Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Hi Michele, You may want to look into this behavior being something else other than the apraxia. May or may not be aspergers. Some of the parents in this group for example have children with OCD as well as a communication impairments. One condition has nothing to do direct with the other of course, but it's not unusual for communication impairment to co exist with other issues/disorders/syndromes or impairments. Here is an archived post from Jennie who runs the Florida support grouplist, is one of the moderators of this one, and who has a child with apraxia and OCD ( is on the Talking Page http://www.debtsmart.com/talk/ ) I'm sure others who have children with co existing conditions can help add more. I would suggest a professional evaluation. What does your son's neuroMD say?: From: " Jennie Lyon " <borngmama@...> Date: Mon Sep 8, 2003 11:45 am Subject: Re: OCD Lindsey has OCD Lindsey's was so bad at one point her psychologist said she was very close to being put in the hospital. Here are some things that Lindsey did. She is on Risperdal now and it has helped so much!!!!! When Lindsey woke up she had to check to make sure all the doors are shut then presses on them,and the lights. Theres a certain light she had to have on. The chairs had to be right too. She would also line up the shoes and know right away if one has been touched. She also had to touched something over and over. These things would go on ALL day. OCD is something that really interfered with her life. She could not finish a meal because someone left a door open,and she could think of NOTHING but that door. She NEEDED to do these things to make her feel good for a brief period until the urge took over again.Its like needing a drug and not feeling right until you have it. She's had alot of tics also,so the Dr is calling it Tourettes. We see the Psychiatrist every 2 months and was seeing a psychologist once a week, at my house and at school. There was a time that instead of playing at the park she would fix every ones shoes instead, or at a restaurant she would have to fix all the chairs,sometimes before the person has barely gotten out of his chair,but for the most part she would refrain from OCD until she gets home and then it explodes. Last year at school she fixed all the chairs and thats it! but at home ,she could barely eat because the OCD was so strong. Her worse OCD behavior was saying " sorry mom " I cant even tell you how severe this was,I have her on tape but I can't even watch it. Not only did she say " sorry mom " 100 times a day, she needed me to respond a certain way. This is the OCD that I know about! Nothing to do with your situation,but I just wanted to share. I do not know all the types of OCD. OCD runs in my family,so that and having apraxia could play a part,I guess? Jennie mom to Lindsey- age 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 , Did you have him evaluated by a Pediatric Neurologist or a Developmental Ped? ~K [ ] showing signs of aspergers Hi I have not been on the site for a long time. Smauel is now eight years old and is improving all the time. He can be understood about 30% of the time by strangers and 80% of the time by family and friends. He is reading well but only when he wants to. He writes a lot and I find it interesting that when he is angry he talks better and I know this is because he is not thinking what he is doing, he also writes really well when he is angry. My concern is that from a very young age he has collected junk mail, his communication tool. Now he is obsessed with it and I have to celan his room every day with all the junk that he colelcts from school mail boxe and from Nana and Gran who will give him their junk mail too. If we go anywhere in the weekend he will find real estate stands, car sale magazines, adfvertisers in shops, paint sample colours, anything that is free. He has to talk to himself to stop himself doing it. I will say no junk today no papers and he will walk along saying no stuff no stuff and hold his hands in his pockets, no stuff a mum? He is also obsessed with water and I must have the cleanest bathroom in the world every night the floor gets washed and we don't have a bath just a shower he gets in and out and plays in the sink with the water, last night he washed his clothes in the bathroom sink and there was a huge mess. He squeezes soap down the plug hold and squirts shampoo out by the bottleful. We usually take the shampoo out when he is in the shower but I think I must have shares in the shampoo and soap market! He is just beginning to realise I think that his language is not the smae as all the other kids his age and is really frustrated, he is biting which he has never done, hitting and kicking the kids at school and his older sister at home. He told his Sunday School teacher he did not like school and she asked him if there was anything he liked about school and he yelled " people are mean to me you know! " what more could she say. I know this is happening but it is not often he is happy to go to school and says he has had a good day so I am wondering if the children are saying that he is hitting them to get him in trouble because he has limited language. HELP! HELP! HELP! HELP! I AM GOING INSAME! Is this normal behaviour or am I looking at something other than dyspraxis!! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hi Michele, I found your last post very interesting, mainly because it was a mirror image of my younger brother in many ways. Although my brother did not have any problem with his speech, he did " collect " and the bathroom scenario was my brothers behaviour to T. Being a teenager at the time and spending a lot of money on shampoo ect, there where times i wanted to strangle him when i would come home and yet another bottle had gone down the drain. In my brothers case most of his behaviour stemmed from school, it was not the best of schools, in a tough area and he was basically a sensitive child. His primary school day were a ordeal to say the least, i feel now that his behaviour in the past was his own little way of control ing his world. I dont know your child , but maybe school has to be looked at, if he has always been happy there before. I'd just like to add, my brother now has a great job and is probably the most intelligent member of the family, and he never even looked at a book properly until about the age of ten. Take care and keep hiding the shampoo for a few more years yet, we did! Jane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hi Jane Thanks for that it is good to hear he is doing similar things to other children. I live in New Zealand and the school my children attended two years ago was fantastic and it was closed down along with 8 other schools in our area. We sent them to a school close to where we live and last year was a living hell he had a teacher who did not understand him and so ignored him for the year. This year his teacher seems ok but cannot cope with his behaviour at the moment. He only has six weeks of school to go until our summer holidays. I am a trained early childhood teacher and for the last 18 months I was working as an early intervention teacher with special needs children, now I work from home and run education programmes with foster pre school children. It is great because I can be at home at the beginning and end of the day. He does not appear to be bothered about going to school and says he has had a good day when I pick him up. He is very intelligent and can read we think quite well but because his language is still not very clear it is difficult to know how well. He knows his way around a computer and that must be a good thing. Thanks again for your reply. Does your brother have a diagnosis? I will keep hiding the shampoo. Thanks Michele In , " jane " <jane@l...> wrote: > Hi Michele, > I found your last post very interesting, mainly because it was a mirror > image of my younger brother in many ways. Although my brother did not have > any problem with his speech, he did " collect " and the bathroom scenario was > my brothers behaviour to T. Being a teenager at the time and spending a lot > of money on shampoo ect, there where times i wanted to strangle him when i > would come home and yet another bottle had gone down the drain. In my > brothers case most of his behaviour stemmed from school, it was not the best > of schools, in a tough area and he was basically a sensitive child. His > primary school day were a ordeal to say the least, i feel now that his > behaviour in the past was his own little way of control ing his world. I > dont know your child , but maybe school has to be looked at, if he has > always been happy there before. I'd just like to add, my brother now has a > great job and is probably the most intelligent member of the family, and he > never even looked at a book properly until about the age of ten. Take care > and keep hiding the shampoo for a few more years yet, we did! Jane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hi Jane Thanks for that it is good to hear he is doing similar things to other children. I live in New Zealand and the school my children attended two years ago was fantastic and it was closed down along with 8 other schools in our area. We sent them to a school close to where we live and last year was a living hell he had a teacher who did not understand him and so ignored him for the year. This year his teacher seems ok but cannot cope with his behaviour at the moment. He only has six weeks of school to go until our summer holidays. I am a trained early childhood teacher and for the last 18 months I was working as an early intervention teacher with special needs children, now I work from home and run education programmes with foster pre school children. It is great because I can be at home at the beginning and end of the day. He does not appear to be bothered about going to school and says he has had a good day when I pick him up. He is very intelligent and can read we think quite well but because his language is still not very clear it is difficult to know how well. He knows his way around a computer and that must be a good thing. Thanks again for your reply. Does your brother have a diagnosis? I will keep hiding the shampoo. Thanks Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Michele, I would encourage you to check out the digestive enzymes website www.enzymestuff.com There is also a board for and there's families there kids who " had " Aspergers but now do not meet the criteria because they have helped their kids either through enzymes or dietary changes. In terms of diet, the SCD (Specific Carbohydrate Diet) is being talked about as bringing success -- there's websites for that as well, and a book by Elaine Gottschall called Breaking the Vicious Cycle. There is also a parent message board on Lyris. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi Michele, What a wonderful part of the world you live , i bet you can't wait for your summer break. I totally believe your son is highly intelligent and that is maybe why your having problems, as i said in my earlier post , he sounds so much like my younger brother its weird. He to wasted a least a year at the same age as your son at his school. The school did not have a regular teacher for the whole year, just a constant stream of supply teachers. Being a very shy child he was just left behind, he had no stimulus at school at all, and each day was just spent in isolation. At home he spent most of his time in his own " little world " , ie flooding the bathroom, playing with the same 1or 2 toys every day and later his fascination with taking anything apart, and i mean anything and everything![watch out} My brother is now 19, a highly intelligent person, about to go to uni this year. He was never diagnosed , but the schools he attended would not have thought there was a problem even if he had turned up with 2 heads[they probably would have offered him 2 drinks at break instead of one] I dont know your situation fully, but i would look at the school again, maybe they are not meeting his needs and he is just bored. If he has just spent a year with a teacher who did'nt understand his personality and needs, he is probaly feeling not quite a part of the school day, a year is a long time to feel unhappy or just plain bored. If we were in the same situation jobwise i,m sure we would do something about it,a child does'nt have that choice, and if there is a communication problem for whatever reason, in my brothers case just extreme shyness that must make them feel so excluded. My 5 year old who is just learning to speak in sentences never stops complaining about the things she does'nt like, i think it's a 5 year build up thing and its all coming out, and i say let it flow. Hope i have not gone on to much, but your sons personality touched a nerve, and i am sure once the speech is fine and he no longer feels the frustration he must be feeling, you will have a wonderfull, creative, interesting person on your hands. ---Take care Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi children and adults with aspergers are often highly, highly intelligent. I don't know if this is what your son has but it may be worth investigating anyway. An interesting and inspiring resource is " Freaks Geeks and Aspergers syndrome " by Luke . He has aspergers and wrote the book when he was thirteen. He is sharp, funny, entertaining and very intelligent. He is a really nice kid and provides really interesting insights to aspergers kids and their parents or carers. My son is currently fixated upon the " Finding Nemo " characters and carries two models with him at all times( including bed) and would like to buy a packet of stickers at every shopping trip. This, at least, is a vast improvment upon his last fixation which was ANY video he had seen advertised on cable pay for view. Trying to explain that he could not have " Queen of the Damned " was tricky but they weren't going to sell it to a 7 year old any way. I am pretty good at dealing with his obsessions but even so it was getting expensive - still the charity stall at school this christmas should make a few quid......LOL ! I think compulsions are so hard for us parents becaues it feels like our child is out of control slightly - and when the obsession is something that is not logical to us that makes us even more uneasy - as if our child now is not behaving " normal " . It can be quite disturbing - and then being disturbed about your child behaviour can make you feel disloyal , as if you are betraying them - thinking " bad things " about them. But obsessions can be about making the child feel safe and in control - it can be a means of feeling focussed upon, and therefore comforted by, possessing something that for reasons not instantly obvious are highly desirable. I don't encourage Charlies obsessions but I try not to be too dominant about them because they worry me - I try not to over-react. It is I think significant that Charlie will often develop an obsession when he is being faced with a challenge. The previous poster, Jane, associated this with being unhappy ( as it was in her brothers case)but I don't think that need always be the case. When Charlie is having demands mnade of him in his learning enviroment he finds that difficult and an obsession may serve to help him through it. First day back at school and with a new teacher he suddenly wants to carry his sticker book to school. Its a comfort . His obsessions have lessened and move on all the more quickly the less attention I pay to them . I certainly try not to betray my own discomfort about them to him..... ( and have also lessened as every part of his ASD has improved with his dietary intervention...whispering that bit LOL!) Good luck to you and your son Regards Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Michele, You sound so frustrated. I can relate! My 7 year old daughter is alot like your son. She has apraxia and OCD- Here's a site that explains it http://www.tourettesyndrome.net/ocd.htm Lindsey knows its her OCD and talks to herself too. She tries hard not to obsess about things. She is having a very hard time in school right now. She is hitting kids,wetting. She says her teacher hates her,so she hates them ugh. And she tells then that lol! They have a hard time understanding her alot of the time because she is talking so low,with her head down. She knows her speech is different then the other kids,and it causes her alot of anxiety I think. Lindsey was put on medication to help her OCD and it has helped,along with the Pro Efa :-)) Take care,you can write to me privately if you want, borngmama@... or just write on the list. I am interested in this little boy. Lindsey Loves water too. Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi Jennie What is OCD? also has difficulty being understood and tells people they are " ugly " lucky noone understands him lol. The first time he spoke a three word sentence he was in a large shopping mall and wanted the Bad Jelly The Witch Book - (one week before his birthday and I knew Gran had it for him) I kept saying no and then said that we would have to leave the shop - we did - he stood with his hands on his hips and yelled really loud and really clear " big ugly cow " everyone looked and stared at this awful child - I just laughed and said I like how you said that but please don't call me a big ugly cow " Some people shook their heads and walked off. He also takes things to school pieces of junk mail favourite books etc and he refuses to use any communication aides he wants to be an oral communicator. And this is his biggest problem. He often sys school is boring and ugly but is quite happy to go in the mornings so it can't be all that bad. Thanks for the advice I love this site and should make an effort to get to it more often now that I work from home it is so much easier. Must go it is 7:30 in the morning and I have to make school lunches. He loves Sushi so that is what it is today I made it for him and he loves salmon and fish so that can only be a good thing. Thanks again hear from you soon Warmest regards Michele In , " Jennie Lyon " <borngmama@s...> wrote: > Michele, > You sound so frustrated. I can relate! > > My 7 year old daughter is alot like your son. > > She has apraxia and OCD- Here's a site that explains it http://www.tourettesyndrome.net/ocd.htm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Michele -- OCD stands for Obsessive Compulsive Disorder. There is one form of OCD that is recognized to be related to post-viral onset-- PANDAS. Stands for Pediatric Autoimmune N.. oops--I can't remember what the last letters stand for! LOL! But anyway, it basically is when OCD onset comes after having a strep infection. The antibodies linger and begin to attack the basal ganglia, resulting in OCD behaviors. These kids are the kind of kids who tend to have their OCD worsen right before or right after an illness. Your child doesn't have to have had an obvious " strep " case in order to have the antibodies. My own son -- I never recalled him having " strep " and yet when he had some OCD issues resurface, I managed to talk his doc into running a strep antibodies level, and sure enough it indicated that his antibodies were high and that he'd had strep at one point or another. If you do an internet search just type in PANDAS and it will bring up lots of information. A very good-write up of it is found on Slate. Just type in PANDAS and Slate and it should call up the article. I do think that OCD may be related to both bacterial and viral issues. I think there is ongoing research in this area. For Ethan, getting him on Lauricidin this summer really made a difference in his obsessions. The lauricidin is an antiviral/antibacterial/antifungal synthetic monolaurin. Monolaurin is the substance found in mothers milk to build the immune system, and also found in coconut. Lauricidin does not contain any coconut--it is synthetic. You can look at their website www.lauricidin.com for more info. When kids are emotional/angry I tend to suspect bad bacteria overgrowth. Also you mentioned that he loves salmon and fish and that is a good thing... yes it is, but moderation is key because of the mercury risk. It is very sad that we've polluted our water supply to the point that we have to worry about it, but we do. I do not know what the official guidelines for safe consumption of fish are... I think it is limited to a certain number of times per month. Reader's Digest featured an article on a San Francisco doctor (Hightower, I think her name was??) that had patients who had really odd things in common like feeling brain fog, etc., and she traced it back to their high-fish diet. In the article, they mention a boy who also seems to have suffered the effects from the mercury. The only thing I fault them with was that they also mentioned that the mom had always given fish oil capsules to the boy, too, as if that was connected. *WE* know that the fish oil capsules are not a mercury hazard but the general public would interpret it as they are. But otherwise, I think the article was a good illustration of what mercury can do when it is consumed in excess. I like fish and I wish we could eat it more, but I am concerned. W > Hi Jennie > > What is OCD? He loves Sushi so that > is what it is today I made it for him and he loves salmon and fish > so that can only be a good thing. Thanks again hear from you soon > > > Warmest regards > > > Michele > > Quote Link to comment Share on other sites More sharing options...
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