Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 hello. my ame is cathy and i have had rsd for 11 years . you are not crazy. can you please send me the article you found about pain. welcome to the group. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 i had surgery for tarsel tunnel release and doctor cut nerve and muscle. then i fell out of elevator and had neck injury and then the elevaor hit me threee different times. plus i had massive radiation and chemo. ths affected nerves. so now rsd every where. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Thank you all for for support Now I may be wrong. But This is not AIDS or CANCER or something like that. Why would someone be in Denial? From what I've read so far. It's a pain disorder. I'm not making light of it. But Denial I see no reason for it. (yes yes I've seen all the stages) I kind of know what path this is going to lead. With unrelenting pain, disabling range of movement. dispressshion and and even in worse case losing of in my case my leg maybe some day. All this I knew, from when I hurt my back so bad. But it's not death (even though some times I wish it would) From what I know and feel I'm disabled. Ok find I've known that for a long time now. I'm looking at as I now have a Name for it. It's RSD But from someone that went to medical school. (for becoming a OT) She should know better then being in Denial about her brother having RSD Oh i'm not filled with self pity today. Just i little disappointed in my sister right now. As for blocks. I had them years ago. They put my in a wheel chair for months. I'm more scared of the testing. (mylowgram and the one that tests the nerves with long thin needles) Hope everybody's feeling a little better Sam -- Sam Hi Sam, Vent away, that is why we are here. some of my family reacted the same way when I told them the docotrs said I had rsd. They were in denial. It would be great if it were just scar tissue, however you can devlop rsd from surgey. Have you had any blocks done? I ask because there is an opinion that scars should NOT be injected directly, this could cause the rsd to get worse.here is a link stating just that. RSD Puzzle #008 http://www.rsdrx.com/rsdpuz4.0/puz_8.htm snip "<the nerve blocks are quite helpful when applied for proximal portions of the nerves away from the scar of the injury, sticking needles into the area of the scar of the RSD injury only aggravates the condition and deteriorates the disease quickly into stages III and IV. The scar area already has partially damaged sympathetic nerves and does not need sticking of needles into those damaged nerves. This should be a strong reminder for people who stick needles in the areas of neuroma of the foot or areas of scars around the ankles."> Take care Sam Hugs and a pain free minute,Deb Debgena@...Founder Yahoo! Groups : RSD-CRPSofAmerica > Hi all I must be going crazy.> My Doc said RSD. now My sister came over and Said I'm crazy I don't have RSD> RSD Is not in the back. its like only in the Hand.> I almost wish I had something that would > She said She's know I have pain, and it's from two surgery's and tons of> scare tissue.> > > I'm not sure why i'm telling Ya all this. > But i had to vent> Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Sam, At least your sister has heard of it. No one in my family or circle of friends has never even heard of this disease. They all think that I am making stuff up. To be exact my girl friend told me Sunday that I needed to stop researching so much on this disease. She said that I could be exaggerating stuff due to everything i know. I told her no and that is not the case. I told her that I had to be informed about this disease and the different types of treatment. I also told her that there was thousands of people who suffer from the same disease. So anyway she changed the topic of conversation. I feel like no one believes me and that is hard especially coming from loved ones. My sister told me the other day on the phone that she was telling everyone that I was faking and just looking for sympathy. She apologized by saying that she made a mistake since she has seen everything that I go through. She said now that when she speaks about me she corrects her statements and apologizes to the other person for her stupididty. I am sorry if this doesn't make any sense. That hurt me more than anything that I am going through. I just wished people would understand the difficulity that I (we) have and all the pain that we have. I would not wish this disease on no one but I would like for them to have to walk a day in my shoes. Especially when I am unable to walk. So Sam I totally understand your dilemma and I am sorry. I wished I could help you but as you see I can not help my own self. I understand the disappointment that you felt with your sister. I go through it everyday.Sam wrote: Thank you all for for support Now I may be wrong. But This is not AIDS or CANCER or something like that. Why would someone be in Denial? From what I've read so far. It's a pain disorder. I'm not making light of it. But Denial I see no reason for it. (yes yes I've seen all the stages) I kind of know what path this is going to lead. With unrelenting pain, disabling range of movement. dispressshion and and even in worse case losing of in my case my leg maybe some day. All this I knew, from when I hurt my back so bad. But it's not death (even though some times I wish it would) From what I know and feel I'm disabled. Ok find I've known that for a long time now. I'm looking at as I now have a Name for it. It's RSD But from someone that went to medical school. (for becoming a OT) She should know better then being in Denial about her brother having RSD Oh i'm not filled with self pity today. Just i little disappointed in my sister right now. As for blocks. I had them years ago. They put my in a wheel chair for months. I'm more scared of the testing. (mylowgram and the one that tests the nerves with long thin needles) Hope everybody's feeling a little better Sam -- Sam Hi Sam, Vent away, that is why we are here. some of my family reacted the same way when I told them the docotrs said I had rsd. They were in denial. It would be great if it were just scar tissue, however you can devlop rsd from surgey. Have you had any blocks done? I ask because there is an opinion that scars should NOT be injected directly, this could cause the rsd to get worse.here is a link stating just that. RSD Puzzle #008 http://www.rsdrx.com/rsdpuz4.0/puz_8.htm snip "<the nerve blocks are quite helpful when applied for proximal portions of the nerves away from the scar of the injury, sticking needles into the area of the scar of the RSD injury only aggravates the condition and deteriorates the disease quickly into stages III and IV. The scar area already has partially damaged sympathetic nerves and does not need sticking of needles into those damaged nerves. This should be a strong reminder for people who stick needles in the areas of neuroma of the foot or areas of scars around the ankles."> Take care Sam Hugs and a pain free minute,Deb Debgena@...Founder Yahoo! Groups : RSD-CRPSofAmerica > Hi all I must be going crazy.> My Doc said RSD. now My sister came over and Said I'm crazy I don't have RSD> RSD Is not in the back. its like only in the Hand.> I almost wish I had something that would > She said She's know I have pain, and it's from two surgery's and tons of> scare tissue.> > > I'm not sure why i'm telling Ya all this. > But i had to vent> Sam Quote Link to comment Share on other sites More sharing options...
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