Re: Drug interactions, ????, Venting

[Guest guest]

Dear ,

Just loved your list of why you are happy!!! It actually made me laugh.

Have a happy holiday, (especially without your Mom!).

(mother of and )

Re: Drug interactions, ????, Venting

>

>

> Hi Kathy G.

>

> None of the drugs you listed off triggered any danger warnings in the back

> of my mind about interactions (my guys are on or have been on all the

stuff

> you listed except the enzymes and Dnase). Do you have a home copy of the

> PDR (physicians desk reference) in your house? It's pretty cheap, in

> paperback, and is a nice reference for those of us who don't trust

> pharamcists 100% (remember Jen's prozac/prillosec exchange for baby

> Josheph-- sheesh!). It tells what drugs are for, side effects, interaction

> warnings, brand and generic names, etc. Also, it's a good idea to list

off

> all the drugs your daughter's on and ask about interactions every time you

> get a new prescription (to the pharmascist and the doctor). My little ones

> are on Albuterol (neb and inhalers), Serevent, Singulair, Pulmicort,

> Beconase, Zantac, Zyrtech, Lodoxamide eye drops, Acidophilus, multi vits.,

> extra vit. C, tums for calcium, and M's on maitenance Augmentin, they both

> do lots of oral antibiotics for sinus stuff, and they both do several

bursts

> of oral Prelone a year. Like you, I've spent time thinking about what this

> " medicine soup " might do to their little bodies over all the years they're

> going to be on this stuff. Conclusion, they really need it, and there's

not

> a lot I can do about it, so try not to think about it.

>

> As for the stress of the holiday season, depression, etc., hang in there.

> Are you seeing anyone about the depression? Even if it's mild, there's a

> lot they can do to help you deal with it. Ken and I have both been there,

> and it's SO nice to get it under control. And yeah, the holidays are full

> of stress. Sort of a 's law kind of thing in my family every year--

> it's almost amusing to wait and see what the holiday drama of the year

will

> be each year. My extended family is currently having major health crises

> (like my grandmother almost died last week, had a pacemaker put in, they

> nicked a lung during the surgery; my mom's going in for surgery on a bone

> thing at the back of her head soon and is having psychotic episodes, the

> usual holiday kind of stuff).

>

> As for my own little family (the one that really counts), three of us have

> sinus infections now (Ken has yet to join the party), and I've been having

> major " discussions " with the school nurses office about actually FOLLOWING

> Kailin's asthma plan. We also had a run-in with Kailin's teacher today

> about her having unlimited access to her inhaler (even though she had

> permission from the nurse to have it in her backpack and there's a law in

WI

> allowing all kids to carry inhalers in school). The compromise is the

> teacher will keep it in her desk, which I can live with for now. I also

> gave in and scheduled an appointment with MY ENT today about the

possibility

> of doing something about my deviated septum and the damn small sinus

> drainage opening on my left side (the side that gets infected so easily).

> Fed up with being sick all the time, I then called my allergist and told

him

> I was ready to do the four years of allergy shots he'd proposed at my last

> visit. Okay, I know I'm rambling, but I am coming to a point here. The

> point, hmmmm, there was a point to all this, wasn't there? Oh yeah, the

> point is that I'm actually HAPPY. Score about a thousand points for that

> wonderful St. 's Wort stuff :-) And I'm even happy in the WINTER. I

> suck at winter, one of the reasons I tried St. 's Wort in the first

> place last year-- I always got mildly depressed in December, and it lasted

> until about March.

>

> So, why am I happy? Well, ER's new tonight, and I bought big boxes of

> cordial cherries and mints (you know, the holiday thin mints) when I did

> errands earlier. And M's doing well despite her sinus infection. And my

> mother's SO pissed off at me that I don't think she'll call again till

after

> the holiday :-) And I've got two great little muffins, and Meagan only had

a

> 1/2-hour-long tantrum today, as opposed to her two one-hour tantrums

> yesterday :-) Okay, so I'm punchy from lack of sleep.

>

> Hang in there Kathy, it'll get easier (and then harder, and then easier

> again...). Hugs!!!

>

> , mom of the Meagan and Kailin domestic crime ring ;-)

>

>

>

>

>

> At 01:42 PM 12/16/99 EST, you wrote:

> >From: KajeGood@...

> >

> >Hi (help) All,

> >

> > has had reactions of a rash to sulfa drugs in the past. It's

called

> >eurothema multiforme. An ugly rash! All over her body. Swollen

> >extremities, target like circles everywhere! I was shocked.

> >

> >Speaking of meds -- does anyone have the same concerns I do about

medicine

> >interactions? is currently taking: Beclovent (inhaled steriods

16.8

> >mg) 2 puffs 2x per day. She was on Flovent but it was too strong for

her.

> >Before that she was on another inhaled steroid. She has the unit doses

of

> >Albuterol 2x per day through the nebulizer and she has a puffer for

> >emergencies (ie:gym class) at school, The Creon 10's enzymes. She's up

to

> >the maximum dose for her weight (5 per meal 3 per snack). In addition,

we

> >recently started Zantac (15mg syrup) 3 ml 2x daily. Of course

multivitamins

> >2x per day and the most recent addition Actigall (60 mg suspension --

> >refrigerated) 4 ml 2x daily for 4 - 6 months! I'm worried it's too much

for

> >her little body to handle. Chia pestis is reeking havoc! Any ideas on

drug

> >interactions?????

> >

> >She is all gunky again so I called the Lung Center about adding some kind

of

> >antibiotic. said, " nasal mucus has been green 5 days before

starting a

> >treatment course of antibiotics " . That's not necessarily the rule in

> >Buffalo's Children's Hospital. I agree with the: " They don't want to

> >over-treat and end

> >up with more resistance. " I guess that is their philosophy however those

> >statements seem to contradict. Oh well, I'm trusting the professionals.

> >

> > We have the same trouble with the sinus bologna. Basically I am

screaming

> >here! Now they want her to complete the 14 days of cefzill and then add

a

> >Dnase treatment to her regimen. I guess this (Dnase) is a thinner of

some

> >sort. Or is this an antibiotic?

> >

> >We just started the vest last Friday. Of course 2x per day. It's not as

> >easy to use as a lot of people make it sound. Stop after albuterol

treatment

> >/ cough / stop every 15 minute automatically? / cough / etc. It's

cramping my

> >morning routine. She already gets up at 6:30 and she's only five. We

only

> >have one bathroom and there are 4 of us to get ready. Eat, dressed, blah,

> >blah, blah... I get up at 5:30, Joe 6:00 and the kids 6:30 (Ps - no

> >shower!!!!!) Joe is out of the house by 6:45 and me and the kids by

7:45.

> >It's hard. Then throw in a class of Learning disabled and mentally

retarded

> >students all day! ZOW! Jen, you are a saint!

> >

> >Don't forget I've already been diagnosed as mildly depressed. I think

all

> >this with the CF and the holidays coming up is just throwing me for a

loop.

> >

> >Get this... to top it all off had to come home from school

yesterday

> >with me of course (they couldn't find a sub until the last minute!). She

had

> >a 100 fever and was feeling sick to her stomach. After a 2 hour nap she

> >puked 2x! Then I was on the phone with the Lung Center again because I

> >wasn't sure if I SHOULD GIVE HER ENZYMES BEFORE FEEDING HER FREEZY POPS

OR

> >SALTINES! Was I just yelling? Sorry. Then... the cherry of it all, the

> >schools cookie exchange was at my house at 4PM! I could have just......

> >well, let's leave it at that. Maybe it was just one of those days.

> >

> >I took today off to stay home with her. I am praying now that

doesn't

> >get sick. Too bad I can't go shopping.

> >

> >On a lighter note. Our pageant for church is on Sunday - the kids will be

> >sheep this year. Baaaaaaaaaah. was Jesus 2 years ago (hard to top

that

> >role) and was my angel! As always. Our CF Christmas party is

Sunday

> >too. It is always really nice. Santa - gifts for everyone. Cookie

> >decorating, clowns, Sabre tooth (Buffalo Sabres mascot), pictures of the

kids

> >w/ Santa and great food! No beer though " bummer " . Maureen, I even

promised I

> >wouldn't puke! LOL

> >

> >Sorry this got so long. I of course needed to vent again. I apologize

for

> >not being there for the rest of you, but I'm going through my own stress

> >right now. My thoughts are with you all.

> >

> >Big hugs and strength to everyone now and always,

> >Kathy G. (depressed mother of 2 beautiful children - ARUGH!!!!!!!!!!)

> >

> >>***********************

> >This is a secular list.

> >***********************

> >

> >--------------------------------------------------

> >The opinions and information exchanged on this list should

> >IN NO WAY

> >be construed as medical advice.

> >

> >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

> >

> >--------------------------------------------------

> >

> >

> >

> >Come chat at our webpage! http://members.tripod.com/cfparents/

> >

> >

> >_________________________________________________

> >Post message: cfparentsonelist

> >Subscribe: cfparents-subscribeonelist

> >Unsubscribe: cfparents-unsubscribeonelist

> >List owner: cfparents-owneronelist

> >_________________________________________________

> >

> >

> >

>

> > ***********************

> This is a secular list.

> ***********************

>

> --------------------------------------------------

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

> Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

> _________________________________________________

> Post message: cfparentsonelist

> Subscribe: cfparents-subscribeonelist

> Unsubscribe: cfparents-unsubscribeonelist

> List owner: cfparents-owneronelist

> _________________________________________________

>

>

>

[Guest guest]

Well guys,

to add to the list of depressed CF moms, count me in, and on the walking

pharmacy stuff, count me and both in.

I had a day from HELL today, saw my gyn, whos great, she changed my BC pill

dose--which I am on for the endometriosis (thanks MO! I hope ya dont have it

too, Mandy!). ANYWAYS, the long suffering spousal unit, is

chaffeurring me around these days since I am on too many meds to even DRIVE.

Next we had an appt with my weird-o shrink, see I don't even KNOW this lady

and shes Iranian, her name is something weird like Ann Benemanie, and she

decided I am untrustworthy and neurotic and I dunno what all and she found

out our insurance doesnt cover inpatient psych care ---STUPID STUPID policy

but so it goes and anyways, she wanted me to go admit myself to some county

psych hospital and I got so upset I can't even tell ya'll, I was crying

hysterically, thank GOD didn't lose it and dump me at the County

nuthouse, seriously! Fortunately she did call my OWN doc and he did talk to

her and convince her I am not about to go off myself and we got to see him

today and he was SOOOOOOOOOOO NICE and he wrote Rxes for all the stuff we

need for vacation and he said just let take care of me for now and go

to Texas and have a good trip.

Thank GOD! sorry I know this list is supposed to be secular but I guess you

can yell at me , I just couldnt do all this without my faith.

love to all

from a very greatful CF MOMMY whos happy for all types of support, medical,

spiritual and friends!

MOM of 2 teens, one Princess with CF, and one Nick wonderboy without

CF and with a touch of asthma

[Guest guest]

Hey Kathy,

It's good that you hide a chia pestis and puking comment in a long post - I

guess you get to see who is paying attention! I love your sense of humour.

I've probably shown my bias over the past months, but I love it when

people who are in the middle of dealing with so much can dig deep and find

the humour and the energy to share it!

Take care of you and those sheep. I nominate you to co- train with Jen in

the Saint department. I hope that you can work through this and have a

healthy Christmas. BTW Springhill isn't too far for me to drive for beer

and wings! And, did you say, christmas cookies ...

Lots of love and warm fuzzy hugs,

Mo

At 01:42 PM 16/12/1999 EST, you wrote:

>From: KajeGood@...

>

>

>On a lighter note. Our pageant for church is on Sunday - the kids will be

>sheep this year. Baaaaaaaaaah. was Jesus 2 years ago (hard to top that

>role) and was my angel! As always. Our CF Christmas party is Sunday

>too. It is always really nice. Santa - gifts for everyone. Cookie

>decorating, clowns, Sabre tooth (Buffalo Sabres mascot), pictures of the

kids

>w/ Santa and great food! No beer though " bummer " . Maureen, I even

promised I

>wouldn't puke! LOL

>

>Sorry this got so long. I of course needed to vent again. I apologize for

>not being there for the rest of you, but I'm going through my own stress

>right now. My thoughts are with you all.

>

>Big hugs and strength to everyone now and always,

>Kathy G. (depressed mother of 2 beautiful children - ARUGH!!!!!!!!!!)

>

>>***********************

>This is a secular list.

>***********************

>

>--------------------------------------------------

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

>--------------------------------------------------

>

>

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

>_________________________________________________

>Post message: cfparentsonelist

>Subscribe: cfparents-subscribeonelist

>Unsubscribe: cfparents-unsubscribeonelist

>List owner: cfparents-owneronelist

>_________________________________________________

>

>

>

[Guest guest]

,

I think you should follow Vicki's lead and tell your family they absolutely

are not allowed to add to your stress - I do hope your mom and grandma are

doing well.

As for the inhaler at school, can't you just strap it to her leg, oh, like

say a jack knife! Seems ridiculous to me that this would be an issue.

Sheesh, silly bureaucracy silly people.

And, I was wondering about your happiness - is it really the St. 's

Wort, or the cherries, mints, phish food, candy corn, etc? I would just

really hate to pay for a homeopathic cure, when all I might really have to

do is run to the Quickie store more often!

Love ya, keep keepin' on,

Mo

>lot they can do to help you deal with it. Ken and I have both been there,

>and it's SO nice to get it under control. And yeah, the holidays are full

>of stress. Sort of a 's law kind of thing in my family every year--

>it's almost amusing to wait and see what the holiday drama of the year will

>be each year. My extended family is currently having major health crises

>(like my grandmother almost died last week, had a pacemaker put in, they

>nicked a lung during the surgery; my mom's going in for surgery on a bone

>thing at the back of her head soon and is having psychotic episodes, the

>usual holiday kind of stuff).

>

>As for my own little family (the one that really counts), three of us have

>sinus infections now (Ken has yet to join the party), and I've been having

>major " discussions " with the school nurses office about actually FOLLOWING

>Kailin's asthma plan. We also had a run-in with Kailin's teacher today

>about her having unlimited access to her inhaler (even though she had

>permission from the nurse to have it in her backpack and there's a law in WI

>allowing all kids to carry inhalers in school). The compromise is the

>teacher will keep it in her desk, which I can live with for now. I also

>gave in and scheduled an appointment with MY ENT today about the possibility

>of doing something about my deviated septum and the damn small sinus

>drainage opening on my left side (the side that gets infected so easily).

>Fed up with being sick all the time, I then called my allergist and told him

>I was ready to do the four years of allergy shots he'd proposed at my last

>visit. Okay, I know I'm rambling, but I am coming to a point here. The

>point, hmmmm, there was a point to all this, wasn't there? Oh yeah, the

>point is that I'm actually HAPPY. Score about a thousand points for that

>wonderful St. 's Wort stuff :-) And I'm even happy in the WINTER. I

>suck at winter, one of the reasons I tried St. 's Wort in the first

>place last year-- I always got mildly depressed in December, and it lasted

>until about March.

>

>So, why am I happy? Well, ER's new tonight, and I bought big boxes of

>cordial cherries and mints (you know, the holiday thin mints) when I did

>errands earlier. And M's doing well despite her sinus infection. And my

>mother's SO pissed off at me that I don't think she'll call again till after

>the holiday :-) And I've got two great little muffins, and Meagan only had a

>1/2-hour-long tantrum today, as opposed to her two one-hour tantrums

>yesterday :-) Okay, so I'm punchy from lack of sleep.

>

>Hang in there Kathy, it'll get easier (and then harder, and then easier

>again...). Hugs!!!

>

>, mom of the Meagan and Kailin domestic crime ring ;-)

>

>

>

>

>

>At 01:42 PM 12/16/99 EST, you wrote:

>>From: KajeGood@...

>>

>>Hi (help) All,

>>

>> has had reactions of a rash to sulfa drugs in the past. It's called

>>eurothema multiforme. An ugly rash! All over her body. Swollen

>>extremities, target like circles everywhere! I was shocked.

>>

>>Speaking of meds -- does anyone have the same concerns I do about medicine

>>interactions? is currently taking: Beclovent (inhaled steriods 16.8

>>mg) 2 puffs 2x per day. She was on Flovent but it was too strong for her.

>>Before that she was on another inhaled steroid. She has the unit doses of

>>Albuterol 2x per day through the nebulizer and she has a puffer for

>>emergencies (ie:gym class) at school, The Creon 10's enzymes. She's up to

>>the maximum dose for her weight (5 per meal 3 per snack). In addition, we

>>recently started Zantac (15mg syrup) 3 ml 2x daily. Of course multivitamins

>>2x per day and the most recent addition Actigall (60 mg suspension --

>>refrigerated) 4 ml 2x daily for 4 - 6 months! I'm worried it's too much for

>>her little body to handle. Chia pestis is reeking havoc! Any ideas on

drug

>>interactions?????

>>

>>She is all gunky again so I called the Lung Center about adding some kind

of

>>antibiotic. said, " nasal mucus has been green 5 days before

starting a

>>treatment course of antibiotics " . That's not necessarily the rule in

>>Buffalo's Children's Hospital. I agree with the: " They don't want to

>>over-treat and end

>>up with more resistance. " I guess that is their philosophy however those

>>statements seem to contradict. Oh well, I'm trusting the professionals.

>>

>> We have the same trouble with the sinus bologna. Basically I am screaming

>>here! Now they want her to complete the 14 days of cefzill and then add a

>>Dnase treatment to her regimen. I guess this (Dnase) is a thinner of some

>>sort. Or is this an antibiotic?

>>

>>We just started the vest last Friday. Of course 2x per day. It's not as

>>easy to use as a lot of people make it sound. Stop after albuterol

treatment

>>/ cough / stop every 15 minute automatically? / cough / etc. It's

cramping my

>>morning routine. She already gets up at 6:30 and she's only five. We only

>>have one bathroom and there are 4 of us to get ready. Eat, dressed, blah,

>>blah, blah... I get up at 5:30, Joe 6:00 and the kids 6:30 (Ps - no

>>shower!!!!!) Joe is out of the house by 6:45 and me and the kids by 7:45.

>>It's hard. Then throw in a class of Learning disabled and mentally

retarded

>>students all day! ZOW! Jen, you are a saint!

>>

>>Don't forget I've already been diagnosed as mildly depressed. I think all

>>this with the CF and the holidays coming up is just throwing me for a loop.

>>

>>Get this... to top it all off had to come home from school yesterday

>>with me of course (they couldn't find a sub until the last minute!). She

had

>>a 100 fever and was feeling sick to her stomach. After a 2 hour nap she

>>puked 2x! Then I was on the phone with the Lung Center again because I

>>wasn't sure if I SHOULD GIVE HER ENZYMES BEFORE FEEDING HER FREEZY POPS OR

>>SALTINES! Was I just yelling? Sorry. Then... the cherry of it all, the

>>schools cookie exchange was at my house at 4PM! I could have just......

>>well, let's leave it at that. Maybe it was just one of those days.

>>

>>I took today off to stay home with her. I am praying now that doesn't

>>get sick. Too bad I can't go shopping.

>>

>>On a lighter note. Our pageant for church is on Sunday - the kids will be

>>sheep this year. Baaaaaaaaaah. was Jesus 2 years ago (hard to top

that

>>role) and was my angel! As always. Our CF Christmas party is

Sunday

>>too. It is always really nice. Santa - gifts for everyone. Cookie

>>decorating, clowns, Sabre tooth (Buffalo Sabres mascot), pictures of the

kids

>>w/ Santa and great food! No beer though " bummer " . Maureen, I even

promised I

>>wouldn't puke! LOL

>>

>>Sorry this got so long. I of course needed to vent again. I apologize for

>>not being there for the rest of you, but I'm going through my own stress

>>right now. My thoughts are with you all.

>>

>>Big hugs and strength to everyone now and always,

>>Kathy G. (depressed mother of 2 beautiful children - ARUGH!!!!!!!!!!)

>>

>>>***********************

>>This is a secular list.

>>***********************

>>

>>--------------------------------------------------

>>The opinions and information exchanged on this list should

>>IN NO WAY

>>be construed as medical advice.

>>

>>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>>

>>--------------------------------------------------

>>

>>

>>

>>Come chat at our webpage! http://members.tripod.com/cfparents/

>>

>>

>>_________________________________________________

>>Post message: cfparentsonelist

>>Subscribe: cfparents-subscribeonelist

>>Unsubscribe: cfparents-unsubscribeonelist

>>List owner: cfparents-owneronelist

>>_________________________________________________

>>

>>

>>

>

>>***********************

>This is a secular list.

>***********************

>

>--------------------------------------------------

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

>--------------------------------------------------

>

>

>

>Come chat at our webpage! http://members.tripod.com/cfparents/

>

>

>_________________________________________________

>Post message: cfparentsonelist

>Subscribe: cfparents-subscribeonelist

>Unsubscribe: cfparents-unsubscribeonelist

>List owner: cfparents-owneronelist

>_________________________________________________

>

>

>

[Guest guest]

,

I loved your list of things that make you happy, too-- how about you come

make a gingerbread house for my kids?!? I just called to tell a friend that

the kids and I can NOT make it to her gingerbread house party tomorrow.

Sure, we all have sinus infections and colds, but the REAL reason is that I

just couldn't cope with the stress of designing and baking a gingerbread

house to bring along (not even the no-bake graham cracker variety), LOL.

I did do the cut-out cookies last weekend, green and red sugar sprinkles and

all, and I ended up snapping at Kailin three times for doing creatively

inappropriate things with dough and sugar sprinkles. None the less, the

cookies were YUMMY, and my monsters enjoyed eating them (as did I!).

ALL of the thin mints and cordial cherries I bought yesterday are gone. And

I did enjoy curling up and watching Friends, Frasier, and ER last night :-)

Thursday is the only night I really watch TV, and it's even better when I

have chocolate in the house.

bye,