Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi there. I am new to this group and wanted to introduce myself. My name is Ruthanne and I have two children, 6 and 3 and we live in southern CA. The three year old has been recently diagnosed with oral/verbal apraxia. I am having a heck of a time getting appropriate services from the school district. Have another IEP tomorrow. I currently homeschool my 6 year old. What I was wanting to know, is there ANYONE out there who is homeschooling an apraxic child??? Please help! No one seems supportive of my desire to homeschool this child, yet the speech therapist at the district is totally clueless. Anyone have anything positive to tell me?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi Ruthanne and welcome! I know a few people that homeschool their apraxic child -for various reasons. Actually anyone that has a late talker -or a child that is having speech problems looks for ways to help their child at home. Since Mother's Day is coming up for example -here is a great page of crafts you could have your husband do with your child to surprise you http://www.homeschoolzone.com/pp/mothers-day.htm (or you could make one with your child and keep your eyes closed so you are surprised) There has been some messages on this in the past. One compromise is to continue to let the child receive therapy services at the school while you educate at home. All would have to be agreed upon as appropriate by both the school's child study team as well as the child's parents and written into an IEP for this to be in effect. Here is a great archived message from which shares a list of resources. Perhaps Carol can share an update to her situation? /message/18157 From: " M. " <khalidsvision@...> Date: Sat Mar 15, 2003 1:21 am Subject: Re: homeschooling Carol your son's situation tugs at my heart, because it reminds me of how overwhelmed I was when Khalid was 7 yrs old. We faced some similar issues with our school district. The district and insurance would not provide Speech and Occupational services if we had considered another option of schooling for Khalid. That was almost 10 years ago. With no diagnosis, no resources, and no support line, I definitely was not an informed parent to know all that Khalid was entitled to in his younger years. I am moved by all the informative responses you have received from this group. Parents today are fortunate to be empowered via Internet. If this luxury had only been available for us back then, the knowledge offered would have been valuable. Carol, hold strong to your vision and the faith that moved you forward to know there is a better way to meet Micah's needs. As suggested, I encourage you to contact HSLDA Special Needs Coordinator http://www.hslda.org/ to discuss your circumstances. I pray you find there, someone who will listen and take your story to heart. I have listed below some Homeschool articles, listservs and resources that might be helpful to you and Micah during this most difficult and unsettling time. My thoughts are with you. Hang in there my friend! Homeschooling and the Child with NLD http://www.nldontheweb.org/thompson-7.htm From Chaos to Confidence Starting the Homeschool Journey http://www.hsc.org/chaos/chaos-special.html Helping at Home: Resources for families to encourage speech and language at home http://www.speechville.com/helping-at-home/helping-at-home.html " Ending the Discrimination Against Disabled Home Schooled Students. http://www.hslda.org/docs/nche/000010/200104270.asp HSLDA current active cases http://www.hslda.org/legal/default.asp HSLDA case archive http://www.hslda.org/legal/casearchive/default.asp HSLDA Attorneys " HSLDA was established to provide low-cost legal protection in the area of home education. " http://www.hslda.org/about/staff/attorneys/.asp Ultimate Homeschool- " Ultimate Homeschool is the leading most place on the web for veteran or new homeschoolers with normal progressive children or LD homeschooled children including helps and resources and dollops of links and sites. " http://www.geocities.com/Heartland/Trail/6096/index.html NATHAN - " National Challenged Homeschoolers Associated Network - international organization for homeschoolers for people dealing with disabilities http://www.nathhan.com/ ISER - " ISER a unique and comprehensive Internet site pertaining to the needs of families with special children and their requirements. http://www.iser.com/ Home Schooling Children with Special Needs- " A large list of links about home schooling special needs children. http://www.geocities.com/Athens/8259/special.html Homeschooling Today® Magazine - " A focus not only on the mechanics of homeschooling, but also the mission and metrics of homeschooling. http://www.homeschooltoday.com Homeschooling LD/ADD Children: Great Idea or Big Mistake? http://www.ldonline.org/ld_indepth/parenting/homeschooling.html " NHEN volunteers have combed the internet to find links directly to message boards focusing only on special needs topics. You will want to bookmark these various message boards - if you post a question there, you'll want to be sure to check back to see the responses that other parents give! The Homeschool Language-Impaired Forum http://www.geocities.com/EnchantedForest/Meadow/7801/ta00007.htm Unschooling and Special Needs Children http://www.unschooling.com/discus/messages/board-topics.html HEM's Homeschooling with Special Needs (under specific interests) http://www.home-ed-magazine.com/DSC/discus/index.html Joyce Herzog's Special Needs Message Board http://www.joyceherzog.com/ Special Needs Forum on Kaleidoscapes http://www.network54.com/Hide/Forum/182528 Homeschooler's Curriculum Swap - Homeschooling Children with Special Needs http://www.theswap.com/dcforum/dcboard.cgi? az=list & forum=ForumSpec & conf=conferen\ ce Homeschool World's Forum http://www.home-school.com/forum/ Unschooling Special Needs Message Board http://www.unschooling.com/discus/messages/603/603.html NATHHAN also has a message board, but it is for members only. Membership is $25.00 and they offer a variety of services, including a very comprehensive lending library. http://www.nathhan.com ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Thank you! Yes, I would love to hear an update to this post that you included - that is what inspired me to post. I am getting services from the district - 30 minutes of speech a week! And the therapist is totally clueless on how to deal with apraxia. I have had to retain an attorney, we are on our third IEP since December, it is just a stressful mess and I am getting tired! She is enrolled in a " language based " classroom - and comes home frustrated because she is the only one who cannot speak. Her teacher thinks they have done something significant because she behaves at school, but not at home. What good is that to me or her? Life is not all the artificial atmosphere of the classroom. I'm just really frustrated with the whole situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi , Since Mel does not attend school I made sure her Ped Rehab Center has a few copies of the book for their library! The therapists are coming up to me and thanking me. Not only are the speech therapists reading the books but the occupational therapists and the physical therapists as well are reading them. Mel is not the only one with apraxia that is being treated at the center. I have ordered a few more copies as Mel's doctors want to read the book as well. Mel is still doing very well. I am told that this week has been her best week in therapy yet!! Mel is speaking more and her motor planning is better as well. I have Mel on 3 PRO Efas and 2 EPAs and have had her on them for almost a week now. Mel yesterday and today asked me for her pills. This is the first time she said the word pill. Mel would just use the word med for medicine. We are actually buying a new house and moving out of district so before meeting our realtor yesterday my husband asked Mel where would she like to go to breakfast. Mel looked at Tom and then said Mcs please. The word Mcs was very clear. We are seeing from Mel many new words that she was unable to say before and a lot of effort on practicing her words. My husband said whatever I am doing with the supplements keep it up as we are seeing some major changes with Mel. My husband and Mel's therapist say Mel is just amazing them with what she is starting to be able to do. It is nice to hear that they are not placing any limits on Mel and are excited just to continue to see what the future holds for Mel. For those who do not know Mel is now 19 and did not speak for the first 18 years of her life. We were told that Mel would never speak and just accept the fact. Mel never had any correct therapy to address her apraxia until the age of 18. Our school district and the IU13 still do not accept her apraxia and refuse to work with her on her apraxia. We have Mel in the private rebab center and I was just told since she is doing so well they have increased the amount of their therapy sessions with Mel each week. The therapists were able to prove to our Insurance company and Mel's medical card the need to increase her therapy time and how well the therapy has helped her that they approved the increase. Mel will be receiving 4 sessions of speech, 3 sessions of OT, and 1 session of PT each week for the next 6 months each week. Each session is for 60 minutes. I then come and home and work with Mel on our home therapy program. If someone would tell us Mel would be at the point she is at today, I would never have believed them. Mel still has a very long way to go but she is making progress each day. I agree with leave your IEP without it but also it is important for all the other individuals in our kids lives to have a copy of " The Late Talker " as well. I am giving the book to Mel's therapists, doctors, family members and friends. What an easy way for those individuals that are in our kids lives to be able to understand apraxia. Robin On Thursday, May 1, 2003, at 19:24 US/Eastern, kiddietalk wrote: > This is the most recent message from Carol about school: I'll copy > her on here so she can let us know the update! (or you could email > Carol at kcholt11@... (kcholt11 at netzero.net) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 This is the most recent message from Carol about school: I'll copy her on here so she can let us know the update! (or you could email Carol at kcholt11@... (kcholt11 at netzero.net) " From: " kenneth Holt " <kcholt11@...> Date: Sat Apr 19, 2003 6:40 am Subject: The Late Talker Book...leave your IEP without it ! You crack me up! I love your new slogan: The Late Talker Book...leave your IEP without it. ha ha ha Actually I just presented my copy (after reading it of course!) to the special needs preschool teacher/afternoon kindergarten teacher at the school where Micah attended. I am dying to buy like five copies and give it to all the agnecies/schools/programs who have served him along the way...in gratitude and to help other parents who are there now! I wrote in it that it was donated for the use of parents and teachers and in honor of my son. She was THRILLED to get it and said she knew just the parent to give it to.....AFTER she finished reading it! I am so happy it will be there in that school to help other parents....maybe they won't have to go through all the hassles that I went through! I am biding my time until the administration changes....then maybe they won't continue to ignore the needs of my son. GOOD for you getting the ESY! I could never get them to give more than like six half hour sessions over a 12 week period......way less than he needed at ages five and six! Wish you lived closer....I would have brought you to my IEP meetings! Carol " ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 HI! I am a homeschooler. I homeschool my 11 year old daughter. At this time I do not plan on homeschooling my apraxia child. I don't feel I am equipped to do that. However if it is laying heavy on your heart to do that for your child then I say go for it. I plan on bringing him home to homeschool him as soon as I feel he is ready and I am ready. However, I might change my mind once he gets into the school system. He is only 4 and has another whole year before he will start. Keep me posted!!! Vicki MN - [ ] New here - any homeschoolers? Hi there. I am new to this group and wanted to introduce myself. My name is Ruthanne and I have two children, 6 and 3 and we live in southern CA. The three year old has been recently diagnosed with oral/verbal apraxia. I am having a heck of a time getting appropriate services from the school district. Have another IEP tomorrow. I currently homeschool my 6 year old. What I was wanting to know, is there ANYONE out there who is homeschooling an apraxic child??? Please help! No one seems supportive of my desire to homeschool this child, yet the speech therapist at the district is totally clueless. Anyone have anything positive to tell me?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Hi, I read your post, I homeschool my youngest son (I have 4 Children) at the time for Kindergarten regis. the district was clueless as well, they wouldn't give him the teacher he needed, the phonics program he needed. At that time I thought he just had delay of speech, since then I was able to read and research and have him retested and sure enough he was finally prop. diag. with dyspraxia. He was receiving speech therpy. some private and then pre-school level through the district the problem was he wasn't really making enough progress. The speech ther. in school was clueless, and didn't bother to think that his lack of progress was not from him wanting to talk that way, but that there was another reason. The homeschooling is going well, it is alot of work, but in his case I went with my gut feelings and it was the right thing. If you have any questions please feel free to email me. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 is there ANYONE out there who is homeschooling an apraxic child??? Please help! No one seems supportive of my desire to homeschool this child, yet the speech therapist at the district is totally clueless. Anyone have anything positive to tell me?? Hello, I am homeschooling my son, he is 12 yrs. old. We found out he had dyspraxia when he was 11. I homeschool my daughters (ages 14 & 16),and I always said I would homeschool my son when he went into jr. high. I had him stay an extra year in elementary school. But I have to be honest and tell you, I wish I would have taken him out sooner. He is very far behind academically. The teachers would not believe that he was capable of learning. They would look at his IQ and say that he was not going to learn. The school OT told his teacher that it was just a waste of time to teach him to write, well now he is writing for me at home. I am not saying that all schools are bad, but I would make sure if you put your child in school to watch them very closely. I am still trying to find the best teaching stratagy for him. It is VERY hard at times, but for my son it was the best thing for him. You are the best judge for yourself and for your child. Trust your judgements. I had teachers tell me they thought it was the best thing to do for him. But then some understand why I was taking them out, They didn't understand why I took out my daughters either. Alison Quote Link to comment Share on other sites More sharing options...
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