Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 In a message dated 10/13/04 4:12:25 PM, VulvarDisorders writes: << I recently discovered that I suffer from VV and I feel a bit helpless. I don't know what I can do to ease the pain or make it go away. I'd appreciate if you could share your " cures " or tips, it would help me a lot. Thank you >> It helps if we know what type of pain you have, where the pain is, whether it's all the time or sporadic and if anything causes it. With that information, we have lots of tips. <ggg> And we usually refer to vulvodynia as vv and vestibulitis as vvs. Debbie Tiger " (Tiger! Change your .sig! Simple rule: No. Br|_|ce. Ever!) " - Tony, 10/5/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I recently discovered that I suffer from VV and I feel a bit helpless. I don't know what I can do to ease the pain or make it go away. I'd appreciate if you could share your " cures " or tips, it would help me a lot. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 In a message dated 10/14/04 12:08:02 PM, VulvarDisorders writes: << i've had yeast infections in the past, i thought it might've irritated my vagina, but then again the gyn told me that the skin had the time to regenerate and thus was not the cause of my pain. >> Unfortunately, your doctor is wrong. Did you use Monistat or another topical yeast medication? If you did, that's probably how you ended up with vvs - you had an allergic reaction to it. And for whatever reason, the nerves and tissue at the entrance of your vagina have decided to stay chronically inflamed. When you apply pressure to the area (by sitting, having sex, touching), the chronic inflamed tissue reacts by feeling pain and the touch and pressure causes more inflammation. <<the gyn told me to make sure to be fully lubricated and relaxed before penetration. >> If that's all she suggested, you need a new gynecologist that treats vv/vvs. She doesn't have the faintest idea that your vestibule is inflamed or how to treat it. If you tell us what area you are from, we may be able to suggest a vv/vvs specialist. If we can't, just call doctors and ask if they treat vv/vvs and what treatments they use. <<i also suffer from irritable bowel syndrom, some people told me it might affect the vagina but i have no reliable sources on that.>> You may be sensitive for gluten. Search the archives for Arline's posts on celiac disease and gluten sensitivity. If you are gluten sensitive - it's possible that the gluten is causing your ibs and vvs. <<it's at the entrance of the vagina, and it feels like a burning or tearing sensation, it's awful. deeper it doesn't hurt, it's really just at the entrance.>> What you're describing is probably vvs. There are many treatments. You can use oral drugs like Elavil and Neurontin - which disrupt nerve signals. However, they both have side effects and whether long term usage of either will harm you is unknown. You can also go the anti-inflammatory route to reduce the inflammation you have. Vioxx worked for some women, but it's now off the market - but you could try another NSAID. But like Elavil and Neurontin, long term usage may harm you. You can also try 800-1600mg. of Motrin per day for a couple of weeks to see if that reduces inflammation. Taking it longer though can cause damage elsewhere in your body. You can also try the topical medication route. Some women has success using testosterone and estrogen creams (you do not have to be menopausal). A lot of women in the past year have been trying the Lidocaine Cotton Ball (LCB) treatment and have had a lot of success with it. LCB reduces inflammation and retrains the nerves not to feel pain from non-painful touches. I've had success using both the LCB and Atropine cream. Atropine is a cream that restricts blood vessels to reduce inflammation and disrupts nerve signals. You can also try antihistamine creams like Benedryl (OTC) and Zonolan (prescription). Other women find the eczema creams Elidel and Protopic helpful. You can also have your vestibule tissue removed and replaced with vaginal tissue. The success rates are not that good and you're better off trying everything else first. All the treatments I've mentioned are discussed in the archives. Spend some time searching the archives looking for a treatment you think sounds like a good option for you and if you have more questions, don't be afraid to ask. Because of the success women are having with LCB, I'd look into that treatment first. It's also one you can try while waiting for an appointment with a vv/vvs specialist. Debbie Tiger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 According to a survey done involving 428 women with vulvar pain, at least 40% of them had IBS. I would suggest that you try using N-A-G which is a glucosamine product available OTC. It is reported to help intestinal problems. Ora On Thu, 14 Oct 2004 03:06:40 -0000, " katrinaholloway27 " wrote: > > >alright, so vvs. > >it's been there pretty much since i started having sexual >relationships, which was about 1 year and a half ago. i went to the >gyn last week but it wasn't much help, though it helped me realized >more specificaly where the pain was. it's at the entrance of the >vagina, and it feels like a burning or tearing sensation, it's >awful. deeper it doesn't hurt, it's really just at the entrance. > >at first, i thought it was because i got tensed and my vagina closed >up before intercourse, but the gyn told me i was relaxed, so that's >not the problem. > >i've had yeast infections in the past, i thought it might've >irritated my vagina, but then again the gyn told me that the skin >had the time to regenerate and thus was not the cause of my pain. > >the pain happens every time i try to have sex, and even if it's just >a finger inside me it hurts, so i don't have sex. the gyn told me to >make sure to be fully lubricated and relaxed before penetration. > >she didn't talk about vvs, i found that info on a health web site, >and among the other types of problem, that was the one that fitted >with my symptoms. i also suffer from irritable bowel syndrom, some >people told me it might affect the vagina but i have no reliable >sources on that. > >that's all i can think of for now, thanx again! > Quote Link to comment Share on other sites More sharing options...
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