Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 I dont know if it's the ProEFA, the hearing impaired preschool class, or a combination. But this Saturday Hope said her FIRST SENTENCE!!!! She was out in the living room with her sister and her dad playing. then she came walking back into the sewing room where I was working on a quilt, and clear as a bell said " Hi Mom " . She said it slow and naturally Mom came out " Ma " , but it was clear what she said. :-) We were just thrilled, and Hope's teachers at school were as well when I told them about it this morning. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 YEAH HOPE !!! That is great news !! I love seeing big jumps in progress . Don't they make all the hard work worth while! Marie:)! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hope is 3, she'll be 4 in May. She's been getting speech therapy since she was 18 months old. She was 14 months and talking fine, then started having seizures. After that it's been a long time working with her to get her even attempting to talk. Her neurologist diagnosed 'verbal apraxia' at 15 months due to the nature of her lack of speech in relation to her seizures. Toni Re: [ ] Hope big news Hi Toni, I am new to the group, but wanted to say 'wow' and congratulations! How old is your daughter? My son is 21 mos. and we have just started speech therapy. We have not had a diagnosis other than 'significant speech disorder' and some sensory integration issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Oh it was incredible. I was hand stitching a binding on a quilt when she said it. I dropped the quilt and scooped her into a big hug. She just grinned and grinned. Toni Re: [ ] Hope big news That's WONDERFUL news Toni!!! Doesn't it feel amazing?! When Hannah said her first sentence.. " where it go? " I just cried and cried. :-) Please hug your sweet girl for us and know that someone in Virginia is doing the " happy dance " with you! Hugs, LouAnne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 That's WONDERFUL news Toni!!! Doesn't it feel amazing?! When Hannah said her first sentence.. " where it go? " I just cried and cried. :-) Please hug your sweet girl for us and know that someone in Virginia is doing the " happy dance " with you! Hugs, LouAnne > I dont know if it's the ProEFA, the hearing impaired preschool class, or a combination. But this Saturday Hope said her FIRST SENTENCE!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Wow.. same with Hannah. She had her first seizure at almost 14 mos. She'll be 4 in September. Sounds like our girls have a couple of things in common! Her MRIs and EEGs have been normal, however. This past Monday her Neurologist said he no longer needed to see her. She's outgrown the seizures and all tests have been clear. The only issue still remaining is the speech, and I'm hopeful it won't be an issue for long. :-) Oh, and she's deaf in her right ear. LouAnne > Hope is 3, she'll be 4 in May. She's been getting speech therapy since she was 18 months old. She was 14 months and talking fine, then started having seizures. After that it's been a long time working with her to get her even attempting to talk. Her neurologist diagnosed 'verbal apraxia' at 15 months due to the nature of her lack of speech in relation to her seizures. > > Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Well done Hope, and what a great name. Jane. [ ] Hope big news > I dont know if it's the ProEFA, the hearing impaired preschool class, or a combination. But this Saturday Hope said her FIRST SENTENCE!!!! > > She was out in the living room with her sister and her dad playing. then she came walking back into the sewing room where I was working on a quilt, and clear as a bell said " Hi Mom " . She said it slow and naturally Mom came out " Ma " , but it was clear what she said. :-) > > We were just thrilled, and Hope's teachers at school were as well when I told them about it this morning. > > > Toni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hopefully Hannah will come around for you soon. :-) Hope still has seizures from time to time, but not nearly as bad as she did. she's on medication to stop them. Her MRI's have been clear too, but not her EEGs. Her neurologist is still saying since she was so young when they started, she has a really good chance to outgrow them. Unfortunately she might not. My father-in-law was adopted so we have no medical history from his family. For all we know seizure disorder could be common in his family and just skipped his kids. With Hope's new school she has to take her medication while she's there. I'm used to when I was in school you sent the bottle with the pharmacy label on it and a note from mom saying she needs to take it at this time. End of story. I went in the first day and had to go to the nurse to fill out a 3 page form for her to take it, and they had a page that had to be filled out by her doctor saying she needed to take it. the nurse was telling me to just drop it off at the doctor's office and bring it back. Yeah right. I'll do anything for my girls but driving 50 miles one way to the neurologist's office to have a form filled out is a little excessive. I called him and got his fax number, and gave his assistant a heads up of what they needed on the form, and the nurse faxed it to him instead. Then after I got that paper all filled out and her doctor faxed it back the day he got it, they called me yesterday to find out if she needed to eat with her medicine or drink wter with it or something. The whole time I was on the phone telling the nurse no, I just kept thinking 'what does it say on the forms? do you see a sticker saying " take with food or water " on the bottle??' A friend of mine was here when I got the phone call and she heard it all, giggling the whole time. when I got off the phone I just looked at her and said " here's your sign " . lol No wonder it took us 5 hours to get her rebate forms filled out. lol Toni Re: [ ] Hope big news Wow.. same with Hannah. She had her first seizure at almost 14 mos. She'll be 4 in September. Sounds like our girls have a couple of things in common! Her MRIs and EEGs have been normal, however. This past Monday her Neurologist said he no longer needed to see her. She's outgrown the seizures and all tests have been clear. The only issue still remaining is the speech, and I'm hopeful it won't be an issue for long. :-) Oh, and she's deaf in her right ear. LouAnne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 That's what happens when they tell mommy she wotn be able to have children, and then finds out she's pregnant. It was just appropriate to name her Hope. And her little sister is Faith. :-) toni Re: [ ] Hope big news Well done Hope, and what a great name. Jane. Quote Link to comment Share on other sites More sharing options...
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