apraxia and palate abnormalities (videofluroscopy?)

[Guest guest]

My apraxic child has an abnormal palate (high and short). The SLPs

are suggesting further testing (because my child speech is still

nasal - letting air slip through the nose and not being able to say

some/many sounds), so the ped ENT recommended a videofluroscopy.

Does anybody have personal experience with palate problems? And

performing a videofluroscopy?? Any additional info or insight would

be greatly appreciated!

THANKS!

Tammy and 3yo severe verbal apraxic child w/ mild DIS plus other

issues

[Guest guest]

We are getting Lindsey's palate checked out March 1st. She still doesn't

have air sounds so the pediatriton and Lindseys SLP thinks we should rule

out a submucous palate,or something else.

She does not sound nasal,more denasal.

I don't know anything about the test and I'm not looking forward to her

having it either!

Jennie

Mom to Lindsey-7.8-verbal and oral apraxia

[Guest guest]

Tammy,

My son was born with a u-shaped cleft of the soft palate and some of

the hard palate, as part of Pierre Robin Sequence. Since he does not

talk at all, there has been no recommendation for video fluoroscopy,

but I have seen it discussed on the PRS listserve. If I remember

correctly, I think that they use a local anesthetic to make the child

more comfortable, but I don't think they can really sedate him

because he needs to be able to make some vocal sounds for the test (I

think, but don't quote me on that). I would recommend checking on

one of the Cleft Palate Foundation sites...they would probably be the

best source of information on question related to palate problems. I

believe that the websites are: www.cleftline.org and

www.widesmiles.org. I will double-check those url's and send a

correction if they are wrong. If you can't find anything at either

of those sites, let me know and I will post a message to the Pierre

Robin group.

Hope this helps and best of luck,

Laurel, mom to Evan (26.5 mo, PRS, cleft repaired with a small

fistula remaining, 2nd set of ear tubes, non-verbal but currently

undx'd)

> My apraxic child has an abnormal palate (high and short). The SLPs

> are suggesting further testing (because my child speech is still

> nasal - letting air slip through the nose and not being able to say

> some/many sounds), so the ped ENT recommended a videofluroscopy.

>

> Does anybody have personal experience with palate problems? And

> performing a videofluroscopy?? Any additional info or insight

would

> be greatly appreciated!

>

> THANKS!

> Tammy and 3yo severe verbal apraxic child w/ mild DIS plus other

> issues

[Guest guest]

Hello Tammy

My son had a videofluroscope done at age 4 & he did very well. At the time

he had it done he had been in speech therapy for a little over a year & was

use to slp's touching, cueing & exercising his face. The one he had done

was where they squirt some dye into the nose & then video tape him making

certain sounds. He was not sedated & had no discomfort. The tech said he

did fine, we had it done at a children's hospital. We viewed it afterwards

& could see the results ourselves. For our son his flap, can't remember the

medical name just is very weak. It would hit the back of the throat area &

then fall off allowing the air to escape. There were no structuraly

defects, just weakness which would go along with the hypotonia in the face

area. At the time, his slp tried to teach him to control his air flow

practising mmm & ing. We have taken a break from private therapy for now &

I do notice his hypernasal sound is getting worse. I am hoping the older he

gets that he will have more control. He too has a high palate. Hope this

helps.

Tammy I. in FL mom to apraxic 5 1/2

From: " & Laurel " <themartones@...>

Reply-

Subject: [ ] Re: apraxia and palate abnormalities

(videofluroscopy?)

Date: Fri, 06 Feb 2004 03:48:25 -0000

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