Re: Deeming Waiver Program in Florida

[Guest guest]

Hello

I am in Florida, but no help for you. Sorry!! I will be watching to see

what responses you get. Everything I have checked into is based on income &

we don't qualify. We recently had to stop therapy to get caught up on the

bill. We are down around a little over a thousand right now, so maybe soon

can start again. It is so frustrating, seems when I call I can never get

answers. I hear of programs out there, but when looking into them no one

knows anything??? Best wishes on getting your answers. If someone post to

you privately, could you share with the list? Sorry I don't have any help

for you.

Tammy I. in FL mom to 5 1/2 apraxic, 8, 19 & 22

From: " " <orangekook@...>

Reply-

Subject: [ ] Deeming Waiver Program in Florida

Date: Thu, 19 Feb 2004 03:46:38 -0000

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[Guest guest]

I own an agency in North Carolina that provides one-on-one staffing for

children and adults who are receiving Medicaid-waiver funding. This

funding, available in some form or another in every state, is not

transferable between states. If you have a good deal in your state, do not

move! Many states have waiting lists years long. Good luck!

Janet Presson, R.N., M.Ed., President

A Small Miracle, Inc. and Mother to Robbie, 12 years old with

vaccine-induced autism

On 2/18/04 10:46 PM, " " <orangekook@...> wrote:

> Hi All:

>

> I know that there are many members of this group that live in Florida

> and might be able to answer a quick question for me. It's sometimes

> difficult finding the correct department/person at the government

> level, if you know what I mean?

>

> Anyhow, our daughter was recently accepted into the Deeming Waiver

> Program here in Georgia ( Beckett-Medicaid) to assist us with

> some of the therapy costs. I understand that this is a national

> program. If you move from one state to another, are the programs the

> same? Do you have to reapply?

>

> So far, it seems that coverage in Georgia is fair to good (we haven't

> actually used it yet) and we would hate to leave if it's not that way

> in another state...for example, Florida.

>

> Thanks in advance for any insight.

> (Mom to 3.3, apraxia, sid, hypotonia)

> Georgia

[Guest guest]

Hi ,

I spoke with the government office about Medicaid and I was told that he could

go onto the Medicaid Waiver list.

The list has 700 people ahead of us, it is not family income based, but rather

that of the affected person. The program lost funding as of 1999 and they are

trying to get people off it. Only those whose care takers are really old and

require 24 hour care are slipping into the program.

I was told to apply and who knows, we have nothing to lose.

Sorry but life here is not as nice as it is by you.

We of course do not qualify for true Medicaid, being that we do not live off the

government - shame on the working class.

Good Luck

Judy

Tammy Ingram <tammyplus4@...> wrote:

Hello

I am in Florida, but no help for you. Sorry!! I will be watching to see

what responses you get. Everything I have checked into is based on income &

we don't qualify. We recently had to stop therapy to get caught up on the

bill. We are down around a little over a thousand right now, so maybe soon

can start again. It is so frustrating, seems when I call I can never get

answers. I hear of programs out there, but when looking into them no one

knows anything??? Best wishes on getting your answers. If someone post to

you privately, could you share with the list? Sorry I don't have any help

for you.

Tammy I. in FL mom to 5 1/2 apraxic, 8, 19 & 22

From: " "

Reply-

Subject: [ ] Deeming Waiver Program in Florida

Date: Thu, 19 Feb 2004 03:46:38 -0000

[Guest guest]

- " True " medicaid is both federally and state/locally funded, and each

state can set some of the requirements, including income levels.

Anything above regular medicaid is up to each state's discretion.

This is where you see your local tax dollars at work. Some states

are very generous, while others aren't. I know in NY, you can

qualify for Care at Home Program with an income over 50,000 dollars,

BUT your child needs to have both a physical and a medical disability

(G-tube, asthma, seizure history). Don't assume all states are

equal, because they aren't. I know I have decided to stay in NY

right now, because the services via the school district are meeting

my children's needs (they don't qualify for Care at Home because they

just have speech issues). Many of the parents of medically involved

kids I treat have looked into other states, but couldn't get

comparable services-nursing at home, therapy, home modifications etc.

Look before you leap!!!!!

-- In , Hudis <hudis100@y...>

wrote:

> Hi ,

> I spoke with the government office about Medicaid and I was told

that he could go onto the Medicaid Waiver list.

> The list has 700 people ahead of us, it is not family income based,

but rather that of the affected person. The program lost funding as

of 1999 and they are trying to get people off it. Only those whose

care takers are really old and require 24 hour care are slipping into

the program.

> I was told to apply and who knows, we have nothing to lose.

> Sorry but life here is not as nice as it is by you.

> We of course do not qualify for true Medicaid, being that we do not

live off the government - shame on the working class.

> Good Luck

> Judy

>

> Tammy Ingram <tammyplus4@m...> wrote:

> Hello

>

> I am in Florida, but no help for you. Sorry!! I will be watching to

see

> what responses you get. Everything I have checked into is based on

income &

> we don't qualify. We recently had to stop therapy to get caught up

on the

> bill. We are down around a little over a thousand right now, so

maybe soon

> can start again. It is so frustrating, seems when I call I can

never get

> answers. I hear of programs out there, but when looking into them

no one

> knows anything??? Best wishes on getting your answers. If someone

post to

> you privately, could you share with the list? Sorry I don't have

any help

> for you.

>

> Tammy I. in FL mom to 5 1/2 apraxic, 8, 19 &

22

>

>

> From: " "

> Reply-

>

> Subject: [ ] Deeming Waiver Program in Florida

> Date: Thu, 19 Feb 2004 03:46:38 -0000

>

[Guest guest]

,

I am in Florida and our Mediwaiver list is over 13, 000 long (thanks Jeb

Bush!!) Also they only allow 30 people on the list per month but the 30 people

have to be crisis, so it doesn't move the 13,000 list at all...wonderful system.

We pay out of pocket for all of 's therapy and it is crippling....but

what else can we do...we meet none of the other income requirements for the

other programs....Wonderful system we have here...really takes care of our

children....

Frustrated and Angry...

Heidi

[Guest guest]

> Hi All:

>

> I know that there are many members of this group that live in

Florida

> and might be able to answer a quick question for me. It's

sometimes

> difficult finding the correct department/person at the government

> level, if you know what I mean?

>

> Anyhow, our daughter was recently accepted into the Deeming Waiver

> Program here in Georgia ( Beckett-Medicaid) to assist us with

> some of the therapy costs. I understand that this is a national

> program. If you move from one state to another, are the programs

the

> same? Do you have to reapply?

>

> So far, it seems that coverage in Georgia is fair to good (we

haven't

> actually used it yet) and we would hate to leave if it's not that

way

> in another state...for example, Florida.

>

> Thanks in advance for any insight.

> (Mom to 3.3, apraxia, sid, hypotonia)

> Georgia

Hi ,

I too live in Ga. and my son is receiving medicare for his

apraxia. He was just approved in September. He sees a private

therapist and it has been WONDERFUL not having to worry about

therapy bills. I know you said you haven't used it yet, but also

remember it covers anything medical as well. All well and sick

visits, drugs, dentist, ect. Of course as long as your doctors

accept medicare. I'm sorry I can't actually answer your question

but I wanted you to know how great it's been for us. Maybe if you

called Children's Healthcare of Atlanta and ask to speak to a

medical social worker, they may be able to answer your question. I

worked with one while I was applying and she seemed to know the

answers to many questions better than any " government level "

person. Also, you could contact Parent to Parent of Georgia and see

if someone from that service could help answer your question. The

website is www.parenttoparentofga.org Hope some of this helps. Good

luck. Robin mom to Cameron 3.3 and Cara 18 months