Re: Does ANYONE out there have a child with this description??

March 8, 2003

Hi Carol,

I'm sorry to hear about some of the newer developments in your son

which are apparently secondary to the communication problem. I

believe Marina's advice should be looked into for this reason.

School age children do have other challenges even when not being

teased and even when doing well and making friends. Tanner is doing

wonderful at school and is a child magnet -however since he has

started learning to read -his speech has regressed and once again

has become dysfluent (stuttering) which I was told could happen each

time he has new demands on him for the rest of his life.

Tanner is not showing any secondary symptoms Like your son, however

Tanner also has hypotonia. I've found by getting Tanner into

activities he loves -he pushes himself -and thus he is strengthening

what needs to be worked on. Muscles and endurance. Tanner did love

karate -however since we moved to Florida we haven't had time for

that since there are so many other options we have found for him

that he loves. Tanner is doing more in the way of water sports like

tubing and sailing and swimming. He also loves skateboards and

roller blading and soccer. He's even learning Circus trapeze and

trampoline now from circus performers!

In spite of being able to do all of the above which is amazing for

me to watch -Tanner also comes home from school each day exhausted.

He'll sit on the couch for a second and next thing you know he's

down for the count -as early as 4:00 once in awhile! We let him sleep when he

wants to -figure he needs it.

I'm not sure if the carnosine helps with energy -Tanner is one of

the children as you know who did do amazing on the fish oils -

ProEFA. His energy level for doing activities greatly improves when

he is on the oils -everything -speech etc -regresses when off even

for a day. With carnosine and carn-aware I have definitely noticed

an increase in Tanner's imaginative speech and play.

My thoughts and prayers are with you and for what you are going

through. Marina's advice was very wise. Perhaps others including

Dr. Agin and Dr. Laveman can shed some more light your way.

We are here for you!

=====

March 9, 2003

THANKYOU for all the responses.

Marina, yes, I totally agree with you that this is his message to us that

all is not well at school....but the question is....WHAT is not well? I

have observed in his classroom, the developmental pediatrician has observed

and the teacher herself (very gentle, wonderful, kind and 22 years

experience) all report that there is " no evidence " of anything " bad "

happening to him (such as teasing, unrealistic expectations, etc.). My

feeling is, as I have watched over time, that it has to do with the number

of children in the class (22), the number of transitions during the day, the

noise level (especially at lunchtime...it is deafening)....basically the

total milieu of being in a normal happy first grade classroom...it is too

much for his nuerological system. I have said this to the school and put it

in writing and asked for assistance but they refuse to acknowledge that a

normal environment could be too much for a child like him who, as you say

puts incredible effort into holding it together while there and is so smart,

well-behaved, etc. The reason why I believe it to be the whole context

instead of isolated incidences is because of his past history: since age

three if he was in a large group situation that was not meeting his needs he

would develop some sort of odd tic-like behavior, which would immediately

decrease and then stop altogether when he was taken out of that group

situation (Jennie...I have always thought Micah sounded like Lindsey a lot,

but I refuse to believe he has OCD because of this...that they do go away

when the environment changes and also because he can be interupted in doing

them, although will go right back to doing them). The " tics " have never

been as bad as they were this fall, but we have also never made him stay in

the environment that was producing them for so many hours and months. Even

the doctor who came to observe him in school was surprised to see how social

and popular he was and claims she can't think of anything the school could

do to change his school environment (remember there are NO alternative ed.

options in the entire state of NH for a kid like him) that would help

him.....but I really question if that isn't more political (after all the

school is paying her to come and observe). , thanks for your good

wishes. I am so glad for you that Tanner is doing so well. Yes, Micah

still loves sports, although is uncoordinated and cannot balance on a bike

or swim properly yet. he was in soccer all Sept. and Oct. and is signing up

for baseball soon. cannot run as fast as peers either but sure is great on

the enthusiasm and effort part of the spectrum! Of course as he gets older

it will become more and more noticeable to peers that he " isn't carrying his

weight " and then I will probably transfer him to special olympic stuff

instead of the community programs. He also was on the proefa all fall as I

thought I would try it again. I sure wish it worked for Micah like it does

for Tanner. Well must run, will try to write more later, Carol

March 9, 2003

Carol, Your son is having a yeast over growth-

a regular doctors is not going to find and be able to treat the

strain or strains your son has unless he uses the Great Smokies

Diagnostic Labortory your doctor could call the lab and have a test

sent to your home (800 522-4762) This test is a three day B.M.

collection then you send it back. It tells about Absorption,

Metabolic Markers, Dysbiosis Risk, and Digestion- the test to order

is " Comprehensive Digestive Stool Analysis " get a copy for you to

read when it comes back.

If your doctor won't order this I would find a DAN doctor from the

list at the Autsim Research Institute (ARI) (there are some paper on

yeast at the ARI also). Call a DAN doctor near you and ask for a

appointment and have them send the test kit to you today so you can

talk about the results at your first meeting.

Some other info about yeast are a paper " Understanding Autism " by

Jepson MD at the Children's Biomedical Center of Utah web page

and a book by G. Crook MD " The Yeast Connection Handbook "

Carol you son can recover for all of this. My 2 cents Ann

Crying,

> whining, thirsty, hungry, thumbsucking, etc. until falling into

bed between

> six pm and seven pm. But what bugged me the most is that he began

to

> " stare " into space, lift both hands(like enstein) and mumble

to

> himself, repeatedly, unless interupted. He scratched his crotch

repeatedly,

> unaware of what he was doing. He would turn his head to one side

and back

> repeatedly like a tic. He would blow on both hands one at a time

> repeatedly. And he immediately, as soon as school started began

grinding

> his teeth severely at night. >

March 9, 2003

Ann all opinions are always welcome to be shared here. Unless you

are an MD and then unless you are one of the professionals that has

evaluated this child certainly you are not trying to imply you can

diagnosis a child via reading one email from the parent that lists a

few symptoms.

Do all these symptoms really mean a yeast infection? Years back I

read about the yeast book theory (was that 10 or 15 years ago)

which was criticized for not only " explaining " why for the symptoms

listed below -but also just about anything from pimples to sore

feet. The reason I remember it was because I was working in the

film industry then and whenever one of the guys I worked with

complained about anything from a headache to a sore tooth I told

them they probably had a yeast infection. (haha)

I agree that not all medical professionals are up to speed on

alternative ways of treating various disorders -however they are

out there -and some are best friends of mine. You just have to seek

them and find them. All good doctors are open to looking at reputable

information too. I know that there are wonderful doctors

with DAN -and wonderful doctors outside of DAN. From the last I

checked nobody had the cure for all our children yet -however I still believe

that the

right Omega 3-6 oil will somehow be part of it.

Since you want to raise awareness about diets and books and various

vitamin supplements to " combat " yeast -which appears to be what you

believe is this child's main problem. I want to raise awareness

about a site called Quackwatch which is run by a medical doctor -

just so the people (especially new parents) in this group who may

not be as knowledgeable as you or me won't know to explore all

options.

Dubious " Yeast Allergies "

Barrett, M.D.

http://www.quackwatch.org/01QuackeryRelatedTopics/candida.html

Keep sharing your 2 cents Ann -it's great to hear from all sides of

the fence.

=====

March 9, 2003

As a parent of a child with Autism, it is groups like these that we as

parents look to for information. When my son was diagnosed, it was like

" your son has Autism " now you figure out what to do. As a parent you

have to educate yourself on every aspect of medical, biomedical as well

as educate yourself about therapy, schools, etc. I have been living

with this for two years now and I will tell you I learned more from

educated parents than any MD. It is important for parents to be able to

share information and resources that may help their children. To think

that Ann was giving a treatment plan for this child is ridiculous. I

only wished I had more parents give me information that she was

presenting. It is then the parents choice to research the various

treatments and do what's right for their child. The information that

Ann was giving was what parents are looking for in these groups. We can

share stories about our children all we want, but what we really need is

support and resources. Way to go ANN. Its more productive for the group

to share information on resources and let parents decide whether its

valuable or not, not for other parents to bash certain treatments. My 2

Cents.

kiddietalk wrote:

> Ann all opinions are always welcome to be shared here. Unless you

> are an MD and then unless you are one of the professionals that has

> evaluated this child certainly you are not trying to imply you can

> diagnosis a child via reading one email from the parent that lists a

> few symptoms.

>

> Do all these symptoms really mean a yeast infection? Years back I

> read about the yeast book theory (was that 10 or 15 years ago)

> which was criticized for not only " explaining " why for the symptoms

> listed below -but also just about anything from pimples to sore

> feet. The reason I remember it was because I was working in the

> film industry then and whenever one of the guys I worked with

> complained about anything from a headache to a sore tooth I told

> them they probably had a yeast infection. (haha)

>

> I agree that not all medical professionals are up to speed on

> alternative ways of treating various disorders -however they are

> out there -and some are best friends of mine. You just have to seek

> them and find them. All good doctors are open to looking at reputable

> information too. I know that there are wonderful doctors

> with DAN -and wonderful doctors outside of DAN. From the last I

> checked nobody had the cure for all our children yet -however I still

> believe that the

> right Omega 3-6 oil will somehow be part of it.

>

> Since you want to raise awareness about diets and books and various

> vitamin supplements to " combat " yeast -which appears to be what you

> believe is this child's main problem. I want to raise awareness

> about a site called Quackwatch which is run by a medical doctor -

> just so the people (especially new parents) in this group who may

> not be as knowledgeable as you or me won't know to explore all

> options.

>

> Dubious " Yeast Allergies "

>

> Barrett, M.D.

> http://www.quackwatch.org/01QuackeryRelatedTopics/candida.html

>

> Keep sharing your 2 cents Ann -it's great to hear from all sides of

> the fence.

>

> =====

>

March 9, 2003

I did not mean to offend anyone Ann

March 9, 2003

Excuse me? " Carol, Your son is having a yeast over growth- " clearly

is a strong diagnosis. Perhaps if the word " perhaps " was in that

statement.

Sharing all sides means sharing all sides. Go ahead and post bad

links about fish oil therapy or anything else I believe in. Doesn't

bother me -Contrary to that as a parent and as the President and

Founder of CHERAB I would want to know. Just check the archives.

There are no such things as black and white in this world and to

only share one side and to attack those on the other side may or may not be

showing the side that would help the child on this list that you

don't know that may -or may not- have a " yeast over growth " .

So keep sharing -just add the word " perhaps " in there and share your

own stories. Maybe they will help -maybe not. I posted both Ann's messages

and yours as the list owner for this group -so I'm not one to only air one side

whether I agree or not.

=====

March 9, 2003

" Excuse me? " Carol, Your son is having a yeast over growth- " clearly

is a strong diagnosis. Perhaps if the word " perhaps " was in that

statement. "

I don't post very often, but I did want to comment on this thread. I think

when we post suggestions we should be very careful about how we word them.

(like suggested) This is why....... A lot of the parents on this list

are new to the dx of apraxia or their child has just recently begun to show

delays, etc. They do not know where to start or what to do or what might be

causing their child's special needs. If they read something like " your son

is having a yeast overgrowth " they might think " wow, if I treat the " yeast

overgrowth " my child will be cured and he will be able to read and talk and

go back to school " . (not saying carol would think this because I know she

has been around for awhile, but a new parent might). To give a new parent

such hope is heartbreaking. That new parent might also spend all their time

researching " yeast overgrowth " instead of spending their time finding a good

therapist/therapy program, which I believe should be 1st priority. I was

that new parent at one time and I thought what these parents wrote about was

going to cure my daughter. Well, it didn't. Once, I realized I needed to

spend my time researching therapy and setting up a good therapy program, my

daughter has been doing wonderful. This is just my opinion!

Traci, Hawaii

..

March 9, 2003

As a parent with a 17 year old son that STILL has an expressive language

problem, and DID have and get treated for a yeast problem, I am proof that while

it did cause him some significant difficulties that were taken care of after

treatment, unfortunately expressive language wasn't one of them. I wish I had

access to language support for him instead of just articulation...even without

the yeast problem he still has difficulty expressing himself

Annemarie

[ ] Re: Does ANYONE out there have a child with

this description??

Ann all opinions are always welcome to be shared here. Unless you

are an MD and then unless you are one of the professionals that has

evaluated this child certainly you are not trying to imply you can

diagnosis a child via reading one email from the parent that lists a

few symptoms.

March 9, 2003

Hey Carol,

I don't know if I can offer any advice, but I do know what you are

talking about. is in a regular half-day kindegarten class.

After school, she is exhausted. She holds it all together for

school, and then lets go at home. I've had to deal with lots of

horrible temper tantrums that do not happen during the summer.

I'm very concerned about 1st grade. She'll be in school from 9am-

3pm. On top of that, she'll have homework. I don't know if she'll

be able to handle it (or if I'll be able to handle the tantrums).

has brain damage, and I just think she has to work a lot

harder than other kids to keep it together. It wears her out.

As far as tics, my son was just diagnosed with a chronic tic

disorder. He does not have ADHD or OCD which is common with kids

with tics. His teachers have never noticed the tics at school, and

they are a lot worse when he is stressed. He also tends to get kind

of wild in the evenings. I think he also holds it together for

school and then lets it all out at home.

Of course, this means that the afternoons and evenings are

horrible. I've been thinking of homeschooling my son because I

can't deal with homework in the evenings. My husband doesn't get

home until 7:30-8:00pm when the kids are ready for bed. I'm

supposed to handle temper tantrums, homework, dinner, and getting 3

kids in bed all by myself. It's too much.

One thing that might help the school understand your situation is to

videotape you son's behavior at home. Then maybe they'll help.

Good luck!

Suzi

> Hello everyone,

> Greetings from here in NH. I haven't been on in a while but

thought I would

> pose a question and maybe get some discussion started. This group

has

> always been a fantastic help to me and I am sure there are some

good

> thoughts about this out there as well.

> I am at a completely different stage/phase in life as most that

write in. My

> son is 7yrs and nine months. he was diagnosed at nine months of

age with

> " global developmental delays " and " low tone " and started

occupational

> therapy at that time. He has had that as well as physical

therapy, music

> therapy and speech and language/oral motor therapy, etc. pretty

continuously

> along the way until recently. He has also been in " classes "

or " groups "

> along the way, sometimes positive sometimes not. At age four he

was

> " officially " " diagnosed " with sensory integration disorder

(primarily being

> undersensitive, rather than overly) and at age five he

was " officially "

> " diagnosed " with " global apraxia " . Although I feel the therapy

has helped

> (depending on therapist of course) all along, it has not " cured "

him.

> Neither did the proefa seem to have any effect (two a day for

three months).

> Neither did the brushing for six weeks seem to have any effect.

This past

> fall a developmental pediatrician from an ivy league college

medial facility

> diagnosed him also with " nonverbal learning disability " but says

that he is

> one of the 4% of the kids she has diagnosed in her long career who

don't

> " exactly fit the picture in that his apraxia is by far the most

prominent

> problem " . He was in a mainstream first grade class up until a few

weeks ago

> at which point my husband and I decided to homeschool him. He

enjoyed the

> children and they really miss him and according to the teacher and

all the

> support staff (special ed. therapists, director, etc.) he

was " doing

> fabulously " ....at grade level, no behavioral problems, etc. etc.

He was

> pulled from class each week for two 1/2 hrs of speech and three

1/2 hrs of

> individual OT and also for an adaptive, multi-age gym class. The

school day

> is 8am to 3pm. To make a very long story short, the problem was

when he came

> home. This child was EXHAUSTED. He was so tired I can't hardly

describe

> it. But he would not go to sleep for a nap, wiggling all around

for an hour

> in his bed (this was only suggestion from school early on and so

for two

> weeks I faithfully put him down every afternoon after school).

Crying,

> whining, thirsty, hungry, thumbsucking, etc. until falling into

bed between

> six pm and seven pm. But what bugged me the most is that he began

to

> " stare " into space, lift both hands(like enstein) and mumble

to

> himself, repeatedly, unless interupted. He scratched his crotch

repeatedly,

> unaware of what he was doing. He would turn his head to one side

and back

> repeatedly like a tic. He would blow on both hands one at a time

> repeatedly. And he immediately, as soon as school started began

grinding

> his teeth severely at night. I checked with numerous other first

grade

> parents and they all said their children were cranky and tired

after school

> for the first few weeks. My son's tiredness and crankiness and

bizarre

> behaviours just got worse and worse through the fall.

March 9, 2003

Ken Holt wrote:

>

> fall a developmental pediatrician from an ivy league college medial

> facility

> diagnosed him also with " nonverbal learning disability " but says that

> he is

> one of the 4% of the kids she has diagnosed in her long career who don't

> " exactly fit the picture in that his apraxia is by far the most prominent

> problem " .

I have a 5 year old who was diagnosed with global dyspraxia about 6

months ago. He is also probable for NLD due to his differential of 20

points b/w verbal and performance IQ. The speech part of the picture is

really his most persistently difficult area. His language is good and

he has reasonable intelligibility but he doesn't make any sounds

correctly even 2 year olds sounds.

>

> 1. (maybe Drs. Agin/Laveman?) Has anyone followed the group known as

> " children with apraxia " into school age? If so, what is the

> correlation/co-morbidity between apraxia and nonverbal learning

> disability?

Our neurologist told us that if they have a statistically significant

IQ differential there was a 90% chance of NLD.

>

> 2. I can understand that low tone and difficulty motor planning would

> create

> extreme fatigue and tiredness in someone expected to basically keep up

> with

> average peers in a busy environment. Is there any known treatment for

> treating this??? Has carn-aware been proven effective?

The low tone really has been tough with the tiredness and acting odd

when tired. We did swimming lesson and a soccer lesson on a day when my

son didn't have preschool and the slightly more than an hour of physical

activity really did him in though over the 10 weeks he seemed to gain a

bit more stamina. The only thing we have found helpful so far is

planning down time in the late afternoons where he lays on the couch for

awhile.

>

> 3. According to the literature kids with nld are usually very good readers

> early on.....does anyone have any ideas/ or know of any effective programs

> to teach reading to a child with nld that is struggling with decoding

> words?

Mine started reading single words at 4 and now at 5 is reading pretty

fluently but he is also in the gifted range for IQ and particularly so

in the verbal. He actually is much more of a sight reader and memorizer

of words than an efficient decoder so things may get more difficult

later in reading.

>

> 5. As parents which would you pick....the therapy or a decrease of the

> bizarre behaviors (assuming of course that you couldn't pick both - in our

> state the school does not have to provide therapy by law if you choose

> homeschooling)?

>

We have also reached a point now where the amount of therapy and related

activities (swimming) has gotten to the point where it is totally

overwhelming. We only have 1 day a week where we don't have any

therapy. One thing that has helped to some extent has been for the

therapists to work with my son 1:1 in the classroom setting. That way

he gets help doing whatever assignment and doesn't feel stressed about

double work. We really need to add more speech next year so I'm

considering asking them to stop PT just to cut down a bit. The number

of therapists is pretty overwhelming too.

Hope this helps a little,

March 9, 2003

Good illustration Annemarie in showing the " yeast " answer can lie

somewhere in the middle of the road. It may help some symptoms but

not all.

I also agree with you and Tracie about not forgetting the importance

of appropriate therapies for our children.

As for the yeast thread. An important clue I picked up in Carol's

email which made me believe it probably wasn't a yeast issue was

that her son's behaviors subsided in the months he wasn't in school -

and picked up once he began school again in the Fall. This leads me

to believe the behaviors have a strong possibility of being stress

related somehow. (unless he is getting a yeast infection from

eating the school lunch!)

By the way -does anyone have any negative information about fish

oils from a reputable source? I know the PBS documentary people who

interviewed neuromedical doctors from all over even the NIH were

looking for it because they want to present both the positive and

the negative so the documentary doesn't look like an infomercial. They

couldn't find any negative information about taking fish oil. I

told them that we as a group haven't found any negative either

(outside of temporary loose stools or more hyper activity in rare

cases and stuff like that). Anyone?

And PS to Ann - you didn't offend anyone at all -I'm sorry if my

email made you believe that. I honestly encourage all sides to come

forward to present here so we can learn from each other even if we

don't all agree at times. With open minds and thoughts we can

perhaps find the answers we need to help bring our children a smile

and a voice.

=====

March 11, 2003

I have not been unable to keep up with my e-mails this month and have just

been lurking in the background, reading what I can, but Carol, your post has

once again hit home.

As you recall, my son Gordon also has global dispraxia, hypotonia, sensory

integration dysfunction and had been diagnosed with NLD this year, also by a

developmental ped. from a well respected medical university. However, this

was in NJ so I guess that's where the coincidence ends!

Gordon is 6 1/2 and in first grade at a small private school.. He too is

doing very well academically and has not really had behaviour problems at

school up until recently. Sunday, we took him to the circus. Well, it was

a sensory nightmare for him. He could not handle the noise when the lights

went out. He put his hands over his ears and screamed that he wanted to

leave. When the lights would come back on, he'd be somewhat calmer and

easier to distract but I think he was having a severe panic/anxiety attack

from the sensory overload. I could feel the blood pulsating in his head.

On Monday, the teacher reported that he totally freaked out outside the

cafeteria when his class was lining up to go back to their classroom. She

said it was a bit noisier and more chaotic than usual. He put his hands

over his ears and his face was red. She sent him upstairs ahead of the

other children.. She also reports that he as not been able to concentrate

in class these last few days.

My question is, due to this episode on Sunday, could he be having a residual

response and how long will it last? What can I do to help him get through

this? He said he couldn't concentrate in class today because of the

noise... this had not been an issue before.

I also wanted to share with you, Carol, similiar experiences I have had with

Gordon when he comes home from school. He too is exhausted but also hyper.

He often has an activity after school, as well, such as OT or PT, speech,

swimming or guitar. He is able to hold it together until he gets home.

Recently, when we are at a store or even someone's home, he lays on the

floor and rolls, usually puts something inappropriate in his mouth, or

lunges down stairs or crashes onto the floor or even into me. He rough

houses with his 3 year old brother, but now it seems to be more a deliberate

effort to satisfy some bizarre need... he lays on his brother, rubs against

him, etc. and I literally have to force him to get off. He totally ignores

his brother's pleas for him to get off of him. He has no regard for his

brother's personal space.

Another thing he does, which I suppose is not a bad thing, is when he gets

home he just picks up a book, any book, and reads out loud. He just reads

and read, probably not even absorbing or comprehending what he's reading,

but this seems to be his way of calming himself. He is a phenomenal reader,

and it is somewhat effortless for him, as opposed to all of the other

activities he must do in the course of his day which require a tremendous

amount of work and concentration on his part.

I am not sure what type of doctor to go to to get help with these issues. I

have been considering a neuropsychologist ... someone else told me he needs

social skills group.. my friend tells me to go right to a psychiatrist who

can prescribe meds. I am at my wits end because these inappropriate

behaviors are increasing and he is also becoming more obstinate/defiant with

me and very whiny and irritating. I have to fight with him to do homework,

etc.

We had to cancel private OT because DH informed me that we have no money for

it this week. My insurance co. is trying to avoid having to renew our

authorization. I was on the phone with three different people at the

insurance company and each one put me on hold for 20 minutes and then

disconnected me.

Some people have also suggested AIT therapy for the hypersensitive hearing

but there is no scientific evidence that this works and with limited funds,

I need to know that my money is being well spent.

Thanks for listening, you guys! I really needed to talk about all of this

stuff and I know you all have been there, done that.... I can't even call my

best friend and tell her all of this and I've been crying most of the night.

Judi (about ready to crawl into a cave)

Mom to Gordon, 6 1/2 and Noah, 3

March 12, 2003

If you don't know by now --I have a son who is Mercury poisoned and

all the symtoms mimic autism. Autism is Mercury piosioning I am a

expert on many things that go along with mercury because Autism is

the worst DX a child can have. Well what I beleave is that all the

sickness in children in the world today is caused by this poision.

How much and when this poision was given is the factor that makes

different DX. What makes me beleave this is how great my son is

recovering now that we know what is wrong, the list of problems

with my son is long and when I see the symptoms in some one else

child looking for answers I want to let them know what I did to help

and I like to be very direct ( what made me think the action in the

first post on this thread was caused by yeast over growth was that

the child took off his clothes and rub himself- we all have had

yeast infection RIGHT. one other thing my doctor told me is that LSD

is a yeast based drug and it would make sense too much can cause

many different behaviors)

Well the bad news is that if your child was given vaccine

(http://tlredwood.home.mindspring.com/mercury_content_in_vaccines.ht)

between the years of 95 and 99 your child was exposed to too much

mercury also ( to read more about this I would go the the Autism

Research Institute web page and do some reading) My sons first

hepatitis B shot contained 12.5 Mcg of Ethyl Mercury . The EPA

recommendation for " ingestion " for a adult is 0.1 Mcg/kg of body

weight- my son received 62 times the safe level that day - and it

got worst at the 2 months shots because more shots were given ( 2

months it was 137.5 time the safe standard) This mistake is being

fought out right now in Washington and the law makers reversed the

lines that were put into the homeland bill under the cover of

darkness at the very end of last years to protect the vaccine makers-

-- this is not why I am telling you this-- I WANT YOUR KIDS TO GET

BETTER-- I would read the paper on line at the Children's

Biomedical Center of Utah Inc. called Understanding Autism by

Jepson MD . I beleave one or two peices in the pie chart in this

paper would make real improvement in your child since they are not

autism just some of the other problems. I wish I could send you

all the vidieo of the last hearing that congreessman Burton had- he

had experts put mercury into some growing brain cells -- They just

stopped growing --it was so sick .

Oh and please if this does get printed here---- Please do not rebut

that this has been disproved BECAUSE I has not--- been disproved ---

there defense right now stands on the fact it has there is not

enough edivence-- that is not the same as proveing anything..

My 2 cents Ann

March 12, 2003

Judi,

I have no useful advice to offer. Other than -we are here. I share your tears.

Hope all the best for you. These times are hard for us mothers.

Your child is so lucky to have such a caring mother.

I quote a prior poster. " live for today "

All my best and thoughts.

Lori J.

March 12, 2003

Hi-

The fact that you all live in New Jersey hit home with me today. My daughter

Sedona is now 6 but when we lived in NJ she was 15 months. She was exposed

to 8x the amount of lead allowed by law and lost her ability to speak and

slipped into a walking coma. The lead started all of her problems. Apraxia,

seizures, dev delays, language and understanding problems. All due to lead.

Have any of you had your children tested for lead?? Then the Vaccinations

put her into a down ward spiral. We placed her on Carn-aware and her speech

is better and understanding what is said. Also it helps with her seizures.

-- [ ] Re: Does ANYONE out there have a child with