and know that you can do

something about it.

Sandy

[Guest guest]

, If you already know that your

level goes so low as to 77/78 you must be on O2.

You are causing damage to all the cells in your body.

I'm sorry I didn't say Hello first!!!!

It's so important that you not fight the O2 . We all understand your

reluctance to use the O2, but you need it.

What is your DX? How did the Docs mmake the DX? Where are you? and what

else can you share about you?

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

claire smith wrote:

Hi, am new at this. i was diagnosed with pf 1 year ago, also

emphzema. has not progressed much as of July. Don't really know what to

expect. don't really like doc. I am supposed to use oxygen at 2 for

exercise and I have resisted but i feel I need to. going to mailbox or

up stairs my level goes to about 77-78. I guess that is not good.

considering moving downstairs to den but feel like i am giving in. Know

I am rambling but not sure what to ask. Is progression very individual?

Glad for some answers.

Looking for last minute shopping deals?

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[Guest guest]

Judy, Awesome news! Have you started rehab yet? LeanneJudy Brown wrote: mama sher: i don't have any medical insurance but i wanted to go to Pulmonary rehab. I talked with my dr. and he said he'd gladly refer me. he said i might have to make mo. payments though. when i went to the orientation, they told me i would be given a schlorship so it would

be free for me! one thing i have learned is there seems to be ways around most things. a lot of places have money given to them for such things. when i needed my oxygen, my dr. called up the place he deals with and they provide it to me free of charge. they told me because he refers so many patients to them, when he has one with no insurance, they cover it. i get wonderful service and no one treats me like a freebie. it doesn't hurt to inquire as to whether your rehab place has funds to cover you. good luck! Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Leanne: I start this friday! i'm really excited even though my DLCO

was 9.9..scares me at this point..what do you think? i'm trying to

find my way into the group. vicky and i have been emailing. how are

you? i heard you are too well for a transplant? is that good news? it

seems like it is!!

judybrown63, IPF, 4/07, SC

> mama sher:

> i don't have any medical insurance but i wanted to go to

Pulmonary rehab. I talked with my dr. and he said he'd gladly refer

me. he said i might have to make mo. payments though. when i went to

the orientation, they told me i would be given a schlorship so it

would be free for me! one thing i have learned is there seems to be

ways around most things. a lot of places have money given to them for

such things. when i needed my oxygen, my dr. called up the place he

deals with and they provide it to me free of charge. they told me

because he refers so many patients to them, when he has one with no

insurance, they cover it. i get wonderful service and no one treats

me like a freebie. it doesn't hurt to inquire as to whether your

rehab place has funds to cover you. good luck!

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

[Guest guest]

Judy... thanks for this info. It did not occur to me to inquire if there are available funds to cover. I'm presuming there are not, only because my RT knows me pretty well. I've done rehab with her a couple of times and now that I'm unable to continue I think she would have mentioned it but I will inquire.

Thanks again.

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

(unknown)

mama sher:

i don't have any medical insurance but i wanted to go to Pulmonary rehab. I talked with my dr. and he said he'd gladly refer me. he said i might have to make mo. payments though. when i went to the orientation, they told me i would be given a schlorship so it would be free for me! one thing i have learned is there seems to be ways around most things. a lot of places have money given to them for such things. when i needed my oxygen, my dr. called up the place he deals with and they provide it to me free of charge. they told me because he refers so many patients to them, when he has one with no insurance, they cover it. i get wonderful service and no one treats me like a freebie. it doesn't hurt to inquire as to whether your rehab place has funds to cover you. good luck!

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

This member has been placed on moderation so we can check their messages before they get to the group.

It looks like Gee Gee has a virus or something

----- Original Message -----

From: GeeGee

[Guest guest]

Dennis Humphries wrote:

> http://2doors. ...

Dennis,

It looks like your computer has been invaded by a spam bot.  I've

put you on moderation so that we can intercept any more spam

before it hits the mailing list.

Hopefully, one of the anti-virus programs will clear it for you.

Good luck with it.

    Alan

[Guest guest]

Dennis I just saw your post, it led to an ad, are you serious?

To: ProstateCancerSupport ; krigby@...; dobie041151@...; flyinrex@...; xappo100@...; vwilli06@... Sent: Thursday, July 19, 2012 9:39 AMSubject: (unknown)

http://2doors.zoupe.com/wp-content/plugins/zapocnaouqe/work.php?highest231.php

[Guest guest]

No. I think he was hacked. (¯`v´¯).`·.¸.·´ ¸.·´¸.·´¨) ¸.·*¨)(¸.·´ (¸.·´ .·´ ¸ JackieTo: ProstateCancerSupport From: garyweb50@...Date: Thu, 19 Jul 2012 11:21:30 -0700Subject: Re: (unknown)

Dennis I just saw your post, it led to an ad, are you serious?

To: ProstateCancerSupport ; krigby@...; dobie041151@...; flyinrex@...; xappo100@...; vwilli06@... Sent: Thursday, July 19, 2012 9:39 AMSubject: (unknown)

http://2doors.zoupe.com/wp-content/plugins/zapocnaouqe/work.php?highest231.php