Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Just wondering if there were any parents our there who had a child with oral/verbal apraxia and also a G-button. Due to my son's severe prematurity and lung issues, he needed to have a G-button placed in his tummy. Just wondering if there was anyone else out there I could talk to about progress, etc..... colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Colleen, My son, Chase 3.7yo, has G-Tube (mini-button) for GERD. He also has oral/verbal apraxia, which contributes to his inability to chew and manipulate food in his mouth. He is just beginning to eat very small amounts of solid foods. He's made great progress over the last year. Feel free to talk away I'm here, Kris Kris [ ] G-Button/Apraxia > Just wondering if there were any parents our there who had a child > with oral/verbal apraxia and also a G-button. Due to my son's severe > prematurity and lung issues, he needed to have a G-button placed in > his tummy. Just wondering if there was anyone else out there I could > talk to about progress, etc..... > > colleen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Dear Colleen, My son has been on a g-tube since he was 8 months old (he is now 4). We also had a fundoplycation done at the same time. Unfortunately, started to gag and retch (as a result of the fundo) so he stopped sucking on a pacifier (or anything else for that matter). He became so orally defensive that it has taken us years to get him to where he is now (he is eating puree (mostly yogurts and puddings) and we are down to one feeding at night). I wish someone would have told me back then, how important it was to continue to force a pacifier or something in his mouth to continue with the oral phase, but we just didn't know. It has been a long hard road, but we hope that one day will be an oral feeder. He also has significant speech issues (he has only sounds, no words). Sincerely, Heidi Quote Link to comment Share on other sites More sharing options...
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