Lori

[Guest guest]

i love that one too:) ALMOST posted it but i found this one. Thanks Jeff,

great memories

Lori

>

> oh Geezzzzzzz, do you remember this one anyone??

>

> Let Me Love You Tonight

> Pure Prairie League

>

> Im sure i would if i could hear it lori, but this is the only Pure Prairie

> League dong I remember.

>

> Amie

> Pure Prarie League

> (Craig Fuller)

> from the 1972 LP " Bustin' Out "

>

> I can see why you think you belong to me

> I never tried to make you think, or let you see one thing for yourself

> But now your off with someone else and I'm alone

> You see I thought that I might keep you for my own

>

[Guest guest]

Lori,

Cartilage transplants are out of the question as RP attacks

cartilage. They are going to use some sort of foreign material for

her nose surgury. went to see her rheumy a couple of days ago

and he says that he is actively researching RSD in kids. Her rheumy

is at our local childrens hospital and seems to be doing good with

. The seminar is this weekend and we are looking forward to

learning all we can. He has said no to blocks for now as they still

do not know how it would affect her RP.

has not been in school for weeks now. All of her teachers are

wonderful at emailing my mom her home work. But they are now saying

(even though she has excellent grades) that she will have to go on

home studys. She is so sad not to be able to go to school.

I want to tell you and everyone else how brave I think you all are

for fighting so hard. is a fighter but having two disabling

diseases is pretty rough for anyone especially a teenager.

I was 16 when my mom had and I got to watch her be born and

grow up all of these years. I hate these @$!%!@ diseases. It is so

hard to watch and not be able to do a damn thing.

Anyway sorry for venting so long.

Please take care and I hope you are feeling well today.

Jonas

[Guest guest]

Laurie,

Thank you for the advice, Believe me, I know there is no such thing as taking me off the narcs and then putting me back on. If I would see her on the street I would ring her neck I think....lol. I told her that she was completely wrong to offer that kind of advice. Of course now she is being very nasty with me again but it was so wrong. I am not doing the treatment program. The RSD Specialist agreed with me about the pain med issue. I go see him on Monday and hope he will take over my meds as I never want to see my Neurologist again. I don't see how he can treat his patients the way he treated me throughout this whole Treatment Facility Issue - it is just not right. But I will stop now as I can type a whole lot more but already have in another e-mail. I need to stop typing novels!!

Anyway, I hear you about being condescending - that is a great word. That is how my Neurologist treats me, which is another reason I cannot stand him. I have done so much research and he treats me like I'm an idiot. Is the pain doc who is supposed to do the block the one who is condescending and who you are not comfortable with? I don't want you to have a block done by someone you don't trust - I know how much they can backfire, believe me! Just be careful, ok? I know you said that to me, and I am giving you the same advice, I just worry so much about blocks, I can't help it. Especially since Trish had the same thing happen to her with the spreading, but I know everyone is different, just want you to be careful and be comfortable with the doc who is doing it. I hope that you are feeling better today, hang in there, and thanks again for the advice. I just might report that nurse if and when I can get away from that doctor.

<hugs> Lori