Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Hey Jolene. I had a lap to remove endo May 2005. It wasn't that bad. I was able to start walking around the next day and I was back in work in like 4 days. The really painful part was the gas in my shoulders. And I was very bloated for 2 weeks, I could only fit in sweatpants. I was restricted from having sex of course and from lifting anything for 2 weeks. And the weird thing is, after the surgery is when my vestibulitis started. So the 2 week wait on having sex became like, a year because of the pain of VV. I had thought that one caused the other, but the doc says no. I'm wondering how many people who have VV also have endometriosis... is there a link between the two?~ ~ Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Yes endo and vulvodynia can be linked. It can be linked by the fact that endo can grow in that area not only on the nerves itself but close to that area such as on the bladder. I have endo and vulvodynia in addition to a number of other health issues. As for the issue of the CO2, the shoulder pain occurs b/c the dr didn't get all the CO2 out of there after the surgery is done. This is prevented (the gas pain) by removing all the CO2 when the surgery is completed. Also, I just wanted to let it be known that just b/c a dr says you don't have endo that's not necessarily true that you don't have it. A dr who is not experienced enough with removing endo in all its color forms will tell the patient that there is no endo when a ton of it is missed b/c they don't know all the colors, or the fact that endo can grow anywhere and everywhere in the body. Jolene, I wish you well with your surgery and recovery. Feel free to e-mail me privately any time. Kristy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 > Excuse me, because I am in a bit of a morphine haze right now, so hopefully this makes sense. I always thought of Endo being mainly cramping and bleeding. I am a bit confused. Can Endo cause vaginal pain as well? Or is it the Endo is linked to vulvodynia, and that is what causes the vaginal pain? Does that make sense? I do have cramping and some internal things going on, but the worst pain is the intense pain inside my vagina, which the OB/GYN thinks is Endo. I was a little confused, as I didn't know that that was one of the symptoms.... Off to lay down, this morphine is beating me up today! Jolene > Yes endo and vulvodynia can be linked. It can be linked by the > fact that endo can grow in that area not only on the nerves > itself but close to that area such as on the bladder. > > I have endo and vulvodynia in addition to a number of other > health issues. > > As for the issue of the CO2, the shoulder pain occurs b/c the dr > didn't get all the CO2 out of there after the surgery is done. > This is prevented (the gas pain) by removing all the CO2 when > the surgery is completed. > > Also, I just wanted to let it be known that just b/c a dr says > you don't have endo that's not necessarily true that you don't > have it. A dr who is not experienced enough with removing endo > in all its color forms will tell the patient that there is no > endo when a ton of it is missed b/c they don't know all the > colors, or the fact that endo can grow anywhere and everywhere > in the body. > > Jolene, I wish you well with your surgery and recovery. > > Feel free to e-mail me privately any time. > > Kristy > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Ruby, It's ok about the morphine issue. Yes, endo can cause vaginal pain. It can grow anywhere and everywhere in the body. It can bother the vulva (which is our external genital area). The endometriosis has also messed with my immune system. Women with endometriosis are also prone to Lupus and RA, also having fibromyalgia (which I also have) is very common in women with endometriosis, for some of them they got the fibromyalgia b/c of treatments with Lupron. But endo by itself can cause the fibromyalgia. It has to do with the immune factor (and it will take some time for drs to see that endo has an autoimmune component). The endo when it connects to the vulva and even vagina is what causes the pain. A woman on one of the endo lists I'm on had endo growing on her labia minora. The reason she knew that is b/c the dr biopsied the area. Endo can grow in the vagina as well as on the outside of it and also in the space between the rectum and the vagina (the rectovaginal septum) and another area called the cul-de-sac (there's two of them but the one that seems to get it the most is the one to the back area which is the one that sits close to the uterus and rectum (this one is below the rectovaginal septum). As I said endo can grow anywhere and everywhere. It's going to take time for drs as a whole to understand this, as well as understand that endo can mess with the immune system (as in the examples I gave earlier). Cramping and bleeding are classic symptoms of endo this is true, but cramping is also common after laparoscopy. And if you had a lot of endo removed during your procedure that will make the recovery longer. The more work that is done the longer the recovery. It took me 4 months to get rid of the post-op pain from my very first laparoscopy, and 6 months with my 3rd one in 2003. Yes, you may very well have endo in your vaginal canal or on it on the other side but pls give your body a chance to heal fully first and see what happens. Even though this surgery is classified as minimally invasive b/c of the size of the incisions it is still major surgery b/c it involves the abdomen. I also encourage you to eat lightly for a while b/c your stomach will be quite sensitive during this part of your recovery. It's something I learned the hard way. Pls keep us posted on how you do with your recovery. E-mail me if you have more questions. Also, March is National Endometriosis Awareness Month, and in addition to that some States also have a similar bill for their State. Wyoming was just added to the list of States that passed an Endometriosis Awarenes Month bill for the State level. I recommend for an endo group on Yahoogroups the following: http://groups.yahoo.com/group/erc If you do decide to join let the moderators know that I referred you to the list. Two good books about endo are: The Endometriosis Sourcebook and Endometriosis: A Complete Reference for Taking Charge of your Health both by Lou Ballweg and the Endometriosis Association. The two endo organizations that are recognizable: Endometriosis Association: http://www.endometroisassn.org Endometriosis Research Center: http://www.endocenter.org I support both organizations. I hope this helps, and I wish you well. Kristy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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