Re: question regarding bladder and kidney function

[Guest guest]

,

Lamar here,

No medical CMT related question is inappropriate. At 53 I have some urinary

urgency, but still have control. BUT, both my mother, grandmother, and several

other female relatives have eventually needed indwelling " Foley " catheters for a

number of years. With all this started in their early 60's. Their symptoms

started with loss of control and then led to the inability to " push " to void.

They also had spasms and backwash reflux. The doctors said they THOUGHT it was

CMT related, but I have found little literature on the subject. I would welcome

any references you may be able to give.

CMTI does have a good paper on sexual dysfunction with CMT that relates to the

topic.

----- Original Message -----

From: leslie little

Sent: Sunday, January 07, 2001 07:56 PM

Subject: [] question regarding bladder and kidney function

I apologize if this is inappropriate to ask in advance - my bladder

stopped functioning almost 4 years ago, no ability to control muscle

spasms for urethra control or backwash reflux and I began self cathing 3

X day. I am now up to 5 X day and taking a bladder paralyzing drug,

ditropan 20 mg daily. Detrol did not work for me. I also have a

blockage growth or mass in the right kidney and after doing extensive

searching found that in males with CMT it is fairly common for one or

the other kidney to dysfunction and have reflux and blockages, not cysts

or calcium buildup. It is very rare for females to have this added

condition with their CMT. Does anyone else have this little additive

with their CMT? Thanks and again I apologize if the question is

inappropriate.

leslie

eGroups Sponsor

[Guest guest]

-----Original Message-----

From: john dawson <johnjudi@...>

egroups <egroups>

Date: Sunday, January 07, 2001 10:15 PM

Subject: Re: [] question regarding bladder and kidney function

>Where, What is CMTI?

>Judi

http://www.cmtint.org/

[Guest guest]

Where, What is CMTI?

Judi

----- Original Message -----

From: " Lamar son " <lls@...>

<egroups>

Sent: Sunday, January 07, 2001 8:24 PM

Subject: Re: [] question regarding bladder and kidney function

> ,

> Lamar here,

>

> No medical CMT related question is inappropriate. At 53 I have some

urinary urgency, but still have control. BUT, both my mother, grandmother,

and several other female relatives have eventually needed indwelling " Foley "

catheters for a number of years. With all this started in their early 60's.

Their symptoms started with loss of control and then led to the inability

to " push " to void. They also had spasms and backwash reflux. The doctors

said they THOUGHT it was CMT related, but I have found little literature on

the subject. I would welcome any references you may be able to give.

>

> CMTI does have a good paper on sexual dysfunction with CMT that relates to

the topic.

> ----- Original Message -----

> From: leslie little

>

> Sent: Sunday, January 07, 2001 07:56 PM

> Subject: [] question regarding bladder and kidney function

>

>

> I apologize if this is inappropriate to ask in advance - my bladder

> stopped functioning almost 4 years ago, no ability to control muscle

> spasms for urethra control or backwash reflux and I began self cathing 3

> X day. I am now up to 5 X day and taking a bladder paralyzing drug,

> ditropan 20 mg daily. Detrol did not work for me. I also have a

> blockage growth or mass in the right kidney and after doing extensive

> searching found that in males with CMT it is fairly common for one or

> the other kidney to dysfunction and have reflux and blockages, not cysts

> or calcium buildup. It is very rare for females to have this added

> condition with their CMT. Does anyone else have this little additive

> with their CMT? Thanks and again I apologize if the question is

> inappropriate.

>

> leslie

>

>

>

>

> eGroups Sponsor

>

>

>

[Guest guest]

In a message dated 1/7/2001 11:17:33 PM Eastern Standard Time,

johnjudi@... writes:

<< Where, What is CMTI?

Judi >>

Judi

CMT International is CMTI. You can log on at www.cmtint.org

[Guest guest]

,

My sister (CMT) had kidney problems in her last years, leading to

kidney failure. My father (CMT) had problems with bowel control.

Started losing control in his fifties. I think this was his biggest

issue with the disease, and the one no one wanted to talk about,

himself most of all. Eventually became somewhat of a recluse because

of it (albeit a busy recluse building the house and farming the

land...) He increasingly did not like to go out in public in case he

could not reach a bathroom in time and had an accident. He also was

quite deaf and was told his hearing problems were nerve-related and

would not respond well to hearing aid technology at that time.

Ruth Warren

> I apologize if this is inappropriate to ask in advance - my bladder

> stopped functioning almost 4 years ago, no ability to control muscle

> spasms for urethra control or backwash reflux and I began self

cathing 3

> X day. I am now up to 5 X day and taking a bladder paralyzing drug,

> ditropan 20 mg daily. Detrol did not work for me. I also have a

> blockage growth or mass in the right kidney and after doing

extensive

> searching found that in males with CMT it is fairly common for one

or

> the other kidney to dysfunction and have reflux and blockages, not

cysts

> or calcium buildup. It is very rare for females to have this added

> condition with their CMT. Does anyone else have this little

additive

> with their CMT? Thanks and again I apologize if the question is

> inappropriate.

>

> leslie

[Guest guest]

Hi

I also live with what you are saying. I am a 43yr.old female, and have

been having bowel problems for about 4 years, now. My neurologist said he

does not believe bowel problems are related to CMT. But as I keep in touch

with you all, sure helps me; deal with this disorder.

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