Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 > Unfortunately therapy here > is very expensive ($150/half hour) Ouch! If he isn't getting much out of it I would try someone different. It is not so much the diagnosis as it is the results. He now just saw a SLP who seems to think > that he has articulation/phonology disorder and not verbal apraxia. > This is because he is speaking in 3-5 word sentences consistently but > has very poor articulation. What ideas does she have for therapy? My son too is talking but his artic is not great either. He still loses consonants in longer utterances. He also is still talking in the 3rd > person, and we try to have him repeat back with " I " or " me " which he always does. I was wondering what is the progression with verbal > apraxia? Does it follow a general pattern? Does that question make sense? He still is young and being that he talked late may explain that. I would keep an eye on it and continue to work on it. > He has some characteristics of verbal apraxia like little babbling > when young, but he has never lost any sounds or words, doesn't grope to talk, and imitates. Same here approximations have always been consistent. The only time we " lose " sounds is with the multisyllables and longer utterances. He doesn't have oral apraxia as he can blow > bubbles, candles, pucker for kisses, etc... So as you can tell I am one VERY CONFUSED mommy. Four SLP's and not one straight answer. I live in Minden, NV (near Lake Tahoe) and it seems that good specialists are very hard to find. I am wondering if > I should take him to someone who specializes in apraxia and > artic/phonology disorders in California for a proper diagnosis? > Would the approach to therapy be any different? His current ST > treats him as if he has verbal apraxia, when he does see her. Only you know if it seems helpful. If he is miserable and it is always a battle, I would consider someone else. Will a diagnosis make a difference in terms of insurance or school? Then I would pursue it more. Are there any other issues, sensory, receptive, processing, fine motor then I would pursue a medical opinion. > Any thoughts or advice would be greatly appreciated. Thanks in > advance!!! Wish I could have helped more. denise > > Angie and Seth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Kaufman specializes in apraxia and she is in Detroit Michigan. You can send her a video for a price and she will write a report and diagnose. She has her own clinic and is the creator of the Kauffman cards. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hey . Unfortunately the symptoms of many diseases mimick those of Stills and the medication used to treat those symptoms also alleviate some of the symptoms of Stills. Like most here in this group, I have gone through a myriad of diagnoses before Stills. Included in this list is Multiple Sclerosis, Undifferentiated Connective Tissue Disease, Mixed Connective Tissue Disease, Bechet's Disease, Lupus and so on and so on... The main medicines to treat any of theses diseases and Stills disease are NSAID's, DMARD's and TNF's. These are the " front line " of defense in managing most of these diseases ( and including yours, I'll bet! ). You are your only advocate. Research, research, research. If you don't like your doctors, fire them and find others. If you don't like your medicines, tell your doctor to change them. The search for a doctor who will treat not only your disease, but you as a person is a long voyage. Your search is only beginning. Do not lose faith and have patience. Be tough with your doctors and those managing your health. They work for you. Hang in there, you are not alone. Joe > > Hi All, > > I was posting here about 2 months ago. Several doctors were giving > me the possible diagnosis of Still's Disease. I was in the hospital > several times this summer. My diagnosis went from bacterial > infection to Rheumatic Fever to virus to Still's and many more. At > least 3 doctors down here think Still's is a possibility. According > to the University of Miami, " it's not a textbook case, however. " > Hmmm...it seems they have only seen it in a textbook... > > Anyway, I have since has a positive Lyme test and I went to see a > specialist in this area. He feels definitively that I have Lyme > Disease. So, I am being treated for that currently. > > My doctors down here just do not think it is Lyme. It seems > Rheumatologists see things differently. > > So, many of my symptoms have disappeared since I have started > treatment. However, I still wonder... > > How will I know if it is Still's and it is just temporarily going > away? > > It's just so difficult. I have doctors who DEFINITELY disagree on > the diagnosis as well as the treatment. > > Any insight? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hey . Unfortunately the symptoms of many diseases mimick those of Stills and the medication used to treat those symptoms also alleviate some of the symptoms of Stills. Like most here in this group, I have gone through a myriad of diagnoses before Stills. Included in this list is Multiple Sclerosis, Undifferentiated Connective Tissue Disease, Mixed Connective Tissue Disease, Bechet's Disease, Lupus and so on and so on... The main medicines to treat any of theses diseases and Stills disease are NSAID's, DMARD's and TNF's. These are the " front line " of defense in managing most of these diseases ( and including yours, I'll bet! ). You are your only advocate. Research, research, research. If you don't like your doctors, fire them and find others. If you don't like your medicines, tell your doctor to change them. The search for a doctor who will treat not only your disease, but you as a person is a long voyage. Your search is only beginning. Do not lose faith and have patience. Be tough with your doctors and those managing your health. They work for you. Hang in there, you are not alone. Joe > > Hi All, > > I was posting here about 2 months ago. Several doctors were giving > me the possible diagnosis of Still's Disease. I was in the hospital > several times this summer. My diagnosis went from bacterial > infection to Rheumatic Fever to virus to Still's and many more. At > least 3 doctors down here think Still's is a possibility. According > to the University of Miami, " it's not a textbook case, however. " > Hmmm...it seems they have only seen it in a textbook... > > Anyway, I have since has a positive Lyme test and I went to see a > specialist in this area. He feels definitively that I have Lyme > Disease. So, I am being treated for that currently. > > My doctors down here just do not think it is Lyme. It seems > Rheumatologists see things differently. > > So, many of my symptoms have disappeared since I have started > treatment. However, I still wonder... > > How will I know if it is Still's and it is just temporarily going > away? > > It's just so difficult. I have doctors who DEFINITELY disagree on > the diagnosis as well as the treatment. > > Any insight? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 It is very tricky and it is easy to say do not worry. What ever stay with us and let us know how you are. Ask the rheumy who said it was not Lyme Why he says that. Did you have spiking fevers?? Weird sore throat? Rash?( Stills stuff) It seems like it is wise to try the antibiotics since cure is a good word if it is Lyme. Otherwise, many of these diseases are treated the same...mild level treatment, serious level treatment etc...so as long as a good doctor monitors you, you seek other opinions and rest I think you are doing everything. I hope it goes away for ever and ever. But I hope you stay here just to be our friend!! Hang in there!...Remember not everyone is a textbook case. Hugs Liz NJ ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 It is very tricky and it is easy to say do not worry. What ever stay with us and let us know how you are. Ask the rheumy who said it was not Lyme Why he says that. Did you have spiking fevers?? Weird sore throat? Rash?( Stills stuff) It seems like it is wise to try the antibiotics since cure is a good word if it is Lyme. Otherwise, many of these diseases are treated the same...mild level treatment, serious level treatment etc...so as long as a good doctor monitors you, you seek other opinions and rest I think you are doing everything. I hope it goes away for ever and ever. But I hope you stay here just to be our friend!! Hang in there!...Remember not everyone is a textbook case. Hugs Liz NJ ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 : I am very new to this disease, diagnosed last December, but it does seem that there are very few " textbook " cases anyway. I know the say they diagnosed mine was by excluding all those other diseases like Rheumatic fever, lymphoma, leukemia, lymes, etc. Since there is not one test that says " yes, this is Still's " , we end up just having to trust and see if the medications recommended provide any relief. I hear that you don't always know until a " flare-up " happens. It was the Rheumatologist in my case that made my diagnosis, although he has only seen three cases now in 40 years of practice. Keep the faith and be persistent. --- In Stillsdisease , " edandcyn1969 " wrote: > > Hi All, > > I was posting here about 2 months ago. Several doctors were giving > me the possible diagnosis of Still's Disease. I was in the hospital > several times this summer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 : I am very new to this disease, diagnosed last December, but it does seem that there are very few " textbook " cases anyway. I know the say they diagnosed mine was by excluding all those other diseases like Rheumatic fever, lymphoma, leukemia, lymes, etc. Since there is not one test that says " yes, this is Still's " , we end up just having to trust and see if the medications recommended provide any relief. I hear that you don't always know until a " flare-up " happens. It was the Rheumatologist in my case that made my diagnosis, although he has only seen three cases now in 40 years of practice. Keep the faith and be persistent. --- In Stillsdisease , " edandcyn1969 " wrote: > > Hi All, > > I was posting here about 2 months ago. Several doctors were giving > me the possible diagnosis of Still's Disease. I was in the hospital > several times this summer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 , ?? I have to agree that there is no one textbook case of still's. It would make it alot easier to diagnose and we would not have to be put through all the painful tests and misdiagnoses. I am finding out the hard way what autoimmune diseases can do to an already weak immune system.Please keep your spirits up, I know that is easier said then done. I am finding that my friends and family support has helped alot. Danni ________________________________________________________________________ Email and AIM finally together. You've gotta check out free AOL Mail! - http://mail.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 , ?? I have to agree that there is no one textbook case of still's. It would make it alot easier to diagnose and we would not have to be put through all the painful tests and misdiagnoses. I am finding out the hard way what autoimmune diseases can do to an already weak immune system.Please keep your spirits up, I know that is easier said then done. I am finding that my friends and family support has helped alot. Danni ________________________________________________________________________ Email and AIM finally together. You've gotta check out free AOL Mail! - http://mail.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 HI , Don't really have a lot of answers for you. Just wanted to say that I too had a positive Lyme test. I also was diagnosed with many different things from bacterial infection to Parvo virus. I think Still's is just what we wind up with when everything else is ruled out. As for a textbook case, I don't think one exists. Feel better soon. </HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 HI , Don't really have a lot of answers for you. Just wanted to say that I too had a positive Lyme test. I also was diagnosed with many different things from bacterial infection to Parvo virus. I think Still's is just what we wind up with when everything else is ruled out. As for a textbook case, I don't think one exists. Feel better soon. </HTML> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.